\u010cT 1<\/p>\n\n\n\n
Monika Kop\u010dilov\u00e1 n\u00e1m v dne\u0161n\u00edm vys\u00edl\u00e1n\u00ed p\u0159ed\u00e1v\u00e1 sv\u00e9 mnohalet\u00e9 zku\u0161enosti s ko\u017en\u00edm onemocn\u011bn\u00edm vitiligo. Sama ji\u017e zm\u00ednila, \u017ee m\u00e1 za sebou obrovsk\u00fd kus cesty, ne\u017e se sama za\u010dala m\u00edt r\u00e1da. M\u00e1te na to n\u011bjakou osv\u011bd\u010denou radu? <\/p>\n\n\n\n
Monika Kop\u010dilov\u00e1,
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Tak osv\u011bd\u010denou radu asi m\u00e1m, ale ned\u00e1 se to \u00fapln\u011b shrnout do jedn\u00e9 v\u011bty, je pot\u0159eba vlastn\u011b si uv\u011bdomit, \u017ee \u010dlov\u011bk nen\u00ed ob\u011bt\u00ed t\u00e9 nemoci a \u017ee m\u00e1 mo\u017enosti, jak se s t\u00edm vyrovnat, a\u0165 u\u017e psychicky, anebo fyzicky, \u017ee to nen\u00ed ne\u0159e\u0161iteln\u00fd probl\u00e9m a je pot\u0159eba opravdu pe\u010dovat s\u00e1m o sebe, tak\u017ee uv\u011bdomit si, \u017ee ta sebel\u00e1ska je na prvn\u00edm m\u00edst\u011b a \u017ee ta kvalita \u017eivota je prost\u011b moje, abych j\u00e1 d\u011blala v\u0161echno pro to, aby se mi dob\u0159e \u017eilo.<\/p>\n\n\n\n
mluv\u010d\u00ed 19,
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Kdy\u017e se te\u010f div\u00e1ci na v\u00e1s ale d\u00edvaj\u00ed, tak j\u00e1 si, mo\u017en\u00e1 to bude zn\u00edt a\u017e drze, ale j\u00e1 si na prvn\u00ed pohled \u0159eknu, ta holka v\u016fbec nen\u00ed nemocn\u00e1, kde je n\u011bjak\u00e9 to ko\u017en\u00ed onemocn\u011bn\u00ed?<\/p>\n\n\n\n
Monika Kop\u010dilov\u00e1, mluv\u010d\u00ed 19, Monika Kop\u010dilov\u00e1, mluv\u010d\u00ed 1, Monika Kop\u010dilov\u00e1, mluv\u010d\u00ed 1, Monika Kop\u010dilov\u00e1, mluv\u010d\u00ed 19, Monika Kop\u010dilov\u00e1, mluv\u010d\u00ed 5, Monika Kop\u010dilov\u00e1, mluv\u010d\u00ed 1, <\/p>\n\n\n\n <\/p>\n","protected":false},"excerpt":{"rendered":" \u010cT 1 Monika Kop\u010dilov\u00e1 n\u00e1m v dne\u0161n\u00edm vys\u00edl\u00e1n\u00ed p\u0159ed\u00e1v\u00e1 sv\u00e9 mnohalet\u00e9 zku\u0161enosti s ko\u017en\u00edm onemocn\u011bn\u00edm vitiligo. Sama ji\u017e zm\u00ednila, \u017ee m\u00e1 za sebou obrovsk\u00fd kus […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":58212,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[12],"tags":[],"class_list":["post-57319","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rozhovory"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/57319","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=57319"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/57319\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/58212"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=57319"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=57319"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=57319"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
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Ano, j\u00e1 to sl\u00fdch\u00e1m velmi \u010dasto, tak\u017ee mi to nevad\u00ed tedy ty koment\u00e1\u0159e, ale to vitiligo m\u00e1 r\u016fzn\u00e9 typy, n\u011bkter\u00e9 jsou v\u00edc progresivn\u00ed a n\u011bkter\u00e9 jsou drobn\u011bj\u0161\u00ed a j\u00e1 m\u00e1m t\u0159eba, tady, nev\u00edm, jestli to bude vid\u011bt, ale m\u00e1m kolem o\u010d\u00ed vlastn\u011b b\u00edl\u00e9 skvrny, m\u00e1m je na prstech, m\u00e1m je pod koleny a na r\u016fzn\u00fdch dal\u0161\u00edch m\u00edstech, na t\u011ble a mysl\u00edm si, \u017ee ani nejde srovn\u00e1vat podle ploch toho\u00a0posti\u017een\u00ed<\/strong>, kdy\u017e to tak \u0159eknu, v uvozovk\u00e1ch, jestli ten \u010dlov\u011bk je na tom l\u00e9pe nebo h\u016f\u0159e, proto\u017ee ka\u017ed\u00fd to pro\u017e\u00edv\u00e1 jinak.<\/p>\n\n\n\n
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Ty skvrny mohou ub\u00fdvat, p\u0159ib\u00fdvat nebo jsou st\u00e1le stejn\u00e9?<\/p>\n\n\n\n
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Skvrny se m\u016f\u017eou vlastn\u011b i repigmentovat, tak\u017ee v pr\u016fb\u011bhu let t\u0159eba se v\u00e1m ten pigment m\u016f\u017ee vr\u00e1tit bu\u010f samovoln\u011b, anebo s podporou n\u011bjak\u00e9 terapie, t\u0159eba UV z\u00e1\u0159en\u00ed a samoz\u0159ejm\u011b m\u016f\u017eou i p\u0159ib\u00fdvat, tak\u017ee v tom je to takov\u00e9 o\u0161emetn\u00e9, \u017ee vy se vzbud\u00edte a t\u0159eba m\u00e1te prost\u011b na obli\u010deji dal\u0161\u00ed lo\u017eisko a je to nekontrolovateln\u00e9. V podstat\u011b.<\/p>\n\n\n\n
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S ka\u017ed\u00fdm autoimunitn\u00edm onemocn\u011bn\u00edm se poj\u00ed n\u011bjak\u00e9 m\u00fdty, jsou n\u011bjak\u00e9 spojen\u00e9 tak\u00e9 s wittiligem, ano.<\/p>\n\n\n\n
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Tak t\u011bch m\u00fdt\u016f je hodn\u011b, ale ten nejv\u011bt\u0161\u00ed je vlastn\u011b, \u017ee je to naka\u017eliv\u00e9, co\u017e samoz\u0159ejm\u011b nen\u00ed, je to autoimunitn\u00ed onemocn\u011bn\u00ed, tak\u017ee dostat to kontaktem s osobou s vitiligem nem\u016f\u017eete.<\/p>\n\n\n\n
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Setkala jste se s t\u00edm, \u017ee v\u00e1m t\u0159eba n\u011bkdo necht\u011bl podat ruku?<\/p>\n\n\n\n
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Mn\u011b osobn\u011b ne, j\u00e1 jsem se nesetkala, ale z komunity v\u00edm, \u017ee i tyto situace se st\u00e1vaj\u00ed, tak\u017ee bohu\u017eel po\u0159\u00e1d \u017eijeme ve spole\u010dnosti, kter\u00e1 n\u00e1s hodnot\u00ed podle vzhledu.
A ono to jako i d\u00e1v\u00e1 ale smysl, \u017ee prost\u011b ty zm\u011bny, kter\u00e9 vid\u00edme kolem sebe, a\u0165 u\u017e na tom \u010dlov\u011bku, anebo i v prost\u0159ed\u00ed, tak m\u016f\u017ee n\u00e1\u0161 mozek vyhodnotit jako nebezpe\u010dn\u00e9. Tak\u017ee j\u00e1 pr\u00e1v\u011b proto se sna\u017e\u00edm i d\u011blat tu osv\u011btu, nejenom starat se o tu komunitu, ale i d\u011blat tu osv\u011btu, aby ty lidi vlastn\u011b m\u011bli informace o tom, co to vitiligo je a nevytv\u00e1\u0159eli si tady ty domn\u011bnky.<\/p>\n\n\n\n
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Vy jste zalo\u017eila vitiligo klub, tak co si pod va\u0161\u00ed prac\u00ed m\u016f\u017eeme p\u0159edstavit?<\/p>\n\n\n\n
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Tak, jak jsem \u0159ekla, pr\u00e1v\u011b j\u00e1 to rozd\u011bluju takhle jakoby na dva t\u00e1bory, \u017ee jedna je ta osv\u011bta a vzd\u011bl\u00e1v\u00e1n\u00ed ve\u0159ejnosti a ta druh\u00e1 je podpora lid\u00ed s vittiligem s t\u00edm, \u017ee j\u00e1 bych cht\u011bla p\u0159edat pr\u00e1v\u011b ten sv\u016fj p\u0159\u00edb\u011bh, \u017ee je to mo\u017en\u00e9 prost\u011b psychicky se s t\u00edm n\u011bjak\u00fdm zp\u016fsobem srovnat a \u010dlov\u011bk t\u00edm opravdu nemus\u00ed trp\u011bt, proto\u017ee \u010dasto sl\u00fdch\u00e1v\u00e1me nebo \u010dteme, \u017ee n\u011bkdo trp\u00ed vitiligem, ne ka\u017ed\u00fd \u010dlov\u011bk t\u00edm trp\u00ed, ale samoz\u0159ejm\u011b pak jsou lid\u00e9, kte\u0159\u00ed opravdu jsou omezen\u00ed v tom \u017eivot\u011b, \u017ee nechod\u00ed na slun\u00ed\u010dko, nos\u00ed dlouh\u00e9 kalhoty a ruk\u00e1vy. A i ten soci\u00e1ln\u00ed kontakt s lidmi je pro n\u011b velice slo\u017eit\u00fd a na druhou stranu j\u00e1 se sna\u017e\u00edm i \u0161\u00ed\u0159it tu osv\u011btu mezi pedagogy, l\u00e9ka\u0159e a dal\u0161\u00ed akt\u00e9ry vlastn\u011b t\u011bch zm\u011bn, kte\u0159\u00ed s n\u00e1mi jako s pacienty p\u0159ich\u00e1z\u00ed do styku.<\/p>\n\n\n\n
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Zn\u00e1te vy sama N\u011bjak\u00e9 zn\u00e1m\u00e9 osobnosti, a\u0165 u\u017e \u010desk\u00e9 \u010di zahrani\u010dn\u00ed, Kter\u00e9 tato nemoc postihla?<\/p>\n\n\n\n
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Ano. V \u010cesku m\u00e1me velice zn\u00e1m\u00e9ho pana Roberta Z\u00e1rubu, se kter\u00fdm jsem p\u0159ed 10 lety ud\u011blala rozhovor. To bylo stra\u0161n\u011b mil\u00e9, kde on pr\u00e1v\u011b sd\u00edlel, jak se tady s t\u00edm onemocn\u011bn\u00edm vyrovn\u00e1v\u00e1 nebo jak ho to postihuje nebo nepostihuje. D\u00e1le je to t\u0159eba zn\u00e1m\u00e1 here\u010dka Lenka Krobotov\u00e1 nebo taky Bolek Pol\u00edvka. A v zahrani\u010d\u00ed nap\u0159\u00edklad Winnie Harlow, kter\u00e1 je vlastn\u011b modelka mezin\u00e1rodn\u00ed.<\/p>\n\n\n\n
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Zm\u00ednila jste jm\u00e9na. Ani u n\u011bkter\u00fdch bych ne\u0159ekla, \u017ee touto nemoc\u00ed trp\u00ed. Mockr\u00e1t d\u011bkujeme, \u017ee jste si na n\u00e1s ud\u011blala tak\u00e9 \u010das dnes a m\u011bjte se kr\u00e1sn\u011b, a\u0165 se v\u00e1m da\u0159\u00ed.<\/p>\n\n\n\n