\u010cRo Radio\u017eurn\u00e1l<\/p>\n\n\n\n
Rekordn\u00ed, tak takov\u00fd pravd\u011bpodobn\u011b bude leto\u0161n\u00ed rok pro \u010desk\u00e9 registry d\u00e1rc\u016f kostn\u00ed d\u0159en\u011b, celkem v nich te\u010f je zaps\u00e1no asi 200 000 lid\u00ed. Konkr\u00e9tn\u011b v \u010cesk\u00e9m registru d\u00e1rc\u016f krvetvorn\u00fdch bun\u011bk, kter\u00fd spad\u00e1 pod pra\u017esk\u00fd IKEM, je t\u00e9m\u011b\u0159 50 000 lid\u00ed a v\u00edce ne\u017e 10 000 z nich se registrovalo pr\u00e1v\u011b letos. Vlna solidarity se toti\u017e zvedla v b\u0159eznu po zve\u0159ejn\u011bn\u00ed p\u0159\u00edpadu dvoulet\u00e9 Madlenky. V\u00edc si \u0159ekneme te\u010f s vedouc\u00ed registru d\u00e1rc\u016f krvetvorn\u00fdch bun\u011bk Marii Ku\u0159\u00edkovou. <\/p>\n\n\n\n
V b\u0159eznu jste m\u011bli bezpochyby spoustu pr\u00e1ce, kolik pr\u00e1ce a z\u00e1jemc\u016f m\u00e1te te\u010f? <\/p>\n\n\n\n
mluv\u010d\u00ed 1,<\/strong> Tak ten prvotn\u00ed n\u00e1por opadl, ale samoz\u0159ejm\u011b registr evidoval d\u00e1rce p\u0159ed touto kampan\u00ed a bude i nad\u00e1le, tak\u017ee pr\u00e1ce je po\u0159\u00e1d dost. <\/p>\n\n\n\n Petr Kr\u00e1l, moder\u00e1tor<\/strong> No, a tu\u0161\u00edme, kolik tedy t\u011bch z\u00e1jemc\u016f je asi tak te\u010f aktu\u00e1ln\u011b.<\/p>\n\n\n\n mluv\u010d\u00ed 1,<\/strong> Tak ono se to takto ned\u00e1 \u0159\u00edct, ti z\u00e1jemci se registruj\u00ed pr\u016fb\u011b\u017en\u011b v r\u00e1mci n\u00e1borov\u00fdch center, kter\u00e1 s n\u00e1mi spolupracuj\u00ed, co\u017e jsou v\u011bt\u0161inou transfuzn\u00ed stanice nebo plazmacentra. Pak chod\u00ed d\u00e1rci k n\u00e1m do registru, sem m\u016f\u017eou v dopoledn\u00edch hodin\u00e1ch p\u0159ij\u00edt bez objedn\u00e1n\u00ed, z\u00e1rove\u0148 jezd\u00edme na r\u016fzn\u00e9 n\u00e1borov\u00e9 akce, kampan\u011b, kter\u00e9 jsou mimo zdravotnick\u00e1 pracovi\u0161t\u011b, t\u0159eba nap\u0159\u00edklad ned\u00e1vno to byly Colours of Ostrava a podobn\u00e9 akce, tak\u017ee ono se n\u00e1m to postupn\u011b s\u010d\u00edt\u00e1.<\/p>\n\n\n\n Petr Kr\u00e1l, moder\u00e1tor<\/strong> Ano, na Colours jsme se potkali i s va\u0161\u00edm t\u00fdmem. V\u00edte, kolik pacient\u016f te\u010f aktu\u00e1ln\u011b \u010dek\u00e1 na sv\u00e9ho d\u00e1rce kostn\u00ed d\u0159en\u011b? <\/p>\n\n\n\n mluv\u010d\u00ed 1,<\/strong> V tuto chv\u00edli je to p\u0159ibli\u017en\u011b 15 d\u011bt\u00ed a 32 dosp\u011bl\u00fdch. <\/p>\n\n\n\n Petr Kr\u00e1l, moder\u00e1tor<\/strong> A kolika lidem u\u017e jste letos dok\u00e1zali pomoct. <\/p>\n\n\n\n mluv\u010d\u00ed 1,<\/strong> Tak to se tak\u00e9 \u00fapln\u011b p\u0159esn\u011b ned\u00e1 \u0159\u00edci. Samoz\u0159ejm\u011b transplantac\u00ed pacient\u016f, kter\u00e9 jsme zprost\u0159edkovali, je n\u011bkolik des\u00edtek, z\u00e1rove\u0148 st\u00e1le vyhled\u00e1v\u00e1me pro tyto pacienty, kte\u0159\u00ed v tom vyhled\u00e1v\u00e1n\u00ed jsou, n\u011bkte\u0159\u00ed u\u017e tu transplantaci maj\u00ed napl\u00e1novanou, ale do posledn\u00ed chv\u00edle vlastn\u011b to nen\u00ed jist\u00e9, tak\u017ee v\u017edycky to m\u016f\u017eeme \u0159\u00edct, a\u017e je v\u0161echno ukon\u010deno.<\/p>\n\n\n\n moder\u00e1tor<\/strong> A kolik toho bylo zat\u00edm ukon\u010deno? <\/p>\n\n\n\n mluv\u010d\u00ed 1,<\/strong> Je to n\u011bco kolem 40 pacient\u016f, ale samoz\u0159ejm\u011b ti d\u00e1rci nejsou jenom z na\u0161eho registru, ale my denn\u011b pracujeme spolu se zahrani\u010dn\u00edmi registry, tak\u017ee v\u011bt\u0161ina t\u011bch d\u00e1rc\u016f poch\u00e1z\u00ed z t\u011bch zahrani\u010dn\u00edch registr\u016f. <\/p>\n\n\n\n Petr Kr\u00e1l, moder\u00e1tor<\/strong> Poj\u010fte n\u00e1m, pros\u00edm, je\u0161t\u011b znovu p\u0159ipomenout, kdo v\u0161echno se m\u016f\u017ee registrovat a jak to cel\u00e9 prob\u00edh\u00e1. <\/p>\n\n\n\n mluv\u010d\u00ed 1,<\/strong> Tak na prvn\u00ed pohled to m\u016f\u017ee b\u00fdt jednoduch\u00e9. Je to \u010dlov\u011bk, kter\u00fd mu je mezi 18 a 40 lety, ten se m\u016f\u017ee zaregistrovat, ale mus\u00ed z\u00e1rove\u0148 spl\u0148ovat zdravotn\u00ed podm\u00ednky, to znamen\u00e1, \u017ee t\u0159eba na na\u0161ich str\u00e1nk\u00e1ch www.darujzivot.cz je mo\u017en\u00e9 naj\u00edt jak ty podm\u00ednky, tak p\u0159ek\u00e1\u017eky vstupu, proto\u017ee ten \u010dlov\u011bk, kter\u00fd se registruje, by m\u011bl b\u00fdt zdrav\u00fd, nem\u011bl by se s ni\u010d\u00edm dlouhodob\u011b l\u00e9\u010dit, ale t\u011bch nuanc\u00ed je tam hodn\u011b. <\/p>\n\n\n\n Petr Kr\u00e1l, moder\u00e1tor<\/strong> M\u016f\u017eeme alespo\u0148 n\u011bkter\u00e9 nejz\u00e1sadn\u011bj\u0161\u00ed t\u0159eba \u0159\u00edct. <\/p>\n\n\n\n mluv\u010d\u00ed 1,<\/strong> Ur\u010dit\u011b je probl\u00e9m, kdy\u017e m\u00e1 n\u011bkdo vysok\u00fd krevn\u00ed tlak, astma nebo z\u00e1va\u017enou formu alergie. Dosti \u010dasto se n\u00e1s lid\u00e9 ptaj\u00ed i na autoimunitn\u00ed onemocn\u011bn\u00ed \u0161t\u00edtn\u00e9 \u017el\u00e1zy. To je taky p\u0159ek\u00e1\u017ekou.<\/p>\n\n\n\n moder\u00e1tor<\/strong> Drah\u00e9 testov\u00e1n\u00ed z\u00e1jemc\u016f te\u010f hrad\u00ed registry sami. Do budoucna byste ale mohli dost\u00e1vat tak\u00e9 pen\u00edze od zdravotn\u00edch poji\u0161\u0165oven. P\u0159\u00edslu\u0161n\u00fd z\u00e1kon minul\u00fd m\u011bs\u00edc podepsal prezident. Pom\u016f\u017ee v\u00e1m to n\u011bjak z\u00e1sadn\u011b? <\/p>\n\n\n\n mluv\u010d\u00ed 1,<\/strong> Nem\u00e1me s t\u00edm je\u0161t\u011b zku\u0161enost Tak\u017ee tohle to p\u0159ijde p\u0159ibli\u017en\u011b p\u0159\u00ed\u0161t\u00ed rok. Uvid\u00edme, nakolik n\u00e1m to dok\u00e1\u017ee pomoci. Nem\u016f\u017eu zat\u00edm soudit. <\/p>\n\n\n\n Petr Kr\u00e1l, moder\u00e1tor<\/strong> M\u00e1te tedy te\u010f dost pen\u011bz na to samotn\u00e9 testov\u00e1n\u00ed a na ty odb\u011brov\u00e9 sady. <\/p>\n\n\n\n mluv\u010d\u00ed 1,<\/strong> Ano, ano. Vlastn\u011b se poda\u0159ilo veden\u00ed IKEMu z\u00edskat dostatek prost\u0159edk\u016f na to, abychom v\u0161echny ty r\u00e1dce, kte\u0159\u00ed vstoupili a vstupuj\u00ed, mohli otestovat. <\/p>\n\n\n\n Petr Kr\u00e1l, moder\u00e1tor<\/strong> Je\u0161t\u011b p\u0159ipome\u0148me to, na\u010d apelovali va\u0161e kolegyn\u011b pr\u00e1v\u011b t\u0159eba na festivalu Colours of Ostrava, kde nab\u00edraly ze slin vzorky, to samotn\u00e9 z\u00e1kladn\u00ed testov\u00e1n\u00ed je tedy velmi rychl\u00e9 a bezbolestn\u00e9. Prost\u011b p\u0159ijde n\u011bkdo s vati\u010dkou, odebere slinu, co je potom d\u00e1l.<\/p>\n\n\n\n mluv\u010d\u00ed 1,<\/strong> Ten vzorek se vy\u0161et\u0159\u00ed a a\u0165 u\u017e je to teda tady ten st\u011br nebo vzorek krve, z toho si ud\u011bl\u00e1me genetick\u00e9 testy na b\u00edl\u00fdch krvink\u00e1ch, jsou to tzv. HLA znaky, ty za\u0159ad\u00edme do t\u00e9 datab\u00e1ze a anonymn\u011b se vlastn\u011b vyhled\u00e1v\u00e1 shoda mezi d\u00e1rcem a pacientem a pokud se ta shoda najde, tak potom toho d\u00e1rce, pokud si ho transplanta\u010dn\u00ed centrum vybere, tak vyzveme k dal\u0161\u00edmu testov\u00e1n\u00ed. Zji\u0161\u0165ujeme u\u017e jeho aktu\u00e1ln\u00ed zdravotn\u00ed stav, z\u00e1rove\u0148 ov\u011b\u0159ujeme ten v\u00fdsledek prvotn\u00edho testov\u00e1n\u00ed a pokud i v t\u00e9hlet\u00e9 f\u00e1zi ten d\u00e1rce projde, tak se teprve pl\u00e1nuje transplantace, respektive odb\u011br t\u011bch krvetvorn\u00fdch bun\u011bk d\u00e1rce. <\/p>\n\n\n\n Petr Kr\u00e1l, moder\u00e1tor<\/strong> A jak to prob\u00edh\u00e1 potom d\u00e1l, pokud zazvon\u00ed tedy ten telefon u toho d\u00e1rce a najde se shoda, co se d\u011bje potom. <\/p>\n\n\n\n mluv\u010d\u00ed 1,<\/strong> Ten d\u00e1rce mus\u00ed p\u0159ij\u00edt k n\u00e1m, p\u0159ijde v p\u0159\u00edpad\u011b na\u0161eho testu, k n\u00e1m do IKEMu. Kolegyn\u011b s n\u00edm proberou jeho aktu\u00e1ln\u00ed mo\u017enosti \u010dasov\u00e9, jeho zm\u011bny, t\u0159eba zdravotn\u00edho stavu, proto\u017ee se mohl zaregistrovat p\u0159ed x lety nebo to m\u016f\u017ee b\u00fdt p\u00e1r m\u011bs\u00edc\u016f, tak\u017ee v\u017edy zkontrolujeme aktu\u00e1ln\u00ed zdravotn\u00ed stav, potom ten d\u00e1rce stejn\u011b podstoup\u00ed ve\u0161ker\u00e9 p\u0159edopera\u010dn\u00ed vy\u0161et\u0159en\u00ed, jako kdyby \u0161el na operaci, pak u\u017e je nasm\u011b\u0159ov\u00e1n i s tou na\u0161\u00ed kolegyn\u00ed, koordin\u00e1torkou do \u00dastavu hematologie a krevn\u00ed transfuze, kde se ty odb\u011bry d\u011blaj\u00ed, tam ten odb\u011br bu\u010f schv\u00e1l\u00ed nebo neschv\u00e1l\u00ed hematolog, kter\u00fd se o toho d\u00e1rce star\u00e1, a potom teprve n\u00e1sleduje ten odb\u011br, ta procedura trv\u00e1 p\u0159ibli\u017en\u011b 30 dn\u016f, tak\u017ee sem ten d\u00e1rce p\u0159ijde t\u0159ikr\u00e1t nebo \u010dty\u0159ikr\u00e1t podle toho, co je pot\u0159eba, a pak teprve ten odb\u011br prob\u00edh\u00e1. Je to ambulantn\u00ed z\u00e1krok, kter\u00e9mu ale p\u0159edch\u00e1z\u00ed \u010dty\u0159i dny stimulace r\u016fstov\u00fdm faktorem, tak\u017ee ten d\u00e1rce dost\u00e1v\u00e1 injekce, kter\u00e9 mu vyplav\u00ed ty pot\u0159ebn\u00e9 bu\u0148ky do krevn\u00edho ob\u011bhu a ty se pak odeb\u00edraj\u00ed na p\u0159\u00edstroji, kter\u00e9mu se \u0159\u00edk\u00e1 separ\u00e1tor.<\/p>\n\n\n\n moder\u00e1tor<\/strong> Za\u010d\u00edn\u00e1 to v\u0161echno tedy ale odb\u011brem slin, tak\u017ee pokud m\u00e1te \u0161anci a p\u0159\u00edle\u017eitost letos ty odb\u011brn\u00e9 t\u00fdmy vyr\u00e1\u017eely i na hudebn\u00ed festivaly, tak mo\u017en\u00e1, \u017ee i vy jste u\u017e v t\u00e9 datab\u00e1zi, o kter\u00e9 jsme te\u010f v rann\u00edm Radio\u017eurn\u00e1lu mluvili s Mari\u00ed Ku\u0159\u00edkovou, vedouc\u00ed registru d\u00e1rc\u016f krvetvorn\u00fdch bun\u011bk, kter\u00e1 byla na\u0161\u00edm hostem. D\u011bkujeme za v\u00e1\u0161 \u010das, d\u011bkujeme za to, co d\u011bl\u00e1te a v\u011b\u0159me, \u017ee i p\u0159\u00edb\u011bh Madlenky, o kter\u00e9m se dnes dozv\u00edme v\u00edc, bude m\u00edt posun. A \u017ee v\u0161ichni d\u00e1rci, i v\u0161ichni, kte\u0159\u00ed pot\u0159ebuj\u00ed to, co jim daruj\u00ed, najdou brzy shodu. M\u011bjte se moc hezky a na shledanou.<\/p>\n","protected":false},"excerpt":{"rendered":" \u010cRo Radio\u017eurn\u00e1l Rekordn\u00ed, tak takov\u00fd pravd\u011bpodobn\u011b bude leto\u0161n\u00ed rok pro \u010desk\u00e9 registry d\u00e1rc\u016f kostn\u00ed d\u0159en\u011b, celkem v nich te\u010f je zaps\u00e1no asi 200 000 lid\u00ed. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":27888,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-59688","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/59688","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=59688"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/59688\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/27888"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=59688"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=59688"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=59688"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}