\u0160estilet\u00e1 Nat\u00e1lka z Liberce pot\u0159ebuje nep\u0159etr\u017eitou p\u00e9\u010di. Kv\u016fli infekci v t\u011bhotenstv\u00ed se jej\u00ed mozek p\u0159estal vyv\u00edjet je\u0161t\u011b p\u0159ed narozen\u00edm, k \u010demu\u017e se p\u0159idal t\u011blesn\u00fd hendikep. Matka Dominika P\u00e1nkov\u00e1 tak dnes bojuje nejen s ka\u017edodenn\u00ed p\u00e9\u010d\u00ed o t\u011b\u017ece posti\u017eenou dceru, ale nav\u00edc i s vlastn\u00ed v\u00e1\u017enou nemoc\u00ed.<\/p>\n\n\n\n
Dom\u00e1c\u00ed fyzioterapie a dal\u0161\u00ed druhy rehabilitace, ale i kompenza\u010dn\u00ed pom\u016fcky, jak\u00fdmi jsou vertikaliza\u010dn\u00ed stojan \u010di koupac\u00ed leh\u00e1tko. To v\u0161e pom\u00e1h\u00e1 v usnadn\u011bn\u00ed \u017eivota t\u011b\u017ece hendikepovan\u00e9 Nat\u00e1lce z Liberce. Jej\u00ed rodi\u010de nyn\u00ed sh\u00e1n\u011bj\u00ed pot\u0159ebn\u00e9 prost\u0159edky.<\/p>\n\n\n\n
\u201eNat\u00e1lka je na\u0161e prost\u0159edn\u00ed dcera. V\u0161echno se zm\u011bnilo n\u011bkdy v polovin\u011b t\u011bhotenstv\u00ed, kdy jsem prod\u011blala cytomegalovir\u00f3zu. Je to vlastn\u011b druh mononukle\u00f3zy, kter\u00fd zp\u016fsobuj\u00ed dva viry. Jeden jsem nejsp\u00ed\u0161 prod\u011blala u\u017e v d\u011btstv\u00ed a b\u011bhem t\u011bhotenstv\u00ed se znovu aktivoval. P\u0159ivezli jsme si to tehdy z rodinn\u00e9ho pobytu. N\u011bkter\u00e9 z d\u011bt\u00ed tam pravd\u011bpodobn\u011b doneslo virus ze \u0161kolky a postupn\u011b jsme onemocn\u011bli skoro v\u0161ichni,\u201c vypr\u00e1v\u00ed Dominika P\u00e1nkov\u00e1.<\/p>\n\n\n\n
Bylo to nav\u00edc zrovna v dob\u011b, kdy se za\u010dal objevovat covid. \u201eKv\u016fli tomu infekce nebyla v\u010das diagnostikov\u00e1na. U m\u011b to nakonec uzav\u0159eli jako ang\u00ednu, proto\u017ee jsem na n\u011b trp\u011bla \u010dasto,\u201c pokra\u010duje.<\/p>\n\n\n\n
\u201eV\u011b\u0159ili jsme, \u017ee v\u0161e bude v po\u0159\u00e1dku\u201c<\/p>\n\n\n\n
Ke konci t\u011bhotenstv\u00ed se uk\u00e1zalo, \u017ee m\u00e1 Nat\u00e1lka men\u0161\u00ed hlavi\u010dku. \u201eNejd\u0159\u00edv n\u00e1s uklid\u0148ovali, \u017ee to nemus\u00ed nic znamenat. Pak najednou p\u0159i\u0161li s t\u00edm, \u017ee by cht\u011bli porod vyvolat okam\u017eit\u011b. Jen\u017ee v\u0161echny screeningy do t\u00e9 doby vy\u0161ly dob\u0159e a my po\u0159\u00e1d v\u011b\u0159ili, \u017ee to bude v po\u0159\u00e1dku.\u201c<\/p>\n\n\n\n
Nat\u00e1lka se narodila a na prvn\u00ed pohled vypadala jako \u00fapln\u011b zdrav\u00e9 mimino. Jen stra\u0161n\u011b plakala.<\/p>\n\n\n\n
\u201eNe\u0161la odlo\u017eit ani na chv\u00edli. Musela b\u00fdt neust\u00e1le na mn\u011b, v \u0161\u00e1tku, v n\u00e1ru\u010d\u00ed, ve dne v noci. Prvn\u00ed rok jsem prakticky nespala. Za 24 hodin jsem dohromady naspala t\u0159eba dv\u011b hodiny. Bylo to \u00fapln\u00e9 vy\u010derp\u00e1n\u00ed,\u201c popisuje P\u00e1nkov\u00e1.<\/p>\n\n\n\n
Ve t\u0159ech m\u011bs\u00edc\u00edch u\u017e bylo jasn\u00e9, \u017ee Nat\u00e1lce neroste hlava tak, jak by m\u011bla. \u201eZa\u010dali jsme jezdit po neurologi\u00edch, cvi\u010dili jsme Vojtovu metodu,\u201c vzpom\u00edn\u00e1 \u017eena.<\/p>\n\n\n\n
Mozek je pln\u00fd b\u00edl\u00fdch m\u00edst<\/p>\n\n\n\n
Magnetick\u00e1 rezonance pak uk\u00e1zala n\u011bco, na co nem\u016f\u017ee b\u00fdt \u017e\u00e1dn\u00fd rodi\u010d nikdy p\u0159ipraven: Nat\u00e1l\u010din mozek se p\u0159estal vyv\u00edjet u\u017e v polovin\u011b t\u011bhotenstv\u00ed. \u201eJsou tam rozs\u00e1hl\u00e1 b\u00edl\u00e1 m\u00edsta, minimum z\u00e1krut\u016f,\u201c \u0159ekla matka.<\/p>\n\n\n\n
Rodi\u010de Nat\u00e1lky nechali ud\u011blat testy a potvrdilo se, p\u0159\u00ed\u010dinou byl skute\u010dn\u011b cytomegalovirus. Dobrou zpr\u00e1vou tedy alespo\u0148 bylo to, \u017ee nejde o genetick\u00e9 onemocn\u011bn\u00ed.<\/p>\n\n\n\n
\u201eI proto jsme se nakonec rozhodli m\u00edt je\u0161t\u011b t\u0159et\u00ed d\u00edt\u011b. \u010clov\u011bk si toti\u017e u Nat\u00e1lky nikdy nen\u00ed jist\u00fd, jak dlouho tu s n\u00e1mi bude. A ta p\u0159edstava pr\u00e1zdnoty byla stra\u0161n\u00e1. Nav\u00edc mlad\u0161\u00ed sest\u0159i\u010dka Nat\u00e1lku n\u00e1dhern\u011b rozh\u00fdbala a posunula d\u00e1l,\u201c l\u00ed\u010d\u00ed P\u00e1nkov\u00e1.<\/p>\n\n\n\n
Zjednodu\u0161en\u00e1 Nat\u00e1l\u010dina diagn\u00f3za zn\u00ed d\u011btsk\u00e1 mozkov\u00e1 obrna, ale pot\u00ed\u017e\u00ed je pov\u00edcero. \u201eNat\u00e1lka je \u00fapln\u00fd le\u017e\u00e1\u010dek. Stravu p\u0159ij\u00edm\u00e1 sondou do b\u0159icha. Sna\u017e\u00edme se ji u\u010dit p\u0159ij\u00edmat j\u00eddlo pusou, ale jde to hrozn\u011b pomalu.\u201c<\/p>\n\n\n\n
Dcerka zkr\u00e1tka pot\u0159ebuje pomoc \u00fapln\u011b se v\u0161\u00edm. Neum\u00ed si sama hr\u00e1t, nezabav\u00ed se, je nutn\u00e9 ji polohovat, p\u0159en\u00e1\u0161et, b\u00fdt s n\u00ed prakticky po\u0159\u00e1d. P\u0159esto je sv\u00fdm vlastn\u00edm zp\u016fsobem vn\u00edmav\u00e1.<\/p>\n\n\n\n
\u201e\u00dapln\u011b nejv\u00edc miluje Pras\u00e1tko Peppu. Jakmile j\u00ed ho pust\u00edme, je \u0161\u0165astn\u00e1 a sm\u011bje se tomu p\u0159\u00edb\u011bhu. Ment\u00e1ln\u011b je p\u0159itom v\u00fdvojov\u011b asi na \u00farovni t\u0159\u00edm\u011bs\u00ed\u010dn\u00edho miminka,\u201c dopl\u0148uje Dominika P\u00e1nkov\u00e1.<\/p>\n\n\n\n
Maminku postihl Becht\u011brev<\/p>\n\n\n\n
P\u00e9\u010de je nav\u00edc \u010d\u00edm d\u00e1l n\u00e1ro\u010dn\u011bj\u0161\u00ed i fyzicky. \u201eLoni mi diagnostikovali Becht\u011brevovu nemoc ve druh\u00e9m stupni. Roky jsem m\u011bla v t\u011ble z\u00e1n\u011bt a v\u016fbec jsme netu\u0161ili, pro\u010d m\u011b v\u0161echno bol\u00ed. Bydl\u00edme ve druh\u00e9m pat\u0159e panel\u00e1ku bez v\u00fdtahu a nosit Nat\u00e1lku po schodech u\u017e za\u010d\u00edn\u00e1 b\u00fdt skoro nad moje s\u00edly,\u201c p\u0159ipou\u0161t\u00ed \u017eena.<\/p>\n\n\n\n
Obrovskou pomoc\u00ed jsou dom\u00e1c\u00ed n\u00e1v\u0161t\u011bvy fyzioterapeutky. \u201ePr\u00e1v\u011b na jej\u00ed p\u00e9\u010di te\u010f sh\u00e1n\u00edme pen\u00edze. To je vlastn\u011b hlavn\u00ed c\u00edl cel\u00e9 sb\u00edrky. Jen dom\u00e1c\u00ed fyzioterapie vych\u00e1z\u00ed asi na 350 tis\u00edc korun ro\u010dn\u011b a poji\u0161\u0165ovna ji nehrad\u00ed,\u201c posteskla si P\u00e1nkov\u00e1.<\/p>\n\n\n\n
Kdy\u017e se poda\u0159\u00ed vybrat v\u00edc, cht\u011bli by rodi\u010de znovu zkusit hipoterapii a po\u0159\u00eddit nov\u00e9 pom\u016fcky. \u201eNat\u00e1lka po t\u00e1tovi vyrostla. M\u00e1 kolem 123 centimetr\u016f a v\u011bt\u0161ina vybaven\u00ed je z doby, kdy nem\u011b\u0159ila ani metr, tak\u017ee u\u017e j\u00ed d\u00e1vno nesta\u010d\u00ed,\u201c prozradila matka. \u201eBudeme pot\u0159ebovat novou vertikaliza\u010dn\u00ed \u017eidli, koupac\u00ed leh\u00e1tko a dal\u0161\u00ed speci\u00e1ln\u00ed pom\u016fcky.\u201c<\/p>\n\n\n\n
Pomoc p\u0159i\u0161la ze \u017dib\u0159idic<\/p>\n\n\n\n
Mezi t\u011bmi, kdo Nat\u00e1lku podpo\u0159ili, jsou i obyvatel\u00e9 \u017dib\u0159idic u Jablonn\u00e9ho v Podje\u0161t\u011bd\u00ed. Pomoc t\u011bm, kte\u0159\u00ed to pot\u0159ebuj\u00ed, je v obci ji\u017e tradic\u00ed: v\u017edy na ja\u0159e po\u0159\u00e1daj\u00ed kulturn\u00ed a spole\u010denskou akci \u017dib\u0159idick\u00fd brunch a v\u00fdt\u011b\u017eek putuje tam, kde pot\u011b\u0161\u00ed.<\/p>\n\n\n\n
\u201ePrvn\u00ed rok jsme podpo\u0159ili hendikepovanou Eleanorku z K\u0159i\u017ean, potom m\u00edstn\u00edho Ji\u0159\u00edka. Letos jsme na internetu objevili Nat\u00e1lku. Poda\u0159ilo se n\u00e1m vybrat b\u011bhem brunche 7000 korun. Zd\u00e1nliv\u00e1 mali\u010dkost, ale p\u0159esto pom\u016f\u017ee,\u201c \u0159ekl Jan Smol\u00edk, zastupitel K\u0159i\u017ean, pod n\u011b\u017e \u017dib\u0159idice spadaj\u00ed.<\/p>\n\n\n\n
Nyn\u00ed je Dominika P\u00e1nkov\u00e1 s Nat\u00e1lkou doma jako pe\u010duj\u00edc\u00ed osoba, man\u017eel chod\u00ed do pr\u00e1ce. \u201eSama se v\u0161ak taky sna\u017e\u00edm alespo\u0148 trochu p\u0159ivyd\u011bl\u00e1vat. To je pro m\u011b d\u016fle\u017eit\u00e1 psychick\u00e1 vzpruha. Dlouho jsem m\u011bla pocit, \u017ee u\u017e se nikdy nevr\u00e1t\u00edm do norm\u00e1ln\u00edho \u017eivota a nikdo m\u011b nezam\u011bstn\u00e1.\u201c<\/p>\n\n\n\n
Te\u010f nav\u00edc rodina hled\u00e1 bezbari\u00e9rov\u00e9 bydlen\u00ed. \u201eTe\u010f jsme zrovna byli na prohl\u00eddce jednoho bytu a stra\u0161n\u011b douf\u00e1me, \u017ee to vyjde. Proto\u017ee moje z\u00e1da u\u017e opravdu za\u010d\u00ednaj\u00ed \u0159\u00edkat dost,\u201c uzav\u0159ela Dominika P\u00e1nkov\u00e1.<\/p>\n\n\n\n
P\u0159isp\u011bt Nat\u00e1lce je mo\u017en\u00e9 prost\u0159ednictv\u00edm port\u00e1lu Donio. Vyu\u017e\u00edt lze tak\u00e9 \u00fa\u010det pod Asociac\u00ed pro d\u011bti s DMO a p\u0159idru\u017een\u00fdmi neurologick\u00fdmi onemocn\u011bn\u00edmi. Jeho \u010d\u00edslo je 8810726037\/5500<\/p>\n\n\n\n
Jan Mikuli\u010dka<\/p>\n\n\n\n
Libereck\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/liberecky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" \u0160estilet\u00e1 Nat\u00e1lka z Liberce pot\u0159ebuje nep\u0159etr\u017eitou p\u00e9\u010di. Kv\u016fli infekci v t\u011bhotenstv\u00ed se jej\u00ed mozek p\u0159estal vyv\u00edjet je\u0161t\u011b p\u0159ed narozen\u00edm, k \u010demu\u017e se p\u0159idal t\u011blesn\u00fd hendikep. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":24138,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-64003","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64003","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=64003"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64003\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/24138"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=64003"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=64003"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=64003"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}