{"id":56720,"date":"2025-04-26T14:08:55","date_gmt":"2025-04-26T12:08:55","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=56720"},"modified":"2025-04-26T14:08:55","modified_gmt":"2025-04-26T12:08:55","slug":"na-smrt-nemocne-deti-se-leci-v-centru-detske-podpurne-pece","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=56720","title":{"rendered":"Na smrt nemocn\u00e9 d\u011bti se l\u00e9\u010d\u00ed v centru d\u011btsk\u00e9 podp\u016frn\u00e9 p\u00e9\u010de"},"content":{"rendered":"\n<p>\u010cT 1&nbsp;<\/p>\n\n\n\n<p>Dr. Lucie Hrdli\u010dkov\u00e1, vedouc\u00ed l\u00e9ka\u0159ka t\u00fdmu d\u011btsk\u00e9 podp\u016frn\u00e9 p\u00e9\u010de p\u0159i Fakultn\u00ed nemocnice v Motole, dobr\u00fd den. J\u00e1 jsem vynechala slovo paliativn\u00ed. Vynech\u00e1v\u00e1te ho taky?<br \/><br \/>Dr. Lucie Hrdli\u010dkov\u00e1,<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>Ano. D\u011bkuju hned za tenhleten dotaz. \u00davodem. N\u00e1\u0161 t\u00fdm se jmenuje t\u00fdm d\u011btsk\u00e9 podp\u016frn\u00e9 p\u00e9\u010de, a p\u0159esto\u017ee poskytuje jak podp\u016frnou, tak paliativn\u00ed p\u00e9\u010di, tak tohle slovo z\u00e1m\u011brn\u011b vynech\u00e1v\u00e1me. Ono p\u016fsob\u00ed n\u011bkdy takov\u00fdm z\u00fazkost\u0148uj\u00edc\u00edm dojmem jak na rodiny, tak i na person\u00e1l a ten m\u016f\u017ee potom tro\u0161i\u010dku v\u00e1hat s p\u0159ivol\u00e1n\u00edm na\u0161eho t\u00fdmu pro zapojen\u00ed v p\u00e9\u010di o pacienta, tak\u017ee po vzoru zahrani\u010dn\u00edch pracovi\u0161\u0165 jsme slovo paliativn\u00ed vynechali z n\u00e1zvu toho t\u00fdmu, ale poskytujeme p\u00e9\u010di ve\u0161kerou podp\u016frnou i paliativn\u00ed i p\u00e9\u010di v z\u00e1v\u011bru \u017eivota.<br \/><br \/>mluv\u010d\u00ed 4,<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>Vy jste historicky prvn\u00edm centrem, kter\u00e9 poskytuje tuto p\u00e9\u010di pro d\u011btsk\u00e9 pacienty v \u010cesk\u00e9 republice fungujete u\u017e dev\u011bt let, co se za t\u011bch dev\u011bt let prom\u011bnilo, kam jste se posunuli? Jak to vn\u00edm\u00e1te?<br \/><br \/>mluv\u010d\u00ed 3,<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>My jsme za\u010dali p\u016fvodn\u011b na d\u011btsk\u00e9 onkologii, kde j\u00e1 p\u016fsob\u00edm u\u017e t\u00e9m\u011b\u0159 20 let a prvn\u011b jsme se za\u010dali starat o pacienty, kte\u0159\u00ed m\u011bli podlehnout sv\u00e9 diagn\u00f3ze, proto\u017ee zhruba p\u011btina d\u011btsk\u00fdch pacient\u016f se nevyl\u00e9\u010d\u00ed ze sv\u00e9 malignity, ze sv\u00e9ho onkologick\u00e9 onemocn\u011bn\u00ed. A j\u00e1 jsem vid\u011bla, jak pro m\u011b i pro kolegy vlastn\u011b velmi t\u011b\u017ek\u00e9 si n\u011bjak p\u0159ipustit, \u017ee d\u011bti nemus\u00ed p\u0159e\u017e\u00edt tuhle tu z\u00e1va\u017enou diagn\u00f3zu a cht\u011bla jsem naj\u00edt zp\u016fsob, jak pomoci i t\u00e9 p\u011btin\u011b pacient\u016f, kte\u0159\u00ed bohu\u017eel podlehnou sv\u00e9mu onemocn\u011bn\u00ed a od t\u011bch p\u016fvodn\u00edch za\u010d\u00e1tk\u016f, kdy jsme pe\u010dovali o d\u011bti v sam\u00e9m z\u00e1v\u011bru \u017eivota, s velmi, velmi nep\u0159\u00edznivou progn\u00f3zou jsme se postupn\u011b b\u011bhem t\u011bch dev\u00edti let posunuli jednak na velkou \u010d\u00e1st pracovi\u0161\u0165 v d\u011btsk\u00e9 \u010d\u00e1sti Fakultn\u00ed nemocnice v Motole, tak\u017ee u\u017e se nestar\u00e1me jenom o d\u011bti s n\u00e1dorov\u00fdm onemocn\u011bn\u00edm, ale tak\u00e9 jsme se dostali do p\u00e9\u010de velmi \u010dasn\u011b, n\u011bkdy u\u017e i p\u0159i diagn\u00f3ze toho z\u00e1va\u017en\u00e9ho onemocn\u011bn\u00ed, tak, aby ta podpora na\u0161im t\u00fdmem a v\u0161echny ty profese, kter\u00e9 ten t\u00fdm obsahuje, mohla b\u00fdt v kontaktu s tou rodinou u\u017e v pr\u016fb\u011bhu t\u00e9 l\u00e9\u010dby, nejenom t\u0159eba na tom samotn\u00e9m konci.<br \/><br \/>mluv\u010d\u00ed 1,<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>Na ty profese se v\u00e1s pr\u00e1v\u011b tak\u00e9 chceme zeptat, kdo v\u0161echno je sou\u010d\u00e1st\u00ed toho t\u00fdmu.<br \/><br \/>mluv\u010d\u00ed 3,<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>Tak my v podp\u016frn\u00e9 a paliativn\u00ed p\u00e9\u010di hovo\u0159\u00edme o takov\u00fdch \u010dty\u0159ech z\u00e1kladn\u00edch profes\u00edch nebo kl\u00ed\u010dov\u00fdch profes\u00edch. Je to l\u00e9ka\u0159, sestra, soci\u00e1ln\u00ed pracovn\u00edk a psycholog, tak\u017ee t\u011bch m\u00e1me \u0159adu. V na\u0161em t\u00fdmu n\u00e1\u0161 t\u00fdm disponuje ale tak\u00e9 \u0159adou dal\u0161\u00edch profes\u00ed. M\u00e1me fyzioterapeuta, m\u00e1me kaplana, m\u00e1me ergoterapeuta, m\u00e1me muzikoterapeutku, tak\u017ee se sna\u017e\u00edme ten t\u00fdm je\u0161t\u011b obohatit o dal\u0161\u00ed d\u016fle\u017eit\u00e9 podp\u016frn\u00e9 profese, kter\u00e9 mohou v\u0161emo\u017en\u00fdmi zp\u016fsoby napomoci rodin\u011b, aby zvl\u00e1dla tuhle tu t\u011b\u017ekou, t\u011b\u017ekou \u017eivotn\u00ed situaci.<br \/><br \/>mluv\u010d\u00ed 4,<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>J\u00e1 bych r\u00e1da div\u00e1k\u016fm je\u0161t\u011b p\u0159ipomn\u011bla, \u017ee vy jste tak\u00e9 jednou ze \u0161pi\u010dkov\u00fdch l\u00e9ka\u0159\u016f, se kter\u00fdmi byl nato\u010den tzv. videoportr\u00e9t v r\u00e1mci cyklu Mist\u0159i medic\u00edny. Tak pokud div\u00e1ci nevid\u011bli pr\u00e1v\u011b ten v\u00e1\u0161 d\u00edl, tak ho mohou ur\u010dit\u011b dohledat v archivn\u00edm vys\u00edl\u00e1n\u00ed \u010cesk\u00e9 televize a tam b\u011bhem p\u016fl hodiny vlastn\u011b vy jste pr\u016fvodcem t\u00e9 va\u0161\u00ed pr\u00e1ce, \u00fapln\u011b neuv\u011b\u0159iteln\u00e9 pr\u00e1ce, kterou d\u011bl\u00e1te pro sv\u00e9 pacienty a tam je vid\u011bt ten v\u00e1\u0161 p\u0159\u00edstup i k t\u011bm rodi\u010d\u016fm t\u011bch va\u0161ich pacient\u016f a je tam vid\u011bt, \u017ee je to d\u016fle\u017eit\u00e9 m\u00edt ty rodi\u010de va\u0161ich pacient\u016f na sv\u00e9 stran\u011b, komunikovat s nimi a b\u00fdt tam pro n\u011b.<br \/><br \/>mluv\u010d\u00ed 3,<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>No jasn\u011b, tak to je \u00fapln\u011b kl\u00ed\u010dov\u00e9, v\u017edycky \u0159\u00edk\u00e1me, \u017ee je pot\u0159eba m\u00edt na palub\u011b, tak jako v\u0161ichni jsme na stejn\u00e9 lodi, v\u0161em n\u00e1m jde o to stejn\u00e9. My se sna\u017e\u00edme vyl\u00e9\u010dit d\u00edt\u011b, pokud nen\u00ed u\u017e vyl\u00e9\u010den\u00ed mo\u017en\u00e9, tak se sna\u017e\u00edme co nejl\u00e9pe prodlou\u017eit jeho \u017eivot v dobr\u00e9 kvalit\u011b, aby \u017eilo co nejl\u00e9pe, a nem\u00edt rodi\u010de na palub\u011b nebo na sv\u00e9 stran\u011b je n\u011bco \u00fapln\u011b nep\u0159edstaviteln\u00e9ho v d\u011btsk\u00e9 medic\u00edn\u011b, tak\u017ee snahou na\u0161eho t\u00fdmu, a nejenom na\u0161eho t\u00fdmu, ale trouf\u00e1m si tvrdit, \u017ee vlastn\u011b v\u0161ech pracovi\u0161\u0165 na d\u011btsk\u00e9 \u010d\u00e1sti Fakultn\u00ed nemocnice Motole, je dob\u0159e komunikovat s rodi\u010di a skute\u010dn\u011b vn\u00edmat je jako partnery v diskuzi. V r\u00e1mci l\u00e9\u010dby nemocn\u00e9ho d\u00edt\u011bte to ani jinak nejde.<br \/><br \/>Barbora \u010cerno\u0161kov\u00e1, moder\u00e1torka<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>To je \u00fa\u017easn\u00e9. Co \u0159\u00edk\u00e1te, i co d\u011bl\u00e1te, co ty rodi\u010de nejv\u00edc zaj\u00edm\u00e1 a nejv\u00edc tr\u00e1p\u00ed?<br \/><br \/>mluv\u010d\u00ed 3,<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>J\u00e1 se domn\u00edv\u00e1m, \u017ee co n\u00e1m v\u017edycky otev\u0159e dve\u0159e k rodi\u010d\u016fm je to, kdy\u017e je opravdu respektujeme, jako n\u011bjak\u00e9 experty na to d\u00edt\u011b, a my m\u00e1me v medic\u00edn\u011b tendenci hodn\u011b se jako chopit cel\u00e9ho toho procesu, proto\u017ee rozum\u00edme t\u00e9 nemoci, rozum\u00edme t\u00e9 l\u00e9\u010db\u011b a je to n\u011bco, co r\u00e1di p\u0159edstav\u00edme rodi\u010d\u016fm s c\u00edlem tomu d\u00edt\u011bti pomoct. Kdo ale v\u00ed nejv\u00edc o tom d\u00edt\u011bti samotn\u00e9m, je pr\u00e1v\u011b ten rodi\u010d, kter\u00fd n\u00e1m m\u016f\u017ee hodn\u011b pomoci v tom, jak m\u00e1me s t\u00edm d\u00edt\u011btem co nejl\u00e9pe komunikovat, jak k n\u011bmu m\u00e1me co nejl\u00e9pe p\u0159istupovat, jak n\u011bkter\u00e9 ot\u00e1zky t\u00e9 l\u00e9\u010dby co nejl\u00e9pe uchopit. A ve chv\u00edli, kdy respektujeme tu rodi\u010dovskou roli a d\u00e1me rodi\u010d\u016fm prostor, aby n\u00e1m \u0159ekli, jak\u00e9 je to d\u00edt\u011b jako lidsk\u00e1 bytost, co m\u00e1 r\u00e1do, co ho zaj\u00edm\u00e1, co ho bav\u00ed, co je pro n\u011bj nejt\u011b\u017e\u0161\u00ed v r\u00e1mci pobytu v nemocnici, co je pro toho rodi\u010de t\u011b\u017ek\u00e9 v r\u00e1mci pobytu v nemocnici, kdy mu to vlastn\u011b br\u00e1n\u00ed b\u00fdt rodi\u010dem tak, jak\u00fdm byl zvykl\u00fd, kdy\u017e byl norm\u00e1ln\u011b v dom\u00e1c\u00edm prost\u0159ed\u00ed nebo v oby\u010dejn\u00e9m provozu, tak to jsou v\u0161ecko v\u011bci, kter\u00e9, mysl\u00edm, hodn\u011b pom\u00e1haj\u00ed t\u00e9 dobr\u00e9 spolupr\u00e1ci, proto\u017ee respekt k rodi\u010d\u016fm a k t\u00e9 jejich unik\u00e1tn\u00ed roli jako rodi\u010de, kter\u00fd n\u00e1m m\u016f\u017ee pomoci s p\u00e9\u010d\u00ed o to d\u00edt\u011b, tak ten bych \u0159ekla, \u017ee je asi nejd\u016fle\u017eit\u011bj\u0161\u00ed, a to rodi\u010de zaj\u00edm\u00e1, rodi\u010de zaj\u00edm\u00e1, abychom jim tohle umo\u017enili, aby dostali prostor.<br \/><br \/>mluv\u010d\u00ed 4,<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>Ve sv\u00e9m t\u00fdmu M\u00e1te tak\u00e9 psychology, kte\u0159\u00ed pom\u00e1haj\u00ed nejen samotn\u00fdm pacient\u016fm, ale m\u016f\u017eou b\u00fdt n\u00e1pomocni tak\u00e9 pr\u00e1v\u011b rodi\u010d\u016fm.<br \/><br \/>mluv\u010d\u00ed 3,<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>Ano, m\u00e1me n\u011bkolik psycholog\u016f, psychologick\u00e1 p\u00e9\u010de u d\u011bt\u00ed v p\u00e9\u010di na\u0161eho t\u00fdmu je absolutn\u00edm standardem, standardem je tak\u00e9 p\u00e9\u010de o sourozence a o rodi\u010de. N\u011bkdy i jin\u00ed rodinn\u00ed p\u0159\u00edslu\u0161n\u00edci se vyj\u00e1d\u0159\u00ed, \u017ee by si p\u0159\u00e1li podporu psychologickou, n\u011bkdy ta situace je tak rozehran\u00e1, \u017ee podporujeme psychologicky t\u0159eba toho nemocn\u00e9ho pacienta a jeho sourozence a zvl\u00e1\u0161\u0165 psycholog na\u0161eho t\u00fdmu pracuje s rodi\u010di, tak\u017ee ne v\u017edycky je zapojen jenom jeden psycholog na\u0161eho t\u00fdmu, co\u017e je v po\u0159\u00e1dku, a sna\u017e\u00edme se co podp\u016frn\u00fdm zp\u016fsobem doprov\u00e1zet to d\u00edt\u011b v pr\u016fb\u011bhu t\u00e9 l\u00e9\u010dby, n\u011bkdy na tom konci \u017eivota, pokud k n\u011bmu dosp\u011bje, aby to zvl\u00e1dala vlastn\u011b cel\u00e1 ta rodina a ten rodinn\u00fd syst\u00e9m co nejl\u00edp dohromady.<br \/><br \/> moder\u00e1torka<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>V\u011bt\u0161\u00ed ten t\u00fdm ve spolupr\u00e1ci nebo v kontextu t\u00e9 jedn\u00e9 rodiny je d\u016fle\u017eit\u00fd, proto\u017ee ka\u017ed\u00e9ho toho \u010dlov\u011bka zaj\u00edm\u00e1 a tr\u00e1p\u00ed n\u011bco jin\u00e9ho rodi\u010de a n\u011bco jin\u00e9ho d\u00edt\u011b, i kdy\u017e je to stejn\u00e1 nemoc, stejn\u00e1 situace, kdy\u017e se na to d\u00edv\u00e1 \u010dlov\u011bk zvenku&#8230;.<br \/><br \/>mluv\u010d\u00ed 3,<br \/>&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>No tak ur\u010dit\u011b to tak m\u016f\u017ee b\u00fdt a \u010dasto to tak je, j\u00e1 tomu r\u00e1da \u0159\u00edk\u00e1m, \u017ee ka\u017ed\u00fd m\u00e1 n\u011bjakou agendu v t\u00e9 situaci a samoz\u0159ejm\u011b pro rodi\u010de jsou \u010dasto velmi d\u016fle\u017eit\u00e9 ot\u00e1zky budoucnosti toho d\u00edt\u011bte, jak na tom bude po fyzick\u00e9 str\u00e1nce&#8230;Jak bude vypadat jeho budoucnost&#8230;. T\u0159eba stran vzd\u011bl\u00e1v\u00e1n\u00ed? Jak dlouho budou v nemocnici, a jestli se v\u016fbec vyl\u00e9\u010d\u00ed, jak bude ta l\u00e9\u010dba vypadat, jak moc bude toxick\u00e1, jestli podstoup\u00ed n\u011bjak\u00fd velk\u00fd t\u0159eba amputa\u010dn\u00ed v\u00fdkon u n\u00e1s na d\u011btsk\u00e9 onkologii a pro d\u011btsk\u00e9 pacienty podle toho, jak\u00e9ho jsou v\u011bku a taky podle toho, jak\u00e9ho jsou t\u0159eba ment\u00e1ln\u00edho v\u00fdvoje, na kter\u00e9 \u00farovni. My \u0159e\u0161\u00edme s d\u011btmi, \u017ee nemohou b\u00fdt v kolektivu sv\u00fdch vrstevn\u00edk\u016f, \u017ee p\u0159i\u0161li o ly\u017ea\u0159sk\u00fd v\u00fdcvik se t\u0159\u00eddou, proto\u017ee mus\u00ed b\u00fdt v nemocnici. Mal\u00e9 d\u011bti \u010dasto mrz\u00ed, \u017ee se jim st\u00fdsk\u00e1 po jejich pejskovi nebo po sourozenci.. A to m\u011b v\u017edycky \u00fapln\u011b l\u00e1me srdce. M\u00e1me d\u011bti, kter\u00e9 t\u0159eba maj\u00ed doma miminko, proto\u017ee mamince se narodilo dal\u0161\u00ed d\u011b\u0165\u00e1tko a oni ho nemohou vid\u011bt a vid\u00ed ho jenom na t\u011bch tabletech, kdy\u017e si d\u011blaj\u00ed videohovory, tak to jsou takov\u00e9 v\u011bci, kter\u00e9 zase mohou b\u00fdt hodn\u011b d\u016fle\u017eit\u00e9 pro ty d\u011btsk\u00e9 pacienty a mysl\u00edm, \u017ee je kl\u00ed\u010dov\u00e9 v\u0161em d\u00e1t ten prostor, aby \u0159ekli, co je tr\u00e1p\u00ed, co by si p\u0159\u00e1li, co je pro n\u011b t\u011b\u017ek\u00e9 a abychom naslouchali \u00fapln\u011b v\u0161em, by\u0165 n\u011bkter\u00e9 ty d\u011btsk\u00e9 starosti se n\u00e1m mohou zd\u00e1t tro\u0161ku ban\u00e1ln\u00ed v kontextu l\u00e9\u010dby \u017eivot ohro\u017euj\u00edc\u00edho onemocn\u011bn\u00ed.<br \/><br \/><br \/><\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>\u010cT 1&nbsp; Dr. Lucie Hrdli\u010dkov\u00e1, vedouc\u00ed l\u00e9ka\u0159ka t\u00fdmu d\u011btsk\u00e9 podp\u016frn\u00e9 p\u00e9\u010de p\u0159i Fakultn\u00ed nemocnice v Motole, dobr\u00fd den. J\u00e1 jsem vynechala slovo paliativn\u00ed. Vynech\u00e1v\u00e1te ho <a class=\"mh-excerpt-more\" href=\"https:\/\/www.invarena.cz\/?p=56720\" title=\"Na smrt nemocn\u00e9 d\u011bti se l\u00e9\u010d\u00ed v centru d\u011btsk\u00e9 podp\u016frn\u00e9 p\u00e9\u010de\">[&#8230;]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14373,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-56720","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/56720","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=56720"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/56720\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14373"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=56720"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=56720"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=56720"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}