{"id":60060,"date":"2025-08-14T22:39:44","date_gmt":"2025-08-14T20:39:44","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=60060"},"modified":"2025-08-14T22:39:44","modified_gmt":"2025-08-14T20:39:44","slug":"kazda-malickost-potesi-rika-maminka-adelky-ktera-trpi-rettovym-syndromem","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=60060","title":{"rendered":"Ka\u017ed\u00e1 mali\u010dkost pot\u011b\u0161\u00ed, \u0159\u00edk\u00e1 maminka Ad\u00e9lky, kter\u00e1 trp\u00ed Rettov\u00fdm syndromem"},"content":{"rendered":"\n<p>Hipoterapie je fyzioterapeutick\u00e1 metoda, kter\u00e1 vyu\u017e\u00edv\u00e1 specifick\u00e9ho pohybu ko\u0148sk\u00e9ho h\u0159betu v kroku k harmonizaci svalov\u00e9ho nap\u011bt\u00ed v t\u011ble pacienta. Terapeuticky p\u016fsob\u00ed pohyb, ale i bl\u00edzkost kon\u011b a teplo, kter\u00e9 z jeho t\u011bla proud\u00ed. Pom\u00e1h\u00e1 budovat spr\u00e1vn\u00e9 pohybov\u00e9 stereotypy, a t\u00edm pom\u00e1h\u00e1 rozv\u00edjet motorick\u00e9 schopnosti pacienta.<\/p>\n\n\n\n<p>Hipoterapie je metoda, p\u0159i kter\u00e9 l\u00e9\u010d\u00ed p\u016fsoben\u00ed kon\u011b na pacienta.<\/p>\n\n\n\n<p>\u201eTo, co l\u00e9\u010d\u00ed, je trojrozm\u011brn\u00fd pohyb ko\u0148sk\u00e9ho h\u0159betu. D\u016fle\u017eit\u00e9 je, abychom spr\u00e1vn\u011b ur\u010dili, jak\u00fd pohyb d\u00edt\u011b pot\u0159ebuje, n\u011bkter\u00e9 jezd\u00ed vsed\u011b, jin\u00e9 vle\u017ee, ale t\u0159eba i pozadu. Impulsy se p\u0159es ko\u0148sk\u00fd h\u0159bet p\u0159en\u00e1\u0161ej\u00ed na pacienta a doch\u00e1z\u00ed tak ke stimulaci centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu. K\u016f\u0148 m\u00e1 podobn\u00fd pohybov\u00fd stereotyp ch\u016fze jako \u010dlov\u011bk, t\u00edm se stimuluje mozek pacienta,\u201c vysv\u011btluje Ida Kubrichtov\u00e1, zakladatelka a p\u0159edsedkyn\u011b hiporehabilita\u010dn\u00edho centra Hiporehabilitace Jupiter v \u0158evnic\u00edch u Prahy, kde se t\u00e9to metod\u011b v\u011bnuj\u00ed.<\/p>\n\n\n\n<p>Jeden z n\u011bkolikadenn\u00edch pobyt\u016f pr\u00e1v\u011b v \u0158evnic\u00edch absolvovala t\u0159\u00edlet\u00e1 Ad\u00e9lka se sv\u00fdmi rodi\u010di i star\u0161\u00ed sestrou, kte\u0159\u00ed na kemp p\u0159ijeli z Vesel\u00ed\u010dka na Olomoucku.<\/p>\n\n\n\n<p>J\u00edzda na koni pom\u00e1h\u00e1 i mal\u00e9 Ad\u00e9lce<\/p>\n\n\n\n<p>Kdy\u017e bylo Ad\u00e9lce 23 m\u011bs\u00edc\u016f, l\u00e9ka\u0159i j\u00ed diagnostikovali Rett\u016fv syndrom, co\u017e je z\u00e1va\u017en\u00e9 neurov\u00fdvojov\u00e9 onemocn\u011bn\u00ed zp\u016fsoben\u00e9 mutac\u00ed v genu. Postihuje t\u00e9m\u011b\u0159 v\u00fdhradn\u011b d\u00edvky, d\u016fsledkem je t\u011b\u017ek\u00e9 kombinovan\u00e9 posti\u017een\u00ed.<\/p>\n\n\n\n<p>Ad\u00e9lce jsou nyn\u00ed t\u0159i roky, nemluv\u00ed, nechod\u00ed, sama se nenaj\u00ed, je celo\u017eivotn\u011b odk\u00e1zan\u00e1 na p\u00e9\u010di druh\u00e9 osoby. Rehabilitace a terapie j\u00ed pom\u00e1haj\u00ed posilovat svaly, aby se mohla nepatrn\u011b posouvat ve sv\u00e9m v\u00fdvoji. D\u00edky terapi\u00edm se u\u017e dok\u00e1\u017ee p\u0159eto\u010dit na b\u0159\u00ed\u0161ko, ob\u010das zp\u00e1tky na z\u00e1d\u00ed\u010dka. V r\u00e1mci cvi\u010den\u00ed zvl\u00e1dne sedy, v tureck\u00e9m sedu si dok\u00e1\u017ee sama hr\u00e1t, asistovan\u011b leze.<\/p>\n\n\n\n<p>Ad\u00e9l\u010din porod nebyl probl\u00e9mov\u00fd, i kdy\u017e se narodila vexem.<\/p>\n\n\n\n<p>\u201eV osm\u00e9m m\u011bs\u00edci byla zn\u00e1t regrese ve v\u00fdvoji, Ad\u00e9lka p\u0159estala d\u011blat druh\u00e9 vzp\u0159\u00edmen\u00ed. P\u0159i\u010d\u00edtali jsme to stavu po o\u010dkov\u00e1n\u00ed hexavakc\u00ednou a \u0159\u00edkali jsme si, \u017ee v\u0161echno do\u017eene,\u201c vzpom\u00edn\u00e1 maminka. V\u0161echna vy\u0161et\u0159en\u00ed \u2013 neurologie, magnetick\u00e1 rezonance, genetika, vy\u0161et\u0159en\u00ed krve \u2013 byla v po\u0159\u00e1dku.<\/p>\n\n\n\n<p>\u201eVypadalo to, \u017ee bude malinko opo\u017ed\u011bn\u00e1, zazn\u011bla i mo\u017enost lehk\u00e9 retardace, ale jinak nic. Na internetu jsme narazili na Rett\u016fv syndrom, ale geneti\u010dka \u0159\u00edkala, \u017ee nem\u00e1 typick\u00e9 p\u0159\u00edznaky. Jen\u017ee pak p\u0159i\u0161el tvrd\u00fd verdikt. Ad\u00e9lka trp\u00ed atypickou formou pr\u00e1v\u011b Rettova syndromu,\u201c vrac\u00ed se v \u010dase zp\u011bt pan\u00ed Lucie.<\/p>\n\n\n\n<p>Slov\u00e1\u010dkov\u00fdm se ve chv\u00edli zm\u011bnil \u017eivot.<\/p>\n\n\n\n<p>\u201eByla jsem ve velk\u00e9 depresi, doma jsem nebyla schopn\u00e1 nic ud\u011blat, po\u0159\u00e1d jsme si \u0159\u00edkali: Pro\u010d? Co bude d\u00e1l? Jak budeme \u017e\u00edt? V\u011bd\u011bli jsme, \u017ee Ad\u00e9lka bude na\u0161i pomoc pot\u0159ebovat neust\u00e1le. T\u011bch probre\u010den\u00fdch ve\u010der\u016f byl nespo\u010det,\u201c vzpom\u00edn\u00e1 ti\u0161e maminka.<\/p>\n\n\n\n<p>Postupn\u011b za\u010dali Lucie a Luk\u00e1\u0161 Slov\u00e1\u010dkovi s Ad\u00e9lkou absolvovat rehabilitace a terapie. \u201eV lednu ud\u011blala s oporou prvn\u00ed kr\u016f\u010dky, co\u017e byl obrovsk\u00fd pokrok, ve kter\u00fd jsme ani nedoufali,\u201c usm\u011bje se maminka, kter\u00e1 m\u00e1 velkou oporu v man\u017eelovi.<\/p>\n\n\n\n<p>Terapie a rehabilitace jsou finan\u010dn\u011b velice n\u00e1ro\u010dn\u00e9. \u201eS man\u017eelem jsme si v\u017edy v\u0161e obstarali a zaplatili sami, ale v\u0161e stoj\u00ed dost pen\u011bz. I proto jsme velice r\u00e1di, \u017ee n\u00e1\u0161 pobyt v \u0158evnic\u00edch finan\u010dn\u011b podpo\u0159ila zna\u010dka Kia prost\u0159ednictv\u00edm Nadace Na\u0161e d\u00edt\u011b, proto\u017ee jinak bychom si to nemohli dovolit. D\u00edky tomu se Ad\u00e9lka posunula ve sv\u00e9m v\u00fdvoji op\u011bt o malink\u00fd kr\u016f\u010dek kup\u0159edu.\u201c<\/p>\n\n\n\n<p>\u201eD\u011btem, jako je Ad\u00e9lka, kter\u00e9 se pot\u00fdkaj\u00ed s omezen\u00edm pohybu \u010di se z\u00e1va\u017enou diagn\u00f3zou, m\u016f\u017ee v\u010dasn\u00e1 pomoc v\u00fdrazn\u011b zlep\u0161it kvalitu \u017eivota cel\u00e9 rodiny. Proto n\u00e1s t\u011b\u0161\u00ed, \u017ee na\u0161e podpora sm\u011b\u0159uje p\u0159\u00edmo ke konkr\u00e9tn\u00edm d\u011btem,\u201c \u0159\u00edk\u00e1 Kate\u0159ina Va\u0148kov\u00e1 Jougl\u00ed\u010dkov\u00e1, tiskov\u00e1 mluv\u010d\u00ed Kia Czech.<\/p>\n\n\n\n<p>A dod\u00e1v\u00e1: \u201eV\u011b\u0159\u00edme, \u017ee na\u0161e dlouhodob\u00e1 podpora ve spolupr\u00e1ci s Nadac\u00ed Na\u0161e d\u00edt\u011b, d\u00edky n\u00ed\u017e jsme p\u0159isp\u011bli ji\u017e v\u00edce ne\u017e p\u011bti miliony korun na p\u0159\u00edmou pomoc rodin\u00e1m, m\u00e1 skute\u010dn\u00fd smysl a inspiruje i na\u0161e z\u00e1kazn\u00edky a partnery.\u201c<\/p>\n\n\n\n<p>T\u011b\u0161\u00edm se na ka\u017ed\u00fd den, \u0159\u00edk\u00e1 maminka Ad\u00e9lky<\/p>\n\n\n\n<p>U\u017e v z\u00e1\u0159\u00ed by se maminka, vystudovan\u00e1 v\u0161eobecn\u00e1 sestra, r\u00e1da vr\u00e1tila do pr\u00e1ce na psychiatrii v olomouck\u00e9 Vojensk\u00e9 nemocnici. \u201eAd\u00e9lka nastoup\u00ed do speci\u00e1ln\u00ed \u0161kolky, kde jsou zaji\u0161t\u011bny terapie, rehabilitace. Uvid\u00edme, jak to zvl\u00e1dne,\u201c \u0159\u00edk\u00e1.<\/p>\n\n\n\n<p>\u017divot Slov\u00e1\u010dkov\u00fdch se skl\u00e1d\u00e1 z mali\u010dkost\u00ed a ka\u017ed\u00fd posun Ad\u00e9lky je d\u016fvodem k radosti. \u201eS t\u00edm se \u010dlov\u011bk nikdy nesm\u00ed\u0159\u00ed, ale mus\u00ed se nau\u010dit s t\u00edm \u017e\u00edt. I te\u010f se stane, \u017ee dcery usnou, j\u00e1 sed\u00edm a jen ti\u0161e kouk\u00e1m, jak oddechuj\u00ed, a m\u00e1m slzy v o\u010d\u00edch. A p\u0159itom se t\u011b\u0161\u00edm na ka\u017ed\u00fd dal\u0161\u00ed den. Na ka\u017edou mali\u010dkost, kter\u00e1 n\u00e1s pot\u011b\u0161\u00ed,\u201c dod\u00e1v\u00e1 pan\u00ed Lucie. Maminka mal\u00e9 bojovnice Ad\u00e9lky\u2026<\/p>\n\n\n\n<p>Ji\u0159\u00ed Macek<\/p>\n\n\n\n<p>Den\u00edk.cz<\/p>\n\n\n\n<p><a href=\"https:\/\/www.denik.cz\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/www.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>Hipoterapie je fyzioterapeutick\u00e1 metoda, kter\u00e1 vyu\u017e\u00edv\u00e1 specifick\u00e9ho pohybu ko\u0148sk\u00e9ho h\u0159betu v kroku k harmonizaci svalov\u00e9ho nap\u011bt\u00ed v t\u011ble pacienta. Terapeuticky p\u016fsob\u00ed pohyb, ale i bl\u00edzkost <a class=\"mh-excerpt-more\" href=\"https:\/\/www.invarena.cz\/?p=60060\" title=\"Ka\u017ed\u00e1 mali\u010dkost pot\u011b\u0161\u00ed, \u0159\u00edk\u00e1 maminka Ad\u00e9lky, kter\u00e1 trp\u00ed Rettov\u00fdm syndromem\">[&#8230;]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":21454,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-60060","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/60060","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=60060"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/60060\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/21454"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=60060"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=60060"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=60060"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}