Ani\u010dka (4) z Hustope\u010d\u00ed se narodila p\u0159ed\u010dasn\u011b. I p\u0159esto se vyv\u00edjela standardn\u011b, jako jin\u00e9 dono\u0161en\u00e9 d\u011bti a nic nenasv\u011bd\u010dovalo tomu, \u017ee by m\u011bla m\u00edt n\u011bjak\u00e9 zdravotn\u00ed probl\u00e9my. Zlom v\u0161ak nastal p\u0159ed dv\u011bma lety, kdy spadla ze stromu a poranila si \u017eebra a koleno.
\u201e\u017debra se Ani\u010dce zahojila, ale koleno z\u016fst\u00e1valo i p\u0159es l\u00e9\u010dbu je\u0161t\u011b m\u011bs\u00edce od \u00farazu otekl\u00e9. L\u00e9ka\u0159ka n\u00e1s proto odeslala na revmatologii,\u201c vzpom\u00edn\u00e1 Ani\u010d\u010dina maminka Miroslava. Na revmatologii jej\u00ed dcera absolvovala n\u011bkolik vy\u0161et\u0159en\u00ed a nakonec j\u00ed l\u00e9ka\u0159i diagnostikovali juveniln\u00ed idiopatickou artritidu (JIA) \u2013 autoimunitn\u00ed chronick\u00e9 onemocn\u011bn\u00ed kloub\u016f, \u010dasto doprov\u00e1zen\u00e9 chronick\u00fdm z\u00e1n\u011btem o\u010d\u00ed (uveitidou). Tou m\u011bla Ani\u010dka zasa\u017een\u00e9 ob\u011b o\u010di.<\/p>\n\n\n\n
\u201eM\u011bli jsme \u0161t\u011bst\u00ed, \u017ee se nemoc poda\u0159ilo diagnostikovat takto \u010dasn\u011b, hned p\u0159i prvn\u00edch p\u0159\u00edznac\u00edch, a \u017ee Ani\u010dka mohla okam\u017eit\u011b za\u010d\u00edt u\u017e\u00edvat l\u00e9ky,\u201c vysv\u011btluje Miroslava a pokra\u010duje: \u201eBohu\u017eel to s sebou p\u0159ineslo i komplikace. Kv\u016fli nemoci a psychick\u00e9 z\u00e1t\u011b\u017ei souvisej\u00edc\u00ed s hospitalizac\u00ed a l\u00e9\u010dbou se Ani\u010dka vr\u00e1tila v\u00fdvojov\u011b o p\u016fl roku zp\u011bt, co\u017e byl v jej\u00edch dvou a p\u016fl letech velk\u00fd se\u0161up.\u201c Pro Ani\u010d\u010diny rodi\u010de byla nemoc jejich dcery velk\u00fdm \u0161okem. Zejm\u00e9na proto, \u017ee je nevyl\u00e9\u010diteln\u00e1 a bude ji omezovat cel\u00fd \u017eivot.
\u201eJ\u00e1 jsem byla na sesyp\u00e1n\u00ed a st\u00e1le nejsem s diagn\u00f3zou sm\u00ed\u0159en\u00e1, ale nau\u010dili jsme se fungovat. Uv\u011bdomuji si, \u017ee oproti spoust\u011b jin\u00fdch rodin jsme na tom dob\u0159e, nav\u00edc m\u00e1 Ani\u010dka \u0161t\u011bst\u00ed, \u017ee na prvn\u00ed pohled nen\u00ed jej\u00ed nemoc vid\u011bt, ale nen\u00ed to jednoduch\u00e9,\u201c popisuje Miroslava. Co ji tr\u00e1p\u00ed do budoucna, je nap\u0159\u00edklad volba vhodn\u00e9ho dce\u0159ina povol\u00e1n\u00ed. \u201eArtritida Ani\u010dku akutn\u011b neohro\u017euje na \u017eivot\u011b, nicm\u00e9n\u011b to, \u017ee takhle vit\u00e1ln\u00ed hol\u010di\u010dka m\u00edv\u00e1 dny, kdy nedok\u00e1\u017ee vyj\u00edt schody do druh\u00e9ho patra, je siln\u011b deprimuj\u00edc\u00ed,\u201c dopl\u0148uje Ani\u010d\u010din tat\u00ednek Martin. Ani\u010dka toti\u017e b\u00fdv\u00e1 kv\u016fli nemoci n\u00e1razov\u011b velmi unaven\u00e1, co\u017e j\u00ed \u010dasto znemo\u017e\u0148uje pohyb, a vy\u017eaduje proto zv\u00fd\u0161enou p\u00e9\u010di, jako je no\u0161en\u00ed v n\u00e1ru\u010d\u00ed. P\u0159i ch\u016fzi na del\u0161\u00ed trasy se rodi\u010de tak\u00e9 ob\u010das vrac\u00ed k d\u011btsk\u00e9mu ko\u010d\u00e1rku, co\u017e v dob\u011b p\u0159ed z\u00e1chytem nemoci nebylo pot\u0159eba. <\/p>\n\n\n\n
\u201eKdy\u017e m\u00e1 Ani\u010dka bolesti, tak j\u00ed nefunguje jemn\u00e1 motorika. P\u0159estala proto pou\u017e\u00edvat p\u0159\u00edbor, jeliko\u017e neudr\u017e\u00ed v ruce n\u016f\u017e, vidli\u010dku, ob\u010das ani l\u017ei\u010dku. Probl\u00e9m jsou i dal\u0161\u00ed b\u011b\u017en\u00e9 \u010dinnosti, jako nap\u0159\u00edklad \u010di\u0161t\u011bn\u00ed zub\u016f, proto\u017ee mimo jin\u00e9 m\u00edv\u00e1 ztuhly\u0301 i \u010delistn\u00ed kloub,\u201c vysv\u011btluje komplikace spojen\u00e9 s nemoc\u00ed Ani\u010d\u010dina maminka. Jednoduch\u00e1 nen\u00ed ani l\u00e9\u010dba, proto\u017ee rodi\u010de mus\u00ed Ani\u010dce l\u00e9ky aplikovat injek\u010dn\u011b. \u201eInjekce nese dcera velmi t\u011b\u017ece a je to pro ni stresov\u00e1 z\u00e1le\u017eitost. Ob\u010das p\u0159ed aplikac\u00ed i zvrac\u00ed,\u201c popisuje Miroslava.
Ani\u010dka od dvou let nav\u0161t\u011bvuje jednou t\u00fddn\u011b lesn\u00ed \u0161kolku. Person\u00e1l zn\u00e1 jej\u00ed diagn\u00f3zu i postupy, jak \u0159e\u0161it nenad\u00e1l\u00e9 situace. \u201eAni\u010dka p\u0159i zv\u00fd\u0161en\u00e9 \u00fanav\u011b v\u00edce zakop\u00e1v\u00e1, pad\u00e1, neudr\u017e\u00ed se na prol\u00e9za\u010dk\u00e1ch jako zdrav\u00e9 d\u011bti, a hroz\u00ed j\u00ed tak \u00faraz. By\u0165 je to chytr\u00e1 hol\u010di\u010dka, kter\u00e1 m\u00e1 na sv\u016fj v\u011bk neobvykl\u00fd p\u0159ehled, t\u011blo kv\u016fli nemoci na v\u0161echny aktivity, kter\u00fdch by se cht\u011bla \u00fa\u010dastnit, nesta\u010d\u00ed. Stejn\u00e9 je to i s krou\u017eky, kter\u00e9 nav\u0161t\u011bvuje. Chod\u00ed tam r\u00e1da, aktivity si u\u017e\u00edv\u00e1, ale po hodin\u011b na krou\u017eku je natolik unaven\u00e1, \u017ee nezvl\u00e1d\u00e1 samostatn\u00fd p\u0159esun dom\u016f a mus\u00edme ji v n\u00e1ru\u010d\u00ed odn\u00e9st do auta. Z\u00e1rove\u0148 pot\u0159ebuje doprovod, aby nespadla ze schod\u016f a podobn\u011b,\u201c vysv\u011btluje Miroslava. <\/p>\n\n\n\n
\u201eP\u0159esto\u017ee je ka\u017ed\u00e1 chv\u00edle, kdy se Ani\u010dka chov\u00e1 jako d\u011bti v jej\u00edm v\u011bku, u n\u00e1s vykoupena v\u011bt\u0161\u00ed pot\u0159ebou odpo\u010dinku, mas\u00e1\u017e\u00ed, p\u0159\u00edpadn\u011b sirupem ulevuj\u00edc\u00edm od bolesti, sna\u017e\u00edme se j\u00ed pohybov\u00e9 aktivity neodp\u00edrat. Jen to mus\u00ed b\u00fdt po krat\u0161\u00ed dobu, ne\u017e bychom si v\u0161ichni p\u0159\u00e1li,\u201c dopl\u0148uje Ani\u010d\u010din tat\u00ednek. Podle Miroslavy je v lesn\u00ed \u0161kolce \u00fa\u017easn\u00fd kolektiv dosp\u011bl\u00fdch i d\u011bt\u00ed. \u201eByla jsem dojat\u00e1, jak onemocn\u011bn\u00ed na\u0161\u00ed Ani\u010dky v\u0161ichni p\u0159ijali, a i d\u011bti ji \u00fapln\u011b automaticky hl\u00eddaj\u00ed nebo j\u00ed pom\u00e1haj\u00ed, p\u0159\u00edpadn\u011b samy upozorn\u00ed, \u017ee je n\u011bco \u0161patn\u011b, a oslov\u00ed n\u011bkterou z n\u00e1s,\u201c popisuje Miroslava. <\/p>\n\n\n\n
Sou\u010d\u00e1st\u00ed Ani\u010d\u010diny l\u00e9\u010dby jsou i pobyty v l\u00e1zn\u00edch, kde absolvuje r\u016fzn\u00e9 procedury, kter\u00e9 j\u00ed pom\u00e1haj\u00ed zpevnit svalstvo. S maminkou se zde u\u010d\u00ed tak\u00e9 r\u016fzn\u00e9 \u00falevov\u00e9 techniky p\u0159i bolestech nebo ztuhlosti kloub\u016f.<\/p>\n\n\n\n
Rodi\u010de oce\u0148uj\u00ed i aktivity pacientsk\u00e9 organizace Revma Liga \u010cR, pod kterou spad\u00e1 skupina Kloub\u00edci. Pom\u00e1h\u00e1 pacient\u016fm a jejich rodin\u00e1m, po\u0159\u00e1d\u00e1 pro n\u011b r\u016fzn\u00e9 akce a z\u00e1rove\u0148 \u0161\u00ed\u0159\u00ed pov\u011bdom\u00ed o nemoci mezi \u0161irokou ve\u0159ejnost\u00ed. Vydala i poh\u00e1dkovou knihu \u017dirafa Am\u00e1lka, kter\u00e1 hravou a z\u00e1bavnou formou vysv\u011btluje \u017eivot s JIA. \u201e\u010cetli jsme ji jak s Ani\u010dkou, tak d\u011btem ve \u0161kolce. Poh\u00e1dka toti\u017e velmi jednodu\u0161e a hezky popisuje \u00faskal\u00ed spojen\u00e1 se zdravotn\u00edm omezen\u00edm i l\u00e9\u010dbou artritidy u d\u011bt\u00ed a je n\u00e1pomocn\u00e1 mal\u00fdm pacient\u016fm i jejich vrstevn\u00edk\u016fm k pochopen\u00ed problematiky t\u00e9to nemoci,\u201c uzav\u00edr\u00e1 Miroslava, kter\u00e1 se, stejn\u011b jako loni, z\u00fa\u010dastn\u00ed s rodinou d\u011btsk\u00e9ho dne s n\u00e1zvem \u00dasm\u011bvy navzdory bolesti . Ten Revma Liga \u010cR po\u0159\u00e1d\u00e1 v sobotu 11. \u010dervence 2026 v Brn\u011b.<\/p>\n","protected":false},"excerpt":{"rendered":"
Ani\u010dka (4) z Hustope\u010d\u00ed se narodila p\u0159ed\u010dasn\u011b. I p\u0159esto se vyv\u00edjela standardn\u011b, jako jin\u00e9 dono\u0161en\u00e9 d\u011bti a nic nenasv\u011bd\u010dovalo tomu, \u017ee by m\u011bla m\u00edt n\u011bjak\u00e9 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":64319,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-64322","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64322","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=64322"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64322\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/64319"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=64322"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=64322"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=64322"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}