Fotbalov\u00fd Jablonec se chyst\u00e1 na velkou bitvu s Libercem, ale tentokr\u00e1t se bude bojovat i mimo tr\u00e1vn\u00edk. V r\u00e1mci presti\u017en\u00edho derby se klub i fanou\u0161ci spoj\u00ed, aby pomohli desetilet\u00e9mu Va\u0161\u00edkovi, kter\u00fd sv\u00e1d\u00ed nejt\u011b\u017e\u0161\u00ed z\u00e1pas sv\u00e9ho \u017eivota se vz\u00e1cnou svalovou dystrofi\u00ed. Ka\u017ed\u00e1 koruna vhozen\u00e1 do kasi\u010dky se nav\u00edc d\u00edky \u0161t\u011bdr\u00e9mu gestu klubu zdvojn\u00e1sob\u00ed.<\/p>\n\n\n\n
V\u00edce ne\u017e jen rivalita<\/p>\n\n\n\n
Sobotn\u00ed odpoledne na St\u0159elnici (v\u00fdkop v 16:00) bude pat\u0159it tradi\u010dn\u00ed severo\u010desk\u00e9 rivalit\u011b. Mezi fanou\u0161ky Jablonce a Liberce to obvykle jisk\u0159\u00ed, tentokr\u00e1t by se v\u0161ak m\u011blo tleskat spole\u010dn\u00e9 v\u011bci.<\/p>\n\n\n\n
Jabloneck\u00fd klub se rozhodl vyu\u017e\u00edt nejsledovan\u011bj\u0161\u00ed z\u00e1pas jara k podpo\u0159e mal\u00e9ho Va\u0161\u00edka, milovn\u00edka zv\u00ed\u0159at a velk\u00e9ho bojovn\u00edka, kter\u00e9mu v p\u011bti letech diagnostikovali Duchennovu svalovou dystrofii.<\/p>\n\n\n\n
Sb\u00edrku pro Va\u0161\u00edka naleznete pod t\u00edmto odkazem nebo na platform\u011b DONIO: https:\/\/donio.cz\/darujme-vasikovi-budoucnost-bez-voziku<\/a><\/p>\n\n\n\n Z\u00e1vod s \u010dasem a krutou diagn\u00f3zou<\/p>\n\n\n\n Va\u0161\u00edk\u016fv p\u0159\u00edb\u011bh je mraziv\u00fd. Narodil se jako zdrav\u00e9 d\u00edt\u011b, ale nemoc postupn\u011b za\u010dala oslabovat jeho svaly. Dnes u\u017e bojuje s ka\u017ed\u00fdm schodem a hroz\u00ed, \u017ee brzy skon\u010d\u00ed na invalidn\u00edm voz\u00edku.<\/p>\n\n\n\n Nad\u011bj\u00ed je nov\u00fd l\u00e9k DUVYZAT, kter\u00fd dok\u00e1\u017ee pr\u016fb\u011bh nemoci zpomalit. M\u00e1 to v\u0161ak h\u00e1\u010dek \u2013 cena ro\u010dn\u00ed l\u00e9\u010dby p\u0159esahuje 8 milion\u016f korun a poji\u0161\u0165ovny ji nepropl\u00e1cej\u00ed. Deset let je nav\u00edc pro pod\u00e1n\u00ed l\u00e9ku kritick\u00fd v\u011bk.<\/p>\n\n\n\n Jablonec vybranou \u010d\u00e1stku zdvojn\u00e1sob\u00ed<\/p>\n\n\n\n Jak m\u016f\u017eete v sobotu pomoci? Po cel\u00e9m stadionu se budou pohybovat hostesky v nep\u0159ehl\u00e9dnuteln\u00e9m r\u016f\u017eov\u00e9m oble\u010den\u00ed s kasi\u010dkami. Do nich m\u016f\u017ee ka\u017ed\u00fd fanou\u0161ek p\u0159isp\u011bt libovolnou \u010d\u00e1stkou.<\/p>\n\n\n\n To nejd\u016fle\u017eit\u011bj\u0161\u00ed ale p\u0159ijde po z\u00e1pase: FK Jablonec ofici\u00e1ln\u011b ozn\u00e1mil, \u017ee celkovou vybranou \u010d\u00e1stku z kasi\u010dek zdvojn\u00e1sob\u00ed z vlastn\u00edch zdroj\u016f. Pokud se tedy mezi fanou\u0161ky vybere nap\u0159\u00edklad 50 tis\u00edc korun, klub p\u0159id\u00e1 dal\u0161\u00edch 50 tis\u00edc a Va\u0161\u00edkovi ode\u0161le rovn\u00fdch 100 tis\u00edc na n\u00e1kup n\u00e1kladn\u00e9ho l\u00e9ku.<\/p>\n\n\n\n Nebu\u010fme lhostejn\u00ed<\/p>\n\n\n\n \u201eVa\u0161\u00edk se ka\u017ed\u00fd den pt\u00e1, kdy u\u017e dostane l\u00e9ky, aby mohl b\u011bhat jako jeho kamar\u00e1di,\u201c vzkazuje rodina, kter\u00e1 pro chlapce z\u0159\u00eddila i sb\u00edrku na platform\u011b Donio. V sobotu na St\u0159elnici k tomu m\u016f\u017ee ka\u017ed\u00fd z n\u00e1s p\u0159idat sv\u016fj d\u00edl.<\/p>\n\n\n\n P\u0159ij\u010fte podpo\u0159it sv\u016fj t\u00fdm, ale hlavn\u011b pomoci klukovi, kter\u00fd si sv\u016fj sen o pohybu chce vybojovat stejn\u011b tvrd\u011b, jako jablone\u010dt\u00ed hr\u00e1\u010di bojuj\u00ed o ligov\u00e9 body.<\/p>\n\n\n\n CO JE DUCHENNOVA SVALOV\u00c1 DYSTROFIE (DMD)?<\/p>\n\n\n\n Vz\u00e1cn\u00e1 genetick\u00e1 vada: Jde o jedno z nej\u010dast\u011bj\u0161\u00edch a z\u00e1rove\u0148 nejz\u00e1va\u017en\u011bj\u0161\u00edch svalov\u00fdch onemocn\u011bn\u00ed, kter\u00e9 postihuje t\u00e9m\u011b\u0159 v\u00fdhradn\u011b chlapce (zhruba 1 z 5 000 narozen\u00fdch).<\/p>\n\n\n\n Chyb\u011bj\u00edc\u00ed \u201elepidlo\u201c: T\u011blo pacienta nedok\u00e1\u017ee produkovat b\u00edlkovinu dystrofin, kter\u00e1 funguje jako pojivo a ochrana svalov\u00fdch vl\u00e1ken. Bez n\u00ed se svaly p\u0159i ka\u017ed\u00e9m pohybu po\u0161kozuj\u00ed, rozpadaj\u00ed a n\u00e1sledn\u011b jizv\u00ed.<\/p>\n\n\n\n Postupn\u00e1 ztr\u00e1ta hybnosti: Nemoc za\u010d\u00edn\u00e1 nen\u00e1padn\u011b (neobratnost, p\u00e1dy), ale kolem 10. a\u017e 12. roku v\u011bku v\u011bt\u0161ina chlapc\u016f ztr\u00e1c\u00ed schopnost ch\u016fze a je odk\u00e1z\u00e1na na invalidn\u00ed voz\u00edk.<\/p>\n\n\n\n Zasa\u017een\u00ed \u017eivotn\u00edch funkc\u00ed: Postupn\u011b doch\u00e1z\u00ed k oslaben\u00ed d\u00fdchac\u00edch sval\u016f a srdce, co\u017e je p\u0159\u00ed\u010dinou p\u0159ed\u010dasn\u00e9ho \u00famrt\u00ed, nej\u010dast\u011bji mezi 20. a 30. rokem \u017eivota.<\/p>\n\n\n\n L\u00e9\u010dba jako nad\u011bje: I kdy\u017e je nemoc zat\u00edm nel\u00e9\u010diteln\u00e1, modern\u00ed prepar\u00e1ty (jako pr\u00e1v\u011b Duvyzat) dok\u00e1\u017eou proces rozpadu sval\u016f v\u00fdrazn\u011b zpomalit a darovat d\u011btem roky kvalitn\u00edho \u017eivota nav\u00edc.<\/p>\n\n\n\n Daniel Mohr<\/p>\n\n\n\n Jabloneck\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/jablonecky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Fotbalov\u00fd Jablonec se chyst\u00e1 na velkou bitvu s Libercem, ale tentokr\u00e1t se bude bojovat i mimo tr\u00e1vn\u00edk. V r\u00e1mci presti\u017en\u00edho derby se klub i fanou\u0161ci […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":15337,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-63718","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/63718","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=63718"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/63718\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/15337"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=63718"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=63718"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=63718"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}