<\/p>\n\n\n\n
\u010cT 1<\/p>\n\n\n\n
V\u00edce ne\u017e 25 let \u017eije s ko\u017en\u00edm onemocn\u011bn\u00edm vitiligo. Pro\u0161la si dlouh\u00fdm bojem, ne\u017e p\u0159ijala samu sebe, nakonec se j\u00ed to povedlo. Na\u0161\u00edm hostem je zakladatelka Vitiligo klubu Monika Kop\u010dilov\u00e1, v\u00edtejte v po\u0159adu Sama doma.<\/p>\n\n\n\n
mluv\u010d\u00ed 6,
——————–
Na za\u010d\u00e1tek asi poj\u010fme n\u00e1m p\u0159edstavit v\u016fbec, co to vitiligo je, jak si to m\u016f\u017eeme p\u0159edstavit.<\/p>\n\n\n\n
mluv\u010d\u00ed 7,
——————–
Ano, tak\u017ee vitiligo je autoimunitn\u00ed onemocn\u011bn\u00ed, co\u017e znamen\u00e1, \u017ee vlastn\u011b na\u0161e t\u011blo napad\u00e1 na\u0161\u00ed k\u016f\u017ei nebo ty bu\u0148ky jsou vlastn\u011b naru\u0161en\u00e9 a ten pigment miz\u00ed z t\u00e9 k\u016f\u017ee, projevuje se to b\u00edl\u00fdmi skvrnami na t\u00e9 k\u016f\u017ei a v\u011bt\u0161inou k tomu vitiligu jsou i p\u0159idru\u017een\u00e9 autoimunitn\u00ed nemoci, jako t\u0159eba cukrovka nebo onemocn\u011bn\u00ed \u0161t\u00edtn\u00e9 \u017el\u00e1zy.<\/p>\n\n\n\n
mluv\u010d\u00ed 1,
——————–
V jak\u00e9m v\u011bku se vitiligo nej\u010dast\u011bji diagnostikuje, kdy, kdy ho nej\u010dast\u011bji objev\u00edme…..<\/p>\n\n\n\n
mluv\u010d\u00ed 7,
——————–
Tak v\u011bt\u0161inou se diagnostikuje mezi osm\u00fdm a dvac\u00e1t\u00fdm rokem, ale jsou samoz\u0159ejm\u011b i v\u00fdjimky, kdy je to d\u0159\u00edve anebo pozd\u011bji, anebo potom vlivem n\u011bjak\u00fdch hormon\u00e1ln\u00edch zm\u011bn t\u0159eba v t\u011bhotenstv\u00ed.<\/p>\n\n\n\n
mluv\u010d\u00ed 6,
——————–
Je d\u011bdi\u010dn\u00e9…..<\/p>\n\n\n\n
mluv\u010d\u00ed 7,
——————–
Je tam n\u011bjak\u00fd genetick\u00fd z\u00e1klad, ale je\u0161t\u011b to neznamen\u00e1, \u017ee pokud \u010dlov\u011bk s vittiligem bude m\u00edt d\u011bti, \u017ee i ty d\u011bti budou m\u00edt vitiligo, samoz\u0159ejm\u011b je tam v\u011bt\u0161\u00ed p\u0159edpoklad, ale nemus\u00ed to tak v\u017edycky b\u00fdt.<\/p>\n\n\n\n
mluv\u010d\u00ed 4,
——————–
Kdy jste to zjistila vy a jak jste s t\u00edm ze za\u010d\u00e1tku vych\u00e1zela? M\u011bla jste s t\u00edm n\u011bjak\u00e9 probl\u00e9my? Bojovala jste s t\u00edm?<\/p>\n\n\n\n
mluv\u010d\u00ed 7,
——————–
J\u00e1 jsem byla diagnostikovan\u00e1 kolem toho osm\u00e9ho roku \u017eivota, tak\u017ee velice z\u00e1hy v d\u011btstv\u00ed, potom, co jsem str\u00e1vila t\u0159i t\u00fddny sama od rodi\u010d\u016f na d\u011btsk\u00e9m nebo letn\u00edm t\u00e1bo\u0159e a pro\u0161la jsem si tam takov\u00fdm dost stresov\u00fdm obdob\u00edm bez t\u011bch rodi\u010d\u016f a mysl\u00edm si, \u017ee to bylo vyvolan\u00e9 pr\u00e1v\u011b t\u00edm stresem, tak\u017ee od toho d\u011btstv\u00ed, a to, \u017ee docela dlouho jsem chodila po l\u00e9ka\u0159\u00edch, byla jsem u dermatologa, ten mi \u0159ekl, \u017ee prost\u011b neexistuje na to \u017e\u00e1dn\u00e1 l\u00e9\u010dba a pak jsem se musela vyrovn\u00e1vat samoz\u0159ejm\u011b s t\u011bmi n\u00e1sledky \u017eivota, s viditelnou odli\u0161nost\u00ed.<\/p>\n\n\n\n
mluv\u010d\u00ed 6,
——————–
Na to se chci pr\u00e1v\u011b zeptat. Jak reagovalo okol\u00ed? Asi to v\u017edy nebyly p\u0159\u00edjemn\u00e9 koment\u00e1\u0159e.<\/p>\n\n\n\n
mluv\u010d\u00ed 7,
——————–
Tak ono je p\u0159ekvapiv\u00e9, \u017ee v m\u00e9m p\u0159\u00edpad\u011b ty koment\u00e1\u0159e p\u0159i\u0161ly sp\u00ed\u0161e od dosp\u011bl\u00fdch ne\u017e jako od vrstevn\u00edk\u016f. A proto\u017ee s t\u00edm vitiligem je spojen\u00e1 i t\u0159eba barva vlas\u016f, proto\u017ee pokud nem\u00e1te pigment v k\u016f\u017ei, nem\u00e1te pigment ani v t\u011bch vlasech, tak\u017ee ty vlasy jsou b\u00edl\u00e9, tak j\u00e1 si pamatuju, \u017ee prost\u011b kdy\u017e jsem \u0161la ke kade\u0159nici, kdy rodi\u010de se rozhodli, \u017ee rad\u0161i ty vlasy budeme barvit, abysme p\u0159ede\u0161li n\u011bjak\u00fdm t\u011bm koment\u00e1\u0159\u016fm, tak zrovna ta kade\u0159nice prost\u011b u\u017e m\u011bla jako nar\u00e1\u017eky na to, \u017ee byla \u00fapln\u011b v \u0161oku, jak je mo\u017en\u00e9, \u017ee takov\u00e9 mal\u00e9 d\u00edt\u011b m\u00e1 prost\u011b b\u00edl\u00e9 vlasy.A i na tom t\u00e1bo\u0159e t\u0159eba zdravotnice, kter\u00e9 kontrolovaly to t\u011blo a ty vlasy, tak prost\u011b tam p\u0159ed 90 d\u011btmi zm\u00ednily, jako \u017ee to je n\u011bco neobvykl\u00e9ho a tehdy se o tom vitriligu tolik nev\u011bd\u011blo, tak\u017ee o to v\u00edc to bylo n\u00e1ro\u010dn\u00e9.<\/p>\n\n\n\n
mluv\u010d\u00ed 1,
——————–
No, \u0159\u00edk\u00e1te, tehdy se nev\u011bd\u011blo, m\u00e1te t\u0159eba pocit, \u017ee v t\u011bch posledn\u00edch letech, j\u00e1 nev\u00edm, v posledn\u00edch t\u0159eba 10 letech doch\u00e1z\u00ed k n\u011bjak\u00e9mu posunu pokroku v tom vn\u00edm\u00e1n\u00ed.<\/p>\n\n\n\n
mluv\u010d\u00ed 7,
——————–
J\u00e1 si mysl\u00edm, \u017ee celosv\u011btov\u011b ur\u010dit\u011b ano. V \u010cesku bohu\u017eel neexistuje organizace, kter\u00e1 by se v\u011bnovala vitiligu n\u011bjak z\u00e1m\u011brn\u011b, tak\u017ee tady je to tro\u0161i\u010dku slo\u017eit\u011bj\u0161\u00ed, ale proto\u017ee m\u00e1me p\u0159\u00edstup t\u0159eba k reklam\u00e1m i v zahrani\u010d\u00ed, kde se objevuj\u00ed modelov\u00e9 a modelky s vitiligem, tak si mysl\u00edm, \u017ee v\u00edce a v\u00edce lid\u00ed o tom onemocn\u011bn\u00ed v\u00ed, ale to je\u0161t\u011b neznamen\u00e1, \u017ee ti pacienti jsou psychicky na tom tak dob\u0159e. \u017ee by to vitiligo d\u00e1l neskr\u00fdvali. Tak\u017ee j\u00e1 se hodn\u011b potk\u00e1v\u00e1m s t\u00edm, \u017ee spousta lid\u00ed v\u016fbec nev\u00ed, co to vlastn\u011b je a t\u0159eba se s t\u00edm ani nikdy nesetkali. A p\u0159itom m\u00e1 vitiligo 1\u20132 % populace celosv\u011btov\u011b, to znamen\u00e1, \u017ee n\u011bjak\u00fdch 200 000 lid\u00ed v \u010cesk\u00e9 republice, tak\u017ee je velk\u00e1 \u0161ance, \u017ee ka\u017ed\u00fd z n\u00e1s zn\u00e1 n\u011bkoho, kdo m\u00e1 vitiligo, ale t\u0159eba nev\u00edme, \u017ee to vitiligo m\u00e1.<\/p>\n\n\n\n
mluv\u010d\u00ed 6,
——————–
Moniko, mockr\u00e1t d\u011bkujeme za osv\u011btu tohoto ko\u017en\u00edho onemocn\u011bn\u00ed. <\/p>\n\n\n\n
<\/p>\n","protected":false},"excerpt":{"rendered":"
\u010cT 1 V\u00edce ne\u017e 25 let \u017eije s ko\u017en\u00edm onemocn\u011bn\u00edm vitiligo. Pro\u0161la si dlouh\u00fdm bojem, ne\u017e p\u0159ijala samu sebe, nakonec se j\u00ed to povedlo. Na\u0161\u00edm […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":35546,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[12],"tags":[],"class_list":["post-56926","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rozhovory"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/56926","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=56926"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/56926\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/35546"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=56926"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=56926"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=56926"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}