Dv\u011b tis\u00edcovky l\u00edstk\u016f za \u0161edes\u00e1t vte\u0159in! Benefice Hudba pom\u00e1h\u00e1 potvrdila, \u017ee nez\u00e1le\u017e\u00ed na velikosti hv\u011bzd, ale na s\u00edle p\u0159\u00edb\u011bh\u016f. U\u017e dvacet let m\u011bn\u00ed \u017eivoty rodin s hendikepovan\u00fdmi d\u011btmi v regionu Litomy\u0161le a nov\u00fd dokument ukazuje, kam a\u017e m\u016f\u017ee dos\u00e1hnout pomoc, kter\u00e1 nep\u0159estane po koncertech. Letos v\u00fdt\u011b\u017eek p\u016fjde na desetiletou rehabilitaci t\u0159in\u00e1ctilet\u00e9 Eriky, kter\u00e1 se nenarodila s diagn\u00f3zou, ale s obrovskou v\u016fl\u00ed. A kdo v\u00ed? Mo\u017en\u00e1 za p\u00e1r let p\u016fjde po sv\u00fdch na vysokou studovat psychologii.<\/p>\n\n\n\n
Marek Ztracen\u00fd vyprodal 30 tis\u00edc vstupenek za necelou hodinu, sv\u011btov\u00e1 megastar Madonna pot\u0159ebovala na deset tis\u00edc vstupenek podobn\u00fd \u010das. Sousedsk\u00e1 benefice Hudba pom\u00e1h\u00e1 ale nasadila je\u0161t\u011b zb\u011bsilej\u0161\u00ed tempo.<\/p>\n\n\n\n
Zhruba dva tis\u00edce l\u00edstk\u016f zmizely b\u011bhem jedin\u00e9 minuty od spu\u0161t\u011bn\u00ed p\u0159edprodeje. N\u011bkolik voln\u00fdch m\u00edst zb\u00fdv\u00e1 jen na koncerty v kostele v Mora\u0161ic\u00edch a p\u00e1r l\u00edstk\u016f je na Narozeninov\u00e9 gala v kostele v Neratov\u011b. Zb\u00fdvaj\u00edc\u00ed vstupenky tady: https:\/\/hudbapomaha.enigoo.cz\/app\/tickets\/events<\/a><\/p>\n\n\n\n Za dva t\u00fddny vyraz\u00ed dobrovoln\u00edci na dvac\u00e1tou \u0161\u0148\u016fru benefi\u010dn\u00edch koncert\u016f festivalu Hudba pom\u00e1h\u00e1. L\u00edstky \u0161ly do prodeje v ned\u011bli v deset hodin dopoledne. A byl to zase fi\u010d\u00e1k.<\/p>\n\n\n\n \u201eDevades\u00e1t procent n\u00e1kup\u016f bylo uskute\u010dn\u011bno v \u010dase 10.01 hodin. Zb\u00fdv\u00e1 p\u00e1r l\u00edstk\u016f do Mora\u0161ic, ale vstupenky do Litomy\u0161le, Poli\u010dky nebo Vysok\u00e9ho M\u00fdta zmizely okam\u017eit\u011b,\u201c uvedl \u0159editel festivalu Hudba pom\u00e1h\u00e1 Karel Teleck\u00fd.<\/p>\n\n\n\n P\u0159ekvapen\u00ed p\u0159i\u0161lo po premi\u00e9\u0159e<\/p>\n\n\n\n P\u0159edzv\u011bst\u00ed 20. ro\u010dn\u00edku benefice je nov\u00fd dokument, kter\u00fd mapuje p\u0159\u00edb\u011bhy rodin, kter\u00e9 Hudba pom\u00e1h\u00e1 b\u011bhem uplynul\u00fdch deseti let podpo\u0159ila. Premi\u00e9ru m\u011bl v ned\u011bli v kin\u011b v Chocni a lid\u00e9 ho mohou zhl\u00e9dnout i na kan\u00e1lu YouTube (https:\/\/www.youtube.com\/watch?v=7Sv-arJr86A<\/a>).<\/p>\n\n\n\n S premi\u00e9rou dokumentu ale p\u0159i\u0161lo dal\u0161\u00ed p\u0159ekvapen\u00ed. Po obrovsk\u00e9m z\u00e1jmu a rychl\u00e9m vyprod\u00e1n\u00ed vstupenek na nadch\u00e1zej\u00edc\u00ed \u0161\u0148\u016fru po\u0159adatel\u00e9 ozn\u00e1mili, \u017ee do prodeje pou\u0161t\u00ed posledn\u00ed m\u00edsta na speci\u00e1ln\u00ed narozeninov\u00fd galakoncert v neratovsk\u00e9m kostele. Ten se uskute\u010dn\u00ed p\u0159esn\u011b t\u00fdden p\u0159ed prvn\u00edmi koncerty v Mora\u0161ic\u00edch, a to 21. listopadu v 18 hodin.<\/p>\n\n\n\n Prvn\u00ed tis\u00edce pro spln\u011bn\u00ed snu Eriky<\/p>\n\n\n\n Leto\u0161n\u00ed jubilejn\u00ed benefice podpo\u0159\u00ed Eriku Beranovou z He\u0159manova M\u011bstce, jej\u00edm\u017e velk\u00fdm snem je chodit. Na \u00fa\u010dtu jsou pro rodinu prvn\u00ed pen\u00edze u\u017e nyn\u00ed.<\/p>\n\n\n\n \u201eDvacet \u0161est tis\u00edc korun. Touhle \u010d\u00e1stkou bych za n\u00e1s v\u0161echny r\u00e1d vykopnul a dal ji Beranov\u00fdm jako za\u010d\u00e1tek cel\u00e9ho benefi\u010dn\u00edho konceptu,\u201d \u0159ekl Adam Faltus, re\u017eis\u00e9r dokumentu. \u010c\u00e1stka darovan\u00e1 rodin\u011b se rovn\u00e1 polovin\u011b d\u00e9lky 52 minutov\u00e9ho dokumentu.<\/p>\n\n\n\n V\u0161echny podpo\u0159en\u00e9 rodiny se shoduj\u00ed na jednom. Hudba pom\u00e1h\u00e1 jim z\u00e1sadn\u011b zm\u011bnila \u017eivot. Ostatn\u011b i o tom se hovo\u0159ilo na za\u010d\u00e1tku z\u00e1\u0159\u00ed na h\u00e1jovn\u011b u Budislavi, kde se na oslav\u011b 20. narozenin benefice v\u011bt\u0161ina dokumentu nat\u00e1\u010dela. Hermanovi, Tereskovi, Ln\u011bni\u010dkovi, Dole\u017ealovi, Vop\u00e1lkovi, Novotn\u00ed, \u0160t\u011bp\u00e1nkovi a Beranovi. T\u011bm v\u0161em zas\u00e1hla sousedsk\u00e1 benefice do \u017eivota.<\/p>\n\n\n\n Div\u00e1ci se v dokumentu znovu potkaj\u00ed s rodinami, jejich\u017e p\u0159\u00edb\u011bhy pokra\u010duj\u00ed i mimo p\u00f3dia s\u00e1l\u016f b\u011bhem koncertn\u00edch \u0161\u0148\u016fr. \u201eV\u00edme, co m\u00e1 Eli\u0161ka r\u00e1da, v \u010dem je spokojen\u00e1,\u201c vysv\u011btluje ve sn\u00edmku Lubo\u0161 Novotn\u00fd, tat\u00ednek Eli\u0161ky, kter\u00e1 trp\u00ed vz\u00e1cnou genetickou poruchou CDKL5 Deficiency Disorder.<\/p>\n\n\n\n S man\u017eelkou Alenou pro ni s l\u00e9ka\u0159i \u0159e\u0161\u00ed paliativn\u00ed pl\u00e1n. Prod\u011bl\u00e1v\u00e1 toti\u017e siln\u00e9 epileptick\u00e9 z\u00e1chvaty, kter\u00e9 jsou \u010dasto \u0159e\u0161iteln\u00e9 pouze um\u011bl\u00fdm sp\u00e1nkem.<\/p>\n\n\n\n David dojde po sv\u00fdch na n\u00e1kup<\/p>\n\n\n\n S Davidem Hermanem z Vysok\u00e9ho M\u00fdta za\u0161el \u0161t\u00e1b na n\u00e1kup do pek\u00e1rny. Pro n\u011bkoho b\u011b\u017en\u00e1 v\u011bc, pro tohoto kluka z\u00e1\u017eitek. Je\u0161t\u011b p\u0159ed n\u011bkolika lety mu toti\u017e l\u00e9ka\u0159i ned\u00e1vali \u0161anci, \u017ee bude n\u011bkdy chodit.<\/p>\n\n\n\n Davida v \u0161esti t\u00fddnech \u017eivota zas\u00e1hl syndrom n\u00e1hl\u00e9ho \u00famrt\u00ed kojence a od t\u00e9 doby se pot\u00fdk\u00e1 s mozkovou obrnou. Po dev\u00edti letech od \u00fa\u010dasti v Hudb\u011b pom\u00e1h\u00e1 ale p\u0159i\u0161el na koncert po sv\u00fdch. \u201eUjdu \u010dty\u0159i kilometry,\u201c \u0159ekl David s \u00fasm\u011bvem.<\/p>\n\n\n\n U Tereskov\u00fdch doma M\u00ed\u0161a hrd\u011b ukazuje medaile za jeho sportovn\u00ed \u00fasp\u011bchy. Narodil se s d\u011btskou mozkovou obrnou, podle doktor\u016f m\u011bl b\u00fdt le\u017e\u00e1k, ale dnes studuje obchodn\u00ed akademii v Jansk\u00fdch l\u00e1zn\u00edch a bydl\u00ed na intern\u00e1tu. Minul\u00fd rok se taky stal mistrem Evropy v hodu diskem. \u201eZa to, kam jsem se dostal, vd\u011b\u010d\u00edm t\u00e1tovi,\u201c dodal Michal.<\/p>\n\n\n\n Co se d\u011bje po festivalu?<\/p>\n\n\n\n V dokumentu div\u00e1ci nahl\u00e9dnou pod povrch ka\u017edodenn\u00edho \u017eivota rodiny s hendikepovan\u00fdm d\u00edt\u011btem. Uvid\u00ed, co dok\u00e1\u017ee l\u00e1ska m\u00e1my a t\u00e1ty, co v\u0161e stoj\u00ed za oponou show, kterou Hudba pom\u00e1h\u00e1 pro rodiny p\u0159iprav\u00ed, a tak\u00e9 to, jak b\u011b\u017en\u00e9 \u017eivotn\u00ed p\u0159\u00edb\u011bhy a probl\u00e9my pokra\u010duj\u00ed navzdory velk\u00e9 \u017eivotn\u00ed zm\u011bn\u011b v podob\u011b d\u00edt\u011bte s posti\u017een\u00edm.<\/p>\n\n\n\n V leto\u0161n\u00edm roce p\u016fjde v\u00fdt\u011b\u017eek benefi\u010dn\u00edch koncert\u016f rodin\u011b t\u0159in\u00e1ctilet\u00e9 Eriky Beranov\u00e9 z He\u0159manova M\u011bstce. D\u00edvka si od doby, kdy se nau\u010dila ps\u00e1t, p\u0159eje pod strome\u010dek jedin\u00e9 \u2013 chodit.<\/p>\n\n\n\n Narodila se se vz\u00e1cn\u00fdm onemocn\u011bn\u00edm dopa-responzivn\u00ed dystoni\u00ed, kter\u00e9 v ran\u00e9m v\u011bku spustilo o\u010dkov\u00e1n\u00ed, z\u016fstala uv\u011bzn\u011bn\u00e1 ve vlastn\u00edm t\u011ble a odk\u00e1zan\u00e1 na invalidn\u00ed voz\u00edk. B\u011b\u017en\u00e9 testy selhaly a rodina diagn\u00f3zu odhalila a\u017e po sedmi letech.<\/p>\n\n\n\n Spr\u00e1vn\u00e1 l\u00e9\u010dba ale p\u0159inesla z\u00e1zrak. Erika za\u010dala mluvit, prok\u00e1zala obrovskou hou\u017eevnatost a dnes \u00fasp\u011b\u0161n\u011b studuje na b\u011b\u017en\u00e9 z\u00e1kladn\u00ed \u0161kole. Jej\u00edm velk\u00fdm snem je po sv\u00fdch zam\u00ed\u0159it na vysokou \u0161kolu a vystudovat psychologii.<\/p>\n\n\n\n Je to \u010f\u00e1bel, \u0159\u00edk\u00e1 o Erice atlet M\u00ed\u0161a<\/p>\n\n\n\n Leto\u0161n\u00ed ro\u010dn\u00edk Hudby pom\u00e1h\u00e1 proto poprv\u00e9 stav\u00ed desetilet\u00fd koncept, jeho\u017e c\u00edlem je dostat Eriku na nohy \u2013 ji\u017e nyn\u00ed toti\u017e zvl\u00e1dne ud\u011blat n\u011bkolik prvn\u00edch krok\u016f.<\/p>\n\n\n\n C\u00edlov\u00e1 \u010d\u00e1stka 1,5 milionu korun nep\u016fjde na jednu drahou pom\u016fcku, ale na komplexn\u00ed s\u00ed\u0165 vz\u00e1jemn\u011b propojen\u00e9 pomoci: vybudov\u00e1n\u00ed dom\u00e1c\u00ed t\u011blocvi\u010dny, intenzivn\u00ed rehabilitace, terapeuta a osobn\u00ed asistenci.<\/p>\n\n\n\n Finan\u010dn\u00ed podpora tak Erice pom\u016f\u017ee nejen k samostatn\u00e9mu pohybu, ale i k napln\u011bn\u00ed jej\u00edch \u017eivotn\u00edch sn\u016f. \u201eEri\u010dka je \u010f\u00e1bel a mysl\u00edm, \u017ee do \u017eivota v\u00e1m zase p\u0159inese n\u011bco jin\u00e9ho,\u201c uzav\u0159el M\u00ed\u0161a Tereska, kter\u00fd se s Erikou zn\u00e1 ze sportovn\u00edch akc\u00ed. Pro \u0161kola\u010dku je mlad\u00fd atlet na voz\u00edku velkou inspirac\u00ed.<\/p>\n\n\n\n Iveta N\u00e1dvorn\u00edkov\u00e1<\/p>\n\n\n\n Svitavsk\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/svitavsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Dv\u011b tis\u00edcovky l\u00edstk\u016f za \u0161edes\u00e1t vte\u0159in! Benefice Hudba pom\u00e1h\u00e1 potvrdila, \u017ee nez\u00e1le\u017e\u00ed na velikosti hv\u011bzd, ale na s\u00edle p\u0159\u00edb\u011bh\u016f. U\u017e dvacet let m\u011bn\u00ed \u017eivoty rodin […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":15325,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-65747","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/65747","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=65747"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/65747\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/15325"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=65747"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=65747"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=65747"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}