{"id":57522,"date":"2025-05-22T07:10:31","date_gmt":"2025-05-22T05:10:31","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=57522"},"modified":"2025-05-22T07:10:42","modified_gmt":"2025-05-22T05:10:42","slug":"nova-kampan-odlehci-domacim-pecujicim","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=57522","title":{"rendered":"Nov\u00e1 kampa\u0148 odleh\u010d\u00ed dom\u00e1c\u00edm pe\u010duj\u00edc\u00edm"},"content":{"rendered":"\n

300 000 lid\u00ed pod\u0159izuje sv\u016fj \u017eivot \u010dlenu rodiny, kter\u00fd by se kv\u016fli nemoci<\/strong> s\u00e1m o sebe nepostaral. Jsou to dom\u00e1c\u00ed pe\u010duj\u00edc\u00ed. O bl\u00edzk\u00e9 se v\u011bt\u0161inou staraj\u00ed bez n\u00e1roku na odm\u011bnu i odborn\u00e9 pr\u016fpravy, p\u0159itom jde mnohdy o specializovanou p\u00e9\u010di. Odleh\u010dit t\u011bmto rodin\u00e1m m\u00e1 nov\u00e1 kampa\u0148 organizace Dech \u017eivota.<\/p>\n\n\n\n

\u0160estadvacetilet\u00fd Jaroslav m\u00e1 Duchennovu svalovou dystrofii. L\u00e9k<\/strong> nen\u00ed, d\u00fdch\u00e1 pomoc\u00ed plicn\u00ed ventilace a rodina ho mus\u00ed m\u00edt pod dohledem i v noci. Jeho matka musela p\u0159ed 10 lety odej\u00edt z pr\u00e1ce.<\/p>\n\n\n\n

Mark\u00e9ta Beranov\u00e1, Jaroslavova matka
——————–
Kdy\u017e je dob\u0159e, tak t\u0159eba sedmkr\u00e1t za noc, ale n\u011bkdy t\u0159eba dvan\u00e1ctkr\u00e1t je to t\u0159eba i co 20 minut podle toho, jak mu je. Je to z\u00e1b\u011br na to t\u011blo. Jako c\u00edt\u00edm to u\u017e te\u010f, \u017ee prost\u011b bych pot\u0159ebovala si odpo\u010dinout, j\u00e1 m\u00edt jeden den volna, tak se jdu vyspat.<\/p>\n\n\n\n

redaktorka \u010cT
——————–
Dva roky je na ventil\u00e1toru i Dita Horochovsk\u00e1. P\u0159esto pracuje a za sv\u00e9 aktivity z\u00edskala i vyznamen\u00e1n\u00ed od prezidenta. Bez podpory rodiny by ale dle sv\u00fdch slov byla v \u00fastavu.<\/p>\n\n\n\n

Dita Horochovsk\u00e1, zakladatelka projektu Silou hlasu
——————–
Ta rodina pe\u010duje neust\u00e1le, 24 rodin denn\u011b. Nejsou za to moc ohodnoceni a ten sv\u016fj \u017eivot mus\u00ed opravdu upozadit a j\u00e1 jsem jim stra\u0161n\u011b za to vd\u011b\u010dn\u00e1, \u017ee to v\u016fbec d\u011blaj\u00ed a \u017ee n\u00e1m umo\u017e\u0148uj\u00ed \u017e\u00edt, proto\u017ee by nemuseli.<\/p>\n\n\n\n

redaktorka \u010cT
——————–
Na dom\u00e1c\u00ed plicn\u00ed ventilaci je v \u010cesku napojeno zhruba 500 lid\u00ed a jejich bl\u00edzc\u00ed se o n\u011b staraj\u00ed nonstop.<\/p>\n\n\n\n

Ferdinand Pol\u00e1k, vedouc\u00ed l\u00e9ka\u0159<\/strong> DUPV, ProCare Medical
——————–
Bohu\u017eel dva pacienti se vr\u00e1tili do nemocnice, proto\u017ee u\u017e se o n\u011b nemohl ten \u010dlov\u011bk starat, byl nevyspal\u00fd, unaven\u00fd, vlastn\u011b s\u00e1m t\u00e9m\u011b\u0159 zkolaboval. Pokud my neud\u011bl\u00e1me n\u011bco s t\u00edm syst\u00e9mem, tak se tohle bude opakovat.<\/p>\n\n\n\n

redaktorka \u010cT
——————–
I proto l\u00e9ka\u0159i<\/strong> pom\u00e1haj\u00ed rodin\u00e1m zvl\u00e1dnout p\u00e9\u010di doma. Mnoh\u00e9 ale o pomoci nev\u00ed. Nejen na to upozor\u0148uje kampa\u0148 Nest\u00edh\u00e1m \u017e\u00edt, pe\u010duji 24\/7. Pro rodiny organizuj\u00ed i odleh\u010dovac\u00ed pobyty v l\u00e1zn\u00edch, kter\u00fdm pom\u00e1h\u00e1 sb\u00edrka.<\/p>\n\n\n\n

Dagmar Drechlerov\u00e1, projektov\u00e1 mana\u017eerka, Dech \u017eivota
——————–
Zaji\u0161\u0165ujeme l\u00e9ka\u0159sk\u00fd dozor, ubytov\u00e1n\u00ed, stravov\u00e1n\u00ed, prost\u011b v\u0161echno, co je pot\u0159ebn\u00e9, v\u010detn\u011b nap\u0159\u00edklad konzultac\u00ed s fyzioterapeutem nebo psychologem.<\/p>\n\n\n\n

Tereza Barto\u0161ov\u00e1, l\u00e9ka\u0159ka, anesteziologicko-resuscita\u010dn\u00ed odd\u011blen\u00ed, 1. LF UK a VFN v Praze
——————–
Vid\u00edme na t\u011bch pacientech, \u017ee doma se jsou schopni v\u00fdrazn\u011b zlep\u0161it, zrehabilitovat a \u010dasto i se t\u0159eba t\u00e9 plicn\u00ed ventilace zbavit v moment\u011b, kdy u\u017e my jsme nad nima zlomili h\u016fl v r\u00e1mci nemocni\u010dn\u00edho za\u0159\u00edzen\u00ed.<\/p>\n\n\n\n

redaktorka \u010cT
——————–
Podobn\u00e1 p\u00e9\u010de \u0161et\u0159\u00ed miliony, v nemocnici stoj\u00ed poji\u0161\u0165ovny zhruba 17 000 za den. P\u0159itom dom\u00e1c\u00ed pe\u010duj\u00edc\u00ed i p\u0159i v\u0161ech d\u00e1vk\u00e1ch maj\u00ed ni\u017e\u0161\u00ed p\u0159\u00edjmy, ne\u017e kdyby pracovali.<\/p>\n\n\n\n

\u010cesk\u00e1 televize.<\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

300 000 lid\u00ed pod\u0159izuje sv\u016fj \u017eivot \u010dlenu rodiny, kter\u00fd by se kv\u016fli nemoci s\u00e1m o sebe nepostaral. Jsou to dom\u00e1c\u00ed pe\u010duj\u00edc\u00ed. O bl\u00edzk\u00e9 se v\u011bt\u0161inou staraj\u00ed bez […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14574,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-57522","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/57522","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=57522"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/57522\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14574"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=57522"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=57522"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=57522"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}