Studovala, sportovala, u\u017e\u00edvala si \u017eivot. Je\u0161t\u011b p\u0159ed p\u00e1r lety byla dnes jednadvacetilet\u00e1 Ivana Cetkovsk\u00e1 z Bden\u011bvsi na Plze\u0148sku stejn\u00e1 jako jin\u00e9 d\u00edvky. Po prod\u011bl\u00e1n\u00ed covidu-19 ale p\u0159i\u0161el zlom. Za\u010dala m\u00edt zdravotn\u00ed probl\u00e9my a nakonec se uk\u00e1zalo, \u017ee trp\u00ed vz\u00e1cn\u00fdm nevyl\u00e9\u010diteln\u00fdm genetick\u00fdm onemocn\u011bn\u00edm, kter\u00e9 ji upoutalo na invalidn\u00ed voz\u00edk. Nad\u011bj\u00ed je pro ni zahrani\u010dn\u00ed l\u00e9\u010dba, ke kter\u00e9 j\u00ed m\u016f\u017ee pomoci sb\u00edrka.<\/p>\n\n\n\n
\u201eNa za\u010d\u00e1tku roku 2022 jsem byla oby\u010dejnou d\u00edvkou. Studovala jsem gymn\u00e1zium, sportovala, tr\u00e1vila \u010das s p\u0159\u00e1teli a snila o budoucnosti. \u017dila jsem bezstarostn\u011b, tak, jak by to m\u011blo v sedmn\u00e1cti letech b\u00fdt,\u201c vzpom\u00edn\u00e1 Ivana Cetkovsk\u00e1.<\/p>\n\n\n\n
V\u0161echno se zm\u011bnilo po prod\u011bl\u00e1n\u00ed covidu-19, kdy\u017e p\u0159i\u0161ly prvn\u00ed z\u00e1chvaty. \u201eM\u00edsto \u0161koln\u00edch lavic jsem za\u010dala pozn\u00e1vat \u010dek\u00e1rny a nemocni\u010dn\u00ed pokoje. M\u011bs\u00edce jsem trp\u011bla vy\u010derp\u00e1n\u00edm, bolestmi a hlavn\u011b bezradnost\u00ed. L\u00e9ka\u0159i nev\u011bd\u011bli, co se se mnou d\u011bje, a j\u00e1 jsem sledovala, jak mi miz\u00ed \u017eivot, kter\u00fd jsem znala,\u201c popisuje.<\/p>\n\n\n\n
Po roce a p\u016fl p\u0159i\u0161la diagn\u00f3za \u2013 vz\u00e1cn\u00e9 genetick\u00e9 onemocn\u011bn\u00ed Ehlers\u016fv\u2013Danlos\u016fv syndrom, kter\u00e9 naru\u0161uje pojivovou tk\u00e1\u0148. Nemoc spustila v\u00e1\u017en\u00e9 komplikace: syndrom postur\u00e1ln\u00ed ortostatick\u00e9 tachykardie, kdy nervov\u00e1 soustava nedok\u00e1\u017ee regulovat st\u00e1n\u00ed, nebo vaskul\u00e1rn\u00ed komprese, kv\u016fli nim\u017e trp\u00ed tr\u00e1vic\u00edmi obt\u00ed\u017eemi.<\/p>\n\n\n\n
Obrat o 180 stup\u0148\u016f<\/p>\n\n\n\n
\u201eDnes se o sebe nedok\u00e1\u017eu postarat sama. \u010cast\u00e9 z\u00e1chvaty vy\u017eaduj\u00ed neust\u00e1l\u00fd dohled \u2013 star\u00e1 se o m\u011b maminka, kter\u00e1 musela p\u0159estat pracovat. Sama se \u010dasto nepostav\u00edm, n\u011bkdy pot\u0159ebuji b\u00fdt p\u0159enesen\u00e1. Pou\u017e\u00edv\u00e1m invalidn\u00ed voz\u00edk a m\u00e1m zaveden\u00fd centr\u00e1ln\u00ed \u017eiln\u00ed kat\u00e9tr, p\u0159es kter\u00fd si n\u011bkolikr\u00e1t t\u00fddn\u011b sama pod\u00e1v\u00e1m infuze,\u201c pokra\u010duje d\u00edvka.<\/p>\n\n\n\n
\u201eM\u016fj \u017eivot se \u00fapln\u011b obr\u00e1til. Z aktivn\u00ed d\u00edvky se stal \u010dlov\u011bk, kter\u00fd ka\u017ed\u00fd den bojuje o kousek svobody a d\u016fstojnosti. P\u0159esto mi nemoc nevzala nad\u011bji ani chu\u0165 bojovat. Nap\u0159\u00edklad miluju tvo\u0159it, d\u00e1v\u00e1 mi to s\u00edlu a odpo\u010dinu si p\u0159i tom,\u201c dod\u00e1v\u00e1.<\/p>\n\n\n\n
I p\u0159es v\u00e1\u017en\u00e9 zdravotn\u00ed probl\u00e9my je Ivana Cetkovsk\u00e1 studentkou Z\u00e1pado\u010desk\u00e9 univerzity. \u201eStuduji u\u010ditelstv\u00ed biologie a matematiky, obory, kter\u00e9 m\u011b skute\u010dn\u011b bav\u00ed. D\u00edky individu\u00e1ln\u011b upraven\u00e9mu re\u017eimu mohu studium zvl\u00e1dat i z domova \u2013 v\u00fduky se v\u011bt\u0161inou ne\u00fa\u010dastn\u00edm osobn\u011b, u\u010d\u00edm se samostatn\u011b a zkou\u0161ky a z\u00e1po\u010dty d\u011bl\u00e1m individu\u00e1ln\u011b. O to v\u00edc si v\u00e1\u017e\u00edm ochoty a podpory vyu\u010duj\u00edc\u00edch, d\u00edky kter\u00fdm je pro m\u011b studium mo\u017en\u00e9,\u201c konstatuje.<\/p>\n\n\n\n
Nad\u011bj\u00ed pro ni je zahrani\u010dn\u00ed l\u00e9\u010dba a speci\u00e1ln\u00ed p\u00e9\u010de. \u201eBohu\u017eel je to finan\u010dn\u011b velmi n\u00e1ro\u010dn\u00e9, proto jsme s rodinou zalo\u017eili ve\u0159ejnou sb\u00edrku. Pen\u00edze ze sb\u00edrky mi pomohou nejen s l\u00e9\u010dbou, ale tak\u00e9 s ka\u017edodenn\u00edmi v\u00fddaji a pot\u0159ebn\u00fdmi pom\u016fckami, nap\u0159\u00edklad nov\u00fdm voz\u00edkem,\u201c vysv\u011btluje mlad\u00e1 \u017eena.<\/p>\n\n\n\n
Sb\u00edrku, ve kter\u00e9 se sna\u017e\u00ed z\u00edskat milion korun, najdete na internetov\u00e9 platform\u011b Znesnaze21.cz pod n\u00e1zvem Nevyl\u00e9\u010diteln\u00e9 onemocn\u011bn\u00ed Ivanku nezastav\u00ed: https:\/\/www.znesnaze21.cz\/sbirka\/nevylecitelne-onemocneni-ivanku-nezastavi-pomozme-ji-k-vetsi-svobode?fbclid=IwY2xjawLmI4lleHRuA2FlbQIxMABicmlkETFzQ1pWeUdrU0N0QzZZTmNXAR4qnJQd7agK8DsKVyBoh2iHFKYUul1LuAxLeXL0qVnoYcdelTKNH3CVh4lGgw_aem_RnSD83qVgla5YRxd-niptA#o-sbirce<\/a><\/p>\n\n\n\n Milan Kili\u00e1n<\/p>\n\n\n\n Den\u00edk.cz<\/p>\n\n\n\n https:\/\/www.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Studovala, sportovala, u\u017e\u00edvala si \u017eivot. Je\u0161t\u011b p\u0159ed p\u00e1r lety byla dnes jednadvacetilet\u00e1 Ivana Cetkovsk\u00e1 z Bden\u011bvsi na Plze\u0148sku stejn\u00e1 jako jin\u00e9 d\u00edvky. Po prod\u011bl\u00e1n\u00ed covidu-19 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":4884,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-60908","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/60908","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=60908"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/60908\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/4884"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=60908"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=60908"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=60908"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}