Vz\u00e1cn\u00e1 nemoc mu bere svaly, ale neodradila ho od velk\u00e9ho \u017eivotn\u00edho kroku. Patn\u00e1ctilet\u00fd Tom\u00e1\u0161 Ln\u011bni\u010dka z Mora\u0161ic nastoupil na st\u0159edn\u00ed \u0161kolu, \u017eije p\u0159es t\u00fdden na intern\u00e1tu a u\u010d\u00ed se v\u011bt\u0161\u00ed samostatnosti. \u201eZlod\u011bj sval\u016f postupuje,\u201c \u0159\u00edk\u00e1 jeho maminka o z\u00e1va\u017en\u00e9 diagn\u00f3ze, s n\u00ed\u017e syn \u017eije. Rodinu p\u0159ed p\u011bti lety podpo\u0159ila benefice Hudba pom\u00e1h\u00e1. Z jej\u00edho v\u00fdt\u011b\u017eku po\u0159\u00eddila auto pro p\u0159evoz invalidn\u00edho voz\u00edku. Dodnes s n\u00edm rodi\u010de voz\u00ed Tom\u00e1\u0161e za vzd\u011bl\u00e1n\u00edm a vzpom\u00ednaj\u00ed, jak moc jim tehdej\u0161\u00ed pomoc zm\u011bnila \u017eivot.<\/p>\n\n\n\n
Kdy\u017e se v roce 2021 organiz\u00e1to\u0159i sousedsk\u00e9 benefice Hudba pom\u00e1h\u00e1 rozhodli podpo\u0159it Tom\u00e1\u0161ka Ln\u011bni\u010dku z Mora\u0161ic, jeho rodina u\u017e n\u011bkolik let \u017eila s diagn\u00f3zou, kter\u00e1 z\u00e1sadn\u011b ovlivnila jej\u00ed ka\u017edodenn\u00ed \u017eivot.<\/p>\n\n\n\n
Tom\u00e1\u0161 se narodil jako zdrav\u00e9 d\u00edt\u011b. Rodi\u010de si v\u0161ak postupn\u011b za\u010dali v\u0161\u00edmat, \u017ee se nevyv\u00edj\u00ed stejn\u011b jako jeho vrstevn\u00edci. Pozd\u011bji za\u010dal l\u00e9zt i chodit, n\u011bkter\u00e9 b\u011b\u017en\u00e9 \u010dinnosti mu ale d\u011blaly pot\u00ed\u017ee.<\/p>\n\n\n\n
P\u0159i\u0161la v\u00e1\u017en\u00e1 diagn\u00f3za<\/p>\n\n\n\n
\u201eV p\u011bti a p\u016fl letech l\u00e9ka\u0159i Tom\u00e1\u0161kovi diagnostikovali Duchennovu svalovou dystrofii. Jde o vz\u00e1cn\u00e9, progresivn\u00ed neuromuskul\u00e1rn\u00ed onemocn\u011bn\u00ed, kdy se svaly nevyv\u00edj\u00ed tak, jak by m\u011bly, a doch\u00e1z\u00ed k jejich po\u0161kozov\u00e1n\u00ed. Ni\u010d\u00ed se, trhaj\u00ed a nahrazuje je tukov\u00e9 vazivo,\u201c popsala onemocn\u011bn\u00ed Tom\u00e1\u0161ova maminka Jana Ln\u011bni\u010dkov\u00e1.<\/p>\n\n\n\n
Nemoc postupn\u011b oslabuje Tom\u00e1\u0161ovy svaly. Chlapec je odk\u00e1zan\u00fd na invalidn\u00ed voz\u00edk a pomoc druh\u00fdch. Pro rodinu proto p\u0159edstavovaly komplikaci i b\u011b\u017en\u00e9 cesty autem, nap\u0159\u00edklad do \u0161koly, na rehabilitace nebo do l\u00e1zn\u00ed. Pr\u00e1v\u011b s t\u00edm ale Ln\u011bni\u010dkov\u00fdm pomohl 15. ro\u010dn\u00edk benefice Hudba pom\u00e1h\u00e1.<\/p>\n\n\n\n
Z vybran\u00fdch pen\u011bz po\u0159\u00eddili Ln\u011bni\u010dkovi automobil a n\u00e1jezdn\u00ed plo\u0161inu, d\u00edky kter\u00e9 mohou Tom\u00e1\u0161e p\u0159ev\u00e1\u017eet p\u0159\u00edmo na voz\u00edku. Pomoc, kterou dostali p\u0159ed p\u011bti lety, jim usnad\u0148uje \u017eivot dodnes.<\/p>\n\n\n\n
Auto, kter\u00e9 zm\u011bnilo ka\u017edodenn\u00ed \u017eivot<\/p>\n\n\n\n
\u201eByla to velk\u00e1 pomoc. Ka\u017edodenn\u00ed cesta do \u0161koly a ze \u0161koly, do l\u00e1zn\u00ed, na rehabilitace. Sami bychom tolik financ\u00ed nesehnali,\u201c vzpom\u00edn\u00e1 Tom\u00e1\u0161\u016fv tat\u00ednek Petr Ln\u011bni\u010dka.<\/p>\n\n\n\n
Upraven\u00e9 auto z\u00e1sadn\u011b zm\u011bnilo \u017eivot rodiny. \u201ePo\u0159\u00eddili jsme auto a n\u00e1jezdn\u00ed plo\u0161inu pro voz\u00edk, abychom mohli naj\u00ed\u017ed\u011bt voz\u00edkem dozadu a nemuseli ho p\u0159ivazovat na seda\u010dky,\u201c vysv\u011btluje Ln\u011bni\u010dkov\u00e1.<\/p>\n\n\n\n
Rodina p\u0159itom zpo\u010d\u00e1tku v\u00e1hala, zda se do benefice v\u016fbec zapojit. \u201eV\u00e1hali jsme, jestli do toho p\u016fjdeme, ale v\u011bd\u011bli jsme, \u017ee mus\u00edme. Sami bychom to nezvl\u00e1dli. Ostych tam byl, nejsme pr\u016fbojn\u00ed,\u201c p\u0159izn\u00e1v\u00e1 Jana Ln\u011bni\u010dkov\u00e1.<\/p>\n\n\n\n
Dnes u\u017e o v\u00fdznamu podobn\u00fdch projekt\u016f nepochybuje. P\u00e9\u010de o d\u00edt\u011b s v\u00e1\u017en\u00fdm onemocn\u011bn\u00edm toti\u017e znamen\u00e1 nejen ka\u017edodenn\u00ed nasazen\u00ed, ale tak\u00e9 vysok\u00e9 finan\u010dn\u00ed n\u00e1klady.<\/p>\n\n\n\n
\u201ePro rodiny je to obrovsk\u00e1 pomoc. Terapie, pom\u016fcky nad r\u00e1mec poji\u0161\u0165ovny. U Tom\u00e1\u0161e u\u017e mluv\u00edme o milionech korun. Je to v\u017edycky pomoc,\u201c \u0159\u00edk\u00e1 maminka Tom\u00e1\u0161e.<\/p>\n\n\n\n
Tom\u00e1\u0161 u\u017e je st\u0159edo\u0161kol\u00e1k<\/p>\n\n\n\n
Od benefice uplynulo p\u011bt let a z mal\u00e9ho chlapce je patn\u00e1ctilet\u00fd student. Letos v z\u00e1\u0159\u00ed nastoupil na st\u0159edn\u00ed \u0161kolu v Jansk\u00fdch L\u00e1zn\u00edch. Pro Tom\u00e1\u0161e i jeho rodi\u010de jde o jednu z nejv\u011bt\u0161\u00edch zm\u011bn v posledn\u00edch letech.<\/p>\n\n\n\n
\u201eJe to zm\u011bna, m\u00e1m nov\u00e9 kamar\u00e1dy,\u201c \u0159\u00edk\u00e1 Tom\u00e1\u0161.<\/p>\n\n\n\n
Nav\u0161t\u011bvuje St\u0159edn\u00ed \u0161kolu Olgy Havlov\u00e9 v Jansk\u00fdch L\u00e1zn\u00edch. Vybral si obchodn\u00ed \u0161kolu, jej\u00ed\u017e dvoulet\u00e9 studium je kv\u016fli rehabilitac\u00edm rozlo\u017een\u00e9 do t\u0159\u00ed let.<\/p>\n\n\n\n
\u201eJe tam s\u00e1m, p\u0159es t\u00fdden bydl\u00ed na intern\u00e1tu. \u0160kola je p\u0159izp\u016fsoben\u00e1 voz\u00ed\u010dk\u00e1\u0159\u016fm a t\u011blesn\u011b posti\u017een\u00fdm d\u011btem. Maj\u00ed k dispozici asistenty a vychovatele,\u201c popisuje maminka.<\/p>\n\n\n\n
Ka\u017edou ned\u011bli rodi\u010de Tom\u00e1\u0161e do Jansk\u00fdch L\u00e1zn\u00ed odvezou a v p\u00e1tek si pro n\u011bj znovu jedou. I p\u0159i t\u011bchto pravideln\u00fdch cest\u00e1ch jim slou\u017e\u00ed automobil po\u0159\u00edzen\u00fd d\u00edky Hudb\u011b pom\u00e1h\u00e1.<\/p>\n\n\n\n
\u201eZvl\u00e1d\u00e1 to dob\u0159e. Je to zm\u011bna pro n\u011bj i pro n\u00e1s,\u201c p\u0159izn\u00e1v\u00e1 Jana Ln\u011bni\u010dkov\u00e1.<\/p>\n\n\n\n
Po letech nep\u0159etr\u017eit\u00e9 p\u00e9\u010de se u\u010d\u00ed samostatnosti<\/p>\n\n\n\n
N\u00e1stup na st\u0159edn\u00ed \u0161kolu p\u0159inesl do \u017eivota Ln\u011bni\u010dkov\u00fdch tak\u00e9 n\u011bco, na co dosud nebyli zvykl\u00ed. Tom\u00e1\u0161 je p\u0159es t\u00fdden mimo domov.<\/p>\n\n\n\n
Jeho onemocn\u011bn\u00ed toti\u017e vy\u017eaduje nep\u0159etr\u017eitou pomoc. B\u011b\u017en\u00e9 \u00fakony, kter\u00e9 zdrav\u00ed vrstevn\u00edci zvl\u00e1daj\u00ed automaticky, jsou pro n\u011bj bez asistence obt\u00ed\u017en\u00e9.<\/p>\n\n\n\n
\u201eKolem n\u011bj je p\u00e9\u010de \u010dty\u0159iadvacet hodin denn\u011b. V\u0161echno podat, p\u0159in\u00e9st, podr\u017eet. A najednou to nen\u00ed. Mus\u00ed b\u00fdt ve \u0161kole samostatn\u011bj\u0161\u00ed a \u0159\u00edct si o pomoc,\u201c vysv\u011btluje maminka.<\/p>\n\n\n\n
Pobyt na intern\u00e1tu je tak pro Tom\u00e1\u0161e nejen za\u010d\u00e1tkem dal\u0161\u00edho vzd\u011bl\u00e1v\u00e1n\u00ed, ale tak\u00e9 p\u0159\u00edle\u017eitost\u00ed u\u010dit se v\u011bt\u0161\u00ed samostatnosti v prost\u0159ed\u00ed, kde m\u00e1 pot\u0159ebnou podporu. Z\u00e1rove\u0148 je to velk\u00e1 zm\u011bna pro rodi\u010de, kte\u0159\u00ed byli zvykl\u00ed zaji\u0161\u0165ovat mu ka\u017edodenn\u00ed p\u00e9\u010di.<\/p>\n\n\n\n
Zlod\u011bj sval\u016f postupuje<\/p>\n\n\n\n
Zat\u00edmco Tom\u00e1\u0161 pozn\u00e1v\u00e1 nov\u00e9 spolu\u017e\u00e1ky, zvyk\u00e1 si na intern\u00e1t a u\u010d\u00ed se v\u011bt\u0161\u00ed samostatnosti, jeho rodina dob\u0159e v\u00ed, \u017ee v\u00e1\u017en\u00e9 onemocn\u011bn\u00ed nezmizelo. Duchennova svalov\u00e1 dystrofie postupn\u011b oslabuje svaly a Tom\u00e1\u0161ovi bere s\u00edlu pot\u0159ebnou i k b\u011b\u017en\u00fdm \u010dinnostem.<\/p>\n\n\n\n
\u201eZlod\u011bj sval\u016f postupuje,\u201c p\u0159izn\u00e1v\u00e1 maminka. \u201eTom\u00e1\u0161ova diagn\u00f3za neumo\u017e\u0148uje zlep\u0161en\u00ed, naopak se bude zhor\u0161ovat. Nem\u016f\u017eeme \u010dekat, \u017ee se bude zlep\u0161ovat,\u201c vysv\u011btluje.<\/p>\n\n\n\n
P\u0159esto se rodina sna\u017e\u00ed, aby nemoc neur\u010dovala \u00fapln\u011b v\u0161echno. Tom\u00e1\u0161 nastoupil na st\u0159edn\u00ed \u0161kolu, na\u0161el si nov\u00e9 kamar\u00e1dy a postupn\u011b z\u00edsk\u00e1v\u00e1 zku\u0161enosti, kter\u00e9 k dosp\u00edv\u00e1n\u00ed pat\u0159\u00ed.<\/p>\n\n\n\n
A pr\u00e1v\u011b k tomu nep\u0159\u00edmo p\u0159isp\u011bla tak\u00e9 benefice Hudba pom\u00e1h\u00e1. Pen\u00edze vybran\u00e9 p\u0159ed p\u011bti lety nez\u016fstaly jednor\u00e1zovou pomoc\u00ed. Automobil, kter\u00fd si d\u00edky nim Ln\u011bni\u010dkovi mohli po\u0159\u00eddit, rodin\u011b slou\u017e\u00ed d\u00e1l a usnad\u0148uje j\u00ed i novou \u017eivotn\u00ed etapu.<\/p>\n\n\n\n
Iveta N\u00e1dvorn\u00edkov\u00e1<\/p>\n\n\n\n
Svitavsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/svitavsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Vz\u00e1cn\u00e1 nemoc mu bere svaly, ale neodradila ho od velk\u00e9ho \u017eivotn\u00edho kroku. Patn\u00e1ctilet\u00fd Tom\u00e1\u0161 Ln\u011bni\u010dka z Mora\u0161ic nastoupil na st\u0159edn\u00ed \u0161kolu, \u017eije p\u0159es t\u00fdden na […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":4375,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-65511","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/65511","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=65511"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/65511\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/4375"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=65511"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=65511"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=65511"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}