\u010cT<\/p>\n\n\n\n
Rehabilitace a dal\u0161\u00ed slu\u017eby dok\u00e1\u017eou zkvalitnit a prodlou\u017eit \u017eivot lidem s nemoc\u00ed ALS. Dne\u0161n\u00ed den je v\u011bnovan\u00fd pr\u00e1v\u011b pacient\u016fm s touto neurologickou a nevyl\u00e9\u010ditelnou chorobou. Ro\u010dn\u011b si diagn\u00f3zu v \u010cesku vyslechne a\u017e 250 lid\u00ed. Sl\u00e1bnou jim svaly, ztr\u00e1c\u00ed pohyb i dech.<\/p>\n\n\n\n
R\u00e1no za\u010d\u00edn\u00e1 na pra\u017esk\u00e9m Vy\u0161ehrad\u011b cvi\u010den\u00edm. S heslem Dokud je dech, je \u017eivot. Sportovci podporuj\u00ed Mezin\u00e1rodn\u00ed den j\u00f3gy i pacienty s ALS.<\/p>\n\n\n\n
lektor j\u00f3gy<\/p>\n\n\n\n
Aktivujte, zpevn\u011bte.<\/p>\n\n\n\n
Lea Surovcov\u00e1,redaktorka \u010cT<\/p>\n\n\n\n
Akci v\u011bnovali b\u00fdval\u00e9mu lektorovi j\u00f3gy Vladim\u00edru Mikul\u00e1\u0161ovi, kter\u00fd v dubnu zem\u0159el. S diagn\u00f3zou ALS, se pot\u00fdkal dev\u011bt let.<\/p>\n\n\n\n
V\u00e1clav Krej\u010d\u00edk,lektor j\u00f3gy<\/p>\n\n\n\n
Dech je blahod\u00e1rn\u00fd v tom, \u017ee vlastn\u011b st\u00e1le jakoby pracuje s t\u011bmi svaly uvnit\u0159 toho t\u011bla, to znamen\u00e1, \u017ee i kdy\u017e vlastn\u011b postupn\u011b ochabuj\u00ed, a samoz\u0159ejm\u011b dech je cesta do na\u0161\u00ed hlavy, do na\u0161\u00ed mysli.<\/p>\n\n\n\n
Lea Surovcov\u00e1,redaktorka \u010cT<\/p>\n\n\n\n
Z\u00e1rove\u0148 se spojili s organizac\u00ed ALSA, kter\u00e1 funguje u\u017e deset let. Za tu dobu roz\u0161\u00ed\u0159ili t\u00fdm fyzioterapeut\u016f, koordin\u00e1tor\u016f i psychiatr\u016f a v\u00edce spolupracuj\u00ed s l\u00e9ka\u0159i. V tuhle chv\u00edli pe\u010duj\u00ed zhruba o 240 pacient\u016f s ALS. Jedn\u00edm z nich je \u010dty\u0159iapades\u00e1tilet\u00fd Lubo\u0161 Proch\u00e1zka.<\/p>\n\n\n\n
Lubo\u0161 Proch\u00e1zka,pacient s ALS<\/p>\n\n\n\n
J\u00e1 m\u00e1m probl\u00e9my si navl\u00edct pono\u017eky nebo obl\u00e9ci se, umejt se, naj\u00edst se.<\/p>\n\n\n\n
Lea Surovcov\u00e1,redaktorka \u010cT<\/p>\n\n\n\n
Diagn\u00f3zu amyotrofickou later\u00e1ln\u00ed skler\u00f3zu si vyslechl p\u0159ed 2,5 lety. St\u00e1le se sna\u017e\u00ed b\u00fdt aktivn\u00ed a podporovat osv\u011btu.<\/p>\n\n\n\n
Lubo\u0161 Proch\u00e1zka,pacient s ALS<\/p>\n\n\n\n
Lidi potom v\u011bd\u00ed, o co jde. Mn\u011b se st\u00e1v\u00e1 t\u0159eba, \u017ee si n\u011bkdo mysl\u00ed, \u017ee jsem opil\u00fd, proto\u017ee \u0161patn\u011b mluv\u00edm, \u0161patn\u011b se pohybuju.<\/p>\n\n\n\n
Lea Surovcov\u00e1,redaktorka \u010cT<\/p>\n\n\n\n
V\u00fdvoj je u ka\u017ed\u00e9ho r\u016fzn\u00fd. V z\u00e1v\u011bru \u017eivota ale pacienti v\u011bt\u0161inou komunikuj\u00ed jen o\u010dima. N\u011bkte\u0159\u00ed napojen\u00ed na plicn\u00ed ventilaci i um\u011blou v\u00fd\u017eivu. Mozek ale st\u00e1le funguje.<\/p>\n\n\n\n
Eva Bezuchov\u00e1,klinick\u00e1 logopedka a \u0159editelka organizace ALSA<\/p>\n\n\n\n
Tam velmi z\u00e1le\u017e\u00ed na tom, kam ta nemoc bude postupovat d\u00e1l a jak\u00fd je ten pacient m\u00e1 pom\u016fcky, jakou m\u00e1 p\u00e9\u010di? Kdy\u017e ten pacient nem\u00e1 informace, tak se velmi \u010dasto st\u00e1v\u00e1, \u017ee se k n\u00e1m dostane prost\u011b ve stavu, ve kter\u00fdm by nemusel b\u00fdt.<\/p>\n\n\n\n
redaktorka \u010cT<\/p>\n\n\n\n
Dne\u0161n\u00ed j\u00f3ga je z\u00e1rove\u0148 benefi\u010dn\u00ed. V\u00fdt\u011b\u017eek p\u016fjde na sb\u00edrku, kter\u00e1 zaplat\u00ed pacient\u016fm fyzioterapie, nov\u011b ALSA buduje zdravotnickou ambulanci. Z\u00e1rove\u0148 t\u00fdm jezd\u00ed za pacienty dom\u016f, rad\u00ed jim s pom\u016fckami nebo organizuj\u00ed rekondi\u010dn\u00ed pobyty. <\/p>\n\n\n\n
\u010cesk\u00e1 televize<\/p>\n\n\n\n
<\/p>\n","protected":false},"excerpt":{"rendered":"
\u010cT Rehabilitace a dal\u0161\u00ed slu\u017eby dok\u00e1\u017eou zkvalitnit a prodlou\u017eit \u017eivot lidem s nemoc\u00ed ALS. Dne\u0161n\u00ed den je v\u011bnovan\u00fd pr\u00e1v\u011b pacient\u016fm s touto neurologickou a nevyl\u00e9\u010ditelnou […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":11993,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-64166","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64166","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=64166"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64166\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/11993"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=64166"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=64166"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=64166"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}