Akce v Brn\u011b podpo\u0159\u00ed d\u011bti s chronick\u00fdm onemocn\u011bn\u00edm kloub\u016f
P\u0159ibli\u017en\u011b 4 000 d\u011bt\u00ed a dosp\u00edvaj\u00edc\u00edch v \u010cesk\u00e9 republice \u017eije s juveniln\u00ed idiopatickou artritidou (JIA), tedy chronick\u00fdm z\u00e1n\u011btliv\u00fdm onemocn\u011bn\u00edm kloub\u016f. Nemoc se nej\u010dast\u011bji objevuje v ran\u00e9m d\u011btstv\u00ed nebo na za\u010d\u00e1tku puberty a krom\u011b fyzick\u00fdch obt\u00ed\u017e\u00ed zasahuje tak\u00e9 do psychiky d\u00edt\u011bte i cel\u00e9 rodiny. Pr\u00e1v\u011b na tuto problematiku upozorn\u00ed akce \u00dasm\u011bvy navzdory bolesti, kterou 11. \u010dervence po\u0159\u00e1d\u00e1 Revma Liga \u010cR v Divadle na Orl\u00ed v Brn\u011b.<\/p>\n\n\n\n
\u201eAkce je ur\u010dena p\u0159edev\u0161\u00edm d\u011btem s juveniln\u00ed idiopatickou artritidou a jejich rodi\u010d\u016fm. Ale ur\u010dit\u011b budeme r\u00e1di, kdy\u017e na d\u011btsk\u00fd den p\u0159ijdou i jejich kamar\u00e1di a dal\u0161\u00ed d\u011bti. C\u00edlem je pro\u017e\u00edt spole\u010dn\u011b odpoledne pln\u00e9 radosti a sm\u00edchu,\u201c \u0159\u00edk\u00e1 Krist\u00fdna Dr\u00e1\u0161ilov\u00e1, vedouc\u00ed pacientsk\u00e9 skupiny Kloub\u00edci a koordin\u00e1torka akce.
Juveniln\u00ed idiopatick\u00e1 artritida je nej\u010dast\u011bj\u0161\u00edm chronick\u00fdch revmatick\u00fdm onemocn\u011bn\u00edm d\u011btsk\u00e9ho v\u011bku. Mezi prvn\u00ed p\u0159\u00edznaky pat\u0159\u00ed otoky kloub\u016f, rann\u00ed ztuhlost, omezen\u00ed pohybu nebo kulh\u00e1n\u00ed. V\u010dasn\u00e9 rozpozn\u00e1n\u00ed nemoci p\u0159itom hraje v \u017eivot\u011b pacient\u016f z\u00e1sadn\u00ed roli. \u201eRevmatick\u00e9 onemocn\u011bn\u00ed nen\u00ed pouze nemoc\u00ed star\u0161\u00edch lid\u00ed. Setk\u00e1v\u00e1me se s n\u00edm i u mal\u00fdch d\u011bt\u00ed. Pokud se poda\u0159\u00ed nemoc v\u010das diagnostikovat a zah\u00e1jit l\u00e9\u010dbu, m\u016f\u017ee v\u011bt\u0161ina pacient\u016f v\u00e9st plnohodnotn\u00fd a aktivn\u00ed \u017eivot bez z\u00e1sadn\u00edch omezen\u00ed,\u201c vysv\u011btluje prof. MUDr. Kate\u0159ina Bouchalov\u00e1, revmatolo\u017eka z D\u011btsk\u00e9 kliniky Fakultn\u00ed nemocnice Olomouc.
Modern\u00ed l\u00e9\u010dba dnes u \u0159ady pacient\u016f nemoc dlouhodob\u011b zklidn\u00ed a d\u011bti mohou sportovat, chodit do \u0161koly a v\u011bnovat se b\u011b\u017en\u00fdm volno\u010dasov\u00fdm aktivit\u00e1m. L\u00e9ka\u0159i upozor\u0148uj\u00ed, \u017ee d\u016fle\u017eit\u00e1 je nejen l\u00e9\u010dba, ale tak\u00e9 pravideln\u00e9 kontroly a dlouhodob\u00e9 sledov\u00e1n\u00ed zdravotn\u00edho stavu nemocn\u00fdch. \u201eC\u00edlem l\u00e9\u010dby je dosa\u017een\u00ed remise, tedy stavu, kdy je nemoc pod kontrolou a jej\u00ed aktivita je minim\u00e1ln\u00ed nebo \u017e\u00e1dn\u00e1. D\u00edky sou\u010dasn\u00fdm terapeutick\u00fdm mo\u017enostem mohou d\u011bti s revmatick\u00fdm onemocn\u011bn\u00edm sportovat, v\u011bnovat se sv\u00fdm z\u00e1jm\u016fm a vyr\u016fstat stejn\u011b aktivn\u011b jako jejich vrstevn\u00edci,\u201c dopl\u0148uje MUDr. David Gronych, pediatr z D\u011btsk\u00e9 kliniky Fakultn\u00ed nemocnice Olomouc.
\u017divot s chronickou bolest\u00ed v\u0161ak nep\u0159edstavuje z\u00e1t\u011b\u017e pouze pro t\u011blo. D\u011bti se \u010dasto vyrovn\u00e1vaj\u00ed s pocity odli\u0161nosti, omezen\u00edmi v pohybu nebo nejistotou, jak je vn\u00edm\u00e1 jejich okol\u00ed. Nemoc z\u00e1rove\u0148 v\u00fdrazn\u011b ovliv\u0148uje fungov\u00e1n\u00ed cel\u00e9 rodiny. \u201eVelmi \u010dasto se u t\u011bchto d\u011bt\u00ed setk\u00e1v\u00e1me s pocity m\u00e9n\u011bcennosti a n\u00edzk\u00fdm sebev\u011bdom\u00edm. Srovn\u00e1vaj\u00ed se se zdrav\u00fdmi vrstevn\u00edky a mohou m\u00edt pocit, \u017ee jsou kv\u016fli sv\u00e9 nemoci m\u00e9n\u011b schopn\u00e9 nebo m\u00e9n\u011b hodnotn\u00e9. Proto je d\u016fle\u017eit\u00e9 pracovat nejen s fyzick\u00fdmi projevy onemocn\u011bn\u00ed, ale tak\u00e9 s psychikou d\u00edt\u011bte,\u201c upozor\u0148uje psycholo\u017eka Mgr. Erika Vlas\u00e1kov\u00e1.
Podpora a sd\u00edlen\u00ed zku\u0161enost\u00ed budou jedn\u00edm z hlavn\u00edch t\u00e9mat akce \u00dasm\u011bvy navzdory bolesti. Sou\u010d\u00e1st\u00ed programu budou podp\u016frn\u00e9 skupiny veden\u00e9 psychologem a revmatologem, individu\u00e1ln\u00ed konzultace s odborn\u00edky, hudebn\u00ed workshop, v\u00fdtvarn\u00e9 aktivity i spole\u010dn\u00e9 cvi\u010den\u00ed rodi\u010d\u016f a d\u011bt\u00ed zam\u011b\u0159en\u00e9 na ka\u017edodenn\u00ed p\u00e9\u010di o pohybov\u00fd apar\u00e1t. \u201eV\u011b\u0159\u00edme, \u017ee sd\u00edlen\u00e1 bolest je polovi\u010dn\u00ed bolest. D\u011btem velmi prosp\u00edv\u00e1 mo\u017enost setkat se s n\u011bk\u00fdm, kdo pro\u017e\u00edv\u00e1 podobn\u00e9 situace, a zjistit, \u017ee na sv\u00e9 probl\u00e9my nejsou samy. Tot\u00e9\u017e plat\u00ed i pro rodi\u010de,\u201c uzav\u00edr\u00e1 Krist\u00fdna Dr\u00e1\u0161ilov\u00e1.
Akce \u00dasm\u011bvy navzdory bolesti se uskute\u010dn\u00ed 11. \u010dervence 2026 od 10.30 do 15.30 hodin v Divadle na Orl\u00ed v Brn\u011b. Vstup i cel\u00fd program jsou zdarma a pro prvn\u00edch 35 d\u011bt\u00ed m\u00e1me p\u0159ipraven\u00fd d\u00e1rek. Sou\u010d\u00e1st\u00ed programu budou tak\u00e9 individu\u00e1ln\u00ed konzultace s d\u011btsk\u00fdm revmatologem a psychologem, kter\u00e9 si mohou z\u00e1jemci p\u0159edem rezervovat prost\u0159ednictv\u00edm odkazu uveden\u00e9ho na str\u00e1nce akce. Akce je realizov\u00e1na za finan\u010dn\u00ed podpory \u00da\u0159adu vl\u00e1dy \u010cesk\u00e9 republiky v r\u00e1mci projektu Revma si nevyb\u00edr\u00e1, ale spolu to zvl\u00e1dneme, a tak\u00e9 za p\u0159isp\u011bn\u00ed d\u00e1rc\u016f v r\u00e1mci sb\u00edrky Tam, kde za\u010d\u00edn\u00e1 nemoc, mus\u00ed za\u010d\u00edt pomoc. A z\u00edskala z\u00e1\u0161titu od prim\u00e1torky m\u011bsta Brna JUDr. Mark\u00e9ty Va\u0148kov\u00e9.
<\/p>\n\n\n\n
O Revma Lize \u010cR
Revma Liga \u010cesk\u00e1 republika, z.s., sdru\u017euje pacienty s revmatick\u00fdmi onemocn\u011bn\u00edmi, jejich rodiny a p\u0159\u00e1tele. Dlouhodob\u011b zvy\u0161uje pov\u011bdom\u00ed o revmatick\u00fdch chorob\u00e1ch a podporuje pacienty v\u0161ech v\u011bkov\u00fdch kategori\u00ed. Sou\u010d\u00e1st\u00ed organizace je tak\u00e9 pacientsk\u00e1 skupina Kloub\u00edci, kter\u00e1 propojuje d\u011bti s revmatick\u00fdm onemocn\u011bn\u00edm a jejich rodiny. V\u00edce informac\u00ed na www.revmaliga.cz.<\/p>\n","protected":false},"excerpt":{"rendered":"
Akce v Brn\u011b podpo\u0159\u00ed d\u011bti s chronick\u00fdm onemocn\u011bn\u00edm kloub\u016f P\u0159ibli\u017en\u011b 4 000 d\u011bt\u00ed a dosp\u00edvaj\u00edc\u00edch v \u010cesk\u00e9 republice \u017eije s juveniln\u00ed idiopatickou artritidou (JIA), tedy […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14944,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-64324","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64324","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=64324"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/64324\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14944"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=64324"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=64324"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=64324"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}