Alex m\u00e1 v l\u00e9ka\u0159sk\u00e9 kart\u011b hned n\u011bkolik vz\u00e1cn\u00fdch diagn\u00f3z. Do p\u011bti let byl p\u0159itom zcela zdrav\u00fd chlapec, pak ale p\u0159i\u0161la ch\u0159ipka. Docela b\u011b\u017en\u00fd virus mu zp\u016fsobil epilepsii, z\u00e1n\u011bt mozku a aktivoval dal\u0161\u00ed vz\u00e1cn\u00e1 onemocn\u011bn\u00ed. Dnes je Alex z\u00e1visl\u00fd na nep\u0159etr\u017eit\u00e9 p\u00e9\u010di. Jeho maminka si kv\u016fli n\u00e1ro\u010dn\u00e9 p\u00e9\u010di sah\u00e1 a\u017e na dno sv\u00fdch fyzick\u00fdch i psychick\u00fdch sil.<\/p>\n\n\n\n
Alex byl do p\u011bti let naprosto zdrav\u00fdm chlapcem. Chodil do \u0161kolky a nic nenasv\u011bd\u010dovalo tomu, \u017ee by v budoucnu \u010delil v\u00e1\u017en\u00fdm zdravotn\u00edm probl\u00e9m\u016fm. V\u0161e ov\u0161em zm\u011bnila ch\u0159ipka. Virus, ze kter\u00e9ho se v\u011bt\u0161ina lid\u00ed uzdrav\u00ed za p\u00e1r dn\u00ed, toti\u017e spustil u Alexe smr\u0161\u0165 nevratn\u00fdch proces\u016f.<\/p>\n\n\n\n
\u201eDodnes mi zn\u00ed v u\u0161\u00edch, jak pan\u00ed doktorka hlasit\u011b zavelela: \u201aResuscita\u010dn\u00ed t\u00fdm, rychle!\u2018,\u201c vzpom\u00edn\u00e1 Alexova maminka Alice na okam\u017eiky, kter\u00e9 cel\u00e9 rodin\u011b obr\u00e1tily \u017eivot naruby.<\/p>\n\n\n\n
Ch\u0159ipka, z\u00e1chvat, k\u00f3ma a boj o \u017eivot<\/p>\n\n\n\n
Virus ch\u0159ipky spustil u Alexe bou\u0159livou imunitn\u00ed reakci, kter\u00e1 skon\u010dila z\u00e1n\u011btem mozku. Alex dostal prvn\u00ed epileptick\u00fd z\u00e1chvat a byl p\u0159evezen do nemocnice.<\/p>\n\n\n\n
\u201eAlex\u00edk byl po hodin\u011b ne\u00fasp\u011b\u0161n\u00fdch pokus\u016f o zm\u00edrn\u011bn\u00ed z\u00e1chvatu uveden do um\u011bl\u00e9ho sp\u00e1nku,\u201c vzpom\u00edn\u00e1 Alice.<\/p>\n\n\n\n
V komatu nakonec z\u016fstal Alex cel\u00fd m\u011bs\u00edc. Po probuzen\u00ed se ocitl \u00fapln\u011b na za\u010d\u00e1tku, a to jak fyzicky, tak ment\u00e1ln\u011b. Ale to nejhor\u0161\u00ed m\u011bl m\u00edt Alex vybojov\u00e1no.<\/p>\n\n\n\n
\u201eProgn\u00f3za byla ale celkem dobr\u00e1. Mysleli jsme, \u017ee v\u0161echno do\u017eene a s epilepsi\u00ed \u010di m\u00edrn\u00fdm ment\u00e1ln\u00edm opo\u017ed\u011bn\u00edm se d\u00e1 v\u00e9st celkem norm\u00e1ln\u00ed a produktivn\u00ed \u017eivot. V\u011b\u0159ili jsme,\u201c vypr\u00e1v\u00ed Alice.<\/p>\n\n\n\n
Virus zp\u016fsobil z\u00e1n\u011bt mozku a genetick\u00e9 mutace<\/p>\n\n\n\n
Alex se podle o\u010dek\u00e1v\u00e1n\u00ed l\u00e9ka\u0159\u016f a s podporou rodiny za\u010dal zotavovat, dokonce i chodil. Pak ale p\u0159i\u0161lo najednou dramatick\u00e9 zhor\u0161en\u00ed.<\/p>\n\n\n\n
\u201eV l\u00e9t\u011b 2019 vy\u0161et\u0159en\u00ed uk\u00e1zala rozs\u00e1hl\u00e9 po\u0161kozen\u00ed mozku. Museli jsme se sm\u00ed\u0159it s t\u00edm, \u017ee Alex\u00edk u\u017e nikdy nebude jako d\u0159\u00edv,\u201c popisuje Alice.<\/p>\n\n\n\n
L\u00e9ka\u0159i d\u00e1le p\u00e1trali po p\u0159\u00ed\u010din\u011b zhor\u0161en\u00ed. Alex podstupoval st\u00e1le v\u00edce test\u016f, kter\u00e9 nakonec za\u010daly ukazovat na vin\u00edka zhor\u0161en\u00ed jeho stavu. L\u00e9pe \u0159e\u010deno vin\u00edky. Alex si vyslechl hned n\u011bkolik diagn\u00f3z, mezi nimi z\u00e1va\u017en\u00e1 genetick\u00e1 onemocn\u011bn\u00ed vznikl\u00e1 de novo \u2013 tedy takov\u00fdch, kter\u00e9 nezd\u011bdil po rodi\u010d\u00edch, ale vznikla u n\u011bho nov\u011b.<\/p>\n\n\n\n
\u201eVirus se dostal d\u00e1l, ne\u017e je b\u011b\u017en\u00e9 a odemkl pomysln\u00e9 z\u00e1me\u010dky drobn\u00fdch odchylek v mitochondri\u00e1ln\u00ed DNA,\u201c vysv\u011btluje Alexova maminka.<\/p>\n\n\n\n
Alex je na \u00farovni 4let\u00e9ho v t\u011ble 15let\u00e9ho<\/p>\n\n\n\n
Od osudn\u00e9 n\u00e1kazy ch\u0159ipkou je to v\u00edce ne\u017e \u0161est let. Alexova rodina tvrd\u011b bojuje za ka\u017ed\u00fd jeho pokrok, vyhl\u00eddky ale nejsou nejlep\u0161\u00ed.<\/p>\n\n\n\n
\u201eJe to 11let\u00fd chlapec v t\u011ble 15let\u00e9ho s ment\u00e1ln\u00ed \u00farovn\u00ed p\u0159ed\u0161kol\u00e1ka,\u201c shrnuje Alex\u016fv stav maminka Alice.<\/p>\n\n\n\n
Nad\u011bje se ale nevzd\u00e1v\u00e1. \u201eV\u00fdvoj je znateln\u00fd a j\u00e1 v\u011b\u0159\u00edm, \u017ee dos\u00e1hneme dal\u0161\u00edch posun\u016f, zejm\u00e9na co se ment\u00e1ln\u00edho v\u00fdvoje t\u00fd\u010de,\u201c v\u011b\u0159\u00ed Alice.<\/p>\n\n\n\n
P\u00e9\u010de bez odpo\u010dinku a vy\u010derp\u00e1n\u00ed<\/p>\n\n\n\n
Alice se \u0159ad\u00ed k mnoha dal\u0161\u00edm pe\u010duj\u00edc\u00edm rodi\u010d\u016fm, kte\u0159\u00ed funguj\u00ed bez p\u0159est\u00e1vky. Kv\u016fli synov\u00fdm poruch\u00e1m sp\u00e1nkov\u00e9ho rytmu t\u00e9m\u011b\u0159 nesp\u00ed. I p\u0159es svou drobnou postavu vyv\u00edj\u00ed t\u00e9m\u011b\u0159 nadlidskou s\u00edlu, kdy\u017e cvi\u010d\u00ed, rehabilituje a p\u0159en\u00e1\u0161\u00ed Alexe sama.<\/p>\n\n\n\n
\u201eN\u011bkdy sah\u00e1m na dno sv\u00fdch fyzick\u00fdch i psychick\u00fdch sil. Sna\u017e\u00edm se ale v\u0161e zvl\u00e1dat jak nejl\u00e9pe um\u00edm a dok\u00e1\u017eu,\u201c p\u0159izn\u00e1v\u00e1 m\u00e1ma t\u0159\u00ed d\u011bt\u00ed.<\/p>\n\n\n\n
Alex je na maminku nav\u00edc siln\u011b fixovan\u00fd, trp\u00ed poruchami chov\u00e1n\u00ed a p\u0159ed\u010dasnou pubertou, kter\u00e1 u n\u011bj zp\u016fsobuje agresivn\u00ed v\u00fdbuchy.<\/p>\n\n\n\n
\u201eKdy\u017e m\u00e1 ataku, sna\u017e\u00edm se ho uklidnit. U\u017e v\u00edme, \u017ee za to nem\u016f\u017ee. N\u011bkdy m\u011b kopal, dokonce i \u0161krtil, ale nyn\u00ed jsou tyto v\u00fdbuchy vz\u00e1cn\u00e9.\u201c<\/p>\n\n\n\n
\u201eJakmile dojde k n\u00e1hl\u00e9 agresi, tak v\u0161echny vyh\u00e1n\u00edm z m\u00edstnosti a sna\u017e\u00edm se jej uklidnit. Nyn\u00ed se na\u0161t\u011bst\u00ed ataky objevuj\u00ed ojedin\u011ble. \u010clov\u011bk si mus\u00ed uv\u011bdomit, \u017ee za to nem\u016f\u017ee,\u201c sv\u011b\u0159uje se Alice, kter\u00e1 v nejhor\u0161\u00edch, ale na\u0161t\u011bst\u00ed ojedin\u011bl\u00fdch chv\u00edl\u00edch od syna musela sn\u00e1\u0161et \u0161krcen\u00ed, kop\u00e1n\u00ed i \u00fadery p\u011bstmi.<\/p>\n\n\n\n
\u201eNa druhou stranu je Alex\u00edk bojovn\u00edk s velk\u00fdm srdcem a ne\u00fanavn\u011b spole\u010dn\u011b bojujeme za lep\u0161\u00ed z\u00edt\u0159ky,\u201c uzav\u00edr\u00e1 maminka.<\/p>\n\n\n\n
Mezi Alexovy diagn\u00f3zy mimo jin\u00e9 pat\u0159\u00ed:<\/p>\n\n\n\n
Mitochondri\u00e1ln\u00ed encefalopatie<\/p>\n\n\n\n
Snijders-Blok Compeau syndrom<\/p>\n\n\n\n
Autozom\u00e1ln\u011b dominantn\u00ed optick\u00e1 atrofie plus<\/p>\n\n\n\n
Nedostate\u010dnost IV d\u00fdchac\u00edho \u0159et\u011bzce<\/p>\n\n\n\n
Epilepsie, ment\u00e1ln\u00ed posti\u017een\u00ed, poruchy chov\u00e1n\u00ed<\/p>\n\n\n\n
Jak Alexov\u011b rodin\u011b pomoci:<\/p>\n\n\n\n
Rodin\u011b Alexe m\u016f\u017eete pomoci zasl\u00e1n\u00edm finan\u010dn\u00edho daru na transparentn\u00ed \u00fa\u010det 4772640073\/0800.<\/p>\n\n\n\n
Pen\u00edze budou pou\u017eity na: rehabilitace, schodi\u0161\u0165ovou seda\u010dku, inkontinen\u010dn\u00ed pot\u0159eby, terapie, dlahy a dal\u0161\u00ed zdravotn\u00ed pom\u016fcky<\/p>\n\n\n\n
Barbora Havlov\u00e1<\/p>\n\n\n\n
Den\u00edk.cz<\/p>\n\n\n\n
https:\/\/www.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Alex m\u00e1 v l\u00e9ka\u0159sk\u00e9 kart\u011b hned n\u011bkolik vz\u00e1cn\u00fdch diagn\u00f3z. Do p\u011bti let byl p\u0159itom zcela zdrav\u00fd chlapec, pak ale p\u0159i\u0161la ch\u0159ipka. Docela b\u011b\u017en\u00fd virus mu […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":41873,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-57126","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/57126","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=57126"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/57126\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/41873"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=57126"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=57126"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=57126"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}