D\u00edvenka s d\u011btsk\u00fdm autismem, ADHD a sebepo\u0161kozov\u00e1n\u00edm inspirovala vznik nada\u010dn\u00edho fondu. Maminka Dorotky Kl\u00e1ra Vacek Riedel z Rohatc\u016f ho zalo\u017eila pro dal\u0161\u00ed rodi\u010de d\u011bt\u00ed s neviditeln\u00fdm hendikepem, nar\u00e1\u017eej\u00edc\u00edch na odm\u00edt\u00e1n\u00ed \u0161kolek, \u00fa\u0159ad\u016f i spole\u010dnosti.<\/p>\n\n\n\n
Nejm\u00e9n\u011b stovky autistick\u00fdch d\u011bt\u00ed vychov\u00e1vaj\u00ed m\u00e1my a t\u00e1tov\u00e9 v \u00dasteck\u00e9m kraji, des\u00edtky z nich v litom\u011b\u0159ick\u00e9m okrese. Jestli jste i p\u0159esto je\u0161t\u011b \u017e\u00e1dn\u00e9 autistick\u00e9 d\u00edt\u011b nepotkali, m\u016f\u017ee to b\u00fdt i t\u00edm, \u017ee se s nimi n\u011bkdy rodi\u010de boj\u00ed vyj\u00edt ven. P\u0159i snaze uko\u010d\u00edrovat t\u011b\u017eko zvladateln\u00e9 ratolesti se navrch pot\u00fdkaj\u00ed s odm\u00edt\u00e1n\u00edm speci\u00e1ln\u00edmi \u0161kolkami, s n\u00e1ro\u010dn\u00fdm vyjedn\u00e1v\u00e1n\u00edm se soci\u00e1lkou i s \u00fastrky spole\u010dnosti.<\/p>\n\n\n\n
Mal\u00fdm peklem si pro\u0161la i Kl\u00e1ra Vacek Riedel z mal\u00fdch Rohatc\u016f. Tedy m\u00edstn\u00ed \u010d\u00e1sti Hrobc\u016f mezi Litom\u011b\u0159icemi a Roudnic\u00ed nad Labem. P\u00e9\u010de o dnes \u0161estiletou autistickou dceru Dorotku, kterou doslova vypiplala, ji ale nakonec pos\u00edlila. A to do t\u00e9 m\u00edry, \u017ee Kl\u00e1ra u\u017e n\u011bkolik let neform\u00e1ln\u011b pom\u00e1h\u00e1 dal\u0161\u00edm rodi\u010d\u016fm autistick\u00fdch d\u011bt\u00ed v regionu. Nyn\u00ed sv\u00e9 \u00fasil\u00ed zpe\u010detila zalo\u017een\u00edm ofici\u00e1ln\u00edho nada\u010dn\u00edho fondu Paprsek do d\u011btsk\u00e9 du\u0161e\u2197.<\/p>\n\n\n\n
Dcera s kombinovanou vadou se Kl\u00e1\u0159e narodila v roce 2019. \u201eHendikep j\u00ed \u010dinil velk\u00e9 obt\u00ed\u017ee v d\u00fdch\u00e1n\u00ed a p\u0159i krmen\u00ed. Cel\u00e9 dny jen \u0159vala, prop\u00ednala se jako luk, neum\u011bla s\u00e1t, neust\u00e1le zvracela, krmen\u00ed 50 mililitr\u016f ml\u00e9ka speci\u00e1ln\u00ed lahv\u00ed u n\u00ed mnohdy trvalo i hodinu a p\u016fl,\u201c popisuje maminka.<\/p>\n\n\n\n
Ani po operaci ale obt\u00ed\u017ee s krmen\u00edm a \u0159ev ve dne v noci nezmizely. \u201eSpala t\u0159eba jen 20 minut a j\u00e1 byla absolutn\u011b vy\u010derpan\u00e1. N\u011bkdy ve\u010der v osm jsem zjistila, \u017ee m\u00e1m na sob\u011b je\u0161t\u011b py\u017eamo z r\u00e1na. Dcera nemluvila a nev\u00e1hala ml\u00e1tit hlavou do zdi, pozd\u011bji \u00fato\u010dila i na m\u011b,\u201c vypr\u00e1v\u00ed d\u00e1l Kl\u00e1ra.<\/p>\n\n\n\n
Ve t\u0159ech letech l\u00e9ka\u0159i Dorotce diagnostikovali t\u011b\u017ekou v\u00fdvojovou dysf\u00e1zii, d\u011btsk\u00fd autismus, ADHD a sebepo\u0161kozov\u00e1n\u00ed. Terapii, ter\u00e9nn\u00ed ranou p\u00e9\u010di, speci\u00e1ln\u00ed \u0161kolku, stacion\u00e1\u0159, ale t\u0159eba i zuba\u0159e ochotn\u00e9ho p\u0159ijmout t\u011b\u017eko ko\u010d\u00edrovateln\u00e9 d\u00edt\u011b tehdy hledali Kl\u00e1ra s man\u017eelem v regionu marn\u011b. V\u0161echno bylo v Praze nebo je\u0161t\u011b d\u00e1l v Brn\u011b. Medikace nefungovala, psychologov\u00e9 rodin\u011b d\u00e1vali nepou\u017eiteln\u00e9 rady z u\u010debnic a zat\u00edmco Kl\u00e1\u0159in man\u017eel vyd\u011bl\u00e1val, aby bylo na z\u00e1kladn\u00ed pot\u0159eby, ona sama se po noc\u00edch vzd\u011bl\u00e1vala, aby n\u00e1ro\u010dn\u00e9 dce\u0159i pomohla s jej\u00edm v\u00fdvojem.<\/p>\n\n\n\n
Lid\u00e9 p\u0159itom rodin\u011b n\u00e1ro\u010dnou situaci neuleh\u010dovali. \u201ePokud jsem s dcerou \u0161la n\u011bkam nakoupit, kv\u016fli jej\u00edmu \u0159evu na n\u00e1s volali ochranku, vykazovali n\u00e1s i z MHD,\u201c l\u00ed\u010d\u00ed Kl\u00e1ra. Dorotka toti\u017e po operaci vrozen\u00e9 vady vypad\u00e1 zcela norm\u00e1ln\u011b a neviditeln\u00fd autistick\u00fd hendikep ciz\u00ed lid\u00e9 nevn\u00edmaj\u00ed. \u201eOzna\u010dovali ji za smrada a parchanta, kter\u00e9ho si m\u00e1me nejd\u0159\u00edv vychovat, a teprve pak s n\u00edm n\u011bkam l\u00e9zt,\u201c popisuje maminka. \u010casto nepomohlo ani to, kdy\u017e se n\u011bco sna\u017eila vysv\u011btlovat. Na jednom d\u011btsk\u00e9m pl\u00e1cku j\u00ed \u0159ekli, \u017ee h\u0159i\u0161t\u011b nen\u00ed pro ment\u00e1ly.<\/p>\n\n\n\n
D\u00edky studiu webin\u00e1\u0159\u016f, kurz\u016f, diplomek i po konzultac\u00edch s ostatn\u00edmi rodi\u010di Kl\u00e1ra postupn\u011b za\u010dala l\u00e9pe rozum\u011bt pot\u0159eb\u00e1m dcery a v\u0161echno s n\u00ed tr\u00e9novala postupn\u011b. Nap\u0159\u00edklad aby aspo\u0148 nastoupila do autobusu a svezla se aspo\u0148 jednu zast\u00e1vku. \u201eAni dnes to nen\u00ed \u017e\u00e1dn\u00e1 hitpar\u00e1da, ale u\u017e n\u011bjak funguje,\u201c \u0159\u00edk\u00e1 maminka. Pokud nen\u00ed nemocn\u00e1, Dorotku berou na n\u011bkolik hodin v m\u00edstn\u00ed \u0161kolce a u\u017e p\u0159\u00ed\u0161t\u00ed rok se ji maminka chyst\u00e1 p\u0159ihl\u00e1sit do nejbl\u00ed\u017e\u0161\u00ed speci\u00e1ln\u00ed \u0161koly v Roudnici anebo Lovosic\u00edch.<\/p>\n\n\n\n
Zm\u00ednili jsme, \u017ee Kl\u00e1ra u\u017e n\u011bkolik let hlavn\u011b po noc\u00edch komunikuje po internetu s rodi\u010di dal\u0161\u00edch autistick\u00fdch d\u011bt\u00ed nejen v regionu, kte\u0159\u00ed maj\u00ed podobn\u00e9 probl\u00e9my a slab\u00e9 chvilky jako ona. Nyn\u00ed je to u\u017e ale ona, kdo jim pom\u00e1h\u00e1 i s vypl\u0148ov\u00e1n\u00edm formul\u00e1\u0159\u016f pro soci\u00e1lku, aby m\u011bli n\u00e1rok na p\u0159\u00edsp\u011bvek na p\u00e9\u010di. Anebo je odkazuje na nadace, kter\u00e9 m\u016f\u017eou p\u0159isp\u011bt na speci\u00e1ln\u00ed pom\u016fcky pot\u0159ebn\u00e9 pro atypick\u00e9 d\u00edt\u011b, p\u0159\u00edpadn\u011b na z\u00e1kladn\u00ed pot\u0159eby jako oprava pra\u010dky nebo elekt\u0159iny.<\/p>\n\n\n\n
Tak\u00e9 Kl\u00e1ra sama za\u010dala uva\u017eovat o z\u0159\u00edzen\u00ed vlastn\u00edho mal\u00e9ho nada\u010dn\u00edho fondu. Fondy podle jej\u00edch zku\u0161enost\u00ed supluj\u00ed pomoc st\u00e1tu a poji\u0161\u0165oven. Loni v prosinci k tomu i d\u00edky pomoci dal\u0161\u00edch dobrovoln\u00edk\u016f Martina a Endyho do\u0161lo a fond je na sv\u011bt\u011b. \u201ePrim\u00e1rn\u011b budeme d\u00e1l pom\u00e1hat hlavn\u011b s orientac\u00ed v legislativ\u011b a s t\u00edm, na co maj\u00ed rodi\u010de n\u00e1rok od poji\u0161\u0165ovny. Ale rodi\u010de si s n\u00e1mi prost\u011b m\u016f\u017eou jen popov\u00eddat. T\u0159eba kdy\u017e na n\u011b n\u011bkdo zase venku bude \u0159v\u00e1t kv\u016fli d\u00edt\u011bti,\u201c popisuje Kl\u00e1ra.<\/p>\n\n\n\n
Fond z\u00e1rove\u0148 vyb\u00edr\u00e1 finan\u010dn\u00ed prost\u0159edky na pokryt\u00ed v\u00fddaj\u016f za administrativu a na mo\u017enost v\u011bnovat men\u0161\u00ed dary nejpot\u0159ebn\u011bj\u0161\u00edm rodin\u00e1m. \u201eSetk\u00e1v\u00e1m se i s p\u0159\u00edpady, kdy nemaj\u00ed funk\u010dn\u00ed vodovod v kuchyni a mus\u00ed m\u00fdt n\u00e1dob\u00ed v koupeln\u011b, proto\u017ee nemaj\u00ed na opravu,\u201c l\u00ed\u010d\u00ed Kl\u00e1ra.<\/p>\n\n\n\n
Pokud byste cht\u011bli p\u0159isp\u011bt, transparentn\u00ed \u00fa\u010det m\u00e1 \u010d\u00edslo 365294486\/300. \u201eMal\u00e9 pravideln\u00e9 dary pom\u00e1haj\u00ed nejv\u00edc, proto\u017ee m\u016f\u017eeme pl\u00e1novat dop\u0159edu,\u201c podot\u00fdk\u00e1 Kl\u00e1ra s t\u00edm, \u017ee uv\u00edt\u00e1 tak\u00e9 dal\u0161\u00ed dobrovoln\u00edky nebo materi\u00e1ln\u00ed pomoc po domluv\u011b na e-mailu paprsekdodetskeduse@seznam.cz<\/a>.<\/p>\n\n\n\n Kolik je autist\u016f v \u00dasteck\u00e9m kraji? Minim\u00e1ln\u011b stovky<\/p>\n\n\n\n 625 je \u010d\u00edslo lid\u00ed s PAS (porucha autistick\u00e9ho spektra), kter\u00e9 uv\u00e1d\u00ed mapa autismu\u2197. Z toho 77 by jich m\u011blo b\u00fdt v okrese Litom\u011b\u0159ice. T\u011bch zcela odk\u00e1zan\u00fdch na p\u00e9\u010di druh\u00fdch se \u010dtvrt\u00fdm stupn\u011bm z\u00e1vislosti je v kraji 83. Nejv\u00edce je v kraji autist\u016f diagnostikovan\u00fdch od 1. do 20. roku, naopak nejsou tak\u0159ka \u017e\u00e1dn\u00ed star\u0161\u00ed 40 let. Drtiv\u011b p\u0159eva\u017euj\u00ed autist\u00e9 s mu\u017esk\u00fdm pohlav\u00edm.<\/p>\n\n\n\n Mapu vytvo\u0159ila neziskov\u00e1 organizace D\u011bti \u00fapl\u0148ku na z\u00e1klad\u011b datab\u00e1ze veden\u00e9 L\u00e9ka\u0159skou posudkovou slu\u017ebou \u010cesk\u00e9 spr\u00e1vy soci\u00e1ln\u00edho zabezpe\u010den\u00ed pro \u00fa\u010dely p\u0159\u00edsp\u011bvku na p\u00e9\u010di v obdob\u00ed 2009-2018 pro psychiatrickou diagn\u00f3zu F84. Nezahrnuje tedy v\u0161echny osoby s poruchou autistick\u00e9ho spektra, ale jen ty, kte\u0159\u00ed pro\u0161li posudkov\u00fdm \u0159\u00edzen\u00edm pro \u00fa\u010dely p\u0159izn\u00e1n\u00ed p\u0159\u00edsp\u011bvku na p\u00e9\u010di.<\/p>\n\n\n\n I proto a kv\u016fli tomu, \u017ee \u010d\u00edsla jsou z roku 2020, je pravd\u011bpodobn\u00e9, \u017ee nyn\u00ed je po\u010det lid\u00ed s PAS v \u00dasteck\u00e9m kraji vy\u0161\u0161\u00ed.<\/p>\n\n\n\n Pomoct m\u016f\u017eete i vy<\/p>\n\n\n\n Nada\u010dn\u00ed fond Paprsek do d\u011btsk\u00e9 du\u0161e pom\u00e1h\u00e1 d\u011btem s poruchou autistick\u00e9ho spektra a jejich pe\u010duj\u00edc\u00edm. M\u00e1 transparentn\u00ed \u00fa\u010det \u010d\u00edslo 365294486\/300.<\/p>\n\n\n\n Jaroslav Balv\u00edn<\/p>\n\n\n\n Litom\u011b\u0159ick\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/litomericky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" D\u00edvenka s d\u011btsk\u00fdm autismem, ADHD a sebepo\u0161kozov\u00e1n\u00edm inspirovala vznik nada\u010dn\u00edho fondu. Maminka Dorotky Kl\u00e1ra Vacek Riedel z Rohatc\u016f ho zalo\u017eila pro dal\u0161\u00ed rodi\u010de d\u011bt\u00ed s […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":24138,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-62653","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/62653","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=62653"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/62653\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/24138"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=62653"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=62653"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=62653"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}