Makul\u00e1rn\u00ed degenerace j\u00ed od d\u011btstv\u00ed bere zrak, humor ale ne. Ivana Valeck\u00e1 z Vratislavic pracuje v TyfloCentru Liberec, pom\u00e1h\u00e1 lidem se zrakov\u00fdm posti\u017een\u00edm a ve voln\u00e9m \u010dase maluje obrazy nebo vyr\u00e1b\u00ed \u0161perky. Jak se \u017eije \u010dlov\u011bku, kter\u00fd vid\u00ed sv\u011bt \u201ejako p\u0159es igelitov\u00fd pytl\u00edk\u201c?<\/p>\n\n\n\n
V\u0161e za\u010dalo nevinn\u011b. V jeden\u00e1cti letech ji t\u00e1ta vyfotil, jak kouk\u00e1 na televizi. \u201eAsi cht\u011bl zachytit rodinn\u00fd moment. A na t\u00e9 fotce bylo vid\u011bt, \u017ee na televizi divn\u011b m\u017eour\u00e1m,\u201c vzpom\u00edn\u00e1. To odstartovalo s\u00e9rii vy\u0161et\u0159en\u00ed, na jej\u00edm\u017e konci byla nemilosrdn\u00e1 diagn\u00f3za \u2013 makul\u00e1rn\u00ed degenerace, such\u00e1 forma. Nemoc zraku, kter\u00e1 se postupn\u011b zhor\u0161uje a ned\u00e1 se l\u00e9\u010dit.<\/p>\n\n\n\n
\u201eMamce tenkr\u00e1t \u0159ekli, \u017ee \u00fapln\u011b oslepnu,\u201c vzpom\u00edn\u00e1 dnes Ivana Valeck\u00e1 (36), kter\u00e1 je sama maminkou t\u0159\u00ed d\u011bt\u00ed. To se na\u0161t\u011bst\u00ed nestalo, p\u0159esto se j\u00ed zrak rok od roku zhor\u0161uje.<\/p>\n\n\n\n
\u201eJe to, jako kdy\u017e si zdrav\u00fd \u010dlov\u011bk navl\u00e9kne p\u0159es hlavu igelitov\u00fd pytl\u00edk. Vid\u00edm v\u0161echno, ale rozmazan\u011b,\u201c popisuje.<\/p>\n\n\n\n
Trable s barvami i bloud\u011bn\u00ed v lese<\/p>\n\n\n\n
K tomu se p\u0159id\u00e1v\u00e1 porucha barvocitu. N\u011bkter\u00e9 kombinace barev spl\u00fdvaj\u00ed natolik, \u017ee je nedok\u00e1\u017ee rozli\u0161it.<\/p>\n\n\n\n
\u201eNejhor\u0161\u00ed jsou obecn\u011b vedle sebe dv\u011b sv\u011btl\u00e9 nebo dv\u011b tmav\u00e9 barvy. T\u0159eba ty modrob\u00edl\u00e9 cedule na n\u00e1dra\u017e\u00ed. V\u016fbec nech\u00e1pu, pro\u010d to d\u011blaj\u00ed,\u201c sm\u011bje se. S podobn\u00fdmi situacemi bojuje od d\u011btstv\u00ed. \u201eKdy\u017e jsem byla jako n\u00e1ctilet\u00e1 na brann\u00e9m b\u011bhu, kde byly \u010derven\u00e9 f\u00e1borky v zelen\u00e9m lese, tak jsem se prost\u011b ztratila. V\u016fbec jsem je nevid\u011bla.\u201c<\/p>\n\n\n\n
\u0158\u00edzen\u00ed auta pro ni logicky nikdy nep\u0159ich\u00e1zelo v \u00favahu, dnes si netroufne ani na j\u00edzdu na kole. \u201eKdy\u017e vid\u00edm tmav\u0161\u00ed flek na cest\u011b, nepozn\u00e1m, jestli je to k\u00e1men, pa\u0159ez nebo jen st\u00edn. Nav\u00edc v lese je hlavn\u011b zelen\u00e1 a hn\u011bd\u00e1, co\u017e je dost probl\u00e9m.\u201c<\/p>\n\n\n\n
P\u0159esto p\u016fsob\u00ed neust\u00e1le usm\u011bvav\u011b a optimisticky. Sm\u00edch prov\u00e1z\u00ed cel\u00fd rozhovor, i kdy\u017e j\u00ed l\u00e9ka\u0159i ka\u017edoro\u010dn\u011b potvrzuj\u00ed dal\u0161\u00ed zhor\u0161en\u00ed zraku.<\/p>\n\n\n\n
\u201ePro n\u00e1s, kte\u0159\u00ed s t\u00edm \u017eijeme od mali\u010dka, to nen\u00ed tak t\u011b\u017ek\u00e9. Hor\u0161\u00ed je, kdy\u017e n\u011bkdo o zrak p\u0159ijde v pr\u016fb\u011bhu \u017eivota,\u201c mysl\u00ed si.<\/p>\n\n\n\n
Handicap m\u016f\u017ee b\u00fdt i v\u00fdhodou<\/p>\n\n\n\n
Pracuje v libereck\u00e9m TyfloCentru, kter\u00e9 pom\u00e1h\u00e1 lidem se zrakov\u00fdm posti\u017een\u00edm b\u00fdt samostatn\u011bj\u0161\u00edmi v ka\u017edodenn\u00edm \u017eivot\u011b. \u201eJak se \u0159\u00edk\u00e1, mezi slep\u00fdmi je jednook\u00fd kr\u00e1lem,\u201c sm\u011bje se. \u201eAle s t\u011bmi vt\u00edpky jsem opatrn\u00e1. Pro lidi, kte\u0159\u00ed o zrak p\u0159i\u0161li ned\u00e1vno, je to po\u0159\u00e1d hodn\u011b bolav\u00e9.\u201c<\/p>\n\n\n\n
Moment\u00e1ln\u011b p\u016fsob\u00ed jako lektorka kompenza\u010dn\u00edch pom\u016fcek a asistivn\u00edch technologi\u00ed.<\/p>\n\n\n\n
\u201eU\u010d\u00edm lidi pou\u017e\u00edvat technologie tak, aby nebyli tolik z\u00e1visl\u00ed na pomoci druh\u00fdch. Aby si mohli zavolat, napsat zpr\u00e1vu, p\u0159e\u010d\u00edst e-mail nebo si naj\u00edt dopravn\u00ed spojen\u00ed.\u201c<\/p>\n\n\n\n
Pr\u00e1v\u011b vlastn\u00ed zku\u0161enost j\u00ed podle v\u0161eho pom\u00e1h\u00e1 nejv\u00edc. \u201eMysl\u00edm, \u017ee je to velk\u00e1 v\u00fdhoda.\u201c<\/p>\n\n\n\n
D\u011bti v reflexn\u00edm oble\u010den\u00ed a neviditeln\u00e1 dcera<\/p>\n\n\n\n
A\u010dkoli sama pom\u00e1h\u00e1 druh\u00fdm, s handicapem se pot\u00fdk\u00e1 i v roli matky. I o tom v\u0161ak dok\u00e1\u017ee mluvit s humorem.<\/p>\n\n\n\n
\u201eKdy\u017e byly d\u011bti men\u0161\u00ed, nutila jsem je nosit reflexn\u00ed oble\u010den\u00ed, hlavn\u011b \u017elut\u00e1 nebo oran\u017eov\u00e1 tri\u010dka, abych je venku vid\u011bla. Tak\u017ee jsem jim dost zasahovala do m\u00f3dy,\u201c sm\u011bje se.<\/p>\n\n\n\n
Dnes u\u017e je to slo\u017eit\u011bj\u0161\u00ed. Nejstar\u0161\u00ed dce\u0159i je deset let a chce nosit hlavn\u011b \u010dernou.<\/p>\n\n\n\n
\u201eTak\u017ee mi trochu zmizela ze \u017eivota, ale na\u0161t\u011bst\u00ed na m\u011b ob\u010das promluv\u00ed,\u201c dod\u00e1v\u00e1 se sm\u00edchem.<\/p>\n\n\n\n
Ivana pat\u0159\u00ed k lidem, na kter\u00fdch nen\u00ed zrakov\u00fd handicap na prvn\u00ed pohled zn\u00e1t. Pr\u00e1v\u011b to ale n\u011bkdy p\u0159in\u00e1\u0161\u00ed ne\u010dekan\u00e9 situace. \u201eLidi si ob\u010das mysl\u00ed, \u017ee jsem namy\u0161len\u00e1, proto\u017ee je nepozdrav\u00edm nebo se neusm\u011bju. Jen\u017ee j\u00e1 je kolikr\u00e1t prost\u011b nevid\u00edm.\u201c M\u00edv\u00e1m p\u0159i sob\u011b b\u00edlou signaliza\u010dn\u00ed h\u016fl, kterou sv\u011btu \u0159\u00edk\u00e1m, \u017ee m\u016fj zrak nen\u00ed \u00fapln\u011b OK.<\/p>\n\n\n\n
\u0160patn\u00fd zrak j\u00ed paradoxn\u011b p\u0159inesl i n\u011bkolik v\u00fdhod. \u201eT\u0159eba ve \u0161kole p\u0159i refer\u00e1tech nebo pozd\u011bji na vysok\u00e9. Spolu\u017e\u00e1ci se b\u00e1li, \u017ee se jim n\u011bkdo bude sm\u00e1t. J\u00e1 v\u016fbec nev\u011bd\u011bla, co se v publiku d\u011bje. Tak jsem to od\u0159\u00edkala, dostala jedni\u010dku a \u0161la si sednout.\u201c<\/p>\n\n\n\n
Obrazy a um\u011bn\u00ed pro nevidom\u00e9<\/p>\n\n\n\n
Mo\u017en\u00e1 nejv\u00edc p\u0159ekvap\u00ed, \u017ee se v\u011bnuje v\u00fdtvarn\u00e9 tvorb\u011b. Maluje obrazy, vyr\u00e1b\u00ed \u0161perky, dr\u00e1tkuje i kor\u00e1lkuje.<\/p>\n\n\n\n
\u201eMohla bych si nechat p\u0159e\u010d\u00edst n\u00e1zvy barev nebo pou\u017e\u00edt aplikaci, ale ne v\u017edy se mi chce, nebo to prost\u011b risknu. N\u011bkdy je v\u00fdtvor dost punkov\u00fd,\u201c sm\u011bje se.<\/p>\n\n\n\n
N\u011bkter\u00e9 obrazy nav\u00edc upravuje tak, aby si je mohli prohl\u00e9dnout i nevidom\u00ed. \u201eP\u0159id\u00e1v\u00e1m kor\u00e1lky, v\u011btvi\u010dky nebo jin\u00e9 prvky, kter\u00e9 se daj\u00ed osahat. Kdy\u017e u\u017e \u010dlov\u011bk nevid\u00ed obraz o\u010dima, m\u016f\u017ee ho vn\u00edmat rukama.\u201c<\/p>\n\n\n\n
Sv\u00e9 v\u00fdrobky p\u0159edstav\u00ed spole\u010dn\u011b s kolegy z TyfloCentra na \u0159\u00edjnov\u00e9 akci OpenMarket \u2013 Spojme sv\u011bty: Design bez bari\u00e9r v Liberci<\/p>\n\n\n\n
\u201eBudeme tam m\u00edt tyflocent\u0159\u00ed st\u00e1nek. Lid\u00e9 si budou moci prohl\u00e9dnout v\u00fdrobky z keramick\u00e9 d\u00edlny i v\u011bci, kter\u00e9 tvo\u0159\u00edme doma sami,\u201c zve.<\/p>\n\n\n\n
A mo\u017en\u00e1 zjist\u00ed i to, co Ivana pochopila u\u017e d\u00e1vno: \u017ee i kdy\u017e \u010dlov\u011bk nevid\u00ed sv\u011bt \u00fapln\u011b ost\u0159e, m\u016f\u017ee se mu na n\u011bm po\u0159\u00e1d l\u00edbit.<\/p>\n\n\n\n
Zuzana Vykoukalov\u00e1<\/p>\n\n\n\n
Jabloneck\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/jablonecky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Makul\u00e1rn\u00ed degenerace j\u00ed od d\u011btstv\u00ed bere zrak, humor ale ne. Ivana Valeck\u00e1 z Vratislavic pracuje v TyfloCentru Liberec, pom\u00e1h\u00e1 lidem se zrakov\u00fdm posti\u017een\u00edm a ve […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":11802,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-64139","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64139","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=64139"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64139\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/11802"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=64139"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=64139"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=64139"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}