\u201ePo 20 letech s migr\u00e9nou jsem si poprv\u00e9 nep\u0159i\u0161la jako p\u0159ecitliv\u011bl\u00e1 nebo l\u00edn\u00e1. Kone\u010dn\u011b n\u011bkdo popsal p\u0159esn\u011b to, co za\u017e\u00edv\u00e1m \u2013 a neodsuzoval m\u011b.\u201c <\/p>\n\n\n\n
Tato a podobn\u00e1 slova zazn\u011bla p\u0159i \u0161est\u00e9m ro\u010dn\u00edku festivalu Migr\u00e9na n\u00e1s spojuje,
kter\u00fd po\u0159\u00e1dala pacientsk\u00e1 organizace Migr\u00e9na-help. <\/p>\n\n\n\n
Pro nemoc, kter\u00e1 v \u010cesku tr\u00e1p\u00ed p\u0159es milion lid\u00ed, je typick\u00e1 nejen nesnesiteln\u00e1 bolest, ale tak\u00e9 \u00faporn\u00e9 zvracen\u00ed, p\u0159ecitliv\u011blost na sv\u011btlo, zvuky, pachy a v\u016fn\u011b, \u00fazkost, pocen\u00ed, zimnice, pr\u016fjem, brn\u011bn\u00ed, poruchy mluven\u00ed a ch\u00e1p\u00e1n\u00ed. V\u0161echny, kdo migr\u00e9nu maj\u00ed, nemoc siln\u011b omezuje \u2013 zt\u011b\u017euje pr\u00e1ci nebo p\u00e9\u010di o d\u011bti.
Nikdy netu\u0161\u00ed, kdy p\u0159ijde z\u00e1chvat, kter\u00fd je ochrom\u00ed.<\/p>\n\n\n\n
\u201eZ\u00e1\u0159\u00ed je, kv\u016fli n\u00e1stupu d\u011bt\u00ed do \u0161koly a konci dovolen\u00fdch, nav\u00edc obdob\u00edm zv\u00fd\u0161en\u00e9ho stresu, a
tedy i rizika vzniku atak migr\u00e9ny. Stres a shon jsou jedn\u00edm ze spou\u0161t\u011b\u010d\u016f z\u00e1chvat\u016f, kter\u00e9 um\u00ed
\u010dlov\u011bka zablokovat na \u0159adu dn\u016f. Lid\u00e9, kte\u0159\u00ed se s touto nemoc\u00ed pot\u00fdkaj\u00ed, o tom pot\u0159ebuj\u00ed
otev\u0159en\u011b mluvit, neskr\u00fdvat pot\u00ed\u017ee kv\u016fli obav\u00e1m z v\u00fdsm\u011bchu a hledat nov\u00e9 mo\u017enosti l\u00e9\u010dby, i
kdy\u017e s migr\u00e9nou \u017eij\u00ed u\u017e \u0159adu let,\u201c \u0159\u00edk\u00e1 R\u00fdza Bla\u017eejovsk\u00e1, p\u0159edsedkyn\u011b Migr\u00e9na-help.<\/p>\n\n\n\n
\u201eMigr\u00e9na sice nezab\u00edj\u00ed, ale ni\u010d\u00ed \u017eivoty. Aby se lid\u00e9 vyhnuli bolestem a pot\u00ed\u017e\u00edm, \u010dasto u\u017e\u00edvaj\u00ed
p\u0159\u00edli\u0161 mnoho analgetik \u010di triptan\u016f a nemoc se hor\u0161\u00ed. Dnes m\u00e1me na\u0161t\u011bst\u00ed k dispozici modern\u00ed
l\u00e9\u010dbu, v\u010detn\u011b molekul zvan\u00fdch gepanty. Tato nov\u011bj\u0161\u00ed skupina l\u00e9k\u016f blokuje protein pod\u00edlej\u00edc\u00ed
se na spu\u0161t\u011bn\u00ed z\u00e1chvatu. N\u011bkter\u00e9 gepanty nasazujeme akutn\u011b, jin\u00e9 preventivn\u011b. V\u00fdhodou je,
\u017ee mohou pomoci i pacient\u016fm, kter\u00fdm b\u011b\u017en\u00e1 l\u00e9\u010dba nezab\u00edr\u00e1, nesed\u00ed, nebo ji kv\u016fli jin\u00e9mu
onemocn\u011bn\u00ed v\u016fbec nemohou u\u017e\u00edvat \u2013 nap\u0159\u00edklad po c\u00e9vn\u00ed mozkov\u00e9 p\u0159\u00edhod\u011b nebo p\u0159i vysok\u00e9m
krevn\u00edm tlaku,\u201c vysv\u011btluje MUDr. Eva Medov\u00e1, vedouc\u00ed Centra pro diagnostiku a l\u00e9\u010dbu
bolesti hlavy FN Kr\u00e1lovsk\u00e9 Vinohrady.<\/p>\n\n\n\n
Ne v\u0161em je v\u0161ak podle \u00fa\u010dastn\u00edk\u016f modern\u00ed l\u00e9\u010dba dostupn\u00e1. O zpo\u017ed\u011bn\u00ed, s jak\u00fdm se pacienti k
terapii \u010dasto dost\u00e1vaj\u00ed, mluvil MUDr. Ji\u0159\u00ed Neumann, prim\u00e1\u0159 neurologick\u00e9ho odd\u011blen\u00ed v
Nemocnici Chomutov. \u201eV ordinaci se bohu\u017eel st\u00e1le setk\u00e1v\u00e1m s t\u00edm, \u017ee pacient vyhled\u00e1 na\u0161i
pomoc a\u017e po mnoha letech utrpen\u00ed. I dnes toti\u017e lid\u00e9 sl\u00fdchaj\u00ed od okol\u00ed, \u017ee \u201aje to jen bolest
hlavy\u2018 a maj\u00ed se z toho vyspat. V\u00fdsledkem je, \u017ee pot\u00ed\u017ee taj\u00ed, o nemoci se boj\u00ed mluvit v pr\u00e1ci i
doma. P\u0159itom kv\u016fli n\u00ed p\u0159ich\u00e1zej\u00ed o zam\u011bstn\u00e1n\u00ed, pl\u00fdtvaj\u00ed dovolenou, vzd\u00e1vaj\u00ed se kari\u00e9ry,
p\u0159\u00e1telstv\u00ed a vztah\u016f. Je t\u0159eba neust\u00e1le opakovat, \u017ee migr\u00e9na nen\u00ed slabost. Je to neurologick\u00e9
onemocn\u011bn\u00ed, kter\u00e9 si zaslou\u017e\u00ed stejn\u011b v\u00e1\u017en\u00fd p\u0159\u00edstup jako nap\u0159\u00edklad diabetes nebo epilepsie,\u201c
\u0159\u00edk\u00e1 prim. Neumann.<\/p>\n\n\n\n
Krom\u011b odborn\u00fdch p\u0159edn\u00e1\u0161ek festival nab\u00eddl i bezpe\u010dn\u00fd prostor pro vz\u00e1jemnou podporu.
\u00da\u010dastn\u00edci sd\u00edleli nejen sv\u00e9 p\u0159\u00edb\u011bhy, ale tak\u00e9 frustraci z nepochopen\u00ed, obavy z budoucnosti a
t\u00edhu viny, kter\u00e1 \u010dasto prov\u00e1z\u00ed neschopnost naplno fungovat v pr\u00e1ci i v rodin\u011b. Mluvilo se tak\u00e9
o tom, co v\u0161echno m\u016f\u017ee pomoci, od vhodn\u00e9 medikace p\u0159es fyzioterapii a psychoterapii a\u017e
po komunitn\u00ed podporu.<\/p>\n\n\n\n
\u201eMigr\u00e9na m\u011b prov\u00e1z\u00ed cel\u00fd \u017eivot. V\u00edm, jak\u00e9 to je, kdy\u017e v\u00e1s bolest vy\u0159ad\u00ed z provozu \u2013 a taky jak moc pom\u016f\u017ee, kdy\u017e v\u00e1s n\u011bkdo vyslechne a ch\u00e1pe,\u201c \u0159ekla here\u010dka Michaela Maurerov\u00e1, kter\u00e1 se na festivalu pod\u011blila o sv\u016fj p\u0159\u00edb\u011bh.<\/p>\n\n\n\n
Festival podle R\u00fdzy Bla\u017eejovsk\u00e9 jasn\u011b uk\u00e1zal, \u017ee kdy\u017e pacienti nejsou se svou nemoc\u00ed sami,
m\u011bn\u00ed se jejich vn\u00edm\u00e1n\u00ed i motivace jednat. \u201eD\u00edky konzultaci s l\u00e9ka\u0159kou jsem pochopila, \u017ee
m\u00e1m n\u00e1rok na l\u00e9\u010dbu, kterou mi zat\u00edm nikdo nenab\u00eddl. A rozhodla jsem se kone\u010dn\u011b objednat
do specializovan\u00e9ho centra,\u201c uvedla jedna z \u00fa\u010dastnic. <\/p>\n\n\n\n
Leto\u0161n\u00ed ro\u010dn\u00edk festivalu nav\u00e1zal na Mezin\u00e1rodn\u00ed den boje proti migr\u00e9n\u011b, kter\u00fd ka\u017edoro\u010dn\u011b p\u0159ipad\u00e1 na 12. z\u00e1\u0159\u00ed a vyhla\u0161uje jej Evropsk\u00e1 aliance pro migr\u00e9nu a bolesti hlavy (EMHA). C\u00edlem t\u00e9to iniciativy je zvy\u0161ovat
pov\u011bdom\u00ed o z\u00e1va\u017enosti migr\u00e9ny, odbour\u00e1vat spole\u010densk\u00e9 stigma a podporovat pacienty, aby
se neb\u00e1li mluvit o sv\u00fdch pot\u00ed\u017e\u00edch a aktivn\u011b se hl\u00e1sili o lep\u0161\u00ed p\u00e9\u010di.<\/p>\n\n\n\n
Migr\u00e9na
Migr\u00e9na je dlouhodob\u00e9 neurologick\u00e9 onemocn\u011bn\u00ed, kter\u00e9 se projevuje opakovan\u00fdmi z\u00e1chvaty bolesti
hlavy doprov\u00e1zen\u00fdmi p\u0159\u00edznaky, jako jsou sv\u011btloplachost, p\u0159ecitliv\u011blost na zvuky, nevolnost nebo
zvracen\u00ed. Z\u00e1chvat obvykle trv\u00e1 jeden a\u017e t\u0159i dny a b\u011b\u017en\u00e9 denn\u00ed aktivity b\u011bhem n\u011bj stav v\u00fdrazn\u011b
zhor\u0161uj\u00ed. Pokud se z\u00e1chvaty objevuj\u00ed \u010dast\u011bji ne\u017e \u010dty\u0159ikr\u00e1t do m\u011bs\u00edce, doporu\u010duje se zv\u00e1\u017eit preventivn\u00ed
l\u00e9\u010dbu. D\u016fle\u017eitou roli hraje i akutn\u00ed l\u00e9\u010dba, kter\u00e1 pom\u00e1h\u00e1 zvl\u00e1dnout samotn\u00fd z\u00e1chvat. Krom\u011b
zaveden\u00fdch mo\u017enost\u00ed, jako jsou analgetika a triptany, jsou dnes dostupn\u00e9 i tzv. gepanty, kter\u00e9 blokuj\u00ed
specifick\u00e9 mechanismy spojen\u00e9 se vznikem migr\u00e9ny. Tyto l\u00e9ky lze nasazovat jak preventivn\u011b, tak p\u0159i
samotn\u00e9m z\u00e1chvatu \u2013 a p\u0159edstavuj\u00ed nad\u011bji zejm\u00e9na pro pacienty, kter\u00fdm dosavadn\u00ed l\u00e9\u010dba nezab\u00edr\u00e1,
nebyla dob\u0159e sn\u00e1\u0161ena, nebo ji kv\u016fli jin\u00fdm onemocn\u011bn\u00edm nemohou u\u017e\u00edvat (nap\u0159\u00edklad po c\u00e9vn\u00ed
mozkov\u00e9 p\u0159\u00edhod\u011b, infarktu nebo p\u0159i vysok\u00e9m krevn\u00edm tlaku). Krit\u00e9ria pro hrazen\u00ed akutn\u00ed l\u00e9\u010dby jsou
omezen\u00e1, ale i tak si mohou pacienti l\u00e9ky hradit v re\u017eimu samopl\u00e1tc\u016f. Vhodnou l\u00e9\u010dbu v\u017edy ur\u010duje
odborn\u00fd l\u00e9ka\u0159 \u2013 neurolog v ambulanci nebo ve specializovan\u00e9m centru pro diagnostiku a l\u00e9\u010dbu
bolest\u00ed hlavy. Jejich seznam je dostupn\u00fd na www.migrena-help.cz\/poradny.<\/p>\n\n\n\n
Migr\u00e9na-help
Migr\u00e9na-help je prvn\u00ed pacientskou organizac\u00ed v \u010cesk\u00e9 republice, kter\u00e1 se zam\u011b\u0159uje na podporu lid\u00ed s
migr\u00e9nou a jejich bl\u00edzk\u00fdch. Nab\u00edz\u00ed informa\u010dn\u00ed servis, poradenstv\u00ed, sv\u00e9pomocn\u00e9 kruhy sd\u00edlen\u00ed,
zprost\u0159edkov\u00e1n\u00ed psychoterapie a realizuje osv\u011btov\u00e9 kampan\u011b i pr\u016fzkumy mezi pacienty. Aktivn\u011b se
tak\u00e9 zasazuje o syst\u00e9mov\u00e9 zm\u011bny v p\u0159\u00edstupu k diagnostice a l\u00e9\u010db\u011b migr\u00e9ny. Organizace funguje jako
neziskov\u00e1 a sv\u00e9 slu\u017eby poskytuje zdarma nebo za symbolick\u00fd poplatek. V\u00edce informac\u00ed najdete na
www.migrena-help.cz.<\/p>\n\n\n\n
O mo\u017enostech l\u00e9\u010dby je mo\u017en\u00e9 se poradit se specialisty na migr\u00e9nu v unik\u00e1tn\u00ed bezplatn\u00e9 online
l\u00e9ka\u0159sk\u00e9 poradn\u011b Migr\u00e9na-help: www.migrena-help.cz\/lekarska-poradna\/<\/p>\n","protected":false},"excerpt":{"rendered":"
\u201ePo 20 letech s migr\u00e9nou jsem si poprv\u00e9 nep\u0159i\u0161la jako p\u0159ecitliv\u011bl\u00e1 nebo l\u00edn\u00e1. Kone\u010dn\u011b n\u011bkdo popsal p\u0159esn\u011b to, co za\u017e\u00edv\u00e1m \u2013 a neodsuzoval m\u011b.\u201c Tato […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":10615,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-60757","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/60757","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=60757"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/60757\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/10615"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=60757"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=60757"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=60757"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}