Cestovatelka Lucie Szako\u0161ov\u00e1 m\u00e1 za sebou tis\u00edce kilometr\u016f p\u011b\u0161\u00ed ch\u016fze Evropou. P\u0159i n\u00ed u\u017e potkala nespo\u010det lid\u00ed, jim\u017e vypr\u00e1v\u011bla o \u010dty\u0159let\u00e9m Patrikovi, kter\u00fd trp\u00ed vz\u00e1cnou nemoc\u00ed. Spole\u010dn\u011b s jeho maminkou \u017easne, kolika lidem z druh\u00e9ho konce Evropy nen\u00ed lhostejn\u00fd \u017eivot nemocn\u00e9ho \u010desk\u00e9ho chlape\u010dka.<\/p>\n\n\n\n
Kdy\u017e se cestovatelka Lucie Szako\u0161ov\u00e1, kter\u00e1 na Instagramu vystupuje jako @L\u016fca na cest\u00e1ch, vydala na p\u011b\u0161\u00ed pou\u0165 z britsk\u00e9ho Canterbury do italsk\u00e9ho Santa Maria di Leuca, m\u011bla p\u0159ed sebou p\u0159ibli\u017en\u011b 3500 kilometr\u016f. Jej\u00edm c\u00edlem ale nebyla jen cesta. Rozhodla se, \u017ee sv\u00fdmi kroky podpo\u0159\u00ed \u010dty\u0159let\u00e9ho Patrika, kter\u00fd trp\u00ed vz\u00e1cn\u00fdm ATR-X syndromem (viz d\u00e1le).<\/p>\n\n\n\n
Spolu se svou \u010divavou B\u00e1rou tak s sebou celou dobu nese i p\u0159\u00edb\u011bh jednoho nemocn\u00e9ho \u010desk\u00e9ho chlapce. Jej\u00edm c\u00edlem je \u0161\u00ed\u0159it o n\u011bm pov\u011bdom\u00ed a z\u00edskat pro rodinu prost\u0159edky na \u00fahradu terapi\u00ed a speci\u00e1ln\u00edch pom\u016fcek.<\/p>\n\n\n\n
\u201eJej\u00ed cesta je obdivuhodn\u00e1 nejen svou d\u00e9lkou, n\u00e1ro\u010dnost\u00ed a spoustou p\u0159ek\u00e1\u017eek, ale p\u0159edev\u0161\u00edm t\u00edm, s jak\u00fdm srdcem ji absolvuje,\u201c \u0159ekla Den\u00edku Patrikova maminka Adriana Jel\u00ednkov\u00e1, kter\u00e1 hendikepovan\u00e9ho chlapce vychov\u00e1v\u00e1 sama.<\/p>\n\n\n\n
ATR-X syndrom byl dnes \u010dty\u0159let\u00e9mu Patrikovi diagnostikov\u00e1n v roce 2025. Kv\u016fli vz\u00e1cn\u00e9mu genetick\u00e9mu onemocn\u011bn\u00ed, kter\u00e9 m\u00e1 dle dostupn\u00fdch \u00fadaj\u016f pouze 250 lid\u00ed na sv\u011bt\u011b, chlapec nemluv\u00ed, trp\u00ed autismem a t\u011b\u017ek\u00fdm ment\u00e1ln\u00edm posti\u017een\u00edm.<\/p>\n\n\n\n
Patrik\u016fv p\u0159\u00edb\u011bh znaj\u00ed lid\u00e9 nap\u0159\u00ed\u010d Evropou<\/p>\n\n\n\n
Lucie se rozhodla pom\u00e1hat p\u0159edev\u0161\u00edm t\u00edm, \u017ee o Patrikovi mluv\u00ed v\u0161ude, kam na sv\u00e9 pouti p\u0159ijde. P\u0159ipravila si informa\u010dn\u00ed materi\u00e1ly v angli\u010dtin\u011b a francouz\u0161tin\u011b, d\u00edky nim\u017e m\u016f\u017ee chlapc\u016fv p\u0159\u00edb\u011bh p\u0159ibl\u00ed\u017eit lidem z r\u016fzn\u00fdch zem\u00ed.<\/p>\n\n\n\n
\u201eLucka se sna\u017e\u00ed o Patrikovi mluvit s ka\u017ed\u00fdm, s k\u00fdm nav\u00e1\u017ee rozhovor. Ukazuje tak, \u017ee i na druh\u00e9m konci Evropy m\u016f\u017ee n\u011bkomu z\u00e1le\u017eet na osudu mal\u00e9ho chlapce z \u010ceska,\u201c p\u0159ibl\u00ed\u017eila Patrikova maminka.<\/p>\n\n\n\n
Podle n\u00ed i samotn\u00e9 Lucie je pr\u00e1v\u011b solidarita lid\u00ed, kte\u0159\u00ed rodinu osobn\u011b neznaj\u00ed, d\u016fle\u017eitou sou\u010d\u00e1st\u00ed pomoci. Svou cestu proto pojala cestovatelka jako zp\u016fsob, jak upozornit na pot\u0159eby nejen Patrika, ale i dal\u0161\u00edch rodin, kter\u00e9 pe\u010duj\u00ed o d\u011bti se z\u00e1va\u017en\u00fdm zdravotn\u00edm posti\u017een\u00edm.<\/p>\n\n\n\n
\u201eLucka pom\u00e1h\u00e1 dostat Patrik\u016fv p\u0159\u00edb\u011bh mezi dal\u0161\u00ed lidi, ke kter\u00fdm bychom se jinak v\u016fbec nedostali. Ka\u017ed\u00e9 sd\u00edlen\u00ed, ka\u017ed\u00e9 vypr\u00e1v\u011bn\u00ed a ka\u017ed\u00fd \u010dlov\u011bk, kter\u00fd se o P\u00e1\u0165ovi dozv\u00ed, m\u016f\u017ee b\u00fdt d\u016fle\u017eit\u00fd,\u201c vysv\u011btlila Adriana Jel\u00ednkov\u00e1.<\/p>\n\n\n\n
V terapi\u00edch nem\u016f\u017ee p\u0159estat ani polevit<\/p>\n\n\n\n
V d\u016fsledku ATR-X syndromu pot\u0159ebuje Patrik speci\u00e1ln\u00ed terapie a pom\u016fcky, na kter\u00e9 jeho maminka jako samo\u017eivitelka nem\u00e1 dostatek pen\u011bz. Pov\u011bdom\u00ed ve\u0159ejnosti tak m\u00e1 pro hendikepovan\u00e9ho chlapce a jeho maminku obrovsk\u00fd v\u00fdznam. \u010c\u00ed v\u00edce lid\u00ed Lucie oslov\u00ed, t\u00edm v\u00edce z nich m\u016f\u017ee rodin\u011b pomoci prost\u0159ednictv\u00edm sb\u00edrky na platform\u011b Donio (https:\/\/donio.cz\/tezky-start-do-zivota-pomozme-patrikovi-s-atr-x-syndromem<\/a>).<\/p>\n\n\n\n \u201eVzhledem k rozsahu Patrikova posti\u017een\u00ed jsou pro n\u011bj terapie opravdu velmi d\u016fle\u017eit\u00e9. U\u017e tak se vyv\u00edj\u00ed mnohem pomaleji ne\u017e ostatn\u00ed d\u011bti. Bez pravideln\u00e9 p\u00e9\u010de a stimulace bychom m\u011bli daleko m\u00e9n\u011b mo\u017enost\u00ed podporovat jeho v\u00fdvoj a rozv\u00edjet jeho schopnosti,\u201c \u0159ekla k d\u016fle\u017eitosti terapi\u00ed chlapcova maminka.<\/p>\n\n\n\n Patrik nav\u0161t\u011bvuje p\u0159edev\u0161\u00edm fyzioterapii, ergoterapii, canisterapii a hipoterapii. Do budoucna by jeho maminka cht\u011bla za\u010d\u00edt vyu\u017e\u00edvat tak\u00e9 dal\u0161\u00ed metody, nap\u0159\u00edklad neurofeedback a biofeedback, kter\u00e9 pracuj\u00ed mimo jin\u00e9 s mozkovou aktivitou.<\/p>\n\n\n\n Ka\u017ed\u00fd mal\u00fd kr\u016f\u010dek je d\u016fle\u017eit\u00fd<\/p>\n\n\n\n Je velmi obt\u00ed\u017en\u00e9 hodnotit, jak jednotliv\u00e9 terapie Patrik pro\u017e\u00edv\u00e1. Podle Adriany Jel\u00ednkov\u00e9 nedok\u00e1\u017ee kv\u016fli sv\u00e9mu posti\u017een\u00ed slovn\u011b popsat, co c\u00edt\u00ed, ani zhodnotit, jak jeho t\u011blo reaguje. Jeho maminka proto sleduje p\u0159edev\u0161\u00edm projevy chov\u00e1n\u00ed, schopnosti a drobn\u00e9 zm\u011bny ve v\u00fdvoji. \u201eU n\u011bj m\u016f\u017ee b\u00fdt i mal\u00fd posun obrovsk\u00fdm v\u00edt\u011bzstv\u00edm,\u201c zd\u016fraznila.<\/p>\n\n\n\n Pr\u00e1v\u011b drobn\u00e9 pokroky, kter\u00fdch je Adriana Jel\u00ednkov\u00e1 u Patrika d\u00edky terapi\u00edm sv\u011bdkem, jsou d\u016fvodem, pro\u010d chce pokra\u010dovat a hledat dal\u0161\u00ed mo\u017enosti, kter\u00e9 by mohly jej\u00edmu synovi pomoci.<\/p>\n\n\n\n Proto je tak r\u00e1da, \u017ee se j\u00ed ozvala cestovatelka Lucie. D\u00edky n\u00ed se p\u0159\u00edb\u011bh nejen\u017ee dostal za hranice st\u00e1tu, ale tak\u00e9 se od t\u00e9 doby do sb\u00edrky zapojilo mnoho dal\u0161\u00edch d\u00e1rc\u016f.<\/p>\n\n\n\n \u201eJako maminka bych si moc p\u0159\u00e1la, aby jednou P\u00e1\u0165a dok\u00e1zal b\u00fdt co nejv\u00edce samostatn\u00fd, l\u00e9pe komunikovat sv\u00e9 pot\u0159eby a zvl\u00e1dat b\u011b\u017en\u00e9 ka\u017edodenn\u00ed situace. Nikdo n\u00e1m nem\u016f\u017ee sl\u00edbit, kam a\u017e se posune, ale v\u011b\u0159\u00edm, \u017ee m\u00e1 smysl se o to neust\u00e1le sna\u017eit,\u201c sd\u00edlela sv\u00e9 p\u0159\u00e1n\u00ed a vizi do nadch\u00e1zej\u00edc\u00edch let.<\/p>\n\n\n\n V z\u00e1v\u011bru pod\u011bkovala cestovatelce Lucii Szako\u0161ov\u00e9 za \u010das, s\u00edlu, odhodl\u00e1n\u00ed a p\u0159edev\u0161\u00edm jej\u00ed obrovsk\u00e9 srdce. Ta j\u00ed odpov\u011bd\u011bla, \u017ee to pro ni byla samoz\u0159ejmost.<\/p>\n\n\n\n \u201eAni na okam\u017eik jsem nev\u00e1hala a nev\u00e1h\u00e1m ani te\u010f na cest\u011b. Chci uk\u00e1zat, \u017ee lidsk\u00e1 soun\u00e1le\u017eitost nezn\u00e1 hranice a \u017ee na osudu nemocn\u00fdch d\u011bt\u00ed z\u00e1le\u017e\u00ed. To, \u017ee m\u016f\u017eu j\u00edt pr\u00e1v\u011b pro P\u00e1\u0165u, m\u011b neuv\u011b\u0159iteln\u011b \u017eene kup\u0159edu,\u201c odpov\u011bd\u011bla Lucie Szako\u0161ov\u00e1 na dotaz Den\u00edku, pro\u010d cestu podnikla.<\/p>\n\n\n\n Kate\u0159ina Kofro\u0148ov\u00e1<\/p>\n\n\n\n Den\u00edk.cz<\/p>\n\n\n\n https:\/\/www.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Cestovatelka Lucie Szako\u0161ov\u00e1 m\u00e1 za sebou tis\u00edce kilometr\u016f p\u011b\u0161\u00ed ch\u016fze Evropou. P\u0159i n\u00ed u\u017e potkala nespo\u010det lid\u00ed, jim\u017e vypr\u00e1v\u011bla o \u010dty\u0159let\u00e9m Patrikovi, kter\u00fd trp\u00ed vz\u00e1cnou […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":60676,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-65492","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/65492","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=65492"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/65492\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/60676"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=65492"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=65492"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=65492"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}