V\u00edce ne\u017e 140 \u00fa\u010dastn\u00edk\u016f se zapojilo do charitativn\u00ed sportovn\u00ed akce Everesting na podporu pacient\u016f s Duchennovou svalovou dystrofi\u00ed. U T\u0159eb\u00ed\u010de se sna\u017eili od soboty do ned\u011ble vystoupat kumulativn\u011b nadmo\u0159skou v\u00fd\u0161ku Mount Everestu, co\u017e je 8 848 metr\u016f.<\/p>\n\n\n\n
V sou\u010dtu se \u00fa\u010dastn\u00edk\u016fm poda\u0159ilo zdolat jeden\u00e1ctkr\u00e1t hranici v\u00fd\u0161ky Mount Everstu. \u010cTK to \u0159ekl za po\u0159\u00e1daj\u00edc\u00ed Parent Project Ren\u00e9 B\u0159e\u010d\u0165an. Akci prov\u00e1zely vysok\u00e9 teploty.<\/p>\n\n\n\n
Horko r\u00e1no i v noci<\/p>\n\n\n\n
\u201eVzhledem k po\u010das\u00ed to bylo letos extr\u00e9mn\u011b n\u00e1ro\u010dn\u00e9. Horko bylo prakticky po celou dobu,a\u0165 u\u017e to bylo r\u00e1no nebo v noci,\u201c uvedl Jakub Benda, jeho\u017e t\u0159in\u00e1ctilet\u00fd syn trp\u00ed nevyl\u00e9\u010ditelnou Duchennovou svalovou dystrofi\u00ed. Benda se \u00fa\u010dastni i t\u0159\u00ed p\u0159edchoz\u00edch ro\u010dn\u00edk\u016f. Ale leto\u0161n\u00ed v\u00fdstupy byly podle n\u011bj nejt\u011b\u017e\u0161\u00ed. \u201eO to v\u00edc n\u00e1s t\u011b\u0161\u00ed, kolik lid\u00ed se \u00fa\u010dastnilo a podpo\u0159ilo charitativn\u00ed akci i v takov\u00e9m po\u010das\u00ed,\u201c \u0159ekl.<\/p>\n\n\n\n
V \u010cesku \u017eije asi 500 lid\u00ed s r\u016fzn\u00fdmi typy svalov\u00fdch dystrofi\u00ed. Nejz\u00e1va\u017en\u011bj\u0161\u00ed a nej\u010dast\u011bj\u0161\u00ed je pr\u00e1v\u011b typ Duchenne. P\u0159\u00ed\u010dinou tohoto onemocn\u011bn\u00ed je mutace genu, d\u00edky kter\u00e9mu vznik\u00e1 dystrofin, co\u017e je b\u00edlkovina nezbytn\u00e1 pro spr\u00e1vnou funkci svalov\u00fdch bun\u011bk. V p\u0159\u00edpad\u011b dystrofie typu Duchenne v\u0161ak dystrofin chyb\u00ed. Nemoc postihuje chlapce, kte\u0159\u00ed mezi dev\u00e1t\u00fdm a\u017e dvan\u00e1ct\u00fdm rokem \u017eivota usedaj\u00ed na invalidn\u00ed voz\u00edk a pozd\u011bji se neobejdou bez nep\u0159etr\u017eit\u00e9 p\u00e9\u010de.<\/p>\n\n\n\n
\u201ePoda\u0159ilo se n\u00e1m z Everestingu z\u00edskat v\u00fdt\u011b\u017eek 70 000 korun, kter\u00fd poputuje na asisten\u010dn\u00ed slu\u017eby p\u0159i pobytech d\u011bt\u00ed s touto nemoc\u00ed,\u201c \u0159ekl B\u0159e\u010d\u0165an.<\/p>\n\n\n\n
A\u010dkoliv se kvalita \u017eivota pacient\u016f zlep\u0161uje, nemoc dosud nelze zcela vyl\u00e9\u010dit. Nemocn\u00ed u\u017e\u00edvaj\u00ed takzvan\u00e9 kortikosteroidy m\u00edrn\u00edc\u00ed p\u0159\u00edznaky, s sebou ale nesou negativn\u00ed vedlej\u0161\u00ed dopady. Sv\u011btov\u00fd den pov\u011bdom\u00ed o Duchennov\u011b svalov\u00e9 dystrofii p\u0159ipad\u00e1 na 7. z\u00e1\u0159\u00ed.<\/p>\n\n\n\n
\u010cTK<\/p>\n\n\n\n
T\u0159eb\u00ed\u010dsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/trebicsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" V\u00edce ne\u017e 140 \u00fa\u010dastn\u00edk\u016f se zapojilo do charitativn\u00ed sportovn\u00ed akce Everesting na podporu pacient\u016f s Duchennovou svalovou dystrofi\u00ed. U T\u0159eb\u00ed\u010de se sna\u017eili od soboty do […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":22707,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-64314","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64314","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=64314"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64314\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/22707"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=64314"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=64314"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=64314"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}