Mirka \u0160imkov\u00e1 pl\u00e1nuje na severn\u00edm Plze\u0148sku z\u0159\u00eddit Domov nad\u011bje pro lidi odk\u00e1zan\u00e9 na um\u011blou plicn\u00ed ventilaci. Projekt, kter\u00fd m\u00e1 pomoci stovk\u00e1m rodin v \u010cesku, se zam\u011b\u0159\u00ed na d\u016fstojn\u00e9 bydlen\u00ed a odbornou p\u00e9\u010di. C\u00edlem je z\u00edskat deset milion\u016f korun na koupi a zah\u00e1jen\u00ed rekonstrukce statku v Ko\u017elanech, pen\u00edze se sna\u017e\u00ed z\u00edskat i prost\u0159ednictv\u00edm sb\u00edrky.<\/p>\n\n\n\n
Speci\u00e1ln\u00ed za\u0159\u00edzen\u00ed, kde by mohli trvale \u010di p\u0159echodn\u011b \u017e\u00edt lid\u00e9 odk\u00e1zan\u00ed na um\u011blou plicn\u00ed ventilaci, chce na severn\u00edm Plze\u0148sku z\u0159\u00eddit Mirka \u0160imkov\u00e1. Sama u\u017e 11 let pe\u010duje 24 hodin denn\u011b o devaten\u00e1ctiletou dceru Kl\u00e1ru, za kterou d\u00fdchaj\u00ed p\u0159\u00edstroje. V \u010cesku jsou stovky rodin, kter\u00e9 se takto staraj\u00ed o sv\u00e9 bl\u00edzk\u00e9. \u201eNeexistuje ale \u017e\u00e1dn\u00e9 za\u0159\u00edzen\u00ed s odbornou pomoc\u00ed a p\u00e9\u010d\u00ed, kde by mohli lid\u00e9 odk\u00e1zan\u00ed na plicn\u00ed ventilaci d\u016fstojn\u011b \u017e\u00edt,\u201c \u0159ekla \u0160imkov\u00e1.<\/p>\n\n\n\n
Vizi spole\u010dn\u00e9ho bezbari\u00e9rov\u00e9ho Domova nad\u011bje, kterou nos\u00ed v hlav\u011b zhruba rok, chce \u0160imkov\u00e1 uskute\u010dnit prost\u0159ednictv\u00edm Nada\u010dn\u00edho fondu Spirit – dech nad\u011bje. Pro za\u010d\u00e1tek je c\u00edlem z\u00edskat deset milion\u016f korun na koupi a zah\u00e1jen\u00ed rekonstrukce statku v Ko\u017elanech na severn\u00edm Plze\u0148sku s rozlehl\u00fdm pozemkem. Pomoci s t\u00edm m\u00e1 sb\u00edrka na platform\u011b Znesn\u00e1ze (https:\/\/www.znesnaze21.cz\/sbirka\/pomozme-vytvorit-domov-nadeje-pro-lidi-na-plicni-ventilaci<\/a>).<\/p>\n\n\n\n Mo\u017enost\u00ed, jak se postarat o \u010dlov\u011bka odk\u00e1zan\u00e9ho na plicn\u00ed ventilaci, je v \u010cesku minimum. Podle \u0160imkov\u00e9 \u017eij\u00ed v rodin\u00e1ch stovky takov\u00fdch lid\u00ed a dal\u0161\u00ed stovky v nemocnic\u00edch na odd\u011blen\u00edch n\u00e1sledn\u00e9 intenzivn\u00ed p\u00e9\u010de. Poji\u0161\u0165ovny hrad\u00ed nemocni\u010dn\u00ed pobyt, pro dom\u00e1c\u00ed p\u00e9\u010di uhrad\u00ed d\u00fdchac\u00ed p\u0159\u00edstroj, dal\u0161\u00ed podporu ale pe\u010duj\u00edc\u00ed rodiny nedost\u00e1vaj\u00ed. \u201eNeexistuje \u017e\u00e1dn\u00e9 za\u0159\u00edzen\u00ed, kde by mohla rodina nechat sv\u00e9ho \u010dlena na plicn\u00ed ventilaci, aby si mohla od t\u00e9 n\u00e1ro\u010dn\u00e9, vysiluj\u00edc\u00ed a nep\u0159etr\u017eit\u00e9 p\u00e9\u010de odpo\u010dinout, nebo si \u0159e\u0161it sv\u00e9 zdravotn\u00ed probl\u00e9my nebo t\u0159eba vz\u00edt na v\u00fdlet sourozence,“ \u0159ekla \u0160imkov\u00e1. Sama tuto situaci siln\u011b poci\u0165uje, proto\u017ee l\u00e9ka\u0159i j\u00ed ned\u00e1vno diagnostikovali nemoc komplikuj\u00edc\u00ed pohyb, kter\u00e1 ji m\u016f\u017ee tak\u00e9 trvale upoutat na voz\u00edk. \u201eM\u00e1m strach, co bude d\u00e1l,“ p\u0159iznala.<\/p>\n\n\n\n P\u00e9\u010de o nemocn\u00e9 i rehabilita\u010dn\u00ed centrum<\/p>\n\n\n\n Spolu s dcerou Kl\u00e1rou, kter\u00e1 je kv\u016fli spin\u00e1ln\u00ed muskul\u00e1rn\u00ed atrofi\u00ed odk\u00e1zan\u00e1 na elektrick\u00fd voz\u00edk a um\u011blou plicn\u00ed ventilaci, pl\u00e1nuj\u00ed vznik Domova nad\u011bje. M\u011blo by v n\u011bm b\u00fdt deset pokoj\u016f pro lidi trvale \u017eij\u00edc\u00ed na um\u011bl\u00e9 plicn\u00ed ventilaci a deset pokoj\u016f pro p\u0159echodn\u00e9, n\u011bkolikat\u00fddenn\u00ed pobyty, kde by se klienti st\u0159\u00eddali. \u201eBude tam pro\u0161kolen\u00fd odborn\u00fd person\u00e1l, chceme poskytnout nejen p\u00e9\u010di o d\u00fdchac\u00ed cesty, ale chceme tam m\u00edt i skv\u011bl\u00e9 rehabilita\u010dn\u00ed centrum. A chceme, aby se tam \u017eilo. Aby ti, kdo budou na voz\u00edku, mohli jezdit na v\u00fdlety, ale sou\u010dasn\u011b aby ti, kte\u0159\u00ed jsou upoutan\u00ed na l\u016f\u017eko, mohli co nejl\u00e9pe \u017e\u00edt v bezpe\u010dn\u00e9m, klidn\u00e9m komunitn\u00edm prost\u0159ed\u00ed,“ pl\u00e1nuje \u0160imkov\u00e1.<\/p>\n\n\n\n Jej\u00ed dcera Kl\u00e1ra posledn\u00ed rok studuje na um\u011bleck\u00e9 st\u0159edn\u00ed \u0161kole, chce d\u00e1l studovat na vysok\u00e9 \u0161kole. D\u00edky zku\u0161enosti s \u017eivotem na um\u011bl\u00e9 plicn\u00ed ventilaci si uv\u011bdomuje, jak obt\u00ed\u017en\u00e9 m\u016f\u017ee b\u00fdt pro pe\u010duj\u00edc\u00ed rodiny d\u016fv\u011b\u0159ovat, \u017ee se o jejich bl\u00edzk\u00e9 dok\u00e1\u017ee dob\u0159e postarat n\u011bkdo jin\u00fd. \u201eMaj\u00ed strach, aby o n\u011bj bylo dob\u0159e postar\u00e1no, tak\u017ee bychom cht\u011bli d\u011blat i kr\u00e1tkodob\u011b pobyt klienta s jeho pe\u010duj\u00edc\u00edm. Aby vid\u011bli, jak to tam funguje a nem\u011bli obavy u n\u00e1s sv\u00e9ho p\u0159\u00edbuzn\u00e9ho nechat t\u0159eba na p\u00e1r t\u00fddn\u016f, ne\u017e si vy\u0159\u00edd\u00ed t\u0159eba operaci v nemocnici a podobn\u011b,“ \u0159ekla Kl\u00e1ra \u0160imkov\u00e1.<\/p>\n\n\n\n \u201ePot\u0159ebujeme, aby se p\u0159idali lid\u00e9, kte\u0159\u00ed c\u00edt\u00ed, \u017ee ka\u017ed\u00fd m\u00e1 pr\u00e1vo \u017e\u00edt d\u016fstojn\u011b. Ka\u017ed\u00e1 koruna n\u00e1s p\u0159ibli\u017euje k okam\u017eiku, kdy lid\u00e9 z\u00e1visl\u00ed na ventilaci nebudou muset z\u016fst\u00e1vat v nemocnic\u00edch,“ dodala jej\u00ed matka.<\/p>\n\n\n\n V\u00edce o projektu Domov nad\u011bje a mo\u017enostech jak ho podpo\u0159it najdete na jeho webu: https:\/\/www.domovnadeje.cz\/<\/a><\/p>\n\n\n\n \u010cTK<\/p>\n\n\n\n Plze\u0148sk\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/plzensky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Mirka \u0160imkov\u00e1 pl\u00e1nuje na severn\u00edm Plze\u0148sku z\u0159\u00eddit Domov nad\u011bje pro lidi odk\u00e1zan\u00e9 na um\u011blou plicn\u00ed ventilaci. Projekt, kter\u00fd m\u00e1 pomoci stovk\u00e1m rodin v \u010cesku, se […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":41200,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-62206","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/62206","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=62206"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/62206\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/41200"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=62206"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=62206"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=62206"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}