Nevyl\u00e9\u010diteln\u00e9 amyotrofick\u00e9 later\u00e1ln\u00ed skler\u00f3ze (ALS) \u010del\u00ed Jakub Frydry\u0161ek z Bohdalic na Vy\u0161kovsku. Na jeho podporu se z\u00e1jemci mohou zapojit v t\u011bchto dnech do aktu\u00e1ln\u00ed sb\u00edrky. V\u00fdt\u011b\u017eek mu pom\u016f\u017ee v\u00e9st d\u016fstojn\u00fd \u017eivot.<\/p>\n\n\n\n
Do sb\u00edrky na webu Donio se u\u017e od t\u0159iadvac\u00e1t\u00e9ho kv\u011btna zapojilo v\u00edce na \u010dty\u0159i sta sedmdes\u00e1t d\u00e1rc\u016f. Dohromady dali zat\u00edm p\u0159es t\u0159i sta \u010dty\u0159icet tis\u00edc korun, dal\u0161\u00ed z\u00e1jemci maj\u00ed mo\u017enost podpo\u0159it mlad\u00edka je\u0161t\u011b v\u00edce ne\u017e m\u011bs\u00edc. P\u0159isp\u011bt mohou TADY: https:\/\/donio.cz\/pomozme-kubovi-bojovat-s-als?tab=about-story<\/a><\/p>\n\n\n\n \u201eJakub Frydry\u0161ek je mlad\u00fd mu\u017e, kter\u00e9mu se b\u011bhem n\u011bkolika m\u011bs\u00edc\u016f obr\u00e1til \u017eivot o sto osmdes\u00e1t stup\u0148\u016f. Je mu teprve dvaadvacet let. Je\u0161t\u011b doned\u00e1vna sportoval, pracoval, sm\u00e1l se a pl\u00e1noval budoucnost. Dnes bojuje s t\u011b\u017ekou nemoc\u00ed. ALS pomalu a nevratn\u011b ochromuje svaly v t\u011ble \u2013 bere \u010dlov\u011bku s\u00edlu, pohyb, \u0159e\u010d i dech. Mysl ale z\u016fst\u00e1v\u00e1 zcela v po\u0159\u00e1dku. Je to v\u011bdom\u00fd \u00fastup z vlastn\u00edho t\u011bla,\u201c vysv\u011btlili organiz\u00e1to\u0159i sb\u00edrky.<\/p>\n\n\n\n P\u0159ipomn\u011bli, \u017ee zhruba p\u0159ed dv\u011bma lety za\u010dal m\u00edt pot\u00ed\u017ee s levou rukou \u2013 nejprve slabost, pozd\u011bji z\u00e1\u0161kuby. N\u00e1sledovala s\u00e9rie vy\u0161et\u0159en\u00ed, odb\u011br\u016f a test\u016f. Trvalo dlouh\u00fd rok, ne\u017e l\u00e9ka\u0159i potvrdili diagn\u00f3zu.<\/p>\n\n\n\n \u201eNemoc mezit\u00edm postupovala. Dnes u\u017e m\u00e1 Kuba v\u00fdrazn\u011b omezenou hybnost rukou i nohou. P\u0159i ch\u016fzi pot\u0159ebuje oporu, b\u011b\u017en\u00e9 v\u011bci jako nakr\u00e1jet si j\u00eddlo, obl\u00e9knout se nebo si d\u00e9le popov\u00eddat jsou pro n\u011bj velkou n\u00e1mahou. Mluven\u00ed ho vy\u010derp\u00e1v\u00e1 a \u010dasto se zad\u00fdch\u00e1v\u00e1. V\u011bt\u0161inu dne tr\u00e1v\u00ed ve sv\u00e9m pokoji \u2013 u televize nebo po\u010d\u00edta\u010de. Je st\u00e1le p\u0159i v\u011bdom\u00ed, vn\u00edm\u00e1 sv\u011bt kolem sebe, tou\u017e\u00ed \u017e\u00edt naplno\u2026 ale jeho t\u011blo mu to p\u0159est\u00e1v\u00e1 dovolovat,\u201c popisovali aktu\u00e1ln\u00ed situaci.<\/p>\n\n\n\n Mlad\u00fd mu\u017e z obce na Vy\u0161kovsku \u017eil a\u017e do sv\u00fdch dvaceti let naprosto b\u011b\u017en\u00fd \u017eivot. \u201eV\u011bnoval se fotbalu v m\u00edstn\u00edm klubu Bohdalice, miloval p\u0159\u00edrodu a po st\u0159edn\u00ed \u0161kole se rozhodl pracovat po boku sv\u00e9ho otce \u2013 spole\u010dn\u011b k\u00e1celi stromy v les\u00edch. Fyzicky zdatn\u00fd, optimistick\u00fd, obklopen\u00fd p\u0159\u00e1teli,\u201c p\u0159ipom\u00ednali organiz\u00e1to\u0159i na webu Donio.<\/p>\n\n\n\n Rekonstrukce bezbari\u00e9rov\u00e9 koupelny<\/p>\n\n\n\n ALS je sice nevyl\u00e9\u010diteln\u00e1 nemoc, ale existuj\u00ed mo\u017enosti, jak zlep\u0161it kvalitu \u017eivota \u2013 pom\u016fcky, rehabilitace, osobn\u00ed asistence, \u00fapravy bydlen\u00ed, specializovan\u00e1 p\u00e9\u010de. To v\u0161echno ale stoj\u00ed obrovsk\u00e9 mno\u017estv\u00ed pen\u011bz, kter\u00e9 si rodina nem\u016f\u017ee sama dovolit.<\/p>\n\n\n\n Pen\u00edze ze sb\u00edrky budou pou\u017eity na rekonstrukci bezbari\u00e9rov\u00e9 koupelny, kterou Jakub Frydry\u0161ek pot\u0159ebuje zejm\u00e9na z d\u016fvodu \u0161patn\u00e9 hybnosti a obratnosti. Rekonstrukce mu pom\u016f\u017ee k snadn\u011bj\u0161\u00ed obsluze, manipulaci i stabilit\u011b.<\/p>\n\n\n\n Pokud by se dostate\u010dn\u00e9 pen\u00edze nepoda\u0159ilo vybrat, budou pou\u017eity alespo\u0148 na \u010d\u00e1ste\u010dnou pomoc p\u0159i rekonstrukci. Pokud by se v\u0161ak naopak vybralo pen\u011bz v\u00edce, poslou\u017e\u00ed k rehabilitac\u00edm, pom\u016fck\u00e1m k dom\u00e1c\u00edmu cvi\u010den\u00ed, vitamin\u016fm, pop\u0159\u00edpad\u011b k po\u0159\u00edzen\u00ed n\u00e1jezdu na schody pro budouc\u00ed pot\u0159ebu voz\u00ed\u010dku.<\/p>\n\n\n\n POMOC D\u00c1RC\u016e BUDE VYU\u017dITA NA:<\/p>\n\n\n\n Elektrick\u00fd invalidn\u00ed voz\u00edk<\/p>\n\n\n\n Zvedac\u00ed za\u0159\u00edzen\u00ed do bytu<\/p>\n\n\n\n \u00dapravu koupelny a WC<\/p>\n\n\n\n Odbornou asistenci<\/p>\n\n\n\n Rehabilitace a fyzioterapie<\/p>\n\n\n\n Speci\u00e1ln\u00ed v\u00fd\u017eivu a kompenza\u010dn\u00ed pom\u016fcky<\/p>\n\n\n\n P\u0159\u00edsp\u011bvky na dopravu a doprovod na vy\u0161et\u0159en\u00ed<\/p>\n\n\n\n Jakub Dost\u00e1l<\/p>\n\n\n\n Vy\u0161kovsk\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/vyskovsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Nevyl\u00e9\u010diteln\u00e9 amyotrofick\u00e9 later\u00e1ln\u00ed skler\u00f3ze (ALS) \u010del\u00ed Jakub Frydry\u0161ek z Bohdalic na Vy\u0161kovsku. Na jeho podporu se z\u00e1jemci mohou zapojit v t\u011bchto dnech do aktu\u00e1ln\u00ed sb\u00edrky. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":600,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-58626","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/58626","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=58626"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/58626\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/600"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=58626"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=58626"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=58626"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}