Ji\u0159ina \u0160lehoferov\u00e1 (38) z Hlohov\u00e9 na Doma\u017elicku od dosp\u00edv\u00e1n\u00ed bojuje s t\u011b\u017ek\u00fdm genetick\u00fdm onemocn\u011bn\u00edm \u2013 Friedrichovou ataxi\u00ed. Jej\u00ed stav se st\u00e1le zhor\u0161uje, ale i p\u0159es omezen\u00ed, kter\u00e1 nemoc p\u0159in\u00e1\u0161\u00ed, se nevzd\u00e1v\u00e1. Ka\u017ed\u00fd den se sna\u017e\u00ed \u017e\u00edt naplno, starat se o dev\u00edtilet\u00e9ho syna Petra, dom\u00e1cnost a udr\u017eet si sob\u011bsta\u010dnost, jak jen to jej\u00ed zdravotn\u00ed stav dovol\u00ed. K lep\u0161\u00edmu \u017eivotu j\u00ed m\u016f\u017ee pomoci nap\u0159\u00edklad elektrick\u00fd pohon k invalidn\u00edmu voz\u00edku.<\/p>\n\n\n\n
\u201eBylo mi asi 16 let, kdy\u017e se objevily prvn\u00ed p\u0159\u00edznaky. Za\u010dala jsem padat z kola, zakop\u00e1vat, uzlovaly se mi nohy. T\u0159eba v obchod\u011b jsem spadla do reg\u00e1lu. Nejhor\u0161\u00ed bylo, kdy\u017e jsem se m\u011bla rozhl\u00e9dnout na p\u0159echodu, to jsem si ustlala. Lid\u00e9 mysleli, \u017ee jsem zfetovan\u00e1,\u201c zavzpom\u00ednala na prvn\u00ed probl\u00e9my Ji\u0159ina s t\u00edm, \u017ee diagn\u00f3za nakonec zn\u011bla Friedreichova ataxie. Vz\u00e1cn\u00e9 a progresivn\u00ed onemocn\u011bn\u00ed, kter\u00e9 naru\u0161uje koordinaci pohybu, oslabuje svaly a postupn\u011b bere schopnost chodit. V \u010cR j\u00edm trp\u00ed asi jen p\u011bt des\u00edtek pacient\u016f.<\/p>\n\n\n\n
I Ji\u0159inin stav se st\u00e1le zhor\u0161oval, nav\u00edc v 21 letech prod\u011blala transplantaci srdce. I p\u0159esto v roce 2016 porodila syna. Toho m\u00e1 dnes ve sv\u00e9 p\u00e9\u010di a p\u0159es v\u00e1\u017en\u00e9 zdravotn\u00ed probl\u00e9my se mu sna\u017e\u00ed b\u00fdt co nejlep\u0161\u00ed maminkou. Nep\u0159etr\u017eit\u011b podstupuje rehabilita\u010dn\u00ed p\u00e9\u010di, aby si udr\u017eela alespo\u0148 \u010d\u00e1st sob\u011bsta\u010dnosti. P\u0159esto je pro \u017eenu, upoutanou na voz\u00edk, ka\u017ed\u00fd p\u0159esun, cesta ven \u010di del\u0161\u00ed vzd\u00e1lenost velkou p\u0159ek\u00e1\u017ekou. Pomoci by proto m\u011bla sb\u00edrka.<\/p>\n\n\n\n
Sb\u00edrka je na elektrick\u00fd pohon k invalidn\u00edmu voz\u00edku<\/p>\n\n\n\n
\u201ePen\u00edze mi pomohou z\u00edskat pom\u016fcky, kter\u00e9 mi z\u00e1sadn\u011b zlep\u0161\u00ed kvalitu \u017eivota a umo\u017en\u00ed mi v\u00edce se v\u011bnovat synovi. Je to elektrick\u00fd pohon k invalidn\u00edmu voz\u00edku. Pou\u017e\u00edv\u00e1m mechanick\u00fd, kter\u00fd ale sama u\u017e nezvl\u00e1dnu bezpe\u010dn\u011b a dlouho ovl\u00e1dat. Elektrick\u00fd pohon by mi umo\u017enil samostatn\u011b vyjet ven, dopravit se do \u0161koly za synem \u010di na men\u0161\u00ed n\u00e1kup \u2013 bez nutnosti v\u017edy prosit o pomoc,\u201c vysv\u011btlila Ji\u0159ina.<\/p>\n\n\n\n
Ta tou\u017e\u00ed i po aut\u011b pro bezpe\u010dn\u00fd transport. Je pro ni d\u016fle\u017eit\u00e9, proto\u017ee j\u00ed umo\u017en\u00ed zvl\u00e1dnout del\u0161\u00ed vzd\u00e1lenosti, dojet na kontroly, rehabilitace i nezbytn\u00e9 n\u00e1kupy. Kdyby se poda\u0159ilo vybrat v\u00edce, budou finance vyu\u017eity na dal\u0161\u00ed nezbytn\u00e9 pom\u016fcky pro nechod\u00edc\u00ed osobu.<\/p>\n\n\n\n
\u201eKa\u017ed\u00e1 pomoc \u2013 i ta nejmen\u0161\u00ed \u2013 znamen\u00e1 pro Ji\u0159inu velk\u00fd krok k tomu, aby mohla \u017e\u00edt d\u016fstojn\u011bji, bezpe\u010dn\u011bji a hlavn\u011b b\u00fdt co nejv\u00edce maminkou, kterou jej\u00ed syn tolik pot\u0159ebuje. D\u011bkujeme z cel\u00e9ho srdce ka\u017ed\u00e9mu, kdo se rozhodne pomoci,\u201c uzav\u00edr\u00e1 Ji\u0159inina sestra Jana Ulmov\u00e1, kter\u00e1 j\u00ed dlouhodob\u011b pom\u00e1h\u00e1 a kter\u00e1 sb\u00edrku zalo\u017eila.<\/p>\n\n\n\n
Sb\u00edrku najdete na internetov\u00e9 platform\u011b Donio pod n\u00e1zvem Pomozte Ji\u0159in\u011b pro leh\u010d\u00ed \u017eivot na voz\u00edku: https:\/\/donio.cz\/pomozte-jirine-pro-lehci-zivot-na-voziku<\/a><\/p>\n\n\n\n Milan Kili\u00e1n<\/p>\n\n\n\n Doma\u017elick\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/domazlicky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Ji\u0159ina \u0160lehoferov\u00e1 (38) z Hlohov\u00e9 na Doma\u017elicku od dosp\u00edv\u00e1n\u00ed bojuje s t\u011b\u017ek\u00fdm genetick\u00fdm onemocn\u011bn\u00edm \u2013 Friedrichovou ataxi\u00ed. Jej\u00ed stav se st\u00e1le zhor\u0161uje, ale i p\u0159es […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":41873,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-62926","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/62926","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=62926"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/62926\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/41873"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=62926"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=62926"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=62926"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}