\u017divot rodiny Petrov\u00fdch z Tatenic u Lan\u0161krouna se b\u011bhem n\u011bkolika m\u011bs\u00edc\u016f obr\u00e1til naruby. Jeden\u00e1ctilet\u00e1 Valerie trp\u00ed od narozen\u00ed vz\u00e1cnou svalovou atrofi\u00ed a pot\u0159ebuje nep\u0159etr\u017eitou p\u00e9\u010di. Vloni nav\u00edc rodinu zas\u00e1hla trag\u00e9die \u2013 tat\u00ednek a opora rodiny n\u00e1hle zem\u0159el. Maminka Martina tak z\u016fstala sama nejen na p\u00e9\u010di o nemocnou dceru na voz\u00edku, ale tak\u00e9 o mlad\u0161\u00edho syna a zaji\u0161t\u011bn\u00ed bezbari\u00e9rov\u00e9ho bydlen\u00ed. P\u0159\u00e1tel\u00e9 proto pro rodinu zalo\u017eili ve\u0159ejnou sb\u00edrku.<\/p>\n\n\n\n
Mal\u00e1 Valerie z Tatenic se narodila jako zdrav\u00e9 miminko, v p\u016fl roce se v\u0161ak v\u0161e zm\u011bnilo. Genetick\u00e9 vy\u0161et\u0159en\u00ed v roce uk\u00e1zalo v\u00e1\u017enou diagn\u00f3zu SMA – spin\u00e1ln\u00ed svalov\u00e1 atrofie, kter\u00e1 se projevuje odum\u00edr\u00e1n\u00edm sval\u016f.<\/p>\n\n\n\n
Ve v\u011bku dva a p\u016fl roku dostala nov\u011b vyvinut\u00fd l\u00e9k, kter\u00fd si tehdy rodi\u010de sami zabezpe\u010dili ve Francii a pot\u00e9 v Belgii. Jeho aplikace m\u011bla pro Valinku obrovsk\u00fd v\u00fdznam, jej\u00ed hybnost i svalov\u00e1 s\u00edla se zv\u011bt\u0161ila, ale i tak pot\u0159ebuje nep\u0159etr\u017eitou asistenci.<\/p>\n\n\n\n
\u201eNejt\u011b\u017e\u0161\u00ed je pro m\u011b celodenn\u00ed p\u00e9\u010de. Jsem na ni sama a ne\u0159\u00edd\u00edm auto, co\u017e je velk\u00e1 komplikace. Nav\u00edc Valinka ani sama v aut\u011b sed\u011bt nem\u016f\u017ee, tak\u017ee mus\u00edm m\u00edt v\u017edy n\u011bkoho s sebou. Jezd\u00edme do nemocnice do Brna na kontroly, na neurologii, ortopedii a jin\u00e9 kontroly. P\u00e9\u010de je opravdu n\u00e1ro\u010dn\u00e1, byla jsem s n\u00ed jako asistentka ve \u0161kole, ale te\u010f u\u017e ne, to bych nestihla v\u016fbec nic,\u201c p\u0159ibli\u017euje p\u00e9\u010di o nemocnou dceru Martina Petrov\u00e1.<\/p>\n\n\n\n
Valinka chod\u00ed do p\u00e1t\u00e9 t\u0159\u00eddy Z\u00e1kladn\u00ed \u0161koly v Tatenic\u00edch. \u201eS inteligenc\u00ed nem\u00e1 probl\u00e9m, hor\u0161\u00ed je ta mobilita,\u201c podot\u00fdk\u00e1 maminka. Starost o dceru mus\u00ed nav\u00edc skloubit i s p\u00e9\u010d\u00ed mlad\u0161\u00edho syna, kter\u00fd je ve t\u0159et\u00ed t\u0159\u00edd\u011b. \u201eJe to t\u011b\u017ek\u00e9, ale nem\u00e1m na vybranou. Kdo to neza\u017eil, neum\u00ed si to ani p\u0159edstavit,\u201c dod\u00e1v\u00e1 Petrov\u00e1.<\/p>\n\n\n\n
Vloni v prosinci jej\u00ed man\u017eel, policista, tragicky zem\u0159el. Ze dne na den tak z\u016fstala na v\u0161echny starosti a probl\u00e9my sama. \u201eMartina si ale nem\u016f\u017ee dovolit zhroutit se, ale mus\u00ed naj\u00edt je\u0161t\u011b mnohem v\u00edce s\u00edly to v\u0161e zvl\u00e1dnout. Jen\u017ee bez p\u0159\u00edjmu man\u017eela a jeho fyzick\u00e9 pomoci p\u0159i zved\u00e1n\u00ed Valinky, nakl\u00e1d\u00e1n\u00ed invalidn\u00edho voz\u00edku do auta a spoustu dal\u0161\u00edch v\u011bc\u00ed je to velice vy\u010derp\u00e1vaj\u00edc\u00ed,\u201c vysv\u011btluje kamar\u00e1dka Petrov\u00fdch Marie Vos\u00e1hlov\u00e1.<\/p>\n\n\n\n
Pr\u00e1v\u011b ona zalo\u017eila finan\u010dn\u00ed sb\u00edrku, aby rodin\u011b pomohla v t\u011b\u017ek\u00e9 \u017eivotn\u00ed situaci. \u201eV\u00fdt\u011b\u017eek sb\u00edrky pom\u016f\u017ee Martin\u011b uhradit n\u00e1klady na nov\u00e9 bezbari\u00e9rov\u00e9 bydlen\u00ed a tak\u00e9 zajistit Valince rehabilitace, nezbytn\u00e9 cvi\u010den\u00ed a po\u0159\u00edzen\u00ed speci\u00e1ln\u00edch pom\u016fcek, kter\u00e9 j\u00ed usnadn\u00ed ka\u017edodenn\u00ed pohyb. I mal\u00fd p\u0159\u00edsp\u011bvek znamen\u00e1 pro tuto state\u010dnou maminku nad\u011bji, \u017ee na ten nejt\u011b\u017e\u0161\u00ed boj nez\u016fstane \u00fapln\u011b sama,\u201c dopl\u0148uje Vos\u00e1hlov\u00e1.<\/p>\n\n\n\n
Sb\u00edrka m\u00e1 mamince pomoci zvl\u00e1dnout nejt\u011b\u017e\u0161\u00ed obdob\u00ed \u017eivota a zajistit Valince pot\u0159ebnou p\u00e9\u010di i d\u016fstojn\u00e9 bezbari\u00e9rov\u00e9 z\u00e1zem\u00ed.<\/p>\n\n\n\n
P\u0159isp\u011bt m\u016f\u017ete na d\u00e1rcovsk\u00e9 platform\u011b Donio ZDE: https:\/\/donio.cz\/podpora-pro-maminku-a-valinku<\/a><\/p>\n\n\n\n Iveta N\u00e1dvorn\u00edkov\u00e1<\/p>\n\n\n\n Orlick\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/orlicky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" \u017divot rodiny Petrov\u00fdch z Tatenic u Lan\u0161krouna se b\u011bhem n\u011bkolika m\u011bs\u00edc\u016f obr\u00e1til naruby. Jeden\u00e1ctilet\u00e1 Valerie trp\u00ed od narozen\u00ed vz\u00e1cnou svalovou atrofi\u00ed a pot\u0159ebuje nep\u0159etr\u017eitou p\u00e9\u010di. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14227,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-63996","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/63996","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=63996"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/63996\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14227"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=63996"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=63996"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=63996"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}