Maru\u0161ka z Dob\u0159an na jihu Plze\u0148ska, kter\u00e9 bylo na ja\u0159e p\u011bt let, se narodila se vz\u00e1cn\u00fdm genetick\u00fdm onemocn\u011bn\u00edm, postihuj\u00edc\u00edm pohybov\u00fd apar\u00e1t. Krom\u011b tzv. achondroplazie j\u00ed l\u00e9ka\u0159i diagnostikovali i dal\u0161\u00ed v\u00e1\u017en\u00e9 zdravotn\u00ed probl\u00e9my. Rodi\u010de Veronika a Tom\u00e1\u0161 Holanovi mus\u00ed Maru\u0161ku kv\u016fli l\u00e9\u010db\u011b \u010dasto vozit do Prahy i jinam. Star\u00e9 auto u\u017e jim ale dosluhuje a na nov\u00e9 nemaj\u00ed. V\u011b\u0159\u00ed, \u017ee pom\u016f\u017ee sb\u00edrka.<\/p>\n\n\n\n
Maru\u0161ce byla diagnostikov\u00e1na po narozen\u00ed achondroplazie, co\u017e je nemoc, kter\u00e1 je charakteristick\u00e1 abnorm\u00e1ln\u00edm r\u016fstem kost\u00ed, jen\u017e se projevuje malou postavou a v\u011bt\u0161\u00ed hlavou. T\u00edm to ale neskon\u010dilo. \u201ePostupem \u010dasu se p\u0159id\u00e1valy dal\u0161\u00ed diagn\u00f3zy – opo\u017ed\u011bn\u00fd psychomotorick\u00fd v\u00fdvoj, opo\u017ed\u011bn\u00fd v\u00fdvoj \u0159e\u010di, lehk\u00e1 ment\u00e1ln\u00ed retardace,\u201c uvedla maminka Veronika.<\/p>\n\n\n\n
Proto\u017ee Maru\u0161ka nemluv\u00ed, nav\u0161t\u011bvuje speci\u00e1ln\u00ed logopedickou \u0161kolku v Plzni. \u201eL\u00edb\u00ed se j\u00ed tam, chod\u00ed tam r\u00e1da,\u201c popsala Holanov\u00e1 s t\u00edm, \u017ee Maru\u0161ka je p\u0159es sv\u016fj handicap velmi zv\u00eddav\u00e1 \u2013 nau\u010dila se po\u010d\u00edtat, pozn\u00e1 n\u011bkter\u00e1 p\u00edsmenka. Zamilovala si dinosaury, z nich\u017e v\u011bt\u0161inu pozn\u00e1 jm\u00e9nem, a m\u00e1 r\u00e1da i modelov\u00e1n\u00ed z model\u00edny.<\/p>\n\n\n\n
\u201eJezd\u00edme s Maru\u0161kou do Fakultn\u00ed nemocnice Motol, kde prob\u00edh\u00e1 l\u00e9\u010dba jej\u00ed z\u00e1kladn\u00ed diagn\u00f3zy, a odkud si voz\u00edme l\u00e9ky, kter\u00e9 j\u00ed mus\u00edme ka\u017ed\u00fd den injek\u010dn\u011b aplikovat. Jezd\u00edme s n\u00ed tak\u00e9 do l\u00e1zn\u00ed, na rehabilitace a ka\u017ed\u00fd den ji voz\u00edme do ji\u017e zm\u00edn\u011bn\u00e9 \u0161kolky v Plzni. M\u00e1me auto, kter\u00e9 je 16 let star\u00e9 a bohu\u017eel u\u017e dosluhuje. Nav\u00edc brzy budeme muset po\u0159\u00eddit nov\u00fd, v\u011bt\u0161\u00ed ko\u010d\u00e1rek, abychom mohli d\u00e1l jezdit na v\u00fdlety \u2013 a ten u\u017e se n\u00e1m do st\u00e1vaj\u00edc\u00edho auta nevejde. Zkou\u0161eli jsme podat \u017e\u00e1dost o p\u0159\u00edsp\u011bvek na automobil, ale byla n\u00e1m zam\u00edtnuta,\u201c posteskla si Maru\u0161\u010dina maminka, kter\u00e1 pracuje jako zdravotn\u00ed sestra, vzhledem k zdravotn\u00edm probl\u00e9m\u016fm sv\u00e9 dcery ale jen na polovi\u010dn\u00ed \u00favazek.<\/p>\n\n\n\n
Rodina proto zalo\u017eila sb\u00edrku, kterou najdete na internetov\u00e9 platform\u011b Donio pod n\u00e1zvem Nov\u00e9 auto pro Maru\u0161ku \u2013 cesta k\u00a0l\u00e9\u010db\u011b (https:\/\/donio.cz\/auto-pro-marusku<\/a>).<\/p>\n\n\n\n Vybran\u00e9 pen\u00edze cht\u011bj\u00ed pou\u017e\u00edt jako akontaci na v\u011bt\u0161\u00ed a nov\u011bj\u0161\u00ed auto. \u201ePokud by se nepoda\u0159ilo vybrat celou c\u00edlovou \u010d\u00e1stku, vzali bychom si v\u011bt\u0161\u00ed \u00fav\u011br. Pokud by se poda\u0159ilo vybrat v\u00edce, \u00fav\u011br by byl men\u0161\u00ed. A pokud by vybran\u00e1 \u010d\u00e1stka zaplatila cel\u00e9 auto a je\u0161t\u011b by zbylo, pou\u017eili bychom zbytek pen\u011bz na terapie \u010di n\u00e1bytek do Maru\u0161\u010dina pokoj\u00ed\u010dku. Za ka\u017ed\u00fd finan\u010dn\u00ed p\u0159\u00edsp\u011bvek na auto jsme velmi vd\u011b\u010dn\u00ed,\u201c uzav\u0159ela Veronika Holanov\u00e1.<\/p>\n\n\n\n Milan Kili\u00e1n<\/p>\n\n\n\n Plze\u0148sk\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/plzensky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Maru\u0161ka z Dob\u0159an na jihu Plze\u0148ska, kter\u00e9 bylo na ja\u0159e p\u011bt let, se narodila se vz\u00e1cn\u00fdm genetick\u00fdm onemocn\u011bn\u00edm, postihuj\u00edc\u00edm pohybov\u00fd apar\u00e1t. Krom\u011b tzv. achondroplazie j\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":30317,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-61632","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/61632","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=61632"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/61632\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/30317"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=61632"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=61632"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=61632"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}