Kate\u0159ina (35) z Ostravy trp\u00ed vz\u00e1cn\u00fdm typem epilepsie, tzv. syndromem Lennox-Gastaut. Ten se projevuje \u010dast\u00fdmi epileptick\u00fdmi z\u00e1chvaty, ment\u00e1ln\u00edm posti\u017een\u00edm a dal\u0161\u00edmi zdravotn\u00edmi komplikacemi. U Kate\u0159iny se prvn\u00ed obt\u00ed\u017ee objevily ji\u017e v \u00fatl\u00e9m v\u011bku. Oproti jin\u00fdm d\u011btem byla pozadu v motorick\u00e9m i ment\u00e1ln\u00edm v\u00fdvoji, to ale rodina p\u0159i\u010d\u00edtala hlavn\u011b d\u011btsk\u00e9 mozkov\u00e9 obrn\u011b, kterou l\u00e9ka\u0159i Kate\u0159in\u011b diagnostikovali hned po narozen\u00ed. Jej\u00ed maminka a sestra si ale za\u010daly v\u0161\u00edmat tak\u00e9 drobn\u00fdch z\u00e1\u0161kub\u016f na jej\u00edm t\u011ble.<\/p>\n\n\n\n
\u201ePediatri\u010dka n\u00e1s uklid\u0148ovala, \u017ee se nem\u00e1me b\u00e1t, \u017ee se to s v\u011bkem ur\u010dit\u011b zlep\u0161\u00ed,\u201c vzpom\u00edn\u00e1 Kate\u0159inina sestra Jana (47). Situace se ale naopak zhor\u0161ovala \u2013 z\u00e1\u0161kuby byly \u010dast\u011bj\u0161\u00ed a intenzivn\u011bj\u0161\u00ed. D\u011btsk\u00e1 l\u00e9ka\u0159ka proto Kate\u0159inu poslala na neurologii. Po \u0159ad\u011b vy\u0161et\u0159en\u00ed neurolo\u017eka rodin\u011b sd\u011blila, \u017ee Kate\u0159ina pravd\u011bpodobn\u011b trp\u00ed epilepsi\u00ed, a nasadila j\u00ed protiz\u00e1chvatov\u00e9 l\u00e9ky. \u201eNikdo n\u00e1m ale moc nevysv\u011btlil, co nemoc obn\u00e1\u0161\u00ed, pro\u010d ji sestra m\u00e1 a jestli je n\u011bjak\u00e1 nad\u011bje, \u017ee se jej\u00ed stav zlep\u0161\u00ed. Nau\u010dila se chodit, mluvit, ale d\u00e1le u\u017e se nevyv\u00edjela. Zastavila se na \u00farovni p\u0159ibli\u017en\u011b \u010dty\u0159let\u00e9ho d\u00edt\u011bte,\u201c \u0159\u00edk\u00e1 Jana, kter\u00e1 se o sestru star\u00e1. <\/p>\n\n\n\n
\u201eL\u00e9ka\u0159ka n\u00e1m jen po\u0159\u00e1d opakovala, \u017ee m\u00e1 Ka\u010dka v hlav\u011b bublinu, kter\u00e1 j\u00ed tla\u010d\u00ed na mozek, a kv\u016fli tomu m\u00e1 epileptick\u00e9 z\u00e1chvaty, a \u017ee se s t\u00edm ned\u00e1 nic d\u011blat, \u017ee je m\u016f\u017eeme jen zkou\u0161et tlumit,\u201c popisuje Jana. Rodina Kate\u0159inu vozila ka\u017ed\u00e9 t\u0159i m\u011bs\u00edce na kontroly, l\u00e9ka\u0159ka j\u00ed r\u016fzn\u011b m\u011bnila l\u00e9\u010dbu, ale nic nepom\u00e1halo. Z\u00e1chvaty se neda\u0159ilo tlumit, naopak byly \u010d\u00edm d\u00e1l \u010dast\u011bj\u0161\u00ed a siln\u011bj\u0161\u00ed. <\/p>\n\n\n\n
\u201eKa\u010dka m\u00edvala i 20 z\u00e1chvat\u016f denn\u011b. Ka\u017ed\u00fd byl jin\u00fd, nedalo se je p\u0159edv\u00eddat. P\u0159i ka\u017ed\u00e9m z\u00e1chvatu m\u011bla k\u0159e\u010de, plakala bolest\u00ed, ztr\u00e1cela v\u011bdom\u00ed a nemohla d\u00fdchat. My s mamkou jsme j\u00ed nemohly nijak pomoct, jen jsme \u010dekaly, a\u017e to p\u0159ejde, a doufaly, \u017ee se nezran\u00ed nebo neudus\u00ed. Po z\u00e1chvatu byla v\u017edycky hrozn\u011b vy\u010derpan\u00e1,\u201c popisuje t\u011b\u017ek\u00e9 chv\u00edle Jana. V sedmn\u00e1cti letech m\u011bla Kate\u0159ina siln\u00fd z\u00e1chvat, p\u0159i kter\u00e9m si poranila hlavu, co\u017e zp\u016fsobilo krv\u00e1cen\u00ed do mozku. Kv\u016fli tomu se jej\u00ed stav v\u00fdrazn\u011b zhor\u0161il. \u201eP\u0159edt\u00edm zvl\u00e1dala chodit, mluvila a alespo\u0148 tro\u0161ku rozum\u011bla, co j\u00ed \u0159\u00edk\u00e1me. Po \u00farazu hlavy se ale v\u0161e zm\u011bnilo a Ka\u010dka se v\u00fdvojov\u011b vr\u00e1tila na \u00farove\u0148 batolete,\u201c \u0159\u00edk\u00e1 Jana. Od t\u00e9 doby Kate\u0159ina jenom le\u017e\u00ed nebo s oporou sed\u00ed, dok\u00e1\u017ee v omezen\u00e9 m\u00ed\u0159e pohybovat pouze rukama, nemluv\u00ed, nezvl\u00e1dne se ani naj\u00edst, m\u00e1 plenky.
P\u0159ed p\u011bti lety se Jana n\u00e1hodn\u011b dozv\u011bd\u011bla, \u017ee existuje tzv. vagov\u00fd stimul\u00e1tor, kter\u00fd pom\u00e1h\u00e1 zastavovat prob\u00edhaj\u00edc\u00ed z\u00e1chvaty. Za\u010dala proto p\u00e1trat, kde by jej mohli jej\u00ed sest\u0159e voperovat. Dostala se tak do p\u00e9\u010de pan\u00ed docentky Dole\u017ealov\u00e9 v Centru pro epilepsie v Brn\u011b, kter\u00e1 j\u00ed provedla dal\u0161\u00ed vy\u0161et\u0159en\u00ed a zjistila, \u017ee Kate\u0159ina trp\u00ed syndromem Lennox-Gastaut. Spr\u00e1vnou diagn\u00f3zu se tak rodina dozv\u011bd\u011bla a\u017e v Kate\u0159inin\u00fdch 30 letech. Vagov\u00fd stimul\u00e1tor Kate\u0159in\u011b v centru voperovali, ale bohu\u017eel u n\u00ed nefungoval. L\u00e9ka\u0159ka si Kate\u0159inu na\u0161t\u011bst\u00ed nechala v p\u00e9\u010di i nad\u00e1le a hledala dal\u0161\u00ed mo\u017enosti, jak j\u00ed pomoci. A kdy\u017e se v \u010cesku objevila nov\u00e1 l\u00e9\u010dba tlum\u00edc\u00ed z\u00e1chvaty pr\u00e1v\u011b u syndromu Lennox-Gastaut, na n\u011bj\u017e b\u011b\u017en\u00e9 l\u00e9ky nefunguj\u00ed, hned ji Kate\u0159in\u011b nasadila.<\/p>\n\n\n\n
Na\u0161el se l\u00e9k<\/strong><\/p>\n\n\n\n \u201eL\u00e9\u010dba sest\u0159e rychle zabrala a po\u010det z\u00e1chvat\u016f se u n\u00ed sn\u00ed\u017eil na minimum. Sem tam se n\u011bjak\u00fd objev\u00ed, ale je v\u00fdrazn\u011b krat\u0161\u00ed a slab\u0161\u00ed ne\u017e d\u0159\u00edve,\u201c popisuje Kate\u0159ina a dopl\u0148uje: \u201eJe to obrovsk\u00e1 \u00faleva pro Ka\u010dku, proto\u017ee z\u00e1chvaty pro ni byly v\u017edycky neskute\u010dn\u011b bolestiv\u00e9 a vy\u010derp\u00e1vaj\u00edc\u00ed, ale i pro m\u011b, proto\u017ee se nemus\u00edm tolik strachovat, \u017ee se j\u00ed p\u0159i z\u00e1chvatu n\u011bco stane. M\u016f\u017eu ji i na chv\u00edli posadit na \u017eidli, ani\u017e bych se b\u00e1la, \u017ee spadne.\u201c<\/p>\n\n\n\n \u201eKdy\u017e je teplo, beru Ka\u010dku ven a jezd\u00edme spole\u010dn\u011b i na dovolenou. Mus\u00edm v\u017edy v\u0161echno pe\u010dliv\u011b napl\u00e1novat, ale zvl\u00e1d\u00e1me to bez v\u011bt\u0161\u00edch probl\u00e9m\u016f,\u201c \u0159\u00edk\u00e1 Jana. P\u0159es den j\u00ed pom\u00e1h\u00e1 s p\u00e9\u010d\u00ed o sestru pe\u010dovatelka, proto\u017ee Jana mus\u00ed chodit do pr\u00e1ce, aby v\u0161e finan\u010dn\u011b zvl\u00e1dla. Pracuje v neziskov\u00e9m sektoru jako zdravotn\u00ed medi\u00e1torka \u2013 pom\u00e1h\u00e1 lidem, pro kter\u00e9 je to slo\u017eit\u00e9, za\u0159izovat zdravotn\u00ed p\u00e9\u010di, komunikuje za n\u011b s \u00fa\u0159ady, voz\u00ed je k l\u00e9ka\u0159i, na rehabilitaci a podobn\u011b. \u201eNa\u0161t\u011bst\u00ed m\u00e1m volnou pracovn\u00ed dobu a mohu si b\u011bhem dne odsko\u010dit za Ka\u010dkou, abych ji nakrmila nebo p\u0159ebalila, zavezla ji k l\u00e9ka\u0159i a za\u0159\u00eddila v\u0161e, co pot\u0159ebuje,\u201c vysv\u011btluje Jana, kter\u00e1 by cht\u011bla v\u00edce pom\u00e1hat i lidem, kte\u0159\u00ed se staraj\u00ed o podobn\u011b nemocn\u00e9 lidi, jako je jej\u00ed sestra. \u201eI kdy\u017e je n\u011bkdy t\u011b\u017ek\u00e9 v\u0161e zvl\u00e1dat, nikdy jsem neuva\u017eovala o tom, \u017ee bych Ka\u010dku dala do \u00fastavn\u00ed p\u00e9\u010de. Nemohu vyu\u017e\u00edt ani odleh\u010dovac\u00ed slu\u017ebu, proto\u017ee na ciz\u00ed lidi si sestra t\u011b\u017eko zvyk\u00e1, tak\u017ee jsem moc r\u00e1da, \u017ee kdy\u017e pot\u0159ebuji na chvilku vypnout nebo chci str\u00e1vit n\u011bjak\u00fd \u010das s vnukem, s p\u00e9\u010d\u00ed mi pom\u00e1haj\u00ed synov\u00e9 a \u0161ir\u0161\u00ed rodina,\u201c uzav\u00edr\u00e1 Jana.<\/p>\n","protected":false},"excerpt":{"rendered":" Kate\u0159ina (35) z Ostravy trp\u00ed vz\u00e1cn\u00fdm typem epilepsie, tzv. syndromem Lennox-Gastaut. Ten se projevuje \u010dast\u00fdmi epileptick\u00fdmi z\u00e1chvaty, ment\u00e1ln\u00edm posti\u017een\u00edm a dal\u0161\u00edmi zdravotn\u00edmi komplikacemi. U Kate\u0159iny […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":65613,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-65612","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/65612","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=65612"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/65612\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/65613"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=65612"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=65612"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=65612"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
Od smrti maminky, kter\u00e1 zem\u0159ela na za\u010d\u00e1tku leto\u0161n\u00edho roku na rakovinu, o Kate\u0159inu pe\u010duje Jana. Bydl\u00ed spolu v Janin\u011b dom\u011b, aby si byly nabl\u00edzku. Jan\u011b pom\u00e1haj\u00ed jej\u00ed dva synov\u00e9, jeden z nich i se svou partnerkou \u017eije v dom\u011b s nimi. \u201eKa\u010dka je na m\u011b hodn\u011b fixovan\u00e1, od nikoho jin\u00e9ho se nenech\u00e1 nakrmit. Sp\u00edme spolu v posteli, abych byla nabl\u00edzku, kdyby m\u011bla z\u00e1chvat, ale i proto, \u017ee m\u00e1 r\u00e1da, kdy\u017e se k sob\u011b m\u016f\u017eeme p\u0159itulit a koukat na televizi nebo jen tak le\u017eet,\u201c popisuje Jana, kter\u00e1 se sna\u017e\u00ed, aby sestra m\u011bla i p\u0159es sv\u016fj handicap hezk\u00fd \u017eivot. <\/p>\n\n\n\n