V polovin\u011b \u00fanora oslav\u00ed Tobi\u00e1\u0161ek, kter\u00fd \u017eije v T\u0159ebnic\u00edch na Doma\u017elicku, \u010dtvrt\u00e9 narozeniny. A pr\u00e1v\u011b v t\u00e9 dob\u011b kon\u010d\u00ed i sb\u00edrka, kterou jeho rodi\u010de Eli\u0161ka Bart\u016f\u0148kov\u00e1 a Luk\u00e1\u0161 Stehno vypsali, aby z\u00edskali finance na velk\u00e9 auto, kter\u00e9 nutn\u011b pot\u0159ebuj\u00ed k jeho \u010dast\u00e9mu p\u0159evozu do zdravotnick\u00fdch za\u0159\u00edzen\u00ed i jinam, a na dal\u0161\u00ed v\u011bci, t\u0159eba zvukov\u00e9 pom\u016fcky.<\/p>\n\n\n\n
Tob\u00edk se toti\u017e narodil s Loweho syndromem a Dentovou chorobou, dv\u011bma vz\u00e1cn\u00fdmi onemocn\u011bn\u00edmi, kv\u016fli nim\u017e t\u00e9m\u011b\u0159 nevid\u00ed a nemluv\u00ed a sv\u011bt tak vn\u00edm\u00e1 skrze doteky, zvuky a v\u016fn\u011b.<\/p>\n\n\n\n
Vz\u00e1cn\u00e9 genetick\u00e9 onemocn\u011bn\u00ed ovliv\u0148uje chlape\u010dk\u016fv zrak, v\u00fdvoj, mozek, svaly i ledviny, kter\u00e9 jsou velmi oslaben\u00e9 a hroz\u00ed jejich selh\u00e1n\u00ed, co\u017e bohu\u017eel pat\u0159\u00ed k jeho diagn\u00f3ze. \u201eKa\u017ed\u00e9 virov\u00e9 onemocn\u011bn\u00ed je pro n\u011bj velk\u00fdm rizikem, jeho t\u011blo se s b\u011b\u017en\u00fdmi onemocn\u011bn\u00edmi nedok\u00e1\u017ee br\u00e1nit jako zdrav\u00e9 d\u00edt\u011b,\u201c vysv\u011btluje maminka Eli\u0161ka.<\/p>\n\n\n\n
Tob\u00edk t\u00e9m\u011b\u0159 nevid\u00ed, nemluv\u00ed, m\u00e1 t\u011b\u017ek\u00e9 ment\u00e1ln\u00ed posti\u017een\u00ed. \u201eSv\u011bt vn\u00edm\u00e1 jinak ne\u017e ostatn\u00ed d\u011bti \u2013 skrze doteky, zvuky, v\u016fn\u011b a na\u0161i bl\u00edzkost. Tob\u00edk je pod neust\u00e1l\u00fdm l\u00e9ka\u0159sk\u00fdm dohledem. Pravideln\u011b jezd\u00edme na kontroly do Fakultn\u00ed nemocnice Plze\u0148, kde podstupuje vy\u0161et\u0159en\u00ed kv\u016fli sv\u00e9 diagn\u00f3ze, a tak\u00e9 do Motola na o\u010dn\u00ed kliniku, kde \u0159e\u0161\u00edme neust\u00e1l\u00fd tlak v o\u010d\u00edch (glaukom). M\u00e1 za sebou od narozen\u00ed u\u017e deset operac\u00ed, prvn\u00ed podstoupil u\u017e ve \u010dty\u0159ech m\u011bs\u00edc\u00edch,\u201c popisuje Bart\u016f\u0148kov\u00e1.<\/p>\n\n\n\n
Kdy\u017e se jak\u00fdmkoli zp\u016fsobem zhor\u0161\u00ed chlapc\u016fv zdravotn\u00ed stav, mus\u00ed rodi\u010de jednat rychle a \u010dasto hned vyrazit do nemocnice nebo na pohotovost. \u201eP\u0159i ka\u017ed\u00e9 cest\u011b voz\u00edme s sebou zdravotn\u00ed ko\u010d\u00e1rek a dal\u0161\u00ed pom\u016fcky, kter\u00e9 ho uklid\u0148uj\u00ed. P\u0159i del\u0161\u00edch pobytech je nezbytn\u00e9 m\u00edt s sebou i speci\u00e1ln\u00ed \u017eidli\u010dku, kterou Tob\u00edk pou\u017e\u00edv\u00e1,\u201c l\u00ed\u010d\u00ed maminka s t\u00edm, \u017ee pr\u00e1v\u011b na velk\u00e9 auto, kam by se v\u0161e ve\u0161lo, se nyn\u00ed rodina pomoc\u00ed sb\u00edrky sna\u017e\u00ed z\u00edskat pen\u00edze. Kdyby se poda\u0159ilo z\u00edskat v\u00edce, \u010demu\u017e ale bohu\u017eel zat\u00edm nic nenasv\u011bd\u010duje, byly by finance vyu\u017eity na l\u00e9ky a tak\u00e9 na sv\u011bteln\u00e9 a zvukov\u00e9 pom\u016fcky, kter\u00e9 Tob\u00edkovi pom\u00e1haj\u00ed vn\u00edmat sv\u011bt kolem sebe. Sou\u010d\u00e1st\u00ed p\u00e9\u010de jsou i pleny, zdravotn\u00ed pot\u0159eby, v\u00fd\u017eiva a r\u016fzn\u00e9 terapie a rehabilitace.<\/p>\n\n\n\n
Sb\u00edrku najdete na internetov\u00e9 platform\u011b Donio pod n\u00e1zvem Tobi\u00e1\u0161kovi pro lep\u0161\u00ed \u017eivot s Loweho syndromem: https:\/\/donio.cz\/tobiaskovi-pro-lepsi-zivot-s-loweho-syndromem<\/a><\/p>\n\n\n\n Milan Kili\u00e1n<\/p>\n\n\n\n Doma\u017elick\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/domazlicky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" V polovin\u011b \u00fanora oslav\u00ed Tobi\u00e1\u0161ek, kter\u00fd \u017eije v T\u0159ebnic\u00edch na Doma\u017elicku, \u010dtvrt\u00e9 narozeniny. A pr\u00e1v\u011b v t\u00e9 dob\u011b kon\u010d\u00ed i sb\u00edrka, kterou jeho rodi\u010de Eli\u0161ka […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":878,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-62825","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/62825","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=62825"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/62825\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/878"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=62825"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=62825"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=62825"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}