V sobotu dvac\u00e1t\u00e9ho z\u00e1\u0159\u00ed se v domov\u011b d\u016fchodc\u016f v Prose\u010di u Po\u0161n\u00e9 uskute\u010dnilo setk\u00e1n\u00ed rodin klient\u016f s Huntingtonovou chorobou. Tato ud\u00e1lost, kter\u00e1 se u n\u00e1s stala ji\u017e tradic\u00ed, p\u0159in\u00e1\u0161\u00ed mo\u017enost spole\u010dn\u011b sd\u00edlet zku\u0161enosti, pos\u00edlit vz\u00e1jemnou podporu a z\u00e1rove\u0148 str\u00e1vit \u010das se sv\u00fdmi bl\u00edzk\u00fdmi v p\u0159\u00edjemn\u00e9 atmosf\u00e9\u0159e.<\/p>\n\n\n\n
Do na\u0161eho domova p\u0159ijely rodiny z r\u016fzn\u00fdch kout\u016f \u010cesk\u00e9 republiky. Setk\u00e1n\u00ed slavnostn\u011b zah\u00e1jili a prov\u00e1zeli j\u00edm \u0159editel domova Ji\u0159\u00ed Hormandl a vedouc\u00ed \u00faseku domova pro osoby s Huntingtonovou chorobou, Jana Fl\u00eddrov\u00e1, kte\u0159\u00ed svou p\u0159\u00edtomnost\u00ed a osobn\u00edm nasazen\u00edm podtrhli v\u00fdznam cel\u00e9 akce. Program obohatila \u00fa\u010dast v\u00fdznamn\u00fdch host\u016f. Pozv\u00e1n\u00ed p\u0159ijaly Zde\u0148ka Vondr\u00e1\u010dkov\u00e1, p\u0159edsedkyn\u011b Rady Spole\u010dnosti pro pomoc p\u0159i Huntingtonov\u011b chorob\u011b, a Nikola Krej\u010d\u00ed\u0159ov\u00e1, ambasadorka mezin\u00e1rodn\u00ed organizace HDYO pro mlad\u00e9 dosp\u011bl\u00e9 ve v\u011bku 18-35 let.<\/p>\n\n\n\n
Jejich v\u00fdjime\u010dn\u00e9 p\u0159edn\u00e1\u0161ky byly velmi inspirativn\u00ed s uveden\u00edm nov\u00fdch celosv\u011btov\u00fdch poznatk\u016f, pro n\u00e1s velmi povzbuzuj\u00edc\u00edch. Prezentace obou jmenovan\u00fdch z\u00e1rove\u0148 jasn\u011b uk\u00e1zaly, jak z\u00e1sadn\u00ed roli hraje informovanost i vz\u00e1jemn\u00e1 lidsk\u00e1 soun\u00e1le\u017eitost. O p\u0159\u00edjemnou atmosf\u00e9ru cel\u00e9ho odpoledne se postarala \u017eiv\u00e1 hudba, kter\u00e1 setk\u00e1n\u00ed dodala slavnostn\u00ed i rodinn\u00fd r\u00e1z. Ne\u0161lo v\u0161ak pouze o spole\u010densk\u00fd program, setk\u00e1n\u00ed bylo p\u0159edev\u0161\u00edm symbolem soudr\u017enosti, sd\u00edlen\u00ed a pochopen\u00ed, kter\u00e9 jsou pro \u017eivot s Huntingtonovou chorobou nepostradateln\u00e9.<\/p>\n\n\n\n
Takov\u00e9 chv\u00edle p\u0159ipom\u00ednaj\u00ed, \u017ee podpora nen\u00ed ur\u010dena jen samotn\u00fdm klient\u016fm, ale tak\u00e9 jejich rodin\u00e1m, kter\u00e9 denn\u011b proch\u00e1zej\u00ed n\u00e1ro\u010dnou cestou spole\u010dn\u011b s nimi. Spole\u010dn\u00e9 setk\u00e1v\u00e1n\u00ed, mo\u017enost vym\u011bnit si zku\u0161enosti i prost\u011b b\u00fdt spolu p\u0159in\u00e1\u0161\u00ed s\u00edlu, kterou nelze ni\u010d\u00edm nahradit. Huntingtonova choroba je vz\u00e1cn\u00e9 d\u011bdi\u010dn\u00e9 neurodegenerativn\u00ed onemocn\u011bn\u00ed, kter\u00e9 postihuje nervov\u00fd syst\u00e9m. Typicky se projevuje mezi 30. a 50. rokem v\u011bku a p\u0159in\u00e1\u0161\u00ed postupn\u00e9 zhor\u0161ov\u00e1n\u00ed pohybov\u00fdch schopnost\u00ed, zm\u011bny chov\u00e1n\u00ed i kognitivn\u00edch funkc\u00ed.<\/p>\n\n\n\n
Onemocn\u011bn\u00ed m\u00e1 dopad nejen na samotn\u00e9ho \u010dlov\u011bka, ale tak\u00e9 na celou rodinu, kter\u00e1 \u010dasto \u010del\u00ed fyzick\u00e9 i psychick\u00e9 z\u00e1t\u011b\u017ei. Proto je nesm\u00edrn\u011b d\u016fle\u017eit\u00e9 sd\u00edlet zku\u0161enosti, podporovat se a m\u00edt mo\u017enost \u010derpat informace i nad\u011bji z podobn\u00fdch setk\u00e1n\u00ed, jak\u00e9 se uskute\u010dnilo v na\u0161em domov\u011b. Posl\u00e1n\u00edm na\u0161eho domova je zajistit smyslupln\u00fd a hodnotn\u00fd \u017eivot klient\u016f soci\u00e1ln\u00ed slu\u017eby navzdory jejich t\u011b\u017ek\u00e9mu fyzick\u00e9mu a psychick\u00e9mu posti\u017een\u00ed zp\u016fsoben\u00e9mu Huntingtonovou chorobou.<\/p>\n\n\n\n
Domov d\u016fchodc\u016f v Prose\u010di u Po\u0161n\u00e9<\/p>\n\n\n\n
Zuzana Musilov\u00e1<\/p>\n\n\n\n
Pelh\u0159imovsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/pelhrimovsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" V sobotu dvac\u00e1t\u00e9ho z\u00e1\u0159\u00ed se v domov\u011b d\u016fchodc\u016f v Prose\u010di u Po\u0161n\u00e9 uskute\u010dnilo setk\u00e1n\u00ed rodin klient\u016f s Huntingtonovou chorobou. Tato ud\u00e1lost, kter\u00e1 se u n\u00e1s […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":18701,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-61208","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/61208","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=61208"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/61208\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/18701"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=61208"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=61208"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=61208"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}