{"id":63436,"date":"2026-03-29T23:25:00","date_gmt":"2026-03-29T21:25:00","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=63436"},"modified":"2026-03-29T23:25:00","modified_gmt":"2026-03-29T21:25:00","slug":"pecujeme-o-tatu-s-rozvinutou-demenci-jsme-v-izolaci-i-financni-tisni-rika-muz","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=63436","title":{"rendered":"Pe\u010dujeme o t\u00e1tu s rozvinutou demenc\u00ed, jsme v izolaci i finan\u010dn\u00ed t\u00edsni, \u0159\u00edk\u00e1 mu\u017e"},"content":{"rendered":"\n<p>O otce s rozvinutou demenc\u00ed v nevratn\u00e9m st\u00e1diu pe\u010duj\u00ed ve dne i v noci. David M\u00e1ra se sna\u017e\u00ed pro Den\u00edk.cz p\u0159ibl\u00ed\u017eit, s \u010d\u00edm se jeho rodina p\u0159i p\u00e9\u010di pot\u00fdk\u00e1 i co by podle n\u011bj situaci uleh\u010dilo. Zalo\u017eil proto dobrovolnickou organizaci. Jeho p\u0159\u00edb\u011bh doprovozen\u00fd reakcemi ministersk\u00fdch \u00fa\u0159edn\u00edk\u016f Den\u00edk.cz p\u0159in\u00e1\u0161\u00ed v r\u00e1mci minis\u00e9rie v\u011bnovan\u00e9 dom\u00e1c\u00ed p\u00e9\u010di, kter\u00e1 spad\u00e1 pod projekt Vizita.<\/p>\n\n\n\n<p>Pades\u00e1tilet\u00fd David M\u00e1ra pe\u010duje spole\u010dn\u011b s maminkou a sestrou o tat\u00ednka, kter\u00e9mu bude v dubnu 74 let a trp\u00ed pokro\u010dilou Alzheimerovou chorobou. \u201eOfici\u00e1ln\u00ed diagn\u00f3za je Alzheimerova choroba s p\u0159idru\u017eenou demenc\u00ed v termin\u00e1ln\u00edm (kone\u010dn\u00e9m, pozn. red.) st\u00e1diu,\u201c uvedl M\u00e1ra pro Den\u00edk.cz.<\/p>\n\n\n\n<p>Onemocn\u011bn\u00ed se podle n\u011bj projevuje t\u00edm, \u017ee nejprve doch\u00e1z\u00ed ke zm\u011bn\u011b osobnosti, emoc\u00ed a logiky. A\u017e pot\u00e9 pam\u011bti. \u201e\u010clov\u011bk se zkr\u00e1tka za\u010dne n\u00e1hle m\u011bnit. T\u0159eba t\u00e1ta cel\u00fd \u017eivot s\u00e1zel stromy a najednou je za\u010dal k\u00e1cet. V\u0161e za\u010dalo j\u00edt do protiklad\u016f,\u201c zavzpom\u00ednal na za\u010d\u00e1tky pot\u00ed\u017e\u00ed.<\/p>\n\n\n\n<p>Prvn\u00ed sign\u00e1ly demence probleskly ji\u017e asi p\u0159ed \u0161estn\u00e1cti lety, p\u0159i\u010dem\u017e zcela nesob\u011bsta\u010dn\u00fd je pan Vladim\u00edr p\u0159ibli\u017en\u011b \u010dty\u0159i roky. \u201eProto si mysl\u00edme, \u017ee navzdory ofici\u00e1ln\u00ed diagn\u00f3ze trp\u00ed sp\u00ed\u0161e frontotempor\u00e1ln\u00ed demenc\u00ed behavior\u00e1ln\u00edho typu. Diagnostikovat p\u0159esn\u011b n\u011bkter\u00e1 neurodegenerativn\u00ed onemocn\u011bn\u00ed je obt\u00ed\u017en\u00e9,\u201c zm\u00ednil M\u00e1ra.<\/p>\n\n\n\n<p>Man\u017eelka pana Vladim\u00edra, Jana M\u00e1rov\u00e1, kter\u00e9 se bl\u00ed\u017e\u00ed osmdes\u00e1tka, poznamenala, \u017ee jej\u00ed mu\u017e u\u017e srozumiteln\u011b nekomunikuje. Neust\u00e1le chce sed\u011bt na okraji postele nebo se pokou\u0161\u00ed postel opustit, \u010d\u00edm\u017e hroz\u00ed p\u00e1d a zran\u011bn\u00ed. Mus\u00ed ho tedy po\u0159\u00e1d n\u011bkdo hl\u00eddat, dokonce i v noci. Na pomoci druh\u00fdch jen z\u00e1visl\u00fd ve v\u0161em.<\/p>\n\n\n\n<p>Rodina o n\u011bj mus\u00ed pe\u010dovat nep\u0159etr\u017eit\u011b. \u201eSituace n\u00e1s dost\u00e1v\u00e1 do soci\u00e1ln\u00ed izolace, na fyzick\u00e9 i psychick\u00e9 dno a do finan\u010dn\u00ed t\u00edsn\u011b, mn\u011b to st\u00e1lo i vztah, co\u017e nen\u00ed ojedin\u011bl\u00e9. Partne\u0159i \u010di partnerky v\u011bt\u0161inou necht\u011bj\u00ed \u017e\u00edt \u017eivot pe\u010duj\u00edc\u00edho, v podstat\u011b by se museli sebeob\u011btovat,\u201c \u0159ekl M\u00e1ra.<\/p>\n\n\n\n<p>K\u0159e\u010de v rukou i nohou<\/p>\n\n\n\n<p>M\u00e1rov\u00e1 p\u0159ibl\u00ed\u017eila, \u017ee man\u017eel m\u00e1 k\u0159e\u010de v rukou i nohou. \u201eKv\u016fli spastick\u00e9 k\u0159e\u010di si v\u0161\u00ed silou zar\u00fdv\u00e1 nehty do dlan\u011b. I to je t\u0159eba neust\u00e1le hl\u00eddat. Do dlan\u00ed mu mus\u00edme d\u00e1vat v\u00e1le\u010dek z g\u00e1zy, aby mu prsty nez\u016fstaly v k\u0159e\u010di zara\u017een\u00e9 do k\u016f\u017ee a nezkr\u00e1tily se mu \u0161lachy,\u201c podotkla.<\/p>\n\n\n\n<p>M\u00e1ra to up\u0159esnil. \u201ePovolit k\u0159e\u010d a prsty t\u00e1tovi opatrn\u011b nat\u00e1hnout, aby \u0161la ruka um\u00fdt a \u0161el vlo\u017eit v\u00e1le\u010dek, je mraven\u010d\u00ed pr\u00e1ce. Na n\u011bkolik hodin v kuse, kdy mu prsty po jednom a milimetr po milimetru uvol\u0148ujete,\u201c nast\u00ednil.<\/p>\n\n\n\n<p>Kdy\u017e tat\u00ednka nesou na toaletu, mus\u00ed na tom pracovat oba. \u201eV\u00e1\u017e\u00ed asi 85 kilo, tak\u017ee ho t\u00e1hneme s m\u00e1mou. U\u017e jsem si t\u00edm uhnal t\u0159i k\u00fdly. Existuj\u00ed sice pom\u016fcky, kter\u00e9 p\u0159esun uleh\u010duj\u00ed, lid\u00e9 s demenc\u00ed jsou ale \u010dasto diskriminov\u00e1ni, proto\u017ee na p\u0159\u00edsp\u011bvek na zvl\u00e1\u0161tn\u00ed pom\u016fcku v mnoha p\u0159\u00edpadech nemaj\u00ed n\u00e1rok nebo pot\u0159ebn\u00e9 pom\u016fcky nejsou za\u0159azen\u00e9 do \u00fahrad a p\u0159\u00edsp\u011bvk\u016f jak poji\u0161\u0165oven, tak \u00da\u0159adu pr\u00e1ce,\u201c nast\u00ednil M\u00e1ra.<\/p>\n\n\n\n<p>Proces p\u0159ibl\u00ed\u017eil i jinak. \u201e\u00da\u0159ad pr\u00e1ce nav\u00edc n\u00e1rok neposuzuje podle funk\u010dnosti \u010dlov\u011bka, ale jen podle konkr\u00e9tn\u00ed diagn\u00f3zy. Kdy\u017e m\u00e1te dva kvadruplegiky (lidi s ochrnut\u00edm kon\u010detin a trupu, pozn. red.), ale jeden m\u00e1 nav\u00edc demenci a druh\u00fd ne, tak pro toho s demenc\u00ed je p\u0159\u00edsp\u011bvek na ur\u010dit\u00e9 pom\u016fcky tak\u0159ka nedosa\u017eiteln\u00fd, kde\u017eto ten druh\u00fd jej dostane,\u201c podotkl.<\/p>\n\n\n\n<p>Minister\u0161t\u00ed \u00fa\u0159edn\u00edci odm\u00edtli, \u017ee by lid\u00e9 s demenc\u00ed byli v oblasti zvl\u00e1\u0161tn\u00edch pom\u016fcek diskriminov\u00e1ni. \u201eZdravotn\u00ed stav posuzuje Institut posuzov\u00e1n\u00ed zdravotn\u00edho stavu, nikoli \u00da\u0159ad pr\u00e1ce \u010cR. Odm\u00edt\u00e1me t\u00e9\u017e tvrzen\u00ed, \u017ee zdravotn\u00ed stav je posuzov\u00e1n pouze na z\u00e1klad\u011b diagn\u00f3zy, proto\u017ee sou\u010dasn\u00e1 pr\u00e1vn\u00ed \u00faprava je odli\u0161n\u00e1, dlouhodob\u011b nep\u0159\u00edzniv\u00fd zdravotn\u00ed stav je posuzov\u00e1n pr\u00e1v\u011b ve vztahu k jeho funk\u010dn\u00edmu dopadu,\u201c uvedli v reakci pro Den\u00edk.cz pracovn\u00edci tiskov\u00e9ho odd\u011blen\u00ed ministerstva pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed (MPSV).<\/p>\n\n\n\n<p>Pom\u016fcku (na z\u00e1klad\u011b zm\u00edn\u011bn\u00e9ho posouzen\u00ed) pot\u00e9 m\u016f\u017ee poskytnout krajsk\u00e1 pobo\u010dka \u00da\u0159adu pr\u00e1ce. \u201eDoporu\u010dujeme podat \u017e\u00e1dost na \u00da\u0159ad pr\u00e1ce o p\u0159\u00edsp\u011bvek na zvl\u00e1\u0161tn\u00ed pom\u016fcku, zde m\u00e1 pravd\u011bpodobn\u011b j\u00edt o stropn\u00ed zvedac\u00ed syst\u00e9m v\u010detn\u011b instalace,\u201c podotkli. V p\u0159\u00edpad\u011b nesouhlasu s rozhodnut\u00edm je podle nich mo\u017en\u00e9 odvolat se k MPSV. Dal\u0161\u00ed mo\u017enost\u00ed podle nich je, \u017ee o\u0161et\u0159uj\u00edc\u00ed l\u00e9ka\u0159 p\u0159edep\u00ed\u0161e inkontinen\u010dn\u00ed pom\u016fcky, kter\u00e9 v p\u0159\u00edpad\u011b spln\u011bn\u00ed z\u00e1konn\u00fdch podm\u00ednek hrad\u00ed zdravotn\u00ed poji\u0161\u0165ovny.<\/p>\n\n\n\n<p>Spolek pom\u00e1h\u00e1 pe\u010duj\u00edc\u00edm<\/p>\n\n\n\n<p>M\u00e1ra zalo\u017eil s dal\u0161\u00edmi pe\u010duj\u00edc\u00edmi spolek Vedle Tebe, kter\u00fd poskytuje podporu pe\u010duj\u00edc\u00edm. Dobrovolnick\u00e1 organizace m\u00e1 na sv\u00e9m webu, kter\u00fd M\u00e1ra postupn\u011b rozj\u00ed\u017ed\u00ed, zat\u00edm kontakt, kam se mohou lid\u00e9 ozvat a on jim zdarma p\u0159ed\u00e1 zku\u0161enosti \u010di porad\u00ed.<\/p>\n\n\n\n<p>Kv\u016fli r\u016fzn\u00fdm n\u00e1m\u011bt\u016fm se sna\u017e\u00ed oslovovat i politiky. \u201eZat\u00edm sice ne\u00fasp\u011b\u0161n\u011b, nikdo z t\u011bch, koho jsme jako neziskovka oslovili, n\u00e1m bohu\u017eel neodpov\u011bd\u011bl, hodl\u00e1m v tom ale pokra\u010dovat,\u201c uvedl.<\/p>\n\n\n\n<p>Hodn\u011b pot\u00ed\u017e\u00ed podle n\u011bj nar\u00e1\u017e\u00ed na ji\u017e zm\u00edn\u011bn\u00fd nedostatek financ\u00ed. \u201eChyb\u00ed 5. stupe\u0148 p\u0159\u00edsp\u011bvku na p\u00e9\u010di. A 27 tis\u00edc korun (ur\u010den\u00fdch na dom\u00e1c\u00ed p\u00e9\u010di o lidi, kte\u0159\u00ed jsou zcela nesob\u011bsta\u010dn\u00ed, pozn. red.) n\u00e1m nesta\u010d\u00ed,\u201c prohl\u00e1sil.<\/p>\n\n\n\n<p>Minister\u0161t\u00ed \u00fa\u0159edn\u00edci podle sv\u00fdch slov nastaven\u00ed p\u0159\u00edsp\u011bvku na p\u00e9\u010di pr\u016fb\u011b\u017en\u011b vyhodnocuj\u00ed. \u201eA to s ohledem na jeho skute\u010dn\u00fd dopad na lidi se zdravotn\u00edm posti\u017een\u00edm i jejich pe\u010duj\u00edc\u00ed. P\u0159\u00edpadn\u00e9 \u00fapravy v\u00fd\u0161e \u010di konstrukce d\u00e1vky, v\u010detn\u011b n\u00e1vrh\u016f na jej\u00ed dal\u0161\u00ed rozvoj, jsou v\u017edy p\u0159edm\u011btem \u0161ir\u0161\u00ed odborn\u00e9 i politick\u00e9 diskuse,\u201c uvedli z\u00e1stupci tiskov\u00e9ho odd\u011blen\u00ed MPSV. Dodali, \u017ee v legislativn\u00edm pl\u00e1nu prac\u00ed vl\u00e1dy je zahrnuto otev\u0159en\u00ed debaty o zaveden\u00ed spravedliv\u00e9 valorizace p\u0159\u00edsp\u011bvku na p\u00e9\u010di.<\/p>\n\n\n\n<p>Kv\u016fli probl\u00e9m\u016fm s nedostatkem pen\u011bz b\u011b\u017e\u00ed na platform\u011b Donio finan\u010dn\u00ed sb\u00edrka, kter\u00e1 m\u00e1 M\u00e1rovi s p\u00e9\u010d\u00ed o jeho otce pomoci. Sb\u00edrky \u010di p\u0159\u00edsp\u011bvky od nadac\u00ed podle n\u011bj ale nejsou dlouhodob\u00fdm \u0159e\u0161en\u00edm, vol\u00e1 po syst\u00e9mov\u00fdch zm\u011bn\u00e1ch.<\/p>\n\n\n\n<p>S ohledem na \u010das, kter\u00fd v\u011bnuje p\u00e9\u010di, musel na minimum utlumit sv\u00e9 podnik\u00e1n\u00ed. Je vystudovan\u00fd elektrotechnik a aj\u0165\u00e1k. \u201eV\u011bt\u0161inu \u017eivota jsem ale pracoval v event managementu, showbyznysu, technick\u00e9m zaji\u0161t\u011bn\u00ed akc\u00ed a v reklam\u011b,\u201c p\u0159ibl\u00ed\u017eil.<\/p>\n\n\n\n<p>Jeho sestra Nikola M\u00e1rov\u00e1, kter\u00e1 o otce tak\u00e9 pe\u010duje, zase proslula jako primabaler\u00edna N\u00e1rodn\u00edho divadla a dvojn\u00e1sobn\u00e1 dr\u017eitelka Ceny Th\u00e1lie. \u201eSvou kari\u00e9ru ned\u00e1vno ukon\u010dila, u\u017e rok u\u010d\u00ed na Tane\u010dn\u00ed konzervato\u0159i hlavn\u00edho m\u011bsta Prahy a m\u00e1 i svou soukromou tane\u010dn\u00ed \u0161kolu,\u201c poznamenal jej\u00ed bratr.<\/p>\n\n\n\n<p>Nedoch\u00e1z\u00ed k n\u00e1m praktik, \u0159\u00edk\u00e1 M\u00e1ra<\/p>\n\n\n\n<p>Lid\u00e9 pe\u010duj\u00edc\u00ed o \u010dlov\u011bka s t\u011b\u017ekou demenc\u00ed maj\u00ed podle M\u00e1ry pot\u00ed\u017ee i s t\u00edm, aby do dom\u00e1cnosti doch\u00e1zel praktik. \u201ePraktick\u00fd l\u00e9ka\u0159 m\u00e1 sice ze z\u00e1kona povinnost chodit do dom\u00e1cnosti, pokud je to nezbytn\u00e9, ale to se t\u00e9m\u011b\u0159 ned\u011bje. Nav\u00edc m\u016f\u017ee leg\u00e1ln\u011b odm\u00edtnout, kdy\u017e m\u00e1 plnou kapacitu \u2013 na to p\u0159esn\u011b nar\u00e1\u017e\u00ed v\u011bt\u0161ina pe\u010duj\u00edc\u00edch,\u201c \u0159ekl.<\/p>\n\n\n\n<p>Vedouc\u00ed tiskov\u00e9ho odd\u011blen\u00ed ministerstva zdravotnictv\u00ed Renata Povoln\u00e1 pro Den\u00edk.cz reagovala, \u017ee n\u00e1v\u0161t\u011bvn\u00ed slu\u017eba je sou\u010d\u00e1st\u00ed prim\u00e1rn\u00ed p\u00e9\u010de. \u201eJe ur\u010dena pacient\u016fm, kte\u0159\u00ed se nemohou dostavit do ordinace. Praktick\u00fd l\u00e9ka\u0159 ji poskytuje v rozsahu, kter\u00fd odpov\u00edd\u00e1 jeho kapacit\u00e1m a organiza\u010dn\u00edm mo\u017enostem,\u201c poznamenala.<\/p>\n\n\n\n<p>Pokud l\u00e9ka\u0159 n\u00e1v\u0161t\u011bvu odm\u00edtne, minister\u0161t\u00ed odborn\u00edci doporu\u010duj\u00ed domluvit se p\u0159\u00edmo s l\u00e9ka\u0159em na konkr\u00e9tn\u00edm re\u017eimu poskytov\u00e1n\u00ed p\u00e9\u010de, obr\u00e1tit se na zdravotn\u00ed poji\u0161\u0165ovnu, kter\u00e1 m\u016f\u017ee pomoci se zaji\u0161t\u011bn\u00edm dostupn\u00e9 p\u00e9\u010de, p\u0159\u00edpadn\u011b vyhledat jin\u00e9ho poskytovatele nebo podat podn\u011bt p\u0159\u00edslu\u0161n\u00e9mu krajsk\u00e9mu \u00fa\u0159adu.<\/p>\n\n\n\n<p>Alternativn\u011b lze podle Povoln\u00e9 vyu\u017e\u00edt slu\u017eby dom\u00e1c\u00ed zdravotn\u00ed p\u00e9\u010de \u010di mobiln\u00ed paliativn\u00ed p\u00e9\u010de, pokud jsou v dan\u00e9m regionu dostupn\u00e9. \u201eZ\u00e1rove\u0148 p\u0159ipravujeme kroky, kter\u00e9 umo\u017en\u00ed v\u011bt\u0161\u00ed zapojen\u00ed kompetentn\u00edch sester do n\u00e1v\u0161t\u011bvn\u00ed slu\u017eby, co\u017e by m\u011blo p\u0159isp\u011bt ke zlep\u0161en\u00ed dostupnosti p\u00e9\u010de v dom\u00e1c\u00edm prost\u0159ed\u00ed,\u201c uvedla.<\/p>\n\n\n\n<p>M\u00e1ra t\u00e9\u017e p\u0159ibl\u00ed\u017eil situace, kdy\u017e jdou s t\u00e1tou do nemocnice. \u201eDostaneme vynad\u00e1no, \u017ee nen\u00ed v ohro\u017een\u00ed \u017eivota, a stejn\u011b nemaj\u00ed metodiky ani n\u00e1stroje, person\u00e1l a \u010das takov\u00e9ho pacienta vy\u0161et\u0159it,\u201c sd\u011blil.<\/p>\n\n\n\n<p>Pot\u0159ebujeme koordin\u00e1tory p\u00e9\u010de, \u0159\u00edk\u00e1 pe\u010duj\u00edc\u00ed<\/p>\n\n\n\n<p>Podle Povoln\u00e9 nelze pau\u0161alizovat. \u201eTakov\u00e9 situace mohou p\u0159edstavovat selh\u00e1n\u00ed konkr\u00e9tn\u00edho poskytovatele, nikoliv syst\u00e9mov\u00fd standard. V p\u0159\u00edpad\u011b, \u017ee se to pacientovi stalo, je nezbytn\u00e9 se ihned obr\u00e1tit na nemocni\u010dn\u00edho ombudsmana. Dal\u0161\u00ed mo\u017enost\u00ed je podat st\u00ed\u017enost p\u0159\u00edmo poskytovateli nebo pak krajsk\u00e9mu \u00fa\u0159adu, kter\u00fd vydal opr\u00e1vn\u011bn\u00ed k poskytov\u00e1n\u00ed zdravotn\u00edch slu\u017eeb,\u201c uvedla.<\/p>\n\n\n\n<p>A doch\u00e1z\u00ed k M\u00e1rov\u00fdm dom\u016f specialist\u00e9? \u201eV\u016fbec, dokonce ani za pen\u00edze. Pe\u010duj\u00edc\u00ed rodiny i nemocn\u00ed se tak ocitaj\u00ed prakticky \u00fapln\u011b mimo zdravotn\u00ed syst\u00e9m. Nen\u00ed zde \u017e\u00e1dn\u00e1 leg\u00e1ln\u00ed mo\u017enost, jak l\u00e9ka\u0159e k p\u0159ijet\u00ed takov\u00e9ho pacienta do p\u00e9\u010de ani k dom\u00e1c\u00ed n\u00e1v\u0161t\u011bv\u011b, pokud nen\u00ed schopen se k n\u011bmu dopravit, donutit,\u201c zkritizoval M\u00e1ra.<\/p>\n\n\n\n<p>Jak pe\u010duj\u00edc\u00ed v takov\u00e9m p\u0159\u00edpad\u011b reaguj\u00ed? \u201eHled\u00e1me pomoc u zdravotn\u00ed poji\u0161\u0165ovny, kter\u00e1 sice po\u0161le seznam specialist\u016f. Ti v\u00e1m ale v drtiv\u00e9 v\u011bt\u0161in\u011b, kdy\u017e se dozv\u011bd\u00ed, o jak\u00e9ho pacienta se jedn\u00e1, \u0159eknou, \u017ee na n\u011bj nemaj\u00ed kapacitu nebo pacienty u\u017e nep\u0159ij\u00edmaj\u00ed. P\u0159\u00edpadn\u011b \u017ee maj\u00ed voln\u00fd term\u00edn za rok. Obvol\u00e1te cel\u00fd seznam od poji\u0161\u0165ovny a nese\u017eenete nikoho, st\u011b\u017eujete si na profesn\u00edch komor\u00e1ch a sdru\u017een\u00edch, ale bez v\u00fdsledku,\u201c popsal t\u011b\u017ekosti M\u00e1ra.<\/p>\n\n\n\n<p>Navrhuje \u0159e\u0161en\u00ed. \u201eProbl\u00e9m je v tom, \u017ee tu nejsou mobiln\u00ed l\u00e9ka\u0159sk\u00e9 t\u00fdmy, kdy by imobiln\u00ed nemocn\u00e9 s demenc\u00ed v dom\u00e1c\u00edm prost\u0159ed\u00ed nav\u0161t\u011bvovali l\u00e9ka\u0159i r\u016fzn\u00fdch specializac\u00ed,\u201c poznamenal. Uv\u00edtal by t\u00e9\u017e, kdyby v \u010cesku p\u016fsobili koordin\u00e1to\u0159i p\u00e9\u010de, kte\u0159\u00ed by rodin\u00e1m lid\u00ed s demenc\u00ed pomohli zorientovat se ve spletitostech zdravotn\u00edho a soci\u00e1ln\u00edho syst\u00e9mu.<\/p>\n\n\n\n<p>V\u00edt\u00e1, \u017ee je pl\u00e1nov\u00e1n n\u00e1rodn\u00ed koordin\u00e1tor, uv\u00edtal by ale, kdyby koordin\u00e1to\u0159i p\u016fsobili v ka\u017ed\u00e9m regionu. \u201eStejn\u011b jako tomu nov\u011b je u onkologick\u00fdch pacient\u016f. Koordin\u00e1tor nasm\u011bruje rodinu a pacienta, jak postupovat, co ud\u011blat, zajist\u00ed l\u00e9ka\u0159e, vy\u0161et\u0159en\u00ed a tak d\u00e1le,\u201c na\u010drtl M\u00e1ra.<\/p>\n\n\n\n<p>P\u0159idal zku\u0161enost bloud\u011bn\u00ed v syst\u00e9mu. \u201eNa za\u010d\u00e1tku t\u00e1tova onemocn\u011bn\u00ed n\u00e1s v\u0161ichni sm\u011brovali za psychiatrem, pak n\u00e1m ale bylo \u0159e\u010deno, \u017ee jsme m\u011bli j\u00edt za geriatrem. To jsme ale nev\u011bd\u011bli. Probl\u00e9m je i to, \u017ee v \u010cesk\u00e9 republice je naprosto zoufal\u00fd nedostatek nejen gerontopsychiatr\u016f a geriatr\u016f, ale i nezbytn\u00fdch neurolog\u016f, kte\u0159\u00ed se specializuj\u00ed na nemocn\u00e9 s demenc\u00ed,\u201c podotkl.<\/p>\n\n\n\n<p>Povoln\u00e1 uvedla, \u017ee obdobn\u00e9 principy jako u onkologick\u00fdch onemocn\u011bn\u00ed se postupn\u011b rozv\u00edjej\u00ed i pro dal\u0161\u00ed skupiny nemocn\u00fdch. \u201eU pacient\u016f s demenc\u00ed zat\u00edm nen\u00ed role koordin\u00e1tora p\u00e9\u010de jednotn\u011b syst\u00e9mov\u011b ukotvena, nicm\u00e9n\u011b pracujeme na posilov\u00e1n\u00ed koordinace prost\u0159ednictv\u00edm rozvoje case managementu (nap\u0159\u00edklad v geriatrii), pilotn\u00edch projekt\u016f na \u00farovni kraj\u016f a lep\u0161\u00edho propojen\u00ed zdravotn\u00edch a soci\u00e1ln\u00edch slu\u017eeb,\u201c reagovala.<\/p>\n\n\n\n<p>Ka\u017ed\u00fd p\u0159\u00edb\u011bh bereme v\u00e1\u017en\u011b, zn\u00ed z ministerstva<\/p>\n\n\n\n<p>C\u00edlem podle n\u00ed do budoucna je, aby pacienti i jejich rodiny m\u011bli jasn\u00fd kontakt a lep\u0161\u00ed orientaci v syst\u00e9mu p\u00e9\u010de. \u201eP\u00e9\u010de v dom\u00e1c\u00edm prost\u0159ed\u00ed je dlouhodob\u011b podporovan\u00fdm sm\u011brem. Ji\u017e nyn\u00ed funguje dom\u00e1c\u00ed zdravotn\u00ed p\u00e9\u010de, kter\u00e1 je indikov\u00e1na l\u00e9ka\u0159em a zaji\u0161\u0165ov\u00e1na kvalifikovan\u00fdmi sestrami. V od\u016fvodn\u011bn\u00fdch p\u0159\u00edpadech lze jej\u00ed rozsah nav\u00fd\u0161it a\u017e na \u0161est n\u00e1v\u0161t\u011bv denn\u011b, respektive \u0161est hodin p\u00e9\u010de,\u201c poznamenala.<\/p>\n\n\n\n<p>Sou\u010dasn\u011b se podle n\u00ed rozv\u00edj\u00ed mobiln\u00ed specializovan\u00e1 paliativn\u00ed p\u00e9\u010de. \u201eTa ji\u017e dnes v n\u011bkter\u00fdch regionech zaji\u0161\u0165uje komplexn\u00ed podporu v dom\u00e1c\u00edm prost\u0159ed\u00ed v\u010detn\u011b zapojen\u00ed l\u00e9ka\u0159e. Jsme si v\u011bdomi, \u017ee kapacity t\u011bchto slu\u017eeb nejsou zat\u00edm pln\u011b dosta\u010duj\u00edc\u00ed, a jejich dal\u0161\u00ed rozvoj pat\u0159\u00ed mezi na\u0161e priority,\u201c podotkla.<\/p>\n\n\n\n<p>M\u00e1ra podle sv\u00fdch slov nar\u00e1\u017e\u00ed i na to, \u017ee otce necht\u011bj\u00ed vz\u00edt v odleh\u010dovac\u00ed slu\u017eb\u011b, kde by byl t\u0159eba dva t\u00fddny a bl\u00edzc\u00ed by si odpo\u010dinuli. \u201eS t\u00edm se setk\u00e1vaj\u00ed v podstat\u011b v\u0161ichni pe\u010duj\u00edc\u00ed u pokro\u010dil\u00e9 a termin\u00e1ln\u00ed demence. Kdy\u017e m\u00e1 n\u011bkdo u\u017e opravdu t\u011b\u017ekou demenci, je probl\u00e9m kamkoli ho \u2013 nejen do\u010dasn\u011b \u2013 um\u00edstit, proto\u017ee se mu nikde nest\u00edhaj\u00ed individu\u00e1ln\u011b v\u011bnovat. Bez individu\u00e1ln\u00ed p\u00e9\u010de ten \u010dlov\u011bk ale zem\u0159e,\u201c uvedl.<\/p>\n\n\n\n<p>Podle Povoln\u00e9 nelze dopady pobytov\u00fdch slu\u017eeb zobec\u0148ovat. \u201eV syst\u00e9mu maj\u00ed sv\u00e9 legitimn\u00ed a d\u016fle\u017eit\u00e9 m\u00edsto. Pro \u0159adu lid\u00ed p\u0159edstavuj\u00ed jedinou re\u00e1lnou mo\u017enost p\u00e9\u010de, proto\u017ee nemaj\u00ed dostate\u010dnou podporu rodiny, jejich zdravotn\u00ed stav vy\u017eaduje nep\u0159etr\u017eit\u00fd dohled nebo si pobytovou slu\u017ebu v\u00fdslovn\u011b p\u0159ej\u00ed. U mnoha klient\u016f tak pobytov\u00e1 slu\u017eba neznamen\u00e1 ohro\u017een\u00ed, ale naopak jistotu, bezpe\u010d\u00ed a dostupnost pot\u0159ebn\u00e9 p\u00e9\u010de,\u201c sd\u011blila.<\/p>\n\n\n\n<p>Prim\u00e1rn\u00ed volbou m\u00e1 ale podle n\u00ed b\u00fdt v\u017edy p\u00e9\u010de v p\u0159irozen\u00e9m prost\u0159ed\u00ed. \u201ePokud je bezpe\u010dn\u00e1, udr\u017eiteln\u00e1 a podporovan\u00e1 pot\u0159ebn\u00fdmi slu\u017ebami. To vy\u017eaduje kvalitn\u00ed spolupr\u00e1ci praktick\u00e9ho l\u00e9ka\u0159e, geriatrick\u00fdch t\u00fdm\u016f, dom\u00e1c\u00ed zdravotn\u00ed p\u00e9\u010de, soci\u00e1ln\u00edch slu\u017eeb a rodiny. Se zdravotn\u00edmi poji\u0161\u0165ovnami a poskytovateli zdravotn\u00edch slu\u017eeb kontinu\u00e1ln\u011b spolupracujeme na pos\u00edlen\u00ed dostupnosti a rozvoji kvality pot\u0159ebn\u00fdch typ\u016f p\u00e9\u010de,\u201c uvedla.<\/p>\n\n\n\n<p>M\u00e1ra upozornil, \u017ee populace st\u00e1rne a probl\u00e9m se bude t\u00fdkat \u010d\u00edm d\u00e1l v\u00edc lid\u00ed. Podle odhad\u016f odborn\u00edk\u016f v \u010cesku n\u011bjak\u00fdm neurodegenerativn\u00edm onemocn\u011bn\u00edm trp\u00ed kolem 180 tis\u00edc lid\u00ed a v roce 2050 jich m\u016f\u017ee b\u00fdt dvojn\u00e1sobek. \u201eTo jsou v\u0161ak jen ti ofici\u00e1ln\u011b diagnostikovan\u00ed,\u201c uzav\u0159el M\u00e1ra.<\/p>\n\n\n\n<p>Povoln\u00e1 zd\u016fraznila, \u017ee na ministerstvu berou ka\u017ed\u00fd p\u0159\u00edb\u011bh v\u00e1\u017en\u011b. \u201eMrz\u00ed n\u00e1s, pokud jednotliv\u00e9 negativn\u00ed zku\u0161enosti, kter\u00e9 nelze zobec\u0148ovat, vyvol\u00e1vaj\u00ed dojem, \u017ee se ministerstvo a jeho pracovn\u00edci o konkr\u00e9tn\u00ed osudy pacient\u016f a pe\u010duj\u00edc\u00edch nezaj\u00edmaj\u00ed,\u201c podotkla.<\/p>\n\n\n\n<p>Dodala, \u017ee minister\u0161t\u00ed \u00fa\u0159edn\u00edci dlouhodob\u011b buduj\u00ed form\u00e1ln\u00ed i neform\u00e1ln\u00ed kan\u00e1ly, p\u0159es kter\u00e9 s pacienty a jejich z\u00e1stupci pravideln\u011b a systematicky jednaj\u00ed. \u201ePacientsk\u00e9 organizace zveme ke spolupr\u00e1ci pr\u016fb\u011b\u017en\u011b, nejen prost\u0159ednictv\u00edm Pacientsk\u00e9 rady, ale tak\u00e9 p\u0159es Pacientsk\u00fd hub a tematick\u00e9 pracovn\u00ed skupiny,\u201c doplnila.<\/p>\n\n\n\n<p>\u00daloha geriatra v p\u00e9\u010di o pacienty s demenc\u00ed<\/p>\n\n\n\n<p>Hodnot\u00ed zdravotn\u00ed stav, sob\u011bsta\u010dnost, kognici, v\u00fd\u017eivu, riziko p\u00e1d\u016f \u010di soci\u00e1ln\u00ed situaci, optimalizuje medikaci, nastavuje individu\u00e1ln\u00ed pl\u00e1n p\u00e9\u010de, spolupracuje s praktick\u00fdm l\u00e9ka\u0159em a psychiatrem p\u0159i diagnostice a l\u00e9\u010db\u011b demence (v\u010detn\u011b \u0159e\u0161en\u00ed poruch chov\u00e1n\u00ed, sp\u00e1nku a podobn\u011b), pom\u00e1h\u00e1 propojit zdravotn\u00ed a soci\u00e1ln\u00ed slu\u017eby (nap\u0159\u00edklad dom\u00e1c\u00ed p\u00e9\u010di, odleh\u010dovac\u00ed slu\u017eby, soci\u00e1ln\u00ed poradenstv\u00ed), pod\u00edl\u00ed se na pl\u00e1nov\u00e1n\u00ed n\u00e1vazn\u00e9 a p\u0159\u00edpadn\u011b paliativn\u00ed p\u00e9\u010de, komunikuje s rodinou a pe\u010duj\u00edc\u00edmi, pom\u00e1h\u00e1 jim orientovat se v mo\u017enostech podpory.<\/p>\n\n\n\n<p>Zdroj: Ministerstvo zdravotnictv\u00ed \u010cR<\/p>\n\n\n\n<p>Andrea Cerqueirov\u00e1<\/p>\n\n\n\n<p>Den\u00edk.cz<\/p>\n\n\n\n<p><a href=\"https:\/\/www.denik.cz\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/www.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>O otce s rozvinutou demenc\u00ed v nevratn\u00e9m st\u00e1diu pe\u010duj\u00ed ve dne i v noci. David M\u00e1ra se sna\u017e\u00ed pro Den\u00edk.cz p\u0159ibl\u00ed\u017eit, s \u010d\u00edm se jeho <a class=\"mh-excerpt-more\" href=\"https:\/\/www.invarena.cz\/?p=63436\" title=\"Pe\u010dujeme o t\u00e1tu s rozvinutou demenc\u00ed, jsme v izolaci i finan\u010dn\u00ed t\u00edsni, \u0159\u00edk\u00e1 mu\u017e\">[&#8230;]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":19373,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-63436","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/63436","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=63436"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/63436\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/19373"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=63436"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=63436"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=63436"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}