Kdy\u017e se Kate\u0159ina do Pavla zamilovala, v\u011bd\u011bla, \u017ee mu byla stanovena v\u00e1\u017en\u00e1 diagn\u00f3za – revmatoidn\u00ed artritida. I p\u0159es nemoc se p\u00e1ru poda\u0159ilo p\u0159iv\u00e9st na sv\u011bt dva syny. Jejich \u0161\u0165astn\u00fd \u017eivot ale z\u00e1hy p\u0159eru\u0161ila dal\u0161\u00ed Pavlova nemoc, a to roztrou\u0161en\u00e1 skler\u00f3za. Ta Pavla zpo\u010d\u00e1tku v\u016fbec neomezovala. V roce 2023 z n\u011bj ale ud\u011blala nemohouc\u00edho \u010dlov\u011bka, z jeho man\u017eelky o dva roky pozd\u011bji vdovu.<\/p>\n\n\n\n
N\u011bkter\u00fdm p\u00e1r\u016fm trv\u00e1 roky, ne\u017e zalo\u017e\u00ed rodinu. Kate\u0159ina s Pavlem ze Sluh v okrese Praha \u2013 v\u00fdchod ve St\u0159edo\u010desk\u00e9m kraji se do sebe naopak zamilovali rychle a intenzivn\u011b. U\u017e po dvou letech vztahu p\u0159iv\u00edtali na sv\u011bt\u011b prvn\u00edho syna Vojt\u00ed\u0161ka.<\/p>\n\n\n\n
V dob\u011b narozen\u00ed prvn\u00edho d\u00edt\u011bte m\u011bl Pavel u\u017e diagnostikovanou revmatoidn\u00ed artritidu (viz n\u00ed\u017ee), kter\u00e1 mu v\u0161ak do b\u011b\u017en\u00e9ho \u017eivota nijak v\u00fdrazn\u011b nezasahovala.<\/p>\n\n\n\n
Brzy se p\u00e1ru narodil druh\u00fd syn Oliver. I jemu byl Pavel miluj\u00edc\u00edm otcem. Svou rodinu byl schopen ope\u010dov\u00e1vat a zabezpe\u010dit i p\u0159es chronick\u00e9 onemocn\u011bn\u00ed.<\/p>\n\n\n\n
Do \u017eivota rodiny v\u0161ak bohu\u017eel vstoupila dal\u0161\u00ed, tentokr\u00e1t z\u00e1va\u017en\u011bj\u0161\u00ed diagn\u00f3za \u2013 roztrou\u0161en\u00e1 skler\u00f3za. Ani ta Pavla zpo\u010d\u00e1tku nezastavila. Dlouho vedl plnohodnotn\u00fd \u017eivot, pracoval a radoval se z ka\u017ed\u00e9ho dne se svou rodinou. A\u017e do V\u00e1noc roku 2023.<\/p>\n\n\n\n
Siln\u00e9 bolesti a extr\u00e9mn\u00ed \u00fabytek v\u00e1hy<\/p>\n\n\n\n
V\u0161ichni v okol\u00ed se t\u011b\u0161ili na bl\u00ed\u017e\u00edc\u00ed se v\u00e1no\u010dn\u00ed sv\u00e1tky, kdy\u017e se Pavl\u016fv stav b\u011bhem pouh\u00e9ho m\u011bs\u00edce rapidn\u011b zhor\u0161il.<\/p>\n\n\n\n
\u201eSiln\u00e9 bolesti kloub\u016f, nehybnost rukou, otoky, rychl\u00fd \u00fabytek na v\u00e1ze. Bolest\u00ed ani nedok\u00e1zal obejmout sv\u00e9 d\u011bti. V\u0161echny tyto komplikace upoutaly Pavla na l\u016f\u017eko b\u011bhem jedin\u00e9ho m\u011bs\u00edce. Z n\u011bj se bohu\u017eel u\u017e nikdy nezvedl,\u201c \u0159ekla Den\u00edku pan\u00ed Kate\u0159ina, vdova po zesnul\u00e9m Pavlovi. (Kv\u016fli nezletil\u00fdm d\u011btem si \u017eena p\u0159\u00e1la z\u016fstat v \u010d\u00e1ste\u010dn\u00e9 anonymit\u011b. Redakce v\u0161ak jej\u00ed toto\u017enost zn\u00e1; pozn. red.)<\/p>\n\n\n\n
Od t\u00e9 doby se Pavlova man\u017eelka stala ze dne na den pe\u010dovatelkou na pln\u00fd \u00favazek. St\u0159\u00eddaly se dny v nemocnici a dom\u00e1c\u00edm prost\u0159ed\u00ed.<\/p>\n\n\n\n
Pavel se najednou nemohl s\u00e1m postavit, naj\u00edst, ani nap\u00edt. V\u0161e zast\u00e1vala jeho \u017eena, kter\u00e1 tak byla okolnostmi donucena prakticky opustit sv\u00e9 zam\u011bstn\u00e1n\u00ed a naplno se v\u011bnovat p\u00e9\u010di o man\u017eela. Pracovat se sna\u017eila alespo\u0148 \u010d\u00e1ste\u010dn\u011b, ale situace nebyla dlouhodob\u011b udr\u017eiteln\u00e1.<\/p>\n\n\n\n
Na hranici existen\u010dn\u00edch mo\u017enost\u00ed<\/p>\n\n\n\n
Pavl\u016fv zdravotn\u00ed stav se nad\u00e1le zhor\u0161oval, stejn\u011b jako finan\u010dn\u00ed situace cel\u00e9 rodiny. Ta se dle slov pan\u00ed Kate\u0159iny ocitla doslova na hranici existen\u010dn\u00edch mo\u017enost\u00ed.<\/p>\n\n\n\n
\u201eV\u0161echny \u00faspory padly na nezbytnou p\u00e9\u010di, l\u00e9ky i n\u00e1klady na dom\u00e1cnost. Pavl\u016fv zdravotn\u00ed stav se nav\u00edc za\u010dal je\u0161t\u011b v\u00edc komplikovat. P\u0159idaly se infekce, probl\u00e9my se za\u017e\u00edv\u00e1n\u00edm, \u010dast\u00e9 zvracen\u00ed, je\u0161t\u011b rychlej\u0161\u00ed \u00fabytek na v\u00e1ze, \u010dast\u00e9 transf\u00faze krve a nekon\u010d\u00edc\u00ed bolesti,\u201c popisuje situaci rodinn\u00e1 p\u0159\u00edtelkyn\u011b Jitka Satrapov\u00e1, kter\u00e1 pro kamar\u00e1dku a jej\u00ed d\u011bti zalo\u017eila sb\u00edrku na dobro\u010dinn\u00e9 platform\u011b Donio.<\/p>\n\n\n\n
Ban\u00e1ln\u00ed z\u00e1krok, kter\u00fd skon\u010dil tragicky<\/p>\n\n\n\n
Pak p\u0159i\u0161el den, kdy m\u011bla b\u00fdt Pavlovi zavedena sonda do \u017ealudku, kter\u00e1 mu m\u011bla usnadnit p\u0159\u00edjem potravy. B\u011b\u017en\u00fd z\u00e1krok, jen\u017e se dle N\u00e1rodn\u00edho zdravotnick\u00e9ho informa\u010dn\u00edho port\u00e1lu prov\u00e1d\u00ed pacient\u016fm, kte\u0159\u00ed nejsou schopni p\u0159ij\u00edmat potravu d\u00e9le ne\u017e 4 a\u017e 6 t\u00fddn\u016f, se ale Pavlovi stal osudn\u00fdm.<\/p>\n\n\n\n
\u201eOd toho z\u00e1kroku za\u010dal Pavel pomalu odch\u00e1zet. Najednou nebyl schopn\u00fd komunikovat a brzy p\u0159estal i vn\u00edmat. Zem\u0159el po dlouh\u00e9m boji obklopen Ka\u010dkou a maminkou Evou,\u201c popisuje posledn\u00ed okam\u017eiky zakladatelka sb\u00edrky, kter\u00e1 je s poz\u016fstalou rodinou v ka\u017edodenn\u00edm kontaktu.<\/p>\n\n\n\n
Vybran\u00e9 pen\u00edze budou pou\u017eity na zaji\u0161t\u011bn\u00ed dom\u00e1cnosti, placen\u00ed n\u00e1jmu, p\u0159\u00edpadn\u00fdch oprav a dal\u0161\u00edch neo\u010dek\u00e1van\u00fdch v\u00fddaj\u016f. Finance uhrad\u00ed i budouc\u00ed vzd\u011bl\u00e1v\u00e1n\u00ed d\u011bt\u00ed, \u0161kolkovn\u00e9, volno\u010dasov\u00e9 aktivity, o\u0161acen\u00ed a v\u0161echny nutn\u00e9 a neodkladn\u00e9 l\u00e9ka\u0159sk\u00e9 v\u00fddaje.<\/p>\n\n\n\n
Do sb\u00edrky lze p\u0159isp\u011bt jakoukoliv \u010d\u00e1stkou ZDE: https:\/\/donio.cz\/pomahame-kacce-a-jejim-synum-po-smrti-tatinka<\/a><\/p>\n\n\n\n Revmatoidn\u00ed artritida<\/p>\n\n\n\n Podle Asociace inovativn\u00edho farmaceutick\u00e9ho pr\u016fmyslu tato nemoc v minulosti \u010dasto znamenala \u00faplnou invaliditu a \u017eivot zkr\u00e1cen\u00fd v pr\u016fm\u011bru o p\u011bt a\u017e deset let.<\/p>\n\n\n\n A\u010dkoli ani dnes nejde o nemoc, kterou by bylo mo\u017en\u00e9 zcela vyl\u00e9\u010dit, d\u00edky pokroku v l\u00e9\u010db\u011b se v\u00fdrazn\u011b zlep\u0161ila vyhl\u00eddka pacient\u016f. Dnes se do\u017e\u00edvaj\u00ed podobn\u00e9ho v\u011bku jako zbytek populace.<\/p>\n\n\n\n \u201eBiologick\u00e9 l\u00e9ky – a\u0165 ji\u017e tabletov\u00e9, nebo injek\u010dn\u00ed – v\u00fdznamn\u011b zm\u011bnily obor revmatologie jako celku. Velk\u00e1 \u010d\u00e1st pacient\u016f by bez t\u00e9to l\u00e9\u010dby rychle progredovala a nemoc by je uvedla do invalidn\u00edho stavu. D\u00edky nov\u00fdm l\u00e9\u010debn\u00fdm postup\u016fm v\u0161ak naprost\u00e1 v\u011bt\u0161ina pacient\u016f m\u016f\u017ee pracovat, vede norm\u00e1ln\u00ed \u017eivot, nem\u00e1 siln\u00e9 bolesti a m\u016f\u017ee dob\u0159e sp\u00e1t,\u201c uvedl p\u0159edseda \u010cesk\u00e9 revmatologick\u00e9 spole\u010dnosti revmatolog Ladislav \u0160enolt.<\/p>\n\n\n\n Kate\u0159ina Kofro\u0148ov\u00e1<\/p>\n\n\n\n Den\u00edk.cz<\/p>\n\n\n\n https:\/\/www.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Kdy\u017e se Kate\u0159ina do Pavla zamilovala, v\u011bd\u011bla, \u017ee mu byla stanovena v\u00e1\u017en\u00e1 diagn\u00f3za – revmatoidn\u00ed artritida. I p\u0159es nemoc se p\u00e1ru poda\u0159ilo p\u0159iv\u00e9st na sv\u011bt […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14273,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-57466","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/57466","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=57466"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/57466\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14273"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=57466"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=57466"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=57466"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}