Nadace Dobr\u00fdand\u011bl dlouhodob\u011b pom\u00e1h\u00e1 rodin\u00e1m, do jejich\u017e \u017eivot\u016f vstoupila v\u00e1\u017en\u00e1 nemoc. <\/p>\n\n\n\n
Dnes pro v\u00e1s m\u00e1me p\u0159\u00edb\u011bh p\u011btilet\u00e9ho Dominika, kter\u00fd krom\u011b Goldenharova syndromu, tedy deformac\u00ed tk\u00e1n\u00ed v obli\u010deji, trp\u00ed i dal\u0161\u00edmi nemocemi. P\u0159esto bojuje d\u00e1l. <\/p>\n\n\n\n
Dominik, pacient<\/strong> J\u00e1 se jmenuju Dominik. <\/p>\n\n\n\n Kl\u00e1ra Posp\u00ed\u0161ilov\u00e1, redaktorka<\/strong> \u017divot se s t\u00edmhle chlape\u010dkem rozhodn\u011b nemazal. Hned od narozen\u00ed mu nalo\u017eil 20 nemoc\u00ed \u010di poruch a dal\u0161\u00ed neust\u00e1le p\u0159ib\u00fdvaj\u00ed. <\/p>\n\n\n\n Irena Markov\u00e1, maminka Dominika<\/strong> Dominik m\u00e1 Goldenhar\u016fv syndrom, on m\u011bl t\u0159i ou\u0161ka, p\u0159\u00ed\u010dn\u00fd roz\u0161t\u011bp rtu a v\u00fdr\u016fstek na spojivce. Mus\u00edme ho krmit p\u0159es enter\u00e1ln\u00ed pumpu, mus\u00ed se p\u0159ebalovat, proto\u017ee m\u00e1 vlastn\u011b roz\u0161t\u011bp p\u00e1te\u0159e. <\/p>\n\n\n\n Tom\u00e1\u0161 Marek, tat\u00ednek Dominika<\/strong> J\u00e1 jsem to pojal tak, \u017ee si to tolik nep\u0159ipou\u0161t\u00edm, on n\u00e1m ukazuje, \u017ee se d\u00e1 \u017e\u00edt i s takovouhle vadou nebo vadama.<\/p>\n\n\n\n Kl\u00e1ra Posp\u00ed\u0161ilov\u00e1, redaktorka<\/strong> P\u0159es v\u0161echny zdravotn\u00ed probl\u00e9my je Dominik neuv\u011b\u0159iteln\u011b vesel\u00fd, zv\u00eddav\u00fd a chytr\u00fd chlape\u010dek. V p\u011bti letech um\u00ed abecedu, po\u010d\u00edtat do 20, z\u00e1kladn\u00ed anglick\u00e1 slov\u00ed\u010dka a znakovou \u0159e\u010d. <\/p>\n\n\n\n Dominik, pacient<\/strong> Sedmn\u00e1ct, osmn\u00e1ct… <\/p>\n\n\n\n Kl\u00e1ra Posp\u00ed\u0161ilov\u00e1, redaktorka<\/strong> Dominik v\u011bt\u0161inu leto\u0161n\u00edho roku str\u00e1vil v nemocnici. Rodin\u011b tak s n\u00e1ro\u010dnou p\u00e9\u010d\u00ed, speci\u00e1ln\u00ed stravou pod\u00e1vanou rovnou do b\u0159\u00ed\u0161ka a doj\u00ed\u017ed\u011bn\u00edm do Prahy za specialisty pom\u00e1haj\u00ed Dob\u0159\u00ed and\u011bl\u00e9. <\/p>\n\n\n\n Irena Markov\u00e1, maminka Dominika<\/strong> Je to prost\u011b skv\u011bl\u00fd. Je to obrovsk\u00fd. J\u00e1 jsem stra\u0161n\u011b za to vd\u011b\u010dn\u00e1. <\/p>\n\n\n\n Tom\u00e1\u0161 Marek, tat\u00ednek Dominika<\/strong> M\u00e1me voz\u00edk, invalidn\u00ed, ten st\u00e1l 45 000. M\u00e1me speci\u00e1ln\u00ed autoseda\u010dku za 120 000, tak\u017ee tohle si dost nedovedu p\u0159edstavit bez n\u011bjak\u00fd pomoci. J\u00e1 jsem vlastn\u011b jedinej, kdo m\u016f\u017ee chodit do pr\u00e1ce. <\/p>\n\n\n\n Kl\u00e1ra Posp\u00ed\u0161ilov\u00e1, redaktorka<\/strong>nDobr\u00fdm and\u011blem m\u016f\u017eete b\u00fdt i vy. Sta\u010d\u00ed se pouze zaregistrovat na internetov\u00fdch str\u00e1nk\u00e1ch www.dobryandel.cz. <\/p>\n\n\n\n Dominik, pacient<\/strong> M\u00e1m hodn\u011b r\u00e1d maminku a t\u00e1tu. <\/p>\n\n\n\n televizeNova.<\/p>\n\n\n\n <\/p>\n","protected":false},"excerpt":{"rendered":" Nadace Dobr\u00fdand\u011bl dlouhodob\u011b pom\u00e1h\u00e1 rodin\u00e1m, do jejich\u017e \u017eivot\u016f vstoupila v\u00e1\u017en\u00e1 nemoc. Dnes pro v\u00e1s m\u00e1me p\u0159\u00edb\u011bh p\u011btilet\u00e9ho Dominika, kter\u00fd krom\u011b Goldenharova syndromu, tedy deformac\u00ed tk\u00e1n\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14711,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-61576","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/61576","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=61576"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/61576\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14711"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=61576"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=61576"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=61576"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}