Je\u0161t\u011b p\u0159ed osmi lety byl Honza An\u00fd\u017e (50) ze Slan\u00e9ho po\u0159\u00e1d v pohybu. Hory, d\u00e1lkov\u00e9 p\u0159echody, kolo, ly\u017ee, voda. Sv\u011bt byl otev\u0159en\u00fd a t\u011blo spolehliv\u00e9. Dnes se Honza nepohne. V roce 2018 ho toti\u017e postihla nevyl\u00e9\u010diteln\u00e1 nemoc \u2013 amyotrofick\u00e1 later\u00e1ln\u00ed skler\u00f3za, zn\u00e1m\u00e1 pod zkratkou ALS. Zlov\u011bstn\u00e1 choroba, na kterou nen\u00ed l\u00e9k, \u010dlov\u011bka uzamkne ve vlastn\u00edm t\u011ble, bere sval po svalu, dech po dechu.<\/p>\n\n\n\n
V\u0161e p\u0159ich\u00e1z\u00ed pl\u00ed\u017eiv\u011b, bezbolestn\u011b. Honza kv\u016fli progresi nemoci dnes nedok\u00e1\u017ee zvednout ruku, oto\u010dit hlavu, nedok\u00e1\u017ee spolknout jedin\u00e9 sousto ani \u0159\u00edct jedin\u00e9 slovo. D\u00fdch\u00e1 jen d\u00edky p\u0159\u00edstroji a v\u00fd\u017eiva je mu pod\u00e1v\u00e1na sondou p\u0159\u00edmo do \u017ealudku. Mozek v\u0161ak z\u016fst\u00e1v\u00e1 a\u017e do posledn\u00ed chv\u00edle aktivn\u00ed \u2013 nemoc nem\u00e1 na inteligenci \u017e\u00e1dn\u00fd vliv. O to h\u016f\u0159 pro pacienta, kter\u00fd si skute\u010dnost velmi dob\u0159e uv\u011bdomuje a v pudu sebez\u00e1chovy pochopiteln\u011b bojuje o ka\u017ed\u00fd den.<\/p>\n\n\n\n
Jedin\u00fdm komunika\u010dn\u00edm kan\u00e1lem s okoln\u00edm sv\u011btem je pro n\u011bj aktu\u00e1ln\u011b po\u010d\u00edta\u010d, kter\u00fd ovl\u00e1d\u00e1 o\u010dima \u2013 jedinou \u010d\u00e1st\u00ed t\u011bla, je\u017e se dosud dok\u00e1\u017ee h\u00fdbat. Sv\u00fdm nejbli\u017e\u0161\u00edm tak dok\u00e1\u017ee napsat, co ho t\u011b\u0161\u00ed nebo tr\u00e1p\u00ed, a vy\u0159\u00eddit pot\u0159ebnou korespondenci. Jedinou v\u011btu v\u0161ak p\u00ed\u0161e Honza o\u010dima velmi obt\u00ed\u017en\u011b, klidn\u011b i hodinu.<\/p>\n\n\n\n
Ka\u017ed\u00fd den je z\u00e1zrak<\/p>\n\n\n\n
Stejn\u011b jako ka\u017ed\u00e9 o\u010dima napsan\u00e9 slovo je i ka\u017ed\u00fd nov\u00fd den str\u00e1ven\u00fd s jeho nejbli\u017e\u0161\u00edmi mal\u00fd z\u00e1zrak. \u017d\u00e1dn\u00fd l\u00e9ka\u0159 na sv\u011bt\u011b toti\u017e nedok\u00e1\u017ee \u0159\u00edci, kolik dn\u00ed takto posti\u017een\u00e9mu pacientovi zb\u00fdv\u00e1. I proto by si \u010das, kter\u00fd je Honzovi d\u00e1n, cht\u011bl u\u017e\u00edt s man\u017eelkou Mark\u00e9tou a dv\u011bma syny ve v\u011bku 20 a 17 let ( mlad\u0161\u00ed je\u0161t\u011b studuje) v p\u0159\u00edrod\u011b, obklopen kr\u00e1sami sv\u011bta.<\/p>\n\n\n\n
Aby nemusel sv\u00e9 dny tr\u00e1vit v dom\u00e1c\u00edm v\u011bzen\u00ed, pros\u00ed prost\u0159ednictv\u00edm sb\u00edrky na platform\u011b Donio o finan\u010dn\u00ed podporu na n\u00e1kup invalidn\u00edho voz\u00edku. P\u016fl milionu korun na tuto kompenza\u010dn\u00ed pom\u016fcku je sice v o\u010d\u00edch ve\u0159ejnosti relativn\u011b vysok\u00e1 \u010d\u00e1stka, ale Honza by dal cokoli za to, aby se d\u00edky elektrick\u00e9mu voz\u00edku s pohonem v\u0161ech \u010dty\u0159 kol a ergonomick\u00fdm sedadlem mohl je\u0161t\u011b p\u00e1rkr\u00e1t pod\u00edvat do hor nebo k mo\u0159i. Prakticky nic v\u00edc od \u017eivota nechce.<\/p>\n\n\n\n
Sb\u00edrka na Doniu<\/p>\n\n\n\n
Sb\u00edrka na platform\u011b Donio se rozb\u011bhla po V\u00e1noc\u00edch a do vypr\u0161en\u00ed term\u00ednu zb\u00fdvaj\u00ed u\u017e jen dva t\u00fddny. Ka\u017ed\u00e1 koruna a ka\u017ed\u00fd dar se po\u010d\u00edt\u00e1.<\/p>\n\n\n\n
Kdy\u017e se Honza o nemoci dozv\u011bd\u011bl, myslel si, \u017ee jeho \u017eivot skon\u010dil. Prvn\u00ed m\u011bs\u00edce byly temn\u00e9. Strach, beznad\u011bj, ot\u00e1zky, na kter\u00e9 neexistuj\u00ed odpov\u011bdi. Pak ale p\u0159i\u0161lo n\u011bco, co by mnoz\u00ed ne\u010dekali \u2014 nad\u011bje. Ne nad\u011bje na uzdraven\u00ed, ale na \u017eivot navzdory osudu.<\/p>\n\n\n\n
Rok 2021 byl zlomov\u00fd. Honza p\u0159estal polykat. P\u0159estal d\u00fdchat. Upadl do bezv\u011bdom\u00ed. L\u00e9ka\u0159i ho 25 minut o\u017eivovali. Kdy\u017e se po t\u0159ech t\u00fddnech vr\u00e1til z nemocnice, m\u011bl hadici v krku, PEG (sondu do \u017ealudku) na j\u00eddlo a ventil\u00e1tor, bez kter\u00e9ho by dnes u\u017e ne\u017eil. I proto ob\u011btav\u00e1 man\u017eelka Mark\u00e9ta z\u016fstala s Honzou doma na pln\u00fd \u00favazek, nau\u010dila se ve\u0161ker\u00e9 zdravotnick\u00e9 \u00fakony a star\u00e1 se o sv\u00e9ho mu\u017ee podle pot\u0159eby \u010dty\u0159iadvacet hodin denn\u011b.<\/p>\n\n\n\n
Uv\u011bzn\u011bn\u00fd ve vlastn\u00edm t\u011ble<\/p>\n\n\n\n
Co dok\u00e1\u017ee choroba, vid\u011bl Honza u lid\u00ed, kte\u0159\u00ed na tom byli v tu dobu h\u016f\u0159 ne\u017e on. U pacient\u016f napojen\u00fdch na p\u0159\u00edstroje, kte\u0159\u00ed p\u0159esto vyjeli ven. Na v\u00fdlet. Mezi lidi. \u201eDo\u0161lo mi, \u017ee i tak se d\u00e1 \u017e\u00edt,\u201c napsal pozd\u011bji o\u010dima do po\u010d\u00edta\u010de. Tou dobou je\u0161t\u011b chodil. Brzy ale p\u0159i\u0161el voz\u00edk. A s n\u00edm dal\u0161\u00ed ztr\u00e1ty.<\/p>\n\n\n\n
Postupem \u010dasu musela nechat rodina v bytov\u00e9m dom\u011b ve Slan\u00e9m z\u0159\u00eddit p\u0159es balkon transportn\u00ed v\u00fdtahovou plo\u0161inu pro voz\u00edk a po byt\u011b se Honza pohybuje pomoc\u00ed z\u00e1v\u011bsn\u00fdch syst\u00e9m\u016f.<\/p>\n\n\n\n
\u201eJe to d\u0159ina, ale kdy\u017e \u010dlov\u011bk chce, jde to. Okol\u00ed Honzu nav\u00edc velmi psychicky podporuje a kdykoli se objev\u00edme na ulici nebo t\u0159eba na v\u00fdlet\u011b v hor\u00e1ch, zdrav\u00ed lid\u00e9, v\u010detn\u011b cizinc\u016f, vst\u00e1vaj\u00ed od piva a vyjad\u0159uj\u00ed mu sv\u016fj obdiv. Dosavadn\u00ed voz\u00edk u\u017e m\u00e1 ale sv\u00e9 odslou\u017eeno, je nestabiln\u00ed a do kopc\u016f bezvl\u00e1dn\u00e9 t\u011blo dosp\u011bl\u00e9ho mu\u017ee neuveze. Jsme proto vd\u011b\u010dn\u00ed za ka\u017ed\u00fd finan\u010dn\u00ed dar, kter\u00fd n\u00e1m umo\u017en\u00ed dostat se ven a spole\u010dn\u011b se radovat,\u201c popisuje man\u017eelka Mark\u00e9ta An\u00fd\u017eov\u00e1.<\/p>\n\n\n\n
Po po\u010d\u00e1te\u010dn\u00ed t\u011b\u017ek\u00e9 depresi a obdob\u00ed temna Honza pl\u00e1nuje d\u00e1l. Hory. Mo\u0159e. Nemoc mu bere budoucnost, ale on j\u00ed nedovol\u00ed vz\u00edt p\u0159\u00edtomnost.<\/p>\n\n\n\n
Jak \u0159\u00edkaj\u00ed odborn\u00edci, v\u0161echno je v hlav\u011b. Ani zdrav\u00fd \u010dlov\u011bk nev\u00ed, kolik \u010dasu m\u00e1 na tomto sv\u011bt\u011b vym\u011b\u0159eno. Honza si ale sv\u016fj \u010das s ohledem na nemoc dok\u00e1\u017ee spo\u010d\u00edtat a t\u00edm sp\u00ed\u0161 si ho v\u00e1\u017eit. Pomozte mu proto splnit si sen, kter\u00fd m\u016f\u017ee b\u00fdt jeho posledn\u00edm p\u0159\u00e1n\u00edm.<\/p>\n\n\n\n
Do sb\u00edrky m\u016f\u017eete p\u0159isp\u00edvat ZDE: https:\/\/donio.cz\/invalidni-vozik-nejen-do-hor-pro-honzu-s-als<\/a><\/p>\n\n\n\n Kate\u0159ina Ni\u010d Hus\u00e1rov\u00e1<\/p>\n\n\n\n Kladensk\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/kladensky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Je\u0161t\u011b p\u0159ed osmi lety byl Honza An\u00fd\u017e (50) ze Slan\u00e9ho po\u0159\u00e1d v pohybu. Hory, d\u00e1lkov\u00e9 p\u0159echody, kolo, ly\u017ee, voda. Sv\u011bt byl otev\u0159en\u00fd a t\u011blo spolehliv\u00e9. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":15145,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-62907","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/62907","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=62907"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/62907\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/15145"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=62907"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=62907"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=62907"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}