Prvn\u00ed spole\u010dn\u00e1 akce pacient\u016f s idiopatick\u00fdmi st\u0159evn\u00edmi z\u00e1n\u011bty a jejich l\u00e9ka\u0159\u016f se konala 4. listopadu v Hotelu Budweis v \u010cesk\u00fdch Bud\u011bjovic\u00edch. Na setk\u00e1n\u00ed dorazilo okolo \u010dty\u0159iceti pacient\u016f, kte\u0159\u00ed si p\u0159i\u0161li vyposlechnout p\u0159edn\u00e1\u0161ky od odborn\u00edk\u016f z gastroenterologick\u00fdch odd\u011blen\u00ed v ji\u017en\u00edch \u010cech\u00e1ch.<\/p>\n\n\n\n
Idiopatick\u00e9 st\u0159evn\u00ed z\u00e1n\u011bty (IBD) p\u0159edstavuj\u00ed skupinu chronick\u00fdch, \u010dasto celo\u017eivotn\u00edch z\u00e1n\u011btliv\u00fdch posti\u017een\u00ed tenk\u00e9ho a\/nebo tlust\u00e9ho st\u0159eva. Pat\u0159\u00ed mezi n\u011b r\u016fznorod\u00e9 choroby, nejzn\u00e1m\u011bj\u0161\u00ed jsou ale Crohnova choroba (CD) a ulcer\u00f3zn\u00ed kolitida (UC). L\u00e9\u010dba t\u011bchto onemocn\u011bn\u00ed l\u00e9ka\u0159i rozd\u011bluj\u00ed do dvou kategori\u00ed. Jedn\u00e1 se o l\u00e9\u010dbu konven\u010dn\u00ed a l\u00e9\u010dbu c\u00edlenou, n\u011bkdy naz\u00fdvanou jako biologick\u00e1. V ji\u017en\u00edch \u010cech\u00e1ch se na IBD onemocn\u011bn\u00ed zam\u011b\u0159uj\u00ed t\u0159i gastroenterologick\u00e1 odd\u011blen\u00ed, kter\u00e1 spadaj\u00ed pod Nemocnici \u010cesk\u00e9 Bud\u011bjovice, Nemocnici Jind\u0159ich\u016fv Hradec a Nemocnici T\u00e1bor, a z\u00e1stupci z \u0159ad l\u00e9ka\u0159\u016f se rozhodli sej\u00edt 4. listopadu v \u010cesk\u00fdch Bud\u011bjovic\u00edch, aby uspo\u0159\u00e1dali prvn\u00ed setk\u00e1n\u00ed s pacienty.<\/p>\n\n\n\n
Mo\u017enosti l\u00e9\u010dby<\/p>\n\n\n\n
Na organizaci takov\u00e9ho setk\u00e1n\u00ed se pod\u00edlela pacientsk\u00e1 organizace Pacienti IBD a Nemocnice \u010cesk\u00e9 Bud\u011bjovice, za ni\u017e akci uvedl prim\u00e1\u0159 gastroenterologick\u00e9ho odd\u011blen\u00ed Martin Bortl\u00edk. \u201eCrohnova choroba a ulcer\u00f3zn\u00ed kolitida jsou nemoci, kter\u00e9 maj\u00ed charakter z\u00e1n\u011btu v tr\u00e1vic\u00edm \u00faseku ve st\u0159ev\u011b. Naprosto z\u00e1sadn\u011b ovliv\u0148uj\u00ed \u017eivoty lid\u00ed s touto diagn\u00f3zou a maj\u00ed vysok\u00fd invalidizuj\u00edc\u00ed potenci\u00e1l. To znamen\u00e1, \u017ee pacienti jsou ve sv\u00e9m \u017eivot\u011b ur\u010dit\u00fdm zp\u016fsobem omezeni a my tady na t\u00e9to akci chceme mluvit o tom, jak\u00e9 maj\u00ed mo\u017enosti l\u00e9\u010dby a jak\u00fdm zp\u016fsobem jim ta l\u00e9\u010dba m\u016f\u017ee navr\u00e1tit norm\u00e1ln\u00ed \u017eivot,\u201c vysv\u011btlil Martin Bortl\u00edk. Podle n\u011bj se jedn\u00e1 o nemoc, kter\u00e1 \u010dasto postihuje mlad\u00e9 lidi, a krom\u011b genetick\u00e9 predispozice za IBD onemocn\u011bn\u00edm stoj\u00ed i \u017eivotn\u00ed styl. \u201eMluv\u00edm o nevhodn\u00e9m stravov\u00e1n\u00ed, kou\u0159en\u00ed, dlouhodob\u00e9 vystavov\u00e1n\u00ed se stresu, ale nap\u0159\u00edklad i l\u00e9\u010den\u00ed antibiotiky,\u201c dodal.<\/p>\n\n\n\n
Pacienti s Crohnovou chorobou a ulcer\u00f3zn\u00ed kolitidou zpravidla trp\u00ed obt\u00ed\u017eemi jako jsou bolesti b\u0159icha, hubnut\u00ed, \u00fanava \u010di omezen\u00e1 schopnost pracovat. P\u0159\u00edznaky, kter\u00e9 IBD onemocn\u011bn\u00ed doprov\u00e1z\u00ed, mohou m\u00edt vliv na soci\u00e1ln\u00ed \u017eivot a n\u00e1sledn\u011b psychiku pacient\u016f. \u201eProto jsme se rozhodli uspo\u0159\u00e1dat prvn\u00ed setk\u00e1n\u00ed pacient\u016f v ji\u017en\u00edch \u010cech\u00e1ch. Aby se mohli bez obavy pt\u00e1t na to, co je tr\u00e1p\u00ed, a poznat dal\u0161\u00ed lidi s podobn\u00fdm osudem,\u201c \u0159ekl Martin Bortl\u00edk.<\/p>\n\n\n\n
Komplexn\u00ed p\u00e9\u010de pro pacienty<\/p>\n\n\n\n
Na setk\u00e1n\u00ed, kter\u00e9 bylo pro z\u00e1jemce zdarma, se p\u0159ihl\u00e1silo kolem \u010dty\u0159iceti pacient\u016f a dvaceti doktor\u016f. Po dvou hodin\u00e1ch, kdy m\u011bli prostor p\u0159edev\u0161\u00edm l\u00e9ka\u0159i, se na \u0159adu dostali i pacienti a vznikl diskusn\u00ed prostor n\u00e1sledovan\u00fd rautem. Krom\u011b \u00favodn\u00ed prezentace, kterou m\u011bl na starosti Martin Bortl\u00edk z Nemocnice \u010cesk\u00e9 Bud\u011bjovice, se postupn\u011b p\u0159edstavili z\u00e1stupci v\u0161ech center biologick\u00e9 l\u00e9\u010dby IBD v Jiho\u010desk\u00e9m kraji. Prvn\u00edm byl l\u00e9ka\u0159 \u0160t\u011bp\u00e1n Peterka z gastroenterologick\u00e9ho pracovi\u0161t\u011b v Jind\u0159ichov\u011b Hradci. \u201eJsme v provozu od ledna 2024 a od t\u00e9 doby jsme indikovali osmn\u00e1ct nov\u00fdch pacient\u016f. Na\u0161\u00ed motivac\u00ed bylo zajistit \u0159\u00e1dnou p\u00e9\u010di t\u011bm pacient\u016fm, kte\u0159\u00ed by v p\u0159\u00edpad\u011b akutn\u00edch komplikac\u00ed nem\u011bli v bl\u00edzkosti \u017e\u00e1dn\u00e9 pracovi\u0161t\u011b, kam j\u00edt,\u201c \u0159ekl \u0160t\u011bp\u00e1n Peterka s t\u00edm, \u017ee i kdy\u017e jsou slu\u017eebn\u011b nejmlad\u0161\u00ed, poskytuj\u00ed ambulantn\u00edm i hospitalizovan\u00fdm pacient\u016fm komplexn\u00ed p\u00e9\u010di. \u201eZaji\u0161\u0165ujeme endoskopickou, a \u010d\u00e1ste\u010dn\u011b i sonografickou, p\u0159\u00edslu\u017ebu pro neodkladn\u00e9 stavy v celodenn\u00edm re\u017eimu. Prov\u00e1d\u00edme \u0161irok\u00e9 spektrum vy\u0161et\u0159ovac\u00edch a l\u00e9\u010debn\u00fdch metod, zaji\u0161\u0165ujeme komplexn\u00ed p\u00e9\u010di pro pacienty vy\u017eaduj\u00edc\u00ed nutri\u010dn\u00ed podporu a mnoho dal\u0161\u00edho,\u201c dodal \u0160t\u011bp\u00e1n Peterka.<\/p>\n\n\n\n
Za Nemocnici T\u00e1bor p\u0159i\u0161li promluvit z\u00e1stupce prim\u00e1\u0159e gastroenterologick\u00e9ho odd\u011blen\u00ed Luk\u00e1\u0161 \u0160trincl a vrchn\u00ed sestra Helena Novotn\u00e1. \u201eJsme v provozu od roku 2016 a nyn\u00ed m\u00e1me v p\u00e9\u010di zhruba sto devaten\u00e1ct pacient\u016f, v\u011bt\u0161inou mu\u017ee nad pades\u00e1t let. Nestar\u00e1me se ale jen o nemocn\u00e9 z T\u00e1bora, spad\u00e1 pod n\u00e1s i Milevsko, Voticko a Pacovsko, n\u011bkdy m\u00e1me pacienty tak\u00e9 z P\u00edsecka a Pelh\u0159imovska. Z doby, kdy je\u0161t\u011b neexistovalo centrum v Jind\u0159ichov\u011b Hradci, n\u00e1m z\u016fstali i pacienti pr\u00e1v\u011b z tohoto okresu. Zjednodu\u0161en\u011b \u0159e\u010deno dostaneme toho pacienta, kter\u00fd n\u011bjak\u00fdm zp\u016fsobem pro\u0161el Nemocnic\u00ed T\u00e1bor,\u201c p\u0159edstavil odd\u011blen\u00ed Luk\u00e1\u0161 \u0160trincl. Co zd\u016fraznila jeho kolegyn\u011b Helena Novotn\u00e1, je d\u016fle\u017eitost psychoterapeutick\u00fdch rozhovor\u016f, kter\u00e9 \u010dasto s nemocn\u00fdmi vedou na odd\u011blen\u00ed zdravotn\u00ed sestry. \u201eJe to onemocn\u011bn\u00ed zasahuj\u00edc\u00ed do ka\u017edodenn\u00edho \u017eivota. Jedn\u00e1 se proto o velmi d\u016fle\u017eit\u00fd aspekt l\u00e9\u010dby. Podle m\u011b jsou to hlavn\u011b sest\u0159i\u010dky, kter\u00e9 funguj\u00ed jako n\u00e1razn\u00edk, jeliko\u017e pacient se s nimi setk\u00e1v\u00e1 jako s prvn\u00edmi a \u010dasto jim \u0159ekne spoustu v\u011bc\u00ed, kter\u00e9 ho tr\u00e1p\u00ed,\u201c dodala vrchn\u00ed sestra.<\/p>\n\n\n\n
Jedno z nejmodern\u011bj\u0161\u00edch center v zemi<\/p>\n\n\n\n
Za nejv\u011bt\u0161\u00ed gastroenterologick\u00e9 centrum na jihu \u010cech se p\u0159edstavil V\u00e1clav \u0160t\u011bp\u00e1nek, podle kter\u00e9ho m\u00e1 pracovi\u0161t\u011b v Nemocnici \u010cesk\u00e9 Bud\u011bjovice v p\u00e9\u010di p\u0159es \u010dty\u0159i sta pacient\u016f. \u201eJsou to p\u0159edev\u0161\u00edm pacienti s Crohnovou chorobou, kte\u0159\u00ed \u010dast\u011bji pot\u0159ebuj\u00ed biologickou l\u00e9\u010dbu. Podle dat m\u00e1me v p\u00e9\u010di o n\u011bco v\u00edce mu\u017e\u016f ne\u017e \u017een, a pr\u016fm\u011brn\u00fd v\u011bk pacienta je dvaa\u010dty\u0159icet let,\u201c \u0159ekl V\u00e1clav \u0160t\u011bp\u00e1nek a dodal, \u017ee samoz\u0159ejmost\u00ed jejich odd\u011blen\u00ed je jedno z nejmodern\u011bj\u0161\u00edch endoskopick\u00fdch center v \u010cesk\u00e9 republice. \u201eD\u00e1le m\u00e1me sonografick\u00e9 pracovi\u0161t\u011b s modern\u00edm ultrazvukem, kter\u00fd slou\u017e\u00ed ke sledov\u00e1n\u00ed pacient\u016f se st\u0159evn\u00edmi z\u00e1n\u011bty, kter\u00fd umo\u017e\u0148uje okam\u017eit\u011b zjistit aktu\u00e1ln\u00ed stav st\u0159evn\u00edho z\u00e1n\u011btu. Jedn\u00e1 se o bezbolestn\u00e9 vy\u0161et\u0159en\u00ed bez pot\u0159eby p\u0159\u00edpravy,\u201c dodal.<\/p>\n\n\n\n
Pacienti IBD<\/p>\n\n\n\n
Posledn\u00ed edukativn\u00ed \u010d\u00e1st setk\u00e1n\u00ed pacient\u016f s l\u00e9ka\u0159i byla prezentace pacientsk\u00e9 organizace Pacienti IBD, jejich webov\u00e9 str\u00e1nky (ZDE: https:\/\/www.crohn.cz\/<\/a>), kterou m\u011bla na starosti mana\u017eerka vzd\u011bl\u00e1vac\u00edch projekt\u016f t\u00e9to organizace Lenka Slab\u00e1. \u201e\u010clenkou Pacient\u016f IBD jsem u\u017e asi jeden\u00e1ct let a sedmn\u00e1ct let jsem tak\u00e9 pacientkou s ulcer\u00f3zn\u00ed kolitidou, kter\u00e1 si pro\u0161la v\u0161\u00edm mo\u017en\u00fdm i nemo\u017en\u00fdm \u2013 biologick\u00fdmi l\u00e9\u010dbami, operacemi, odstran\u011bn\u00edm tlust\u00e9ho st\u0159eva a vytvo\u0159en\u00edm pouchu, vaku z tenk\u00e9ho st\u0159eva,\u201c p\u0159edstavila sebe i sv\u016fj p\u0159\u00edb\u011bh Lenka Slab\u00e1.<\/p>\n\n\n\n Organizace Pacienti IBD p\u016fsob\u00ed od roku 2008 a jej\u00edm c\u00edlem je sdru\u017eovat pacienty s idiopatick\u00fdmi st\u0159evn\u00edmi z\u00e1n\u011bty, pom\u00e1hat jim a p\u0159ed\u00e1vat jim spr\u00e1vn\u00e9 informace. \u201eM\u00e1me celkem 1475 \u010dlen\u016f a podle nov\u00fdch dat, kter\u00e1 jsme obdr\u017eeli, se celkov\u00fd po\u010det IBD pacient\u016f v cel\u00e9 republice dostal na t\u00e9m\u011b\u0159 92 tis\u00edc. Proto se sna\u017e\u00edme po\u0159\u00e1dat konference, semin\u00e1\u0159e, webin\u00e1\u0159e a workshopy, v Olomouci m\u00e1me i podp\u016frnou skupinu,\u201c sd\u011blila Lenka Slab\u00e1.<\/p>\n\n\n\n Organizace Pacienti IBD nab\u00edz\u00ed za ro\u010dn\u00ed p\u0159\u00edsp\u011bvek 200 korun mo\u017enost bezplatn\u00e9 v\u00fd\u017eivov\u00e9, pr\u00e1vn\u00ed a gastroenterologick\u00e9 poradny, odb\u011br e-mailov\u00e9ho newsletteru, vstup na konference a obdr\u017een\u00ed WC karty. \u201eStoj\u00ed 150 korun a pom\u00e1h\u00e1 s rychlej\u0161\u00edm zp\u0159\u00edstupn\u011bn\u00edm ve\u0159ejn\u00fdch i neve\u0159ejn\u00fdch toalet. Na na\u0161em webu je tak\u00e9 seznam partner\u016f, kte\u0159\u00ed se zav\u00e1zali tuto kartu akceptovat, m\u00e1me ale k dispozici i WC kompas, kam m\u016f\u017ee kdokoli p\u0159id\u00e1vat m\u00edsta s dostupnou toaletou,\u201c dodala Lenka Slab\u00e1. Organizace by cht\u011bla Jiho\u010desk\u00fd IBD den, kter\u00fd se letos konal poprv\u00e9, uspo\u0159\u00e1dat znovu i p\u0159\u00ed\u0161t\u00ed rok na podzim.<\/p>\n\n\n\n Barbora Klemp\u00ed\u0159ov\u00e1<\/p>\n\n\n\n \u010ceskobud\u011bjovick\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/ceskobudejovicky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Prvn\u00ed spole\u010dn\u00e1 akce pacient\u016f s idiopatick\u00fdmi st\u0159evn\u00edmi z\u00e1n\u011bty a jejich l\u00e9ka\u0159\u016f se konala 4. listopadu v Hotelu Budweis v \u010cesk\u00fdch Bud\u011bjovic\u00edch. Na setk\u00e1n\u00ed dorazilo okolo […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":20674,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-61839","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/61839","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=61839"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/61839\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/20674"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=61839"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=61839"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=61839"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}