Na dv\u011b st\u011b nad\u0161enc\u016f se v sobotu z\u00fa\u010dastnilo \u0161est\u00e9ho ro\u010dn\u00edku charitativn\u011b spole\u010densk\u00e9 akce Trous\u00edme se na Kle\u0165. Na podporu lid\u00ed s roztrou\u0161enou skler\u00f3zou ji uspo\u0159\u00e1dala organizace ROSKA \u010cesk\u00e9 Bud\u011bjovice.<\/p>\n\n\n\n
Zdolat Kle\u0165, a podpo\u0159it tak lidi s roztrou\u0161enou skler\u00f3zou (RS) mohli z\u00e1jemci z parkovi\u0161t\u011b Kraset\u00edn. Tady dostali startovn\u00ed \u010d\u00edsla a vyrazili na vrchol k rozhledn\u011b. Ti, kte\u0159\u00ed si netroufali p\u011b\u0161ky, mohli vyu\u017e\u00edt lanovku.<\/p>\n\n\n\n
Na vrcholu se \u00fa\u010dastn\u00edci mohli t\u011b\u0161it na ochutn\u00e1vku Pita, malou odm\u011bnu od partner\u016f akce a p\u0159i spr\u00e1vn\u00e9m vypln\u011bn\u00ed sout\u011b\u017en\u00edho kv\u00edzu tak\u00e9 na bohatou tombolu. \u201cKv\u00edzov\u00fdmi ot\u00e1zkami jsme cht\u011bli vyvr\u00e1tit n\u011bkter\u00e9 m\u00fdty a omyly, kter\u00e9 jsou s touto nemoc\u00ed spjaty,\u201d vysv\u011btluje V\u011bra \u0160v\u00e1bov\u00e1, p\u0159edsedkyn\u011b ROSKY \u010cesk\u00e9 Bud\u011bjovice. \u201cT\u0159eba \u017ee je roztrou\u0161en\u00e1 skler\u00f3za nemoc star\u0161\u00edch lid\u00ed, souvis\u00ed se zapom\u00edn\u00e1n\u00edm \u010di demenc\u00ed, nebo \u017ee ka\u017ed\u00fd skon\u010d\u00ed na invalidn\u00edm voz\u00edku. Ani to nemus\u00ed b\u00fdt pravda,\u201d dopl\u0148uje.<\/p>\n\n\n\n
Od 11 do 12 hodin si v\u0161ichni mohli u\u017e\u00edt v\u00fdhled z rozhledny zdarma, p\u0159ipravena byla sout\u011b\u017e O nejrychlej\u0161\u00edho Kle\u0165\u00e1ka, ale i program pro d\u011bti zam\u011b\u0159en\u00fd na lesn\u00ed pedagogiku.<\/p>\n\n\n\n
C\u00edlem akce Trous\u00edme se na Kle\u0165 je vyvracet nepodlo\u017een\u00e9 m\u00fdty spojen\u00e9 s roztrou\u0161enou skler\u00f3zou upozornit na to, \u017ee pohyb je pro lidi s RS nezbytn\u00fd, stejn\u011b jako pro zdrav\u00e9ho \u010dlov\u011bka. \u201eZ prost\u0159edk\u016f, kter\u00e9 na Kleti vybereme, uhrad\u00edme provoz a modernizaci rehabilita\u010dn\u00edho centra pro lidi s RS,\u201c doplnila V\u011bra \u0160v\u00e1bov\u00e1 s t\u00edm, \u017ee v\u00fdt\u011b\u017eek ze zape\u010det\u011bn\u00fdch kasi\u010dek budou v organizaci ROSKA teprve po\u010d\u00edtat.<\/p>\n\n\n\n
Roztrou\u0161en\u00e1 skler\u00f3za je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed dosud zn\u00e1ma. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence je t\u011b\u017ek\u00e1. Na cel\u00e9m sv\u011bt\u011b trp\u00ed RS 2,5 milionu nemocn\u00fdch, v \u010cesku se odhaduje po\u010det pacient\u016f na 23 tis\u00edc. Nemoc se vyskytuje hlavn\u011b ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus (Epstein-Barrov\u00e9 virus), kou\u0159en\u00ed a nedostatek vitaminu D. RS je bohu\u017eel nevyl\u00e9\u010diteln\u00e1, lze ji jen l\u00e9ky zpomalit a zm\u00edrnit jej\u00ed projevy. Pravideln\u00e9 cvi\u010den\u00ed a rehabilitace jsou pro pacienty s RS, vedle medikament\u00f3zn\u00ed l\u00e9\u010dby, nenahraditelnou sou\u010d\u00e1st\u00ed jejich \u017eivot\u016f, oddaluj\u00edc\u00ed invaliditu a prodlu\u017euj\u00edc\u00ed aktivn\u00ed \u017eivot.<\/p>\n\n\n\n
Roska \u010cesk\u00e9 Bud\u011bjovice: Ji\u017e od r. 1993 pom\u00e1h\u00e1 lidem s roztrou\u0161enou skler\u00f3zou a jejich bl\u00edzk\u00fdm aktivn\u011b bojovat s nemoc\u00ed a motivuje je, aby sv\u016fj \u017eivotn\u00ed boj nevzd\u00e1vali, u\u017e jenom proto, aby si sami mohli uva\u0159it k\u00e1vu, doj\u00edt nakoupit \u010di vz\u00edt d\u00edt\u011b do n\u00e1ru\u010de\u2026 Vedle medikace hraje v l\u00e9\u010db\u011b obrovskou roli rehabilitace a cvi\u010den\u00ed, a proto\u017ee v Jiho\u010desk\u00e9m kraji nebylo \u017e\u00e1dn\u00e9 za\u0159\u00edzen\u00ed, kter\u00e9 by pln\u011b respektovalo pot\u0159eby t\u011bchto pacient\u016f, otev\u0159eli jsme v z\u00e1\u0159\u00ed 2019 rehabilita\u010dn\u00ed a poradensk\u00e9 centrum Rosky \u010cesk\u00e9 Bud\u011bjovice s vlastn\u00ed t\u011blocvi\u010dnou. Mimo dosud vykon\u00e1van\u00e9 poradensk\u00e9 a informa\u010dn\u00ed slu\u017eby nyn\u00ed pacient\u016fm nab\u00edz\u00edme i r\u016fzn\u00e9 typy cvi\u010den\u00ed uzp\u016fsoben\u00e9 na m\u00edru jejich handicapu (rehabilita\u010dn\u00ed cvi\u010den\u00ed, j\u00f3ga, cvi\u010den\u00ed dle Feldenkraisovy metody, posilovac\u00ed cvi\u010den\u00ed, kondi\u010dn\u00ed tr\u00e9ninky apod.), nebo si mohou p\u0159ij\u00edt zacvi\u010dit individu\u00e1ln\u011b. To v\u0161e pod dohledem certifikovan\u00fdch lektor\u016f a fyzioterapeut\u016f znal\u00fdch specifik nemoci. Organizujeme rekondi\u010dn\u00ed pobyty, plav\u00e1n\u00ed, ,sportovn\u00ed, kulturn\u00ed a spole\u010densk\u00e9 benefi\u010dn\u00ed akce, star\u00e1me se o v\u0161eobecnou informovanost \u0161irok\u00e9 ve\u0159ejnosti a spolupracujeme s neurology.<\/p>\n\n\n\n
Martin Tr\u00f6ster<\/p>\n\n\n\n
\u010ceskokrumlovsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/ceskokrumlovsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Na dv\u011b st\u011b nad\u0161enc\u016f se v sobotu z\u00fa\u010dastnilo \u0161est\u00e9ho ro\u010dn\u00edku charitativn\u011b spole\u010densk\u00e9 akce Trous\u00edme se na Kle\u0165. Na podporu lid\u00ed s roztrou\u0161enou skler\u00f3zou ji uspo\u0159\u00e1dala […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":24091,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-60720","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/60720","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=60720"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/60720\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/24091"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=60720"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=60720"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=60720"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}