Od prvn\u00edho n\u00e1dechu bojuje o \u017eivot. \u010ctrn\u00e1ctilet\u00e1 Leonka z Jihlavska se narodila o m\u011bs\u00edc d\u0159\u00edve spolu se svou sest\u0159i\u010dkou Nelinkou a od narozen\u00ed \u010del\u00ed mimo\u0159\u00e1dn\u011b t\u011b\u017ek\u00e9mu osudu. L\u00e9ka\u0159i j\u00ed diagnostikovali vz\u00e1cn\u00e9 genetick\u00e9 onemocn\u011bn\u00ed \u2013 Kabuki syndrom, kter\u00fd z\u00e1sadn\u011b ovliv\u0148uje jej\u00ed v\u00fdvoj i ka\u017edodenn\u00ed \u017eivot.<\/p>\n\n\n\n
Zat\u00edmco Nelinka se narodila zdrav\u00e1, Leonka takov\u00e9 \u0161t\u011bst\u00ed nem\u011bla. D\u00edvka trp\u00ed kombinac\u00ed velmi z\u00e1va\u017en\u00fdch zdravotn\u00edch komplikac\u00ed, mezi nimi\u017e jsou t\u011b\u017ek\u00e9 ment\u00e1ln\u00ed posti\u017een\u00ed, poruchy \u0159e\u010di, obt\u00ed\u017ee s ch\u016fz\u00ed, polyk\u00e1n\u00edm i \u010dast\u00e9 infekce. Vy\u017eaduje nep\u0159etr\u017eit\u00fd dohled a celodenn\u00ed p\u00e9\u010di. Ka\u017ed\u00fd den s n\u00ed rodi\u010de absolvuj\u00ed n\u00e1ro\u010dn\u00fd re\u017eim rehabilitac\u00ed, speci\u00e1ln\u00ed stravy, kontrol glyk\u00e9mie i pravideln\u00fdch cest na odborn\u00e1 vy\u0161et\u0159en\u00ed do specializovan\u00fdch center.<\/p>\n\n\n\n
Ka\u017ed\u00fd mal\u00fd pokrok je pro Leonku v\u00edt\u011bzstv\u00edm<\/p>\n\n\n\n
\u201eKa\u017ed\u00fd jej\u00ed mal\u00fd pokrok je pro n\u00e1s obrovsk\u00fdm v\u00edt\u011bzstv\u00edm. Leonka je state\u010dn\u00e1 a ka\u017ed\u00fd den se sna\u017e\u00ed u\u010dit nov\u00e9 dovednosti,\u201c \u0159\u00edk\u00e1 jej\u00ed maminka Eva Mezerov\u00e1. Mal\u00e1 bojovnice se zvl\u00e1dne dorozum\u011bt gesty, obr\u00e1zky, pomoc\u00ed tabletu, u\u010d\u00ed se znakovou \u0159e\u010d. Z\u00e1kladn\u00ed slova zvl\u00e1d\u00e1 Leonka gestikulovat.<\/p>\n\n\n\n
Kv\u016fli oslaben\u00e9 imunit\u011b a zdravotn\u00edm komplikac\u00edm l\u00e9ka\u0159i rodin\u011b nedoporu\u010duj\u00ed cestovat ve\u0159ejnou dopravou. Nezbytn\u00e9 jsou proto ka\u017edodenn\u00ed cesty autem \u2013 do speci\u00e1ln\u00ed \u0161koly, na rehabilitace i na odborn\u00e1 pracovi\u0161t\u011b, nap\u0159\u00edklad do Prahy, Brna \u010di Motola.<\/p>\n\n\n\n
Probl\u00e9m s autem, \u00fa\u0159ad pr\u00e1ce p\u0159\u00edsp\u011bvek zam\u00edtl<\/p>\n\n\n\n
Pr\u00e1v\u011b doprava je te\u010f pro rodinu nejv\u011bt\u0161\u00edm probl\u00e9mem. Jejich sou\u010dasn\u00e9 auto je star\u00e9, poruchov\u00e9 a p\u0159est\u00e1v\u00e1 b\u00fdt bezpe\u010dn\u00e9.<\/p>\n\n\n\n
\u201ePot\u0159ebujeme spolehliv\u00fd v\u016fz, kter\u00fd Leonku bezpe\u010dn\u011b doprav\u00ed tam, kde dost\u00e1v\u00e1 p\u00e9\u010di, kterou nutn\u011b pot\u0159ebuje. Sami u\u017e to finan\u010dn\u011b nezvl\u00e1d\u00e1me,\u201c pros\u00ed rodi\u010de. O p\u0159\u00edsp\u011bvek rodi\u010de \u017e\u00e1dali tak\u00e9 na \u00da\u0159adu pr\u00e1ce, ale ten byl zam\u00edtnut.<\/p>\n\n\n\n
Rodina proto zalo\u017eila s pomoc\u00ed Donia sb\u00edrku na po\u0159\u00edzen\u00ed nov\u00e9ho automobilu. Pokud se nepoda\u0159\u00ed vybrat dostatek pen\u011bz, finance vyu\u017eij\u00ed alespo\u0148 na opravu st\u00e1vaj\u00edc\u00edho vozu.<\/p>\n\n\n\n
Odkaz na sb\u00edrku: https:\/\/donio.cz\/sbirka-pro-leonku<\/a><\/p>\n\n\n\n Jana Kodysov\u00e1<\/p>\n\n\n\n Jihlavsk\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/jihlavsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Od prvn\u00edho n\u00e1dechu bojuje o \u017eivot. \u010ctrn\u00e1ctilet\u00e1 Leonka z Jihlavska se narodila o m\u011bs\u00edc d\u0159\u00edve spolu se svou sest\u0159i\u010dkou Nelinkou a od narozen\u00ed \u010del\u00ed mimo\u0159\u00e1dn\u011b […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":27143,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-63784","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/63784","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=63784"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/63784\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/27143"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=63784"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=63784"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=63784"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}