Prvn\u00ed sign\u00e1l juveniln\u00ed idiopatick\u00e9 artritidy zaznamenali rodi\u010de mal\u00e9 Klement\u00fdny z Brna p\u0159ibli\u017en\u011b v jej\u00edch dvou letech. V t\u00e9 dob\u011b se u hol\u010di\u010dky objevovaly \u010dasto hore\u010dky, p\u0159i kter\u00fdch l\u00e9ka\u0159i nam\u011b\u0159ili vysok\u00e9 hodnoty CRP. Za p\u0159\u00ed\u010dinu t\u011bchto obt\u00ed\u017e\u00ed tehdy myln\u011b pova\u017eovali rychl\u00fd r\u016fst. V\u00fdrazn\u011bji se pak nemoc ohl\u00e1sila, kdy\u017e byla Klement\u00fdna ve druh\u00e9 t\u0159\u00edd\u011b. Ztuhly j\u00ed prsty na ruce a nemohla je ohnout. D\u011btsk\u00e1 l\u00e9ka\u0159ka proto doporu\u010dila vy\u0161et\u0159en\u00ed na revmatologii, kde ale dostali term\u00edn n\u00e1v\u0161t\u011bvy a\u017e za 9 m\u011bs\u00edc\u016f.
\u201eKdy\u017e nemohla dcera h\u00fdbat prsty, mysleli jsme, \u017ee m\u00e1 t\u0159eba jen p\u0159ele\u017eelou ru\u010di\u010dku. Ale ani \u010dasem se j\u00ed prsty neuvolnily. \u010cekac\u00ed lh\u016fta u revmatologa n\u00e1s \u0161okovala. Nakonec jsme m\u011bli obrovsk\u00e9 \u0161t\u011bst\u00ed, proto\u017ee se n\u00e1m poda\u0159ilo d\u00edky zn\u00e1m\u00fdm zajistit vy\u0161et\u0159en\u00ed u\u017e za 3 t\u00fddny,\u201c popisuje maminka Krist\u00fdna Dr\u00e1\u0161ilov\u00e1. \u201eRevma jsem si v\u017edy spojovala s nemoc\u00ed star\u0161\u00edch lid\u00ed. Diagn\u00f3za juveniln\u00ed idiopatick\u00e9 artritidy m\u011b proto dost p\u0159ekvapila. Zasko\u010dil m\u011b i zp\u016fsob l\u00e9\u010dby, kdy se n\u011bkolik m\u011bs\u00edc\u016f \u010dek\u00e1, ne\u017e konkr\u00e9tn\u00ed l\u00e9k zabere, aby se pak mohlo za\u010d\u00edt s rehabilitac\u00ed,\u201c vysv\u011btluje Krist\u00fdna. Teprve zp\u011btn\u011b si uv\u011bdomila, \u017ee n\u011bkter\u00e9 pohyby dcerky, jako byla ch\u016fze po schodech bokem, splachov\u00e1n\u00ed pomoc\u00ed lokte a \u010dast\u00e9 st\u00ed\u017enosti na bolav\u00e9 no\u017ei\u010dky na proch\u00e1zk\u00e1ch, mohly souviset s nemoc\u00ed.
Pravideln\u00e9 cvi\u010den\u00ed spojen\u00e9 s rozh\u00fdb\u00e1v\u00e1n\u00edm ztuhl\u00fdch kloub\u016f se \u010dasto neobe\u0161lo bez pl\u00e1\u010de. Na revmatologii zjistili, \u017ee krom\u011b prst\u016f a z\u00e1p\u011bst\u00ed m\u00e1 dcera posti\u017een\u00e9 tak\u00e9 kotn\u00edky. Prvn\u00ed l\u00e9\u010dba na\u0161t\u011bst\u00ed zabrala pom\u011brn\u011b rychle. Postupn\u011b se j\u00ed v\u0161ak zhor\u0161ily jatern\u00ed testy, a tak bylo nutn\u00e9 l\u00e9ky zm\u011bnit. \u201eDruh\u00e1 l\u00e9\u010dba, kterou n\u00e1m l\u00e9ka\u0159i nasadili, nezafungovala v\u016fbec. T\u00fdna r\u00e1no nemohla vst\u00e1t z postele, ve\u010der byla hrozn\u011b unaven\u00e1. Nebyla v dobr\u00e9m psychick\u00e9m stavu. Sama vn\u00edmala, \u017ee sv\u00e9 vrstevn\u00edky \u010dasto nedob\u011bhne a ve fyzick\u00fdch aktivit\u00e1ch jim nesta\u010d\u00ed, nec\u00edtila se mezi d\u011btmi dob\u0159e,\u201c vzpom\u00edn\u00e1 Krist\u00fdna. Za\u010dali proto nav\u0161t\u011bvovat tak\u00e9 psychologa. Ani u n\u011bj v\u0161ak jej\u00ed dcera nena\u0161la pot\u0159ebnou oporu, terapie j\u00ed nevyhovovala. S nemoc\u00ed se nakonec vyrovnala po sv\u00e9m. \u201e\u0158ekla si, \u017ee kdy\u017e j\u00ed nejdou fyzick\u00e9 aktivity, najde si jinou oblast, kde m\u016f\u017ee b\u00fdt \u00fasp\u011b\u0161n\u00e1. Sport proto vym\u011bnila za \u010dten\u00ed a matematiku, te\u010f je v matematicko-logick\u00e9 t\u0159\u00edd\u011b. To jsou v\u011bci, kter\u00e9 ji napl\u0148uj\u00ed. Proto\u017ee m\u00e1m bl\u00edzko k hudb\u011b, vedla jsem ji i ke h\u0159e na hudebn\u00ed n\u00e1stroj. Dcera ale nem\u00e1 p\u0159\u00edli\u0161 hudebn\u00ed sluch, tak\u017ee hra na zobcovou fl\u00e9tnu pro ni byla sp\u00ed\u0161 fyzick\u00fdm cvi\u010den\u00edm,\u201c dopl\u0148uje Krist\u00fdna.<\/p>\n\n\n\n
Dnes je Klement\u00fdn\u011b 12 let a sou\u010dasn\u00e1, v po\u0159ad\u00ed u\u017e t\u0159et\u00ed terapie j\u00ed umo\u017e\u0148uje norm\u00e1ln\u011b \u017e\u00edt. Rodi\u010de j\u00ed asistuj\u00ed pouze p\u0159i aplikaci l\u00e9ku, kter\u00fd je t\u0159eba podat injek\u010dn\u011b. \u201eJsou chv\u00edle, kdy se c\u00edt\u00ed l\u00e9pe, a chv\u00edle, kdy naopak h\u016f\u0159. Je ale fajn, \u017ee si sama dok\u00e1\u017ee \u0159\u00edct, co zvl\u00e1dne a co u\u017e ne. Loni se dokonce rozhodla absolvovat t\u0159\u00edt\u00fddenn\u00ed skautsk\u00fd t\u00e1bor. Z toho jsem m\u011bla obavy, proto\u017ee v\u00edm, jak d\u016fle\u017eit\u00fd je pro ni kv\u016fli artritid\u011b kvalitn\u00ed sp\u00e1nek. Nakonec jsme za n\u00ed museli jet jen kv\u016fli aplikaci l\u00e9ku, jinak si se v\u0161\u00edm poradila sama,\u201c \u0159\u00edk\u00e1 Krist\u00fdna.
Praktick\u00e9 rady, jak zvl\u00e1dat nemoc, kter\u00e1 je pom\u011brn\u011b nevyzpytateln\u00e1, z\u00edskala Krist\u00fdna ve skupince Kloub\u00edci, kter\u00e1 funguje v r\u00e1mci pacientsk\u00e9 organizace Revma Liga \u010cR. Postupn\u011b se stala jej\u00ed koordin\u00e1torkou. Sv\u00e9 zku\u0161enosti s vytv\u00e1\u0159en\u00edm hudebn\u00edch her, spole\u010dn\u00e9ho rytmu a d\u011btsk\u00e9ho muzic\u00edrov\u00e1n\u00ed zu\u017eitkovala p\u0159i p\u0159\u00edprav\u011b programu akce \u00dasm\u011bvy navzdory bolesti, kter\u00e1
bude 11. \u010dervence v Divadle na Orl\u00ed v Brn\u011b. Je ur\u010den\u00fd d\u011btem s revmatoidn\u00ed artritidou a umo\u017en\u00ed jim pro\u017e\u00edt den pln\u00fd tvo\u0159ivosti. Krom\u011b hudebn\u00edch workshop\u016f a d\u00edlen, kter\u00e9 povede Krist\u00fdna Dr\u00e1\u0161ilov\u00e1, se mohou \u00fa\u010dastn\u00edci zapojit do v\u00fdtvarn\u00fdch \u010dinnost\u00ed, spole\u010dn\u00e9ho hrav\u00e9ho cvi\u010den\u00ed nebo podp\u016frn\u00fdch skupin s revmatologem \u010di psychologem.<\/p>\n\n\n\n
\u010cesk\u00e1 republika se dlouhodob\u011b pot\u00fdk\u00e1 s nedostatkem revmatolog\u016f. P\u0159ibli\u017en\u011b o 160 000 dosp\u011bl\u00fdch a 4 000 d\u011btsk\u00fdch pacient\u016f s artritidou pe\u010duje pouze 280 specialist\u016f.
<\/p>\n","protected":false},"excerpt":{"rendered":"
Prvn\u00ed sign\u00e1l juveniln\u00ed idiopatick\u00e9 artritidy zaznamenali rodi\u010de mal\u00e9 Klement\u00fdny z Brna p\u0159ibli\u017en\u011b v jej\u00edch dvou letech. V t\u00e9 dob\u011b se u hol\u010di\u010dky objevovaly \u010dasto hore\u010dky, […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":64318,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-64320","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64320","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=64320"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64320\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/64318"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=64320"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=64320"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=64320"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}